I hate when the twitching happens in my chest cause I'm a girl and all the sudden my boobs are bouncing. Its in my legs, knees, calf muscles, feet, chest, back and even my belly and eyes! Never at the same time though, thank GOD!
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
I'm 18 (female), turning 19 next month (January 2011); I've had BFS (Benign Fasciculation Syndrome) since my freshman year of high school, June 2006. It has not gone away and has only gotten worse. It started out in my thumb after a brief illness after I went to Mexico on a cruise, and spread to my whole body by late 2007. I've had so many tests...doctors don't know what it is. Klonopin never helped, Gabapentin helps a little. Idk what to do anymore...I hate this crap.
i have this too all over usually when i apply pressure onto the spine like when im laying down. the miuscle pain stiffness and aching is become worse and worse, sometimes legs burn,fasics all over, nasal inflammation, hyperhydrosis, red puffy burning eyes, stiff severe painful neck, cracking in neck, eye floaters, normal EMG, i dont know wtf is wrong. can anyone help?
Are there hand and foot cramps? Do your symptoms get worse during stressful weeks? Do they get worse after exercise? Do symptoms arise prior to you getting a cold, upper respiratory infection, etc? ...and lastly, during peak spasm times, do you have trouble climbing stairs? Let me know...
Are there hand and foot cramps? Do your symptoms get worse during stressful weeks? Do they get worse after exercise? Do symptoms arise prior to you getting a cold, upper respiratory infection, etc? ...and lastly, during peak spasm times, do you have trouble climbing stairs? Let me know...
Disclaimer: I'm against diagnosing people on YouTube. You should speak to a neurologist subspecialized in neuromuscular disorders.
What were your CK levels like?
Can you be more specific with regards to areas involved when you say 'atrophy' and 'weakness'? Like, can you still run and get up from a chair just fine?
Anyone in your family ever had similar complaints?
@bluntdissector: I agree; diagnoses should be made in a clinical setting and not through the internet. I have seen a neuromuscular disorder specialist, but he was unable to find a fitting diagnosis. My CK levels were elevated one time but normal during all subsequent tests. The muscles around my shoulder blades have atrophied most significantly. I can do most normal physical activities like climbing stairs without difficulty now, but running is challenging because I have joint instability.
Interestingly, I don't get cramps or fatique. The pain I get is usually throbbing pain that lasts only momentarily or tiny little sharp pains that also throb but that's much less frequent than the twitchings. On a separate note 10 yrs ago I started getting this little cough that has been w/ me ever since. I feel a blockage right between my sternum & bottom of my neck. When I exercise or run I don't have much endurance because this blockage doesn't allow much oxygen to flow thru & I cough more.
It started at 16 for me and now I'm 39 and the symptoms occur on a daily basis. My muscles twitch all over my body (arms, legs, face, etc.). My arms and shoulders sometimes jerk (moves really fast on its own), sometimes symmetrically (both arms at same time). I also get tiny sharp pains, pins and needles and weird sensations at certain parts of my body. I noticed this more at night when I'm in bed and the twitchings can be very annoying! Thought I had ALS when I was 16. Anyone w/ similar story?
@guyinsf very similiar, i am 17 they started a year ago. Your description matches mine, they do not affect my health or physical capability at all. The doctor said it was due to fast growth, which is true because i have grown a lot but the fact yours are persisting is worrying me
@Tommanc1 I am in a similar situation mine have been going for a few weeks now, is it just me or are well all in a similar demographic eg. 18ish and fit
Mine started about six months ago shoulder pain came before that never thought that the two were linked until reading comments on here i have slept on a couch for the last 2 and half years and figured the shoulder pain figured it was neck related the twitching does seem to stop if i sit a certain way and comes back if i move back to that position also been very very stressed in the last year also had a period for about a month i had no twitching what so ever no clue whats happing
I've had these types of fasciculations for about 10 years, Neurologist said it is BFS and prescribed nothing for it! I was going mad...On my own, I started antidepressants and the twitching is gone for weeks at a time, but if I stop the meds, they come back...I was 45 wheb they started after some sort of viral infection. Now I only get them if I am very upset. They only appear on resting muscles.
