Added: 3 years ago
From: thegists1
Views: 295
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  • Hello,my name is Laurie&I too have Tuberous Sclerosis. I'm 27&I was diagnosed at 9 months old.I had my second brain surgery in 2006 to remove a tumor.My kidney tumors are so enormous,they spontaneously bleed.So I have a renal embolization every 6 months to hopefully prevent me from having another bleed.Your children are BEAUTIFUL!! My prayers are with you and your family

  • My son Justus has tuberous sclerosis also, just diagnosed. He had brain surgery to remove a tumor in April.

    Justus is doing great since his surgery...

    How's your little one doing?

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