love ur video, i have lupus too i know it sucks but im thankful everyday just because im alive I LOVEEE UR COURAGE AND UR STRENGHT AND YESS WE ARE SUPER WOMENS!!! WE ARE FIGHTERS WE HAVE LUPUS BUT LUPUS DOESNT HAVE US! :D <3 MUCHH LOVE!! GOD BLESS U!
Great Video....hope you are feeling well....stay strong....& keep fighting..." I may have lupus, but Lupus doesn't have me!" Amazing....I tell myself that everyday.....
Hey I thought your video was great I am actually doing a presentation to raise awareness for lupus at school and I would love to use your video however there r some copyright issues with the song would you know what to do?
i have bean living with lupus most my life but im just now finding out thats what it is my joints ack so mutch my face goes read i hat it its way inbarasing and my fee swell but i just go day buy day thats all i can do.
thank you! this video gives me strength .. i've visited last night my bff and she was diagnose with skin lupus she was shocked to see us her friends almost made her cry... shes also a fighter like you don't let that disease win... FIGHTING!!!!
Hello Everyone! I work with a group who is actively trying to enroll people with skin lupus into a clinical research study. After reading your thoughts and comments, I thought some of you might be interested in being involved in a research study. To learn more about this opportunity, please visit lupusskin com and if you have any questions about clinical trials, please go to the clinical trials government website.
Thats so sad. I love your video, and i love your strength and determination not to let this horrible disease put you down. May you have happy and healthy days ahead, love. :)
This was a great video, girl after my own heart. I fight Lupus everyday but refuse to give up on be an active grandmother and doing everything I possibly can. There a days I grit my teeth in pain and can barely move, but I see those beautiful little eyes and I cannot say no when they want to play. You go girl and keep up the good work and show that there are ones out there with this horrible disease that can still be SUPERWOMAN.
Wow this is really inspiring. I play basketball too and i had to stop after i was diagnosed with severe chron's disease so they put me on TNF chemo called remicade and ever since i've been having lupus symptons. Theyre still ruling out what it might be but i know I can handle whatever comes my way! You are a strong girl! Keep it up! Where do you get the purple bands?
@fatpanduhchicc Hey I'm sorry that you had to give up basketball. :( Keep pushing no matter what and I hope that your doctors can figure out what is going on. If you want you can message me! This is my other account though, LiveHopeLupus.
Your video made me shed tears...I have Lupus, and although I try to put on a brave face, sometimes I cry alone. I used to be a great soccer player (football as we call it in UK), slim, all the ladies wanted to date me, until lupus turned my life upside down, I lost my hip to the illness, and could no longer play soccer.
I am now 220Ilbs and have become a wrestler. I refuse to let lupus beat me. Until my dieing days I will battle lupus like a champion that I am.
Thank you so much for posting this. <3 I was just diagnosed and it gives me so much hope that there are people like you fighting every day, and reminding the rest of us to stay strong and keep on.
i have lupus as well and was diagnosed two days after my 20th birthday. i know it is so scary and an unfair place to be. nice to see another young person with it lol as terrible as that sounds. everyone in the support group i went to is older. :/ anhyhow, great video!! lets keep trying to raise awareness, and be strong! we're in this together!
hi i am doing a report on lupus for my Honors anatomy class and i came across ur video... when i watched it i just smiled the whole time i think ur video that i am impressed by! i am glad uare fighting and keep fighing! can u tellme anything more about lupus?
I was diagnosed back in may. I just turned 15 in August. I'm still not clear on everything that comes with it, but so far I'm doing good. My family is helpful and so our my friends. My boyfriend is most helpful of all. He understands so much (: I thank God everyday :]
Wooowwww, U Almost Have The Same Faith Nd Courage I Do. I Was Also Diagnosed Wit Lupus In January. I Thought 2 Myself, Y Me.? Nd So Young.? Im 15 About 2 Be 16. The Doctors Told Me My Life Was Gonna Be Different Nd That I Couldnt Do Anny Sports, Or Any Rough Activity. Now Dat Months Have Passed By, I Have Learned U Can Live Wit It. Now Im Tryin 2 Be A Regular Person, At Skool, Nd Everywhere I Go. I Had Almost All The Symptoms. Arthritis,Muslce Pain,Random Fever, Nd Fatigue.