Wow. I got these at 14 and they've been going on ever since. I'm 18 now. I've had every test under the sun and they haven't been able to tell me anything. I got my twitches after a trip to Mexico and an unexplained sickness with high fever. They're ALL OVER MY BODY now, but it started out in my thumb and progressed to everywhere else.
Ive been twiching for 7 years. They started in my feet then I started to twich everywhere. Iv seen a neurolagist an had EMG which showed short duration motor unit potentials suggestive of a distal myopathy. Muscle biopsy came back normal. Recently the weakness in my shoulder has got worse whilst having physio. Still no diagnosis 7 years on. Hope this is useful
I have not tried L-Carnitine yet. I have been taking Amitriptyline (10mg) at night, and Pregabalin twice a day. I was also prescribed Baclofen which I did find stopped me twitching as much. I have found that painkillers dont work. I can live with the twitching although they can be annoying but Im finding it difficult to live with the pain and fatigue. I will try L-Carnitine Thank you
@MsFloppsy Baclofen it's only effective when you "inject" it directly to the spinal CSF, I believe... (intrathecal) Oral and IV it's has no effect as far as I know....
I started to twitch 7 years ago. They started in my feet,before I knew it I was twitching everywhere.. I was reffered to a neurolagist where I had a EMG test, this showed short duration motor unit potentials with full interferance patten? It was suggested that I may have a low grade myopathy. I found Baclofen (muscle relaxent) eased my twiches.
I have been getting pain an fatigue in my right shoulder for the past 4 years. The shoulder problem is linked with weakness.
With the symptom list below have you wondered about Fibromyalgia?
I started to get fasciculations after I got parasthaesias/neuropathic pain in my legs, then muscle stiffness and widespread pain and quite a few other symptoms as well.
Just because you are a young male doesn't exclude you from having Fibromyalgia - just less diagnosed in males!
comparing your picture from the past to this more updated video its clear to see the change in muscle tone. denervation is the culprit most likely. though testing may not catch it at first sight it's crucial to keep up with the neurological testing. if your fine motor skills and kinetics are normal this could be a benign muscle wasting disease without a name. it will be interesting to see how you progress in upcoming months. please keep us informed. id recommend going back to resistance training
Omfg i get those too!!! All over my fuckin body and it's the most annoying thing EVER!!! It never stops and keeps me awake at night...every night!!! It started last year, and i've had them ever since. There hasn't been one part of my body that hasn't fuckin twitched. HELP
@StephanieGravelx i've been twitching for about 6 years now...every single part of my body has twitched at least once as well..even my tongue and the top of my head...even the insides of my ear...it's sooooooo annoying ..and i still get distracted from anything i'm doing when it happens..i just can focus on anything else. i hate it.
It's not ALS, you would be almost dead by now + ALS has no sensory disturbances such as paresthesias. It could be MS though, but I think it would be one of the first things someone would check on a 18year old patient. It could be mild vitamin defficiency B12 or E but I'll go for Munchausen's. Pay a visit to a shrink.
wow i know how it feels, mines progressed alot faster tho.
i went from a 6 day a week weightlifter, 5 day a week runner in march 09, to tendonitis in both arms shortly after, to bi lateral cubital tunnel in oct, to tingling in my feet in dec, wit tremors, to bilateral radial tunnel, in jan, and ivwe had fasciculations since june.
this is ruining my l ife, no diagnosis, if they cant find one soon idk how much longer i can hold on wit no weights and these tremors.
bro, I got the same thing as you: BFS. My neuro says that the cause is hereditary. My symptoms are conceal with clonazepam, a medication for that type of illness. Now, I'm mostly back to the way I was before BFS screwed my life. Good luck, I know it can be annoying I had it for 3 years.
Specially the last two... You're still without a Diagnosis or treatment? For the sound of it, you've been through some tests and examinations to know all this.
I am so sorry that You are ill. I hope you keep looking for positives out of each day. Keep a good attitude and keep finding things to enjoy in your life no matter what is handed to you in it.
