As an MDA patient I'm withdrawing my membership in MDA organization. This organization collects hundreds of millions of dollars in donations from people & corporations then divides this amount among doctors & administrators in the name of "research" while it denies the most basic help,a wheelchair,from actual patients.Meanwhile 2 related doctors named Katz work for San Francisco clinic,3 friend/doctors from the same country India/paks. work for Phoenix clinic collecting $150k each doing nothing.
as someone with muscular dystrophy this video makes me uncomftorable... like could someone just show me smiling with sad music and think its sad or something? i mean Im glad human compassion exists and Im not just abandoned to die like if i was a defective monkey but can't people just see us for who we are rather then how sad it is that I was dealt a bad hand?
wonderful video. i have cmt and also a 24 year old attdent at the mda camp in toledo and the camp means so much to me and the kid i take care of every year. i would like to talk with people from other camps.
As an MDA patient I'm withdrawing my membership in MDA organization. This organization collects hundreds of millions of dollars in donations from people & corporations then divides this amount among doctors & administrators in the name of "research" while it denies the most basic help,a wheelchair,from actual patients.Meanwhile 2 related doctors named Katz work for San Francisco clinic,3 friend/doctors from the same country India/paks. work for Phoenix clinic collecting $150k each doing nothing.
Hesam0000 6 months ago
as someone with muscular dystrophy this video makes me uncomftorable... like could someone just show me smiling with sad music and think its sad or something? i mean Im glad human compassion exists and Im not just abandoned to die like if i was a defective monkey but can't people just see us for who we are rather then how sad it is that I was dealt a bad hand?
Mesquissto 1 year ago 2
I love going to MDA Camp. I want to go this year but, I think the deadline is passed.
kaliah69 2 years ago
MDA summer camp, the best week of the year!
diamo100 3 years ago
I love MDA camp but this is my last year that I can go because the changed the age.
FriedreichsGirl 3 years ago
i went to an mda camp for two years cause my mom is the nurse and i love it sooo sooo much
YellowstoneLover95 3 years ago
wonderful video. i have cmt and also a 24 year old attdent at the mda camp in toledo and the camp means so much to me and the kid i take care of every year. i would like to talk with people from other camps.
footking11 4 years ago