Added: 3 years ago
From: bigsanfer32
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  • love ur video, i have lupus too i know it sucks but im thankful everyday just because im alive I LOVEEE UR COURAGE AND UR STRENGHT AND YESS WE ARE SUPER WOMENS!!! WE ARE FIGHTERS WE HAVE LUPUS BUT LUPUS DOESNT HAVE US! :D <3 MUCHH LOVE!! GOD BLESS U!

  • Great Video....hope you are feeling well....stay strong....& keep fighting..." I may have lupus, but Lupus doesn't have me!" Amazing....I tell myself that everyday.....

  • Hey I thought your video was great I am actually doing a presentation to raise awareness for lupus at school and I would love to use your video however there r some copyright issues with the song would you know what to do?

  • i have bean living with lupus most my life but im just now finding out thats what it is my joints ack so mutch my face goes read i hat it its way inbarasing and my fee swell but i just go day buy day thats all i can do.

  • thank you! this video gives me strength .. i've visited last night my bff and she was diagnose with skin lupus she was shocked to see us her friends almost made her cry... shes also a fighter like you don't let that disease win... FIGHTING!!!!

  • Hello Everyone! I work with a group who is actively trying to enroll people with skin lupus into a clinical research study. After reading your thoughts and comments, I thought some of you might be interested in being involved in a research study. To learn more about this opportunity, please visit lupusskin com and if you have any questions about clinical trials, please go to the clinical trials government website.

  • AWESOME VIDEO!

  • Thats so sad. I love your video, and i love your strength and determination not to let this horrible disease put you down. May you have happy and healthy days ahead, love. :)

  • This was a great video, girl after my own heart. I fight Lupus everyday but refuse to give up on be an active grandmother and doing everything I possibly can. There a days I grit my teeth in pain and can barely move, but I see those beautiful little eyes and I cannot say no when they want to play. You go girl and keep up the good work and show that there are ones out there with this horrible disease that can still be SUPERWOMAN.

  • Wow this is really inspiring. I play basketball too and i had to stop after i was diagnosed with severe chron's disease so they put me on TNF chemo called remicade and ever since i've been having lupus symptons. Theyre still ruling out what it might be but i know I can handle whatever comes my way! You are a strong girl! Keep it up! Where do you get the purple bands?

  • @fatpanduhchicc Hey I'm sorry that you had to give up basketball. :( Keep pushing no matter what and I hope that your doctors can figure out what is going on. If you want you can message me! This is my other account though, LiveHopeLupus.

  • You are such a beautiful girl. I just tested positive for this yesterday and ran across this video and it brought tears to my eyes. Thank you.

  • You are such a beautiful girl. I just tested positive for this yesterday and ran across this video and it brought tears to my eyes. Thank you.

  • You are a true champion...

    Your video made me shed tears...I have Lupus, and although I try to put on a brave face, sometimes I cry alone. I used to be a great soccer player (football as we call it in UK), slim, all the ladies wanted to date me, until lupus turned my life upside down, I lost my hip to the illness, and could no longer play soccer.

    I am now 220Ilbs and have become a wrestler. I refuse to let lupus beat me. Until my dieing days I will battle lupus like a champion that I am.

  • Lupus sucks big time!!!! It's turned my life upside down :(

  • Thank you so much for posting this. <3 I was just diagnosed and it gives me so much hope that there are people like you fighting every day, and reminding the rest of us to stay strong and keep on.

  • omg this video makes me cry hysterically im fighting right along side with u everyday we fight against lupus ! keep fighting girl !

  • Wow, good job. I hope you keep doing what makes you happy. :)

  • YOU MADE ME CRY.. BUT SO PROUD OF SOMEONE SO STRONG...

  • i have lupus as well and was diagnosed two days after my 20th birthday. i know it is so scary and an unfair place to be. nice to see another young person with it lol as terrible as that sounds. everyone in the support group i went to is older. :/ anhyhow, great video!! lets keep trying to raise awareness, and be strong! we're in this together!

  • Slam dunk 'em. Your more than a superwoman....you're amazing. Keep fighting!

  • hi i am doing a report on lupus for my Honors anatomy class and i came across ur video... when i watched it i just smiled the whole time i think ur video that i am impressed by! i am glad uare fighting and keep fighing! can u tellme anything more about lupus?

  • I'm 16 and was recently diagnosed with Lupus a few months ago. I give strength to everyone who struggles with it.