Issacs syndrome
cTgamingclan0 1 week ago
Im 13 and have violent ones all over please help
Robertsupersnipe18 4 months ago
shit... i had this for ages i dont even know what it is , some muscle parts in my body start twitching at times
GildedDelta 5 months ago
i have this shit to
BadWitch68 6 months ago
Thanks to show it.
serafimfx 8 months ago
did you get an infection or injection before it started? is your sense in any area not as good as i was before?
visx1 8 months ago
Pumping Iron plus vitamin b12 , low sugar diet low dos e of phenobarbital or half a joint of weed..and it will improve 70% okay
luchoq77 9 months ago
bfs
NaturReise 10 months ago
Have you checked into Isaac's Syndrome?
mica24423 10 months ago
I get it alll th time!!!!
dental2b 10 months ago
I hate when the twitching happens in my chest cause I'm a girl and all the sudden my boobs are bouncing. Its in my legs, knees, calf muscles, feet, chest, back and even my belly and eyes! Never at the same time though, thank GOD!
justjessica85 10 months ago
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CCSVI Clinic Receives Joint IRB Approval for Aftercare Protocol Study.
The joint application between Noble Hospital and CCSVI Clinic has been approved through the IEC Institutional Review Board (IRB) that will allow researchers to use patient data to study their new extended and enhanced aftercare treatment protocol. Please Call 888-419-6855 to know more about participating in the study. Log on to ccsviclinic. ca for more information. Email apply -at- ccsviclinic. ca
Gregmills007 11 months ago
MAGNESIUM DEFICIENCY
TribeOfGadIsraelite 11 months ago
I get this sometimes when I get out the shower an it's colded
barcode0954 1 year ago
I'm 18 (female), turning 19 next month (January 2011); I've had BFS (Benign Fasciculation Syndrome) since my freshman year of high school, June 2006. It has not gone away and has only gotten worse. It started out in my thumb after a brief illness after I went to Mexico on a cruise, and spread to my whole body by late 2007. I've had so many tests...doctors don't know what it is. Klonopin never helped, Gabapentin helps a little. Idk what to do anymore...I hate this crap.
christiansoldier92 1 year ago
@christiansoldier92
Have you considered Neuroborreliosis....Lyme
ifonlyihad 3 months ago
Why don't you cut down on this rather emo music maybe then you won't have these constant nuisances
MsFuckduck 1 year ago
i have this too all over usually when i apply pressure onto the spine like when im laying down. the miuscle pain stiffness and aching is become worse and worse, sometimes legs burn,fasics all over, nasal inflammation, hyperhydrosis, red puffy burning eyes, stiff severe painful neck, cracking in neck, eye floaters, normal EMG, i dont know wtf is wrong. can anyone help?
akuma4u 1 year ago
i have that too.. it bugs the hell out of me.. its all over my chest..
Patricius88 1 year ago
Hey man, how are you doing? Did you receive a diagnosis at last? Best wishes
MrJakeynator 1 year ago
This has been flagged as spam show
Are there hand and foot cramps? Do your symptoms get worse during stressful weeks? Do they get worse after exercise? Do symptoms arise prior to you getting a cold, upper respiratory infection, etc? ...and lastly, during peak spasm times, do you have trouble climbing stairs? Let me know...
Believe me, I know what you are going through!
Write back or send me a message. :-)
lvsayles 1 year ago
Are there hand and foot cramps? Do your symptoms get worse during stressful weeks? Do they get worse after exercise? Do symptoms arise prior to you getting a cold, upper respiratory infection, etc? ...and lastly, during peak spasm times, do you have trouble climbing stairs? Let me know...
Believe me, I know what you are going through!
Write back or send me a message. :-)
lvsayles 1 year ago
@lvsayles PS There are several members in my family with these symptoms...
lvsayles 1 year ago
Disclaimer: I'm against diagnosing people on YouTube. You should speak to a neurologist subspecialized in neuromuscular disorders.
What were your CK levels like?
Can you be more specific with regards to areas involved when you say 'atrophy' and 'weakness'? Like, can you still run and get up from a chair just fine?
Anyone in your family ever had similar complaints?
bluntdissector 1 year ago
@bluntdissector: I agree; diagnoses should be made in a clinical setting and not through the internet. I have seen a neuromuscular disorder specialist, but he was unable to find a fitting diagnosis. My CK levels were elevated one time but normal during all subsequent tests. The muscles around my shoulder blades have atrophied most significantly. I can do most normal physical activities like climbing stairs without difficulty now, but running is challenging because I have joint instability.
