Walking with MS after Novantrone

[Call1800POO]

Thanks for posting.

I am trying to find some device to assist my walking, and you presentation has helped my search.

Cheers.

from,

del-boy.

[JesusSk8z]

what a brave women,,,

[mebeki]

Hi! I've had MS myself for seven years now, with symptoms like numbness in my legs, arms, and torso, loss of vision (almost completely, but it's back for the most part now), and I eventually wound up in a wheelchair. I've been getting Novantrone now for a while, and although it's not perfect, I'm walking relatively well now. You really reminded me of the past months for me. Keep it up!! You're doing so well!! :)

[karena321]

Hi! I was going through my subers 2day, & noticed your name, so I clicked it 2 meet U. I'm not familiar with any meds, per se, bcause every one the neuro gave me, made me sleepy,& I couldn't function, so I never really took any. 4-10-07, I started with chelation therapy, which seems 2 slowly, but surely help me. Even tho I don't have ALL vids up, I aM DOCUMENTING;the worse, nt up yet.U R doing GRT!Hpe 2 talk 2 U later!!Last yr, I had a fall which gave me mch pain & set back, so I'm wkN on it!LTR

[6508396]

I had a Neurologist who didn't care about long-term side effects. He wanted me to have a good quality of life right now. I say if it works now and you feel good keep using it. Your an inspiration to us all!!!

[TAJAPR]

It looks like you have made some definite improvements upon your mobility. Congratulations and keep up the good work.

[les4choupaschweppes]

My mom has MS and when I was nine she was diagnosed with Breast Cancer...Went through many chemo's and after a year in bed she was back learning how to walk!! Now she is awesome and exersising 1 a week!! now i am 12 and hopeing nothing elese goes wrong!!

[angelafreedman21]

While Novantrone (Mitoxantrone) may have had positive results in this patient, please keep in mind that this is a GLOBAL immune suppressant. This intervention has many potential long term side effects. It would be better to use stem cell therapy such as what Cellmedicine is doing.

[retto76]

Prior to any SCT, a person's immune system must first be wiped out using CHEMOTHERAPY! Please look up the methods on cellmedicine's own webpage-they use cyclophosphamide (Cytoxan), along with many other drugs. Cytoxan is also a GLOBAL immune suppressant, with many potential long term side effects, not to mention side effects of the other meds involved w/SCT. I myself believe in the promise of stem cell therapies,but please don't try to imply that treatment with Novantrone is MORE risky than SCT.

[ahmedinho2006]

hi i have ms

and i right now i feel heaviness in the walk

and numbness in like 75% of my body

i just want to know does numbness stays or goes away?

bcoz its now like 3 weeks and more

and it started make me little depressed

i took steroids in saline and now in pills

but the numbness still there though its less than before the steroids.

[nicoleqt6]

I have tears in my eyes... I hate to see how MS affects anyone and am afraid for myself. But you are doing amazing! and with a beautiful smile on your face! Keep it up hun!

Much Love,

Deanna

[FI1981]

I'm 6 months into mitoxantrone.I hope you continue to make good progress.Keep it up girl.

[Sweet0blivion]

I was diagnosed with MS today...your video made me smile, you're strong

[aews175]

Thank you for your post. It's straightforward and informative. I plan to share this with a friend who's just starting Novantrone. People always like to know about other people's experience, even if it's not identical.

I hope your progress continues.

Anne-Eliz.

[worktosser]

When I see this video, I see unbelievable strength. Your an amazing woman. Thank you for sharing that.

-- Locutus

[MedievalIslander]

Very inspiring!

[thedikler]

ongratulations. I. do hope the treatment continues to work so well for you

[guitaraficionado]

Thank you for posting --it's good to see someone do well with Novantrone (which my doc recommends, but I'm afraid of bad side effects). Best wishes to you!