  • I was diagnosed back in may. I just turned 15 in August. I'm still not clear on everything that comes with it, but so far I'm doing good. My family is helpful and so our my friends. My boyfriend is most helpful of all. He understands so much (: I thank God everyday :]

  • Wooowwww, U Almost Have The Same Faith Nd Courage I Do. I Was Also Diagnosed Wit Lupus In January. I Thought 2 Myself, Y Me.? Nd So Young.? Im 15 About 2 Be 16. The Doctors Told Me My Life Was Gonna Be Different Nd That I Couldnt Do Anny Sports, Or Any Rough Activity. Now Dat Months Have Passed By, I Have Learned U Can Live Wit It. Now Im Tryin 2 Be A Regular Person, At Skool, Nd Everywhere I Go. I Had Almost All The Symptoms. Arthritis,Muslce Pain,Random Fever, Nd Fatigue.

  • hello

    I m 36 years old and I learned I have lupus 5 years ago when I got in the hospital because I had a stroke. Thank you for the video. You are so sweet and I wish you the best. ( sorry My english may not be very good because its not my language).

    Thanks because some times I feel so lonely and tonight I wasnt.

    Goodnight

  • hi, I loved your video, I have a cousin form of Lupus. I dont know which one it would be because my blood test show that only my white blood cell count is low. It started 4 months ago, major changes happend. Im a figure skater, now I cant do as much as I used to. Now since College has started (I just got it at the end of the school year) I have noticed its painful if i take notes, but your video shows people that you can still do it as long as you have the courage to do so! Thank you!

  • I read a study that said it was more commong in northern European-aka swedish/scandavian peoples...hey, what do the experts know...they tell me it's just r/a, but I have knots under my skin like rocks, I have a rash that won't go a way and my stomach hates me (feels like IBS--but now I'm begining to wonder) esp. since my 28 year old daughter who also has r/a is now being tested for LUPUS, neither one of us has ever had the facial thing of lupus...BUT a lot of the symptoms are coming together.

  • Your video is wonderful and I love your attitude.  You are a strong woman!

  • my friend has to go to a hospital for 3 to 7 days for lupus and she's only 13 childhood lupus i feel sorry for her

  • @masterchiefjoe My cousin was not aware that I have something that can help. I have no intention of selling you anything but please take a look at what I know can help her in this situation. I feel so bad that I did not know she was even sick at all when I could have helped her. Let me know if your interested...

  • My cousin Jennifer Mayol Just Died today at 9:00 am from Lupus. She is now in peace with God in Jesus name

  • I have lupus also. Thank you for this. Many people don't understand

  • im 18 and i was dignosied with lupus at age 11

  • Wow i love this my mother was just diagnosed yesterday and i was very depressed and stressed out about the situation, but this video put hope into my heart. May good continue to bless you! :)

  • thanx for your video,it´s wonderful

  • wow. I just made a video for Lupus Awareness because my mother suffered from it and passed away from it. I almost cried because of yur everlasting courage and strength. Please I encourage you to go and view my video as well. I love this video. :

    :)

  • @aquaprincess222 Thanks! I subbed to your channel. If you do subscribe to this channel, I'm actually only making videos on my new channel, LiveHopeLupus.

  • well done sweety! this was so very moving! :)

  • what a video, my sister has lupus, she's 36 , she is trying to be very positive, but sometimes we can't deal with that, I Hope that someone could find a cure for that as soon as possible, thanks for ur video and sorry for my bad english ( we are from Peru)

  • :(((((

  • raynaud's phenomenon is the worts to me, i feel that i gonna loose my hands and foots!!! my god so hard!!!

  • i have lupus in my joints, i'm 22 and that start at 18!

  • use reishi/ganoderma to cure lupus completely. search in google bout it their is tons of info.

  • use reishi/ganoderma to cure your lupus completely. you can get a tons of info in google about reishi/ganoderma

  • It's never Lupus.

  • thanks for making this video.. i am really touched. i have a normal life but sometimes i complain with somethings about mylife.. you made me realize how blessed i am. thank you so much. keep fighting. God bless. :))

  • God bless you on creating this vid as well as dealing with lupus. I was diagnosed in March 09 last year and I was scared at first but I wish I didn't have to take all of these medicines but I guess its the only correct way to get better. Many thanks, Chelle

  • Hello! My name is Francisca G. I'm from Chile, was moved by your video, so I understood you were diagnosed lupus, you are very strong! matter to me was diagnosed two months ago ...

  • Hello, I would just like to let anyone who is interested in using electricity to heal I would like to invite you to learn about the Bob Beck Protocol and Blood Electrification Therapy.

    There are multiple sites and videos on Youtube explaining how each portion of the Protocol functions to help those suffering from primarily viral diseases but has personally helped me with my CFS. Please visit the Unleash Health site for more information on the Protocol and therapy!