DIAGNOSISUNAVAILABLE 1 year ago
Comment removed
HylianFury 1 year ago
EASY ON THE CAPS!!1
fortells 1 year ago
Interestingly, I don't get cramps or fatique. The pain I get is usually throbbing pain that lasts only momentarily or tiny little sharp pains that also throb but that's much less frequent than the twitchings. On a separate note 10 yrs ago I started getting this little cough that has been w/ me ever since. I feel a blockage right between my sternum & bottom of my neck. When I exercise or run I don't have much endurance because this blockage doesn't allow much oxygen to flow thru & I cough more.
guyinsf 1 year ago
It started at 16 for me and now I'm 39 and the symptoms occur on a daily basis. My muscles twitch all over my body (arms, legs, face, etc.). My arms and shoulders sometimes jerk (moves really fast on its own), sometimes symmetrically (both arms at same time). I also get tiny sharp pains, pins and needles and weird sensations at certain parts of my body. I noticed this more at night when I'm in bed and the twitchings can be very annoying! Thought I had ALS when I was 16. Anyone w/ similar story?
guyinsf 1 year ago
@guyinsf very similiar, i am 17 they started a year ago. Your description matches mine, they do not affect my health or physical capability at all. The doctor said it was due to fast growth, which is true because i have grown a lot but the fact yours are persisting is worrying me
Tommanc1 1 year ago
@Tommanc1 I am in a similar situation mine have been going for a few weeks now, is it just me or are well all in a similar demographic eg. 18ish and fit
puretopspin 1 year ago
@puretopspin i am hoping they wont persist after 18, sometimes they can really be annoying
Tommanc1 1 year ago
Mine started about six months ago shoulder pain came before that never thought that the two were linked until reading comments on here i have slept on a couch for the last 2 and half years and figured the shoulder pain figured it was neck related the twitching does seem to stop if i sit a certain way and comes back if i move back to that position also been very very stressed in the last year also had a period for about a month i had no twitching what so ever no clue whats happing
thekhwan 1 year ago
I've had these types of fasciculations for about 10 years, Neurologist said it is BFS and prescribed nothing for it! I was going mad...On my own, I started antidepressants and the twitching is gone for weeks at a time, but if I stop the meds, they come back...I was 45 wheb they started after some sort of viral infection. Now I only get them if I am very upset. They only appear on resting muscles.
vangozh 1 year ago
im 14 and i have it all over gah!
ohmgbrownies 1 year ago
Wow. I got these at 14 and they've been going on ever since. I'm 18 now. I've had every test under the sun and they haven't been able to tell me anything. I got my twitches after a trip to Mexico and an unexplained sickness with high fever. They're ALL OVER MY BODY now, but it started out in my thumb and progressed to everywhere else.
christiansoldier92 1 year ago
Comment removed
HylianFury 1 year ago
Issaac's disease?
sassyjohnson 1 year ago
Ive been twiching for 7 years. They started in my feet then I started to twich everywhere. Iv seen a neurolagist an had EMG which showed short duration motor unit potentials suggestive of a distal myopathy. Muscle biopsy came back normal. Recently the weakness in my shoulder has got worse whilst having physio. Still no diagnosis 7 years on. Hope this is useful
MsFloppsy 1 year ago
hope u have tried L-CARNITINE after meals every day....twitching will go in a bit but pain is a different issue
whisky432 1 year ago
I have not tried L-Carnitine yet. I have been taking Amitriptyline (10mg) at night, and Pregabalin twice a day. I was also prescribed Baclofen which I did find stopped me twitching as much. I have found that painkillers dont work. I can live with the twitching although they can be annoying but Im finding it difficult to live with the pain and fatigue. I will try L-Carnitine Thank you
MsFloppsy 1 year ago
@MsFloppsy Baclofen it's only effective when you "inject" it directly to the spinal CSF, I believe... (intrathecal) Oral and IV it's has no effect as far as I know....
Jorfapigo 1 year ago
I started to twitch 7 years ago. They started in my feet,before I knew it I was twitching everywhere.. I was reffered to a neurolagist where I had a EMG test, this showed short duration motor unit potentials with full interferance patten? It was suggested that I may have a low grade myopathy. I found Baclofen (muscle relaxent) eased my twiches.
