Interested in helping CF research and supporting the need for organ donors? Follow Kirstin Whitford and her cross Canada tour "65 Cities 65 Days" Also, follow her blog, twitter and facebook stories. She is starting in BC and on the road today! Search CFSucks and twitter CFReallysucks. Like and share please! Help create the wave that she needs to raise awareness!
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
I am doing a fundraiser early next year for CF Australia and hoping to raise over $10,000. I'll give the details and site address to anyone who is interested in contacting me about it.
God bless you all, I haven't got CF or don't know anyone with it but seeing clips like this makes people like me aware of it and want to help find a cure.
this is great.My best friend has just died.He Had one of the worst cases.he was 14 when he died the other week.there isnt a support group in ireland.please donate and help raise money to build one!There is a small population in ireland making it harded to find a match and a donor to give organs.so donate thankyou!
Our son is now 33, does his broncial drainage daily and takes his meds. The life expentency at the U of Minn is in the late forties. They recently lost a patient in his sixties to a heart problem. I expect my son to live a normal life span. So have faith, do all the treatments and never give up. Donate to CF and their fight for life. Bless our children!
God bless you guys. Our son Nathan has cf, and it's been a rough road already, and he's not even 3. I know that you all are so dedicated to doing as much as you can to find a cure. I hope you'll continue to get more support and exposure. I know my friend Leah Orr is doing all she can too, through her books by giving you all the proceeds. Her heart is certianly in the right place. I pray more will support you both.
Our prayers are with you and the other families effected by cf.
Right now the life expectancy of your son is from 20 to 40 years, but by the time he'll be 20 (because HE WILL be 20) the life expectancy will be 4 times longer. We just have to keep on fighting it. May god bless you and your familly.
Interested in helping CF research and supporting the need for organ donors? Follow Kirstin Whitford and her cross Canada tour "65 Cities 65 Days" Also, follow her blog, twitter and facebook stories. She is starting in BC and on the road today! Search CFSucks and twitter CFReallysucks. Like and share please! Help create the wave that she needs to raise awareness!
centralgm100milebc 5 months ago
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
wasupitswill 2 years ago
thank you so much charliecaz i hav cf
HatzBoo 2 years ago
My sister is 17 and still going strong. only 5 more pounds to gain til she doesn't have to worry about her weight ever again!
inoue87 2 years ago
My uncle had it he recently passed on but we loved him very much he lived till about 58 yrs old this is EXTREMELY rare and a miracle soo dont give up
admdit 2 years ago
great strides Joliet you rock!!!!
reitellep79 2 years ago
I am doing a fundraiser early next year for CF Australia and hoping to raise over $10,000. I'll give the details and site address to anyone who is interested in contacting me about it.
gribae 3 years ago
RIP Jena.
babybonesxxx 3 years ago
This has been flagged as spam show
For more information on cystic fibrosis, simply type in Gibson Vance promoting Cystic Fibrosis in your youtube search engine
beasleyallen 3 years ago
God bless you all, I haven't got CF or don't know anyone with it but seeing clips like this makes people like me aware of it and want to help find a cure.
charliecaz 3 years ago 6
this is great.My best friend has just died.He Had one of the worst cases.he was 14 when he died the other week.there isnt a support group in ireland.please donate and help raise money to build one!There is a small population in ireland making it harded to find a match and a donor to give organs.so donate thankyou!
xshexyxox 3 years ago
Thank you for this channel. Our daughter has cf she is 3 now.
tragicallyred111 3 years ago
Our son is now 33, does his broncial drainage daily and takes his meds. The life expentency at the U of Minn is in the late forties. They recently lost a patient in his sixties to a heart problem. I expect my son to live a normal life span. So have faith, do all the treatments and never give up. Donate to CF and their fight for life. Bless our children!
lmmoore6969 3 years ago 2
God bless you guys. Our son Nathan has cf, and it's been a rough road already, and he's not even 3. I know that you all are so dedicated to doing as much as you can to find a cure. I hope you'll continue to get more support and exposure. I know my friend Leah Orr is doing all she can too, through her books by giving you all the proceeds. Her heart is certianly in the right place. I pray more will support you both.
Our prayers are with you and the other families effected by cf.
booboosbaba 4 years ago 6
Right now the life expectancy of your son is from 20 to 40 years, but by the time he'll be 20 (because HE WILL be 20) the life expectancy will be 4 times longer. We just have to keep on fighting it. May god bless you and your familly.
mcmlxvi 4 years ago 2
good video thanks for your time and your effort in to the film
CFDLW 4 years ago 3