CCSVI: Kezzcass Jugular Venoplasty Part II.wmv

[crdefhead]

THANK YOU, once again!!! For sharing this, it is MUCH needed info. we all need. Bless you!!!

[longleggedmakdaddy]

Thanks for sharing!

[kezzcass]

@longleggedmakdaddy Thanks for watching :o)

[HelenWilson59]

Hi Kerry heard you on Internet radio. Today you sounded grate! It took me a while to connect again think I did it right I'm now on you tube yeah.

Well I finally got a proper doppler done flew over to Melbourne to the Lady you said and yes! Both my Jugulars are constricted. We came out of her room cheering, apart from us with M.S. My G.P. gets back from Holidays Monday hopefully he can find someone over here to do an angioplasty. I am so excited. Thanks again for telling us what you've done.

[kezzcass]

@HelenWilson59 Helen, seems strange to say, but congratulations on those constricted jugulars! Hey - if you do find someone to do the Venogram/Balloon, can you please share the info for people where you are? Look forward to hearing how you go Kerri :o)

[HelenWilson59]

Good on you Kerrie.

I had my jugular ultra sound cut long story short they are not blocked. :-(

[kezzcass]

Hmmm... I heard of someone recently who had nothing show in an ultrasound but did on a venogram. Perhaps a different test?? Kerri

[51jessica51]

Oh Kerrie, I'm in awe of you. You have explained everything perfectly. Thank you for sharing with us all. You inspired me to 'get moving' in this direction.

Love, Jessie.

[kezzcass]

Hi Jessie, thanks and hope things move quickly for you! Kerri

[irishbear76]

I love the way you are keeping yourself grounded and not getting carried away with the emotions of what has happened.

I know that this was a great thing for you and that somehow God meant for us to be friends and share information, and support.

This is a huge thing for the MS family to see one of our beloved sisters get liberated.

You are in my thoughts, prayers and may God let this illness be removed from you .

Mark.

[kezzcass]

Hi Mark, it is hard you know, so many people want to see my life turn around after this procedure so there is the pressure to try and assure them, but at the end of the day I have to be honest about it and wait and see. No doubt at all we were meant to be friends, you have given me great advice & encouragement over the last year or more. I hope to see more of our family break through and get this done and especially you given your tireless work! Kerri x

[moongazer321]

I commend you Kerri for sharing this info and your personal journey. It gives the rest of us hope and valuable info to think about.

Best wishes to you, Meg.

[kezzcass]

Thanks Meg, It has helped, I think, that I have been vlogging for a while now so people know me and my symptoms. I hope that means it gives credibility to the changes that I hope to see in coming weeks. Hope - I think this is what we have in this... there's a long way to go yet but we'll see it through I am sure. Kerri

[boatjohn1]

Hi Kerri,

I'm John from the North UK with PPMS and found your Vid through CCSVI face book UK.

Thank you for reporting on your status as the last week I've been eager for new news.

Things aren't moving fast enough here in England. Investigations are being carried out in the private sector as the NHS drags it's feet so.

All the best,

John,xx

[kezzcass]

G'day John, yes I have been watching the UK through friends - it feels frustratingly slow everywhere. Here it is all thanks to a small number of Vascular people who are offering it (not through official MS channels or Neuros) and a bunch of dedicated Aussies MSers who are spreading the word. Thanks for watching. Kerri

[nicv11ita]

Bountiful encouragement, love & prayers to you!!

You're a rock star in my book :)

Question for ya. Do you know if there's plans to re-run the scan again in the future to verify the veins stay open?

xoxo, nicole

[kezzcass]

Haha funny - hope to get those rock moves happening too! Thanks. Great question. Yes, the process now is that I have a follow up with the Prof in a month and re-run the initial scans that I had with Julie. This will be a fair comparison then of before and after. Here is the downside, now we know my veins have this issue I will have to have regular scans to monitor things. It cannot be expected that this is a one off procedure and you can put it to bed. But at least we can be proactive. K

[nicv11ita]

@kezzcass - sounds very reasonable and the good news is there's a procedure to unblock if it does indeed return. Bestest wishes to u.

[kezzcass]

@nicv11ita Thanks very much :o) Yes - if they do re-narrow it is a second go at ballooning. (Not that I want to have to!)

[missalgernon]

You're a shining star Kerri love. You are so articulate and sensible about all of this. I'm so glad it went well, and I have my jugulars crossed that it continues to go well. You have so many fans! So much positive energy flowing your way. Mandy.

[kezzcass]

Ah Mandy, you know it is special that you were with me the day I got the scan and waited around for me. Who'd have thought it would bring me here a few weeks later? Thanks for your friendship and support. Love to you, Kerri xx (sure hope your jugulars are not crossed though... that would be an interesting scan!)

[13Harms]

Thanks so much Kerri for sharing your story. You've made a potentially scary and overwhelming topic easy to understand and accessible to us all. I look forward to your updates on how it's all going from here (excellently I'm sure). Thanks again!