I m 36 years old and I learned I have lupus 5 years ago when I got in the hospital because I had a stroke. Thank you for the video. You are so sweet and I wish you the best. ( sorry My english may not be very good because its not my language).
Thanks because some times I feel so lonely and tonight I wasnt.
hi, I loved your video, I have a cousin form of Lupus. I dont know which one it would be because my blood test show that only my white blood cell count is low. It started 4 months ago, major changes happend. Im a figure skater, now I cant do as much as I used to. Now since College has started (I just got it at the end of the school year) I have noticed its painful if i take notes, but your video shows people that you can still do it as long as you have the courage to do so! Thank you!
I read a study that said it was more commong in northern European-aka swedish/scandavian peoples...hey, what do the experts know...they tell me it's just r/a, but I have knots under my skin like rocks, I have a rash that won't go a way and my stomach hates me (feels like IBS--but now I'm begining to wonder) esp. since my 28 year old daughter who also has r/a is now being tested for LUPUS, neither one of us has ever had the facial thing of lupus...BUT a lot of the symptoms are coming together.
@masterchiefjoe My cousin was not aware that I have something that can help. I have no intention of selling you anything but please take a look at what I know can help her in this situation. I feel so bad that I did not know she was even sick at all when I could have helped her. Let me know if your interested...
Wow i love this my mother was just diagnosed yesterday and i was very depressed and stressed out about the situation, but this video put hope into my heart. May good continue to bless you! :)
wow. I just made a video for Lupus Awareness because my mother suffered from it and passed away from it. I almost cried because of yur everlasting courage and strength. Please I encourage you to go and view my video as well. I love this video. :
@aquaprincess222 Thanks! I subbed to your channel. If you do subscribe to this channel, I'm actually only making videos on my new channel, LiveHopeLupus.
what a video, my sister has lupus, she's 36 , she is trying to be very positive, but sometimes we can't deal with that, I Hope that someone could find a cure for that as soon as possible, thanks for ur video and sorry for my bad english ( we are from Peru)
thanks for making this video.. i am really touched. i have a normal life but sometimes i complain with somethings about mylife.. you made me realize how blessed i am. thank you so much. keep fighting. God bless. :))
God bless you on creating this vid as well as dealing with lupus. I was diagnosed in March 09 last year and I was scared at first but I wish I didn't have to take all of these medicines but I guess its the only correct way to get better. Many thanks, Chelle
Hello! My name is Francisca G. I'm from Chile, was moved by your video, so I understood you were diagnosed lupus, you are very strong! matter to me was diagnosed two months ago ...
Hello, I would just like to let anyone who is interested in using electricity to heal I would like to invite you to learn about the Bob Beck Protocol and Blood Electrification Therapy.
There are multiple sites and videos on Youtube explaining how each portion of the Protocol functions to help those suffering from primarily viral diseases but has personally helped me with my CFS. Please visit the Unleash Health site for more information on the Protocol and therapy!
Such an amazing, strong, beautiful, and inspiring young lady you are. I'm 34, diagnosed at age 21. Seeing this video made me smile and cry. You're an awesome girl. Keep winning that fight, keep inspiring so many of us. Thank you. :)
Don't ever let someone tell you you can't do something and don't doubt your abilities to do something until you try. I have has lupus since I was 7 and I am now finishing up my sophomore year of college with a very difficult double major. Right now I am on the track to graduate with two bachelor of science degrees (150 credits, classes are usually 3 each) in 4 years. I am constantly fighting with my memory, but I am surrounded by people who care and you are too.
i love the fact that your so positive about it all....well done and continue to fight it......
i have had symptoms for over 5 years and still the docs are finding it hard to diagnose it....but now i have the facial rash i think they may confirm its lupus....
its a hard struggle but am going to fight it too.....thanks for posting this
This is a great video you've made, you're giving so people so much help and hope who have the disease.
