Added: 2 years ago
From: SuzieW27
Views: 4,019
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  • I have spina bifida. I just celebrated my 40th birthday. Life is good. If anyone would like, you can email me at lorireece1@comcast.net. I'm always eager to meet people who share the same experiences I do.

  • God bless you and your baby. Keep up the great work, you are a fantastic mother, your baby will grow up to be a happy wonderful person.

  • @kikicreamify

    Thank you so much for your comment. We do what we can and the rest is up to God. Sure would love to see him walk someday. Thanks again!

  • Love the video! Your a great parent! My son has SB too.God bless

  • hes so clever... im 20 and also have SB... it hasnt been an easy ride but I'm still here loving life... dont give up! even in the tough times!

  • Thanks for checking out the video. I'm always happy to hear from others who have SB. I hope you're doing well. What level are you? Have you gained function since you were young or has it remained the same? I always wonder if there is a chance that my son could someday wake up and realize that he has legs. Crazy, I know, but he has muscle there, I'm just not sure he knows how to use it. I'm hoping with training we can teach him.

  • Aw he's too adorable. I'm sixteen and have spina bifida too, and I know how hard it must be for you guys. I hope all the therapy helps out for him!

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