[kezzcass]

Thanks Harmony, I hear what you are saying. When I first heard of this I spent a long time reading and talking with people. I think the more info you have the better decisions you can make. Look forward to updating you on my progress. Kerri

[SHIRLEYRENSHAW]

Kerri

This is so amazing and exciting and wonderful and promising. I am very happy for you and hope this all gets better and better and better. I am looking forward to many more updates. Thanks for being so open and sharing this around the world. All the best to you.

Shirley

[kezzcass]

Thanks Shirley - I hope it gets better and better too!

[milorad173]

Good job.... thank you :))

[kezzcass]

My pleasure :)

[gekiryudojo]

your awesome Kerri! but you knew I felt that! great video and I will be showing my neuro, cardiologist (soon) and my son ! looking forward to your updates! now on to the third Video!

[kezzcass]

Haha thanks Trev! Kerri

[kezzcass]

Yes check TIMS 'Aussie Action' thread. As for my head, I want to give it more time before I make comment. As it stands 42 hours later I still have tenderness and discomfort from the procedure. But feel much better today than yesterday. Kerri

[gphx]

Good, balanced job of reporting. I'm hoping for the best for you.

[kezzcass]

Thanks Darrin, that comment is appreciated more than you know. Trying to keep to the middle path! Kerri

[angelusa73]

Dear Kerri, here I am again...and I continue to be so happy and so excited for you!

You explained yourself so well!

I am sure that it will take you some time to see what will improve for you and we are all hoping that you will improve a lot! What you did will help everyone and your words matter a lot for us. THANK you for doing this!

many hugs,

Angela

[marykaygwinn]

Kerri, Thank you for the video~well done. Looking forward to the next chapter of your story.

[kezzcass]

Thank you, Kerri

[9gabbycats]

thank you for sharing in a manner that is not so hyped out, but straight forward and honest.

[kezzcass]

Yes - the last thing I would want to do is raise an unfair expectation. I appreciate you saying this, as that is how I wanted to come across. Kerri

[7minibike2]

hey kerri did doctors say how long it will stay open?would you need it again later?just some thing that came to mind.thanks you are helping more than you can know thanks again.  mike

[kezzcass]

Hi Mike. Excellent question. The Prof mentioned at my consultation that re-narrowing can occur. I will deal with that if it happens. Thanks, Kerri

[ozarkcanoer]

Thanks Kerri for sharing your experience with us. Hope you will find relief from some of your MS symptoms. Looking forward to hearing from you regularly on that.

[kezzcass]

Yes I hope so too - will keep you all posted. Kerri

[BrendaRaven1]

So nice to see you smiling! Thank you for sharing your journey with us.

[kezzcass]

You are welcome, Kerri

[vbeachy]

Thanks for the video Kerri. I am anxious to see what the results will be. :)

[kezzcass]

Thanks Vern - me too!

[kezzcass]

Hey Kylie! So glad you could be a part of all of this. I think we can be excited for sure, but tempered with reality is probably best ;o) Love to you and your brother. Kerri x

[vodkababe3]

Thank you so much for this video of your procedure, it did bring a tear to my eyes because now we have hope.

I wish you all the luck and love I can for the future, I am currently trying to find where I can go to have the proceedure tested and done if need be.

Take care an thank you again

[kezzcass]

Thanks so much for your comments. It would feel wrong not to share this part of the journey and keep it for myself! All the best in finding someone to help you. Kerri

[mackierojo]

Good to see you and Thank you so much for posting this very informative video, I hope more Doctors worldwide view your great explanation of the procedure.

We will wait with you and we send our prayers and best wishes as you enjoy the Liberation period these next few months.

[kezzcass]

Thanks Jamie, Yes - I hope that us all sharing stories in different formats will speed up the information process. Will keep you updated as I go along. Kerri

[MSVlogSupport]

Hi Kerri,

Great video and I think that you gave a great explaintion of everything involved.

I look forward to hearing how this unfolds. It will be interesting to see how all the different people who get this done respond.

Wishing you the best of luck!! Congrats

Andrea

[kezzcass]

Thanks Andrea, yes this is where the waiting comes in for me.  Wait and see what changes and then bang the drum! Kerri

[omexmc80]

I am SO HAPPY for you Kerri.. I have the biggest smile on my face.. :0)

Omario

[kezzcass]

Oh yeah! Dinging that triangle big time ;o) Thanks Omario

[MYLIFEWITHMS]

Hi Kerri,

Fabulous news, good to see you have had the procedure, I have everything crossed for that you will see an improvement in your symptoms. I have registered with a clinic in the UK, hoping to start testing and procedures from June this year. I'll be watching your updates. Suzanne x

[kezzcass]

That is fantastic Suzanne! June - feels so far away but I am sure it will come quickly. Thanks for your care. Kerri

[donotconcede]

Thank you Kerri!  :) I've been wondering how are in general. You are very brave and I hope to follow you soon in this. I'm glad you seem to be feeling ok :) But that is also keeping it in perspective. I appreciate your honesty and realism. Thanks! - Hugs, Judy

[kezzcass]

Thanks Judy - I am doing very well. You think I am brave? Nah - just one in a long line of Aussies on the list to have this done (and those around the world also). Looking forward to hearing how you go. Kerri

[salchaw]

great !!!

[kezzcass]

Yeah!!