    Thank you!

  • Such an amazing, strong, beautiful, and inspiring young lady you are. I'm 34, diagnosed at age 21. Seeing this video made me smile and cry. You're an awesome girl. Keep winning that fight, keep inspiring so many of us. Thank you. :)

  • Don't ever let someone tell you you can't do something and don't doubt your abilities to do something until you try. I have has lupus since I was 7 and I am now finishing up my sophomore year of college with a very difficult double major. Right now I am on the track to graduate with two bachelor of science degrees (150 credits, classes are usually 3 each) in 4 years. I am constantly fighting with my memory, but I am surrounded by people who care and you are too.

  • i love the fact that your so positive about it all....well done and continue to fight it......

    i have had symptoms for over 5 years and still the docs are finding it hard to diagnose it....but now i have the facial rash i think they may confirm its lupus....

    its a hard struggle but am going to fight it too.....thanks for posting this

  • Recently found out my mom has this =(

  • Why can't she play basketball? Is it because of the pain?

  • Don't worry you are cute and stronger nobody is't perfect =D

  • I am twenty years old, and I just got diagnosed with Lupus. I am scared out of my mind; your video has helped me so much! God bless you!

  • This is a great video you've made, you're giving so people so much help and hope who have the disease.

    I was diagnosed when I was 12, Im now 22 and living my life to the fullest.

    Lupus is just another obstacle in our lives which has been placed in our path so we can fight through it and come out the other end as a better person.

  • it lupus

  • it lupus

  • it lupus

  • Your Sooo Awesome!!! ^,^ I have a friend with lupus & she is the bass guitarist in a band... she's awesome too =D

  • I just want to let you know as another Lupus patient to keep up the great work that you are doing in helping to educate and spread awareness for this disease. You are inspiring to others with the disease. <3 I've posted your videos on facebook multiple times.

  • youre so young god bless you and well done youre a star x x x

  • You go girl!

  • hello, i'am french with a lupus to...where do you find this energy ...i want the same energy ...

    i play music, and its very strong to stay performer .

    see ya

  • the math is wrong. If 16000 get the disease each year, how do you get to 1.5 million cases? Would take 100 years to get there.

  • you'll be fine.  You look very strong.

  • Keep fighting!! I am very impressed with your resiliance.  I have had lupus for 6 yrs. When I was diagnosed, I felt like my life was over. Since then, I have gotten married and had 2 children. You can accomplish your goals!!!!

  • Thanks for sharing, it is inspiring to see. Continue pushing and fighting as I am I have been affected with SLE for 10 years now. I have had my bouts with Lupus but I consider myself a warrior

  • It's never Lupus...

  • @blackt12 i agree its never lupus "house is the best"

  • It's both encouraging to see you fighting, and heartbreaking to know you have a lifetime of pain to live with. I'm in the same boat with another autoimmune disease - Ankylosing Spondylitis. Let's hope for the best for both of us, okay? :)

  • This is a very encouraging video, may God bless!

  • great video.

  • When can I get the bracalettes? I´m a Girl from spain afected by lupus

  • 0 Marked as spam

    Reply | Remove i have lupus sle and skin lupus, plus lupus panculiiltis,

    i have aps hughes syndrome, i have lost 10 babies due to this, i have sjrgens syndrome as well thanks goodness for st thomas in london for taking note of me and listnen my own hos in yor wouldnt and i was not treated or listen to or yrs by herts hos and gps in wales , why dont doct listen we no our bodies,,,,,,,,,,,,,keep up the great work make your gp liste n to you if you dont feel right

  • i love your video check out mind if you get a chance. Also hang in there, don't give up and only wish you only the best.

  • Great video.

  • you are sooo buetiful

  • God bless you for your courage in sharing this with the world. You are so young to have this disease. I also have lupus but I am much older (52). I am a nurse practitioner (told by 3 MDs to go on disability but I refuse to give in) and frequently see many patients in my office that have lupus and have no idea I also suffer from it as well. All my best to you and your family!

  • Thank you! And that is great that your able to be a nurse practitioner. I'd like to be a pediatric rheumatologist but I know it's going to be so hard to do.

  • i was 6 when i was giagnosed it cared my family more than me because i didnt have a clue what i was going on. the paint stopped when i was about ten but when i hit 16 it was back and its the worst feeling ever always in pain and always depressed

  • Thanks girl. I needed a boost today and you gave it. Appreciate cha!