I was diagnosed when I was 12, Im now 22 and living my life to the fullest.
Lupus is just another obstacle in our lives which has been placed in our path so we can fight through it and come out the other end as a better person.
I just want to let you know as another Lupus patient to keep up the great work that you are doing in helping to educate and spread awareness for this disease. You are inspiring to others with the disease. <3 I've posted your videos on facebook multiple times.
Keep fighting!! I am very impressed with your resiliance. I have had lupus for 6 yrs. When I was diagnosed, I felt like my life was over. Since then, I have gotten married and had 2 children. You can accomplish your goals!!!!
Thanks for sharing, it is inspiring to see. Continue pushing and fighting as I am I have been affected with SLE for 10 years now. I have had my bouts with Lupus but I consider myself a warrior
It's both encouraging to see you fighting, and heartbreaking to know you have a lifetime of pain to live with. I'm in the same boat with another autoimmune disease - Ankylosing Spondylitis. Let's hope for the best for both of us, okay? :)
Reply | Remove i have lupus sle and skin lupus, plus lupus panculiiltis,
i have aps hughes syndrome, i have lost 10 babies due to this, i have sjrgens syndrome as well thanks goodness for st thomas in london for taking note of me and listnen my own hos in yor wouldnt and i was not treated or listen to or yrs by herts hos and gps in wales , why dont doct listen we no our bodies,,,,,,,,,,,,,keep up the great work make your gp liste n to you if you dont feel right
God bless you for your courage in sharing this with the world. You are so young to have this disease. I also have lupus but I am much older (52). I am a nurse practitioner (told by 3 MDs to go on disability but I refuse to give in) and frequently see many patients in my office that have lupus and have no idea I also suffer from it as well. All my best to you and your family!
Thank you! And that is great that your able to be a nurse practitioner. I'd like to be a pediatric rheumatologist but I know it's going to be so hard to do.
i was 6 when i was giagnosed it cared my family more than me because i didnt have a clue what i was going on. the paint stopped when i was about ten but when i hit 16 it was back and its the worst feeling ever always in pain and always depressed
i was diagnosed in july 1 month b4 my 22 bday. i cried alot still do at times but i have hope. thanks for the video. p.s. i am concerned about the sideeffects of the drug esp moonface. but i thank god for life
i was diagnosed 3 months ago, my sister was diagnosed a few days ago and my mom goes in for testing tomorrow she has had pain for the last 10 years but never thought it was that serious till i was diagnosed. I have only had one flare up but i havent been feeling well this week. I think its back :(
i was diagnosed with stage four Lupus one week before my 22nd birthday last february :( i had to spend my bday in the hospital. the worst thing was the joint pain, but i now have a love-hate relationship with prednisone, since it it saved my life and my joint pain is much better, although i hate the moon face, acne and weight gain :( not fun. love your video by the way :) stay strong.
oh... thank u for that... you are a true inspiration! your vid made me cry... i love to sing... i will never give it up either :) wishing you all the very very best. you are amazing!!! xoxoxo
Hey! How old were u when u found out u had lupus? Were u scared? Well my name is joy and I'm 26. just yesterday 11/09/09 I found out that I have lupus. I'm very scared of it.
Hi! I was 14 when I was diagnosed.. and I'm now 16. You can message me on here if you want to talk about it, cause I know it can be hard when your first diagnosed.
Thank you for your great video! I have lupus I was just diagnosed this year and I also have MCTD, its so hard to make it through the day when you are soo tired all the time, I hope one day to return to horse back riding, just like your love of basketball, my love is riding. Kudos to you for doing what you love! keep fighting,we all need to! Thanks for the inspirational video, we need more like these on youtube!
thanks so much for uploading this...my sister whom i really love and care about has just been diagnosed with lupus...and watching your video really strengthen us and gives our family much hope...thanks so much, may God bless you and continue with your fight...you'll be in our prayer daily
God bless you! Keep fighting and give us all hope and encouragement. I'm 34 yrs old and have been living with lupus for 12 years now..I can't work anymore and my disease has progressed but your story puts a big ole smile on my face :)
Great video!!! I was just diagnosed with Lupus at 31 but never gave up on my dreams either. I am a firefighter/paramedic, a hero and a Superwoman just like you .
