Added: 4 years ago
From: libertygurl1963
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  • Hi Gracie...thanx! Tristan fights daily with dust allergies despite my constant cleaning & clean air purifier in our home. She sees her ENT Specialist & Pulminary Specialist regularly every 4-6 months. She is a happy little girl thru all the medical issues she has & hospitalizations, doc appts & tests. She is my strength when I just want to fall apart.

  • She is beautiful i would like to see how she is doing now <3 much love

  • I heard what she had I feel bad. We will be prayig for her! I'm gonna be posted my pictures I got in the plane. My FB name is Nathanael Mason Taylor. I hope she gets better. We will be praying for her.

  • Didn't get to do too much in Magic Kingdom is what I meant.

  • So she didn't get to do much because of the fever? That's too bad. She looks so cute in her princess dress though.

  • i hope everyone is praying for your family and others going through this.. it is so kind of disney to do this for everyone who is going through this god bless your family!!!

  • Praying for you all. Your daughter is an angel!

  • your daughter is so beautiful i wish u the best for her and ur family. God Bless U all

    <3

  • She truly is a princess, I am praying for your precious little girl

    In Christs Love

    Michelle~

  • Now she is having trouble with her sleep apnea. Her ENT Specialist examined her said her adenoids have grown back so she has to go into the hosp Jan 6th to have a sleep study done & have allergy testing done. Then Jan 19th she will be going into the hosp to have her adenoids removed a second time. Her adenoids are very swollen & are infected & obstructing her breathing. She has been sleeping with me every night cuz I'm affraid I won't hear her thru the baby monitor. We hope this is her last surg

  • I am sure it will be. She has a very lovely person watching over her.

  • I love seeing smiles on young children's faces after or while being sick. I can't believe that she had a 102.3 degree fever! Is she doing well now? She looks so beautiful

  • thanx, she did have a 102.3 fever while at Disney World. The First Aid Unit for Make A Wish families took her temp & they gave her some Tylenol & we stayed for 3 hrs til her fever broke. She smiles thru alot more than I ever could.

  • Omg she is so pretty and a totally princess. Hope your Little Princess is well!.

  • God Bless Tristan! I'm one of the Legacy regulars- I post frequently. I've seen you (or Tristan) post before, not too long ago. Heartbutt is just gorgeous!

    Luv,

    Cheryl

    PS- I'm Luvbarbaro on Tracey's site

  • sniff sniff :)

  • OMIGIOSH! That is so precious! How is she doin now??

  • aww shes gorgouse i hope she is well agein she is a disney princess

  • i'm glad to hear she is doing fine! how was ur trip to florida?

  • What an absolutely amazing little girl! It's so touching to see the smile on her face getting to meet the princesses and see the horses. So glad she's doing better and that she got to have such a magical experience!

  • She's adorable How is she?

  • Oh, she's adorable! How is she doing now?

  • thanx, Tristan is actually doing good right now, sort of in remission I guess. She is such a joy to me & love her so much.

  • God bless ur little girl!! she look so cute with that princess makeover!! I'm 18 year old, and u have no idea of how much I'm wishing have 10 years old, to do this makeover!!

  • This was an amazing and very heartwarming video. I first went to the Bibbidi Bobbidi Botique as a 15 year old, and am going again next week for my 15th birthday. I had a ball and can't possible imagine how much Tristian loved it. God Bless her

  • Thank you for that beautiful video. I was one of the Fairy Godmothers in Training who helped Tristan get to be a princess. It's always nice to be reminded how you touched someone's life. I hope all is well with you and Tristan. Thank you again.

    Fairy Godmother In Training,

    Amy

  • OMGosh, hi Amy...how have you been? Tristan will never forget how you & Fairy Godmother Donna helped her to become her all time favorite princess...Cinderella. She still talks about her brief time with you & all the papmering she recieved while there. She wants to go back someday & I hope she will be able too. Thank you so much for helping make her dream come true.

    Gretchen, Tristan's Mom

  • Aww!! She is sooo cute! I just got back from there!! I hope she gets 2 do it again!

  • What a beautiful little girl. God bless her. How wonderful she got to take such a wonderful trip. I'm sure she will never forget it.

  • God bless her.

  • Thank you. Tristan is the joy of my life.

  • the sing made me cry what does she have that she was granted a wish from the make a wish foundation

  • she has Prader-Willi Syndrome. It's a genetic disorder that causes a deletion on chromosone 15 & affects the hypothalamus

  • so beautiful amazing first job

  • Thanx :~)I didn't think I was ever going to get it finished. They have been working me to death at the hospital.

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