ElastiBee, you need to go to a neurosurgeon and he will prescribe you an MRI to find out if you have this problem or not. Tethered cord syndrome is a very rare disease typically is a malformation from birth, that is why there is not much info on the web.
To whomever did this video... can you recommend where to find any good info on tethered cord surgery for adults? Everything I'm finding on the internet seems to refer to something unique to children. And how did you get confirmation of the diagnosis? My geneticist suspects I have this problem, and she has explained it to me, but... always looking for more info on the internet to terrify myself with.
Thanks so much for sharing! My baby son is having this done in a few days, so Im finding it hard to think of anything else! Take care!
ulthea 1 year ago
im 19 and i have spina bifida and i have to have this done in the summer
IHateBeingSingle 1 year ago
@IHateBeingSingle i am 17 and i have spina bifida also. i had this surgery twice- when i was 8 and when i was 13. i hope urs went well
Kaylahhhhhhhhh 1 year ago
ElastiBee, you need to go to a neurosurgeon and he will prescribe you an MRI to find out if you have this problem or not. Tethered cord syndrome is a very rare disease typically is a malformation from birth, that is why there is not much info on the web.
bavendano77 2 years ago
To whomever did this video... can you recommend where to find any good info on tethered cord surgery for adults? Everything I'm finding on the internet seems to refer to something unique to children. And how did you get confirmation of the diagnosis? My geneticist suspects I have this problem, and she has explained it to me, but... always looking for more info on the internet to terrify myself with.
ElastiBee 2 years ago 2