I was diagnosed at 29-I am a firefighter/first responder and a full-time banker. It doesn't matter how much pain I'm in, I'd rather be figthing fire or lending a helping hand to those in need. I can usually always find the strength to do that task.
Follow your dreams. Being able to help someone by being a paramedic is so rewarding to yourself as well as the person seeking treatment. I will be starting schooling for my EMS Licensing in January and I can't wait!
Oh my goodness. I was also expecting to see someone my age (38) and instead see such a young woman. I was dx at age 27 but knew I had Lupus since I was a young teen. You are an inspiration sweetie. Keep up the fight. It can be done!
I have lupus and I was losing hope, but after watching this video, it inspired me to keep fighting!!! My doc told me that my running days are over! I proved him wrong - I finished my first 1/2 marathon a year ago!
I am being tested for Lupus. Thank you for the inspiring video. I want to be a teacher! I hope to live a life of determination and not let anything stop me from my dream! Great video!
love ur video, i have lupus too i know it sucks but im thankful everyday just because im alive I LOVEEE UR COURAGE AND UR STRENGHT AND YESS WE ARE SUPER WOMENS!!! WE ARE FIGHTERS WE HAVE LUPUS BUT LUPUS DOESNT HAVE US! :D <3 MUCHH LOVE!! GOD BLESS U!
tylanaty2 4 weeks ago
Great Video....hope you are feeling well....stay strong....& keep fighting..." I may have lupus, but Lupus doesn't have me!" Amazing....I tell myself that everyday.....
modelnsinginme19 1 month ago
Hey I thought your video was great I am actually doing a presentation to raise awareness for lupus at school and I would love to use your video however there r some copyright issues with the song would you know what to do?
sophie29293 1 month ago
i have bean living with lupus most my life but im just now finding out thats what it is my joints ack so mutch my face goes read i hat it its way inbarasing and my fee swell but i just go day buy day thats all i can do.
sadihymas 3 months ago
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Minha Esposa se curou de Lupus e artrite reumatoide! veja tudo em nosso blog
curassecretas.blogspot.com
curassecretas 3 months ago
thank you! this video gives me strength .. i've visited last night my bff and she was diagnose with skin lupus she was shocked to see us her friends almost made her cry... shes also a fighter like you don't let that disease win... FIGHTING!!!!
dhanadc19 4 months ago
Hello Everyone! I work with a group who is actively trying to enroll people with skin lupus into a clinical research study. After reading your thoughts and comments, I thought some of you might be interested in being involved in a research study. To learn more about this opportunity, please visit lupusskin com and if you have any questions about clinical trials, please go to the clinical trials government website.
ClinicalStudies 5 months ago
AWESOME VIDEO!
Akleb215 6 months ago
Thats so sad. I love your video, and i love your strength and determination not to let this horrible disease put you down. May you have happy and healthy days ahead, love. :)
NashVille62293 7 months ago
This was a great video, girl after my own heart. I fight Lupus everyday but refuse to give up on be an active grandmother and doing everything I possibly can. There a days I grit my teeth in pain and can barely move, but I see those beautiful little eyes and I cannot say no when they want to play. You go girl and keep up the good work and show that there are ones out there with this horrible disease that can still be SUPERWOMAN.
fallfly1 8 months ago
Wow this is really inspiring. I play basketball too and i had to stop after i was diagnosed with severe chron's disease so they put me on TNF chemo called remicade and ever since i've been having lupus symptons. Theyre still ruling out what it might be but i know I can handle whatever comes my way! You are a strong girl! Keep it up! Where do you get the purple bands?
fatpanduhchicc 11 months ago
@fatpanduhchicc Hey I'm sorry that you had to give up basketball. :( Keep pushing no matter what and I hope that your doctors can figure out what is going on. If you want you can message me! This is my other account though, LiveHopeLupus.
