i can relate to the torment she went through in this vid. i also was born with club foot, not as bad but still painful, it doesnt bother me now, but my first 3 years, it was in and out of leg casts.
she was born with a rare neuromuscular disorder called Arthrogryposis Multiplex Congenita. The video is showing her last round of Serial Casting for Clubbed Foot Recurrence - which is common in AMC children. The serial casting is done in hopes to avoid future unnecessary surgeries.
she was born with a rare neuromuscular disorder called Arthrogryposis Multiplex Congenita. The video is showing her last round of Serial Casting for Clubbed Foot Recurrence - which is common in AMC children. The serial casting is done in hopes to avoid future unnecessary surgeries.
Mi hijo nacio con arthrogriposis multiples ,en la actualidad tiene 24 años ,cuando nacio fue el golpe màs terrible jamas recibido pero la rehabilitacion en la TELETÒN DE CHILE bajo la supervisiòn del doctor PATRICIO NUÑEZ ,quien lo opero de pies box, caderas (ambas),manos para darlas vuelta y poder usar los utencilios y computador ,hoy es un hombre felizmente casado,por recibirse de ingeniero de ejecucion,tiene una pyme,tiene un plotter,sacò licencia de conducir y es un joven independiente.
Mi hijo nacio con arthrogriposis multiples ,en la actualidad tiene 24 años ,cuando nacio fue el golpe màs terrible jamas recibido pero la rehabilitacion en la TELETÒN DE CHILE bajo la supervisiòn del doctor PATRICIO NUÑEZ ,quien lo opero de pies box, caderas (ambas),manos para darlas vuelta y poder usar los utencilios y computador ,hoy es un hombre felizmente casado,por recibirse de ingeniero de ejecucion,tiene una pyme,tiene un plotter,sacò licencia de conducir y es un joven independiente.
hola tengo un hijo con artrogryposis ,i need a talk to you please, i speack spanish , i need ur help for my baby , my mail is fatimavs24@hotmail.com thanks
My daughter has Arthrogryposis, She was born with bilateral clubbed feet.
Clubbed feet is a very common occurrence in children born with AMC, Not all children are affected in all four limbs. Not all children are born with clubbed feet. My daughter is affected in all four limbs. Because of the procedure she had done on her feet at 11 months old she had a recurrence , the reason why we are serial casting here - in hopes to avoid future surgeries.
My almost-3 years-old baby also has ACM. I met Dr van Bosse in NY but, as we live in Florida, my Baby goes to Tampa Shriners Hospital. Thank to those who are helping us.
i had these surgeries in 1974. plus my right wrist. I hhope everyone loves every step medical breaktthroughs have given the improvements to just live an almost normal life..........bless every step thank you for sharing
Is it really super painful, the serial casting, or more like a discomfort from the stretching involved ?
MistressAprilSnow 6 months ago
Very informative. Also worth watching Ruth Merry's videos, very inspiring.
semecz 10 months ago
poor little girl see is so cute i feel so bad for here GOD BLESS THIS CHILD
sarbar1357 11 months ago
woohoo for shriners Hospital there are amazing
VivalaaMacBeauty 11 months ago
She is a beautiful little girl.
Jubjub1878 1 year ago
Does she have a severe or mild case of this? Can she walk?
delightracardeanne 1 year ago
what is amc?
katie1741 1 year ago
I was born with Arthrogryposis Multiplex Congenita, and I remember those long days at the hostipal, but in the end it all pays off!
SchmidtSwagg 1 year ago
why do they press very hard on the feet?
tinjmail 1 year ago
i can relate to the torment she went through in this vid. i also was born with club foot, not as bad but still painful, it doesnt bother me now, but my first 3 years, it was in and out of leg casts.
hipcast09 1 year ago
she broke two of them ouch how
2crazypop 1 year ago
@2crazypop no she did not break her legs
she was born with a rare neuromuscular disorder called Arthrogryposis Multiplex Congenita. The video is showing her last round of Serial Casting for Clubbed Foot Recurrence - which is common in AMC children. The serial casting is done in hopes to avoid future unnecessary surgeries.
brokenbysin29 1 year ago
@2crazypop no she did not break her legs
she was born with a rare neuromuscular disorder called Arthrogryposis Multiplex Congenita. The video is showing her last round of Serial Casting for Clubbed Foot Recurrence - which is common in AMC children. The serial casting is done in hopes to avoid future unnecessary surgeries.
brokenbysin29 1 year ago
Mi hijo nacio con arthrogriposis multiples ,en la actualidad tiene 24 años ,cuando nacio fue el golpe màs terrible jamas recibido pero la rehabilitacion en la TELETÒN DE CHILE bajo la supervisiòn del doctor PATRICIO NUÑEZ ,quien lo opero de pies box, caderas (ambas),manos para darlas vuelta y poder usar los utencilios y computador ,hoy es un hombre felizmente casado,por recibirse de ingeniero de ejecucion,tiene una pyme,tiene un plotter,sacò licencia de conducir y es un joven independiente.
many0922 1 year ago
Mi hijo nacio con arthrogriposis multiples ,en la actualidad tiene 24 años ,cuando nacio fue el golpe màs terrible jamas recibido pero la rehabilitacion en la TELETÒN DE CHILE bajo la supervisiòn del doctor PATRICIO NUÑEZ ,quien lo opero de pies box, caderas (ambas),manos para darlas vuelta y poder usar los utencilios y computador ,hoy es un hombre felizmente casado,por recibirse de ingeniero de ejecucion,tiene una pyme,tiene un plotter,sacò licencia de conducir y es un joven independiente.
many0922 1 year ago
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hola tengo un hijo con artrogryposis ,i need a talk to you please, i speack spanish , i need ur help for my baby , my mail is fatimavs24@hotmail.com thanks
lokitafati 1 year ago
des she have arthrogryposis??? because club foot dont mean arthrogeyposis...
lissyrae1 1 year ago
@lissyrae1
My daughter has Arthrogryposis, She was born with bilateral clubbed feet.
Clubbed feet is a very common occurrence in children born with AMC, Not all children are affected in all four limbs. Not all children are born with clubbed feet. My daughter is affected in all four limbs. Because of the procedure she had done on her feet at 11 months old she had a recurrence , the reason why we are serial casting here - in hopes to avoid future surgeries.
brokenbysin29 1 year ago
Love it. Abby was so brave. Thanks for sharing.
wtihwingsaseagles 1 year ago
My almost-3 years-old baby also has ACM. I met Dr van Bosse in NY but, as we live in Florida, my Baby goes to Tampa Shriners Hospital. Thank to those who are helping us.
maxvidalr 1 year ago
i had these surgeries in 1974. plus my right wrist. I hhope everyone loves every step medical breaktthroughs have given the improvements to just live an almost normal life..........bless every step thank you for sharing
frisbeegolfguy 2 years ago
i have arthrogryposis and ive been casted
Cici4vr 2 years ago
aaww shes cute :)
emmy1314 2 years ago