I have been getting pain an fatigue in my right shoulder for the past 4 years. The shoulder problem is linked with weakness.
MsFloppsy 1 year ago
With the symptom list below have you wondered about Fibromyalgia?
I started to get fasciculations after I got parasthaesias/neuropathic pain in my legs, then muscle stiffness and widespread pain and quite a few other symptoms as well.
Just because you are a young male doesn't exclude you from having Fibromyalgia - just less diagnosed in males!
Megan1710 2 years ago
comparing your picture from the past to this more updated video its clear to see the change in muscle tone. denervation is the culprit most likely. though testing may not catch it at first sight it's crucial to keep up with the neurological testing. if your fine motor skills and kinetics are normal this could be a benign muscle wasting disease without a name. it will be interesting to see how you progress in upcoming months. please keep us informed. id recommend going back to resistance training
eyedea81 2 years ago
Omfg i get those too!!! All over my fuckin body and it's the most annoying thing EVER!!! It never stops and keeps me awake at night...every night!!! It started last year, and i've had them ever since. There hasn't been one part of my body that hasn't fuckin twitched. HELP
StephanieGravelx 2 years ago
@StephanieGravelx i've been twitching for about 6 years now...every single part of my body has twitched at least once as well..even my tongue and the top of my head...even the insides of my ear...it's sooooooo annoying ..and i still get distracted from anything i'm doing when it happens..i just can focus on anything else. i hate it.
claum91 1 year ago
It's not ALS, you would be almost dead by now + ALS has no sensory disturbances such as paresthesias. It could be MS though, but I think it would be one of the first things someone would check on a 18year old patient. It could be mild vitamin defficiency B12 or E but I'll go for Munchausen's. Pay a visit to a shrink.
alibertise 2 years ago
wow i know how it feels, mines progressed alot faster tho.
i went from a 6 day a week weightlifter, 5 day a week runner in march 09, to tendonitis in both arms shortly after, to bi lateral cubital tunnel in oct, to tingling in my feet in dec, wit tremors, to bilateral radial tunnel, in jan, and ivwe had fasciculations since june.
this is ruining my l ife, no diagnosis, if they cant find one soon idk how much longer i can hold on wit no weights and these tremors.
good luck
mikerobinsonn 2 years ago
@mikerobinsonn and i forgot to mention i was 18 when this started and havent lifted a weight in a year on the 23rd.
suicidal thought become more and more apart of my life everyday
mikerobinsonn 2 years ago
man watching this made me twitch all over
LinkII08 2 years ago
bro, I got the same thing as you: BFS. My neuro says that the cause is hereditary. My symptoms are conceal with clonazepam, a medication for that type of illness. Now, I'm mostly back to the way I was before BFS screwed my life. Good luck, I know it can be annoying I had it for 3 years.
lemonpie500 2 years ago
Hi. Impresive video.
I wonder after all this:
FASCICULATIONS
MUSCLE STIFFNESS
PAIN
MUSCLE CRAMPING
PARESTHESIA IN FINGERS & TOES
MUSCLE WEAKNESS
MUSCLE WASTING
Specially the last two... You're still without a Diagnosis or treatment? For the sound of it, you've been through some tests and examinations to know all this.
binvisible 2 years ago
Hi mate,
I've had BFS a few years now. These things get that way if you are stressed out by the thought of having ALS. You don't have ALS!
Just look up the BFS forum on the net to get all your answers.
It's an anxiety related problem. It won't kill you. Just laugh the fasciculations off and they'll be gone in a few days.
Pato
rkcdude 2 years ago
abnormal emg, muscle atrophy? normal cervical spine? Nerve conduction normal? Is the muscle weakness constant? ALS been ruled out?
Oozingmachismo24 2 years ago
I am so sorry that You are ill. I hope you keep looking for positives out of each day. Keep a good attitude and keep finding things to enjoy in your life no matter what is handed to you in it.
WrightNightmare 2 years ago
I know how you feel,I do too.
I hate it because it happens so randomly and I'm like,what the crap?
Idavinator 2 years ago
OMG nasty one at 0:58...
i have problems with these... really annoying....
cuvarGROMOVA 2 years ago