  • i was diagnosed in july 1 month b4 my 22 bday. i cried alot still do at times but i have hope. thanks for the video. p.s. i am concerned about the sideeffects of the drug esp moonface. but i thank god for life

  • i was diagnosed 3 months ago, my sister was diagnosed a few days ago and my mom goes in for testing tomorrow she has had pain for the last 10 years but never thought it was that serious till i was diagnosed. I have only had one flare up but i havent been feeling well this week. I think its back :(

  • It's not lupus. It's never lupus.

  • i was diagnosed with stage four Lupus one week before my 22nd birthday last february :( i had to spend my bday in the hospital. the worst thing was the joint pain, but i now have a love-hate relationship with prednisone, since it it saved my life and my joint pain is much better, although i hate the moon face, acne and weight gain :( not fun. love your video by the way :) stay strong.

  • oh... thank u for that... you are a true inspiration! your vid made me cry... i love to sing... i will never give it up either :) wishing you all the very very best. you are amazing!!! xoxoxo

  • Hey! How old were u when u found out u had lupus? Were u scared? Well my name is joy and I'm 26. just yesterday 11/09/09 I found out that I have lupus. I'm very scared of it.

  • Hi! I was 14 when I was diagnosed.. and I'm now 16. You can message me on here if you want to talk about it, cause I know it can be hard when your first diagnosed.

  • Thank you for your great video! I have lupus I was just diagnosed this year and I also have MCTD, its so hard to make it through the day when you are soo tired all the time, I hope one day to return to horse back riding, just like your love of basketball, my love is riding. Kudos to you for doing what you love! keep fighting,we all need to! Thanks for the inspirational video, we need more like these on youtube!

  • I love the video!!! Very encouraging!! Dont stop fighting and may god continue to bless you.

  • thanks so much for uploading this...my sister whom i really love and care about has just been diagnosed with lupus...and watching your video really strengthen us and gives our family much hope...thanks so much, may God bless you and continue with your fight...you'll be in our prayer daily

  • Thanks so much for this, Hope all is well with your sister.

  • my sister was diagnosed with lupus 4 years ago when she was 15

  • God bless you! Keep fighting and give us all hope and encouragement. I'm 34 yrs old and have been living with lupus for 12 years now..I can't work anymore and my disease has progressed but your story puts a big ole smile on my face :)

  • My aunt was just diagnosed with Lupus and she is in her 50's. Thanks for the awesome video.

  • im a 19 yr old and i was digonosed with lupus a year ago! thanks for this:)

  • Great video!!!  I was just diagnosed with Lupus at 31 but never gave up on my dreams either. I am a firefighter/paramedic, a hero and a Superwoman just like you .

  • I was diagnosed at 29-I am a firefighter/first responder and a full-time banker. It doesn't matter how much pain I'm in, I'd rather be figthing fire or lending a helping hand to those in need. I can usually always find the strength to do that task.

  • This is great to hear! I would love to be a paramedic, but I'm scared to persue that dream because of the lupus..

  • Follow your dreams. Being able to help someone by being a paramedic is so rewarding to yourself as well as the person seeking treatment. I will be starting schooling for my EMS Licensing in January and I can't wait!

  • Oh my goodness. I was also expecting to see someone my age (38) and instead see such a young woman. I was dx at age 27 but knew I had Lupus since I was a young teen. You are an inspiration sweetie. Keep up the fight. It can be done!

  • Beautiful. God bless you! Keep reaching for the stars. You are truly an inspiration.

  • this is amazing great vid xx

  • wow nice video this is so cool you never gave up in your dreams way to go you have alot of strangh

  • I'm a 15 year old and I just got diagnosed with lupus, thank you for this video - it made me feel less alone

  • God Bless you

  • força!!!!!!

  • yuu are a very strong and dedicated person. god bless you

  • you're amazing, i hope you know that. never stop fighting.

  • your video really is an inspiration to all living with lupus.

    My best friend, Janette passed away from lupus a little less than a year ago.

    Keep fighting.

  • A name to a face-I know you from healingwell-excellent video!!! You are a true inspiration to everyone with Lupus-good luck with your b-ball.

  • real hope not just talk, Wonderful to see! you Go!

  • I have lupus and I was losing hope, but after watching this video, it inspired me to keep fighting!!! My doc told me that my running days are over! I proved him wrong - I finished my first 1/2 marathon a year ago!

  • I am being tested for Lupus. Thank you for the inspiring video. I want to be a teacher! I hope to live a life of determination and not let anything stop me from my dream! Great video!

  • Great video!

  • can we just talked about how I teared up a little?

    I LOVE YOU (:

  • i love you.

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