LiveHopeLupus 11 months ago
This has been flagged as spam show
You are such a beautiful girl. I just tested positive for this yesterday and ran across this video and it brought tears to my eyes. Thank you.
sd46323 1 year ago
You are such a beautiful girl. I just tested positive for this yesterday and ran across this video and it brought tears to my eyes. Thank you.
sd46323 1 year ago
You are such a beautiful girl. I just tested positive for this yesterday and ran across this video and it brought tears to my eyes. Thank you.
sd46323 1 year ago
You are a true champion...
Your video made me shed tears...I have Lupus, and although I try to put on a brave face, sometimes I cry alone. I used to be a great soccer player (football as we call it in UK), slim, all the ladies wanted to date me, until lupus turned my life upside down, I lost my hip to the illness, and could no longer play soccer.
I am now 220Ilbs and have become a wrestler. I refuse to let lupus beat me. Until my dieing days I will battle lupus like a champion that I am.
NEOGEO1966 1 year ago
Lupus sucks big time!!!! It's turned my life upside down :(
kacklebird2 1 year ago
Thank you so much for posting this. <3 I was just diagnosed and it gives me so much hope that there are people like you fighting every day, and reminding the rest of us to stay strong and keep on.
CoffeehouseGirl25 1 year ago
omg this video makes me cry hysterically im fighting right along side with u everyday we fight against lupus ! keep fighting girl !
iluvcooper1989 1 year ago
Wow, good job. I hope you keep doing what makes you happy. :)
C3H10N4O2 1 year ago
YOU MADE ME CRY.. BUT SO PROUD OF SOMEONE SO STRONG...
Dragnwidow 1 year ago
i have lupus as well and was diagnosed two days after my 20th birthday. i know it is so scary and an unfair place to be. nice to see another young person with it lol as terrible as that sounds. everyone in the support group i went to is older. :/ anhyhow, great video!! lets keep trying to raise awareness, and be strong! we're in this together!
JesusWithAGunn 1 year ago
Slam dunk 'em. Your more than a superwoman....you're amazing. Keep fighting!
mmorrellwilson 1 year ago
hi i am doing a report on lupus for my Honors anatomy class and i came across ur video... when i watched it i just smiled the whole time i think ur video that i am impressed by! i am glad uare fighting and keep fighing! can u tellme anything more about lupus?
FlorPadilla2011 1 year ago
I'm 16 and was recently diagnosed with Lupus a few months ago. I give strength to everyone who struggles with it.
2010KatieS 1 year ago
I was diagnosed back in may. I just turned 15 in August. I'm still not clear on everything that comes with it, but so far I'm doing good. My family is helpful and so our my friends. My boyfriend is most helpful of all. He understands so much (: I thank God everyday :]
xmelodylovex 1 year ago
Wooowwww, U Almost Have The Same Faith Nd Courage I Do. I Was Also Diagnosed Wit Lupus In January. I Thought 2 Myself, Y Me.? Nd So Young.? Im 15 About 2 Be 16. The Doctors Told Me My Life Was Gonna Be Different Nd That I Couldnt Do Anny Sports, Or Any Rough Activity. Now Dat Months Have Passed By, I Have Learned U Can Live Wit It. Now Im Tryin 2 Be A Regular Person, At Skool, Nd Everywhere I Go. I Had Almost All The Symptoms. Arthritis,Muslce Pain,Random Fever, Nd Fatigue.
gemadaisa3 1 year ago
hello
I m 36 years old and I learned I have lupus 5 years ago when I got in the hospital because I had a stroke. Thank you for the video. You are so sweet and I wish you the best. ( sorry My english may not be very good because its not my language).
Thanks because some times I feel so lonely and tonight I wasnt.
Goodnight
melina137 1 year ago
hi, I loved your video, I have a cousin form of Lupus. I dont know which one it would be because my blood test show that only my white blood cell count is low. It started 4 months ago, major changes happend. Im a figure skater, now I cant do as much as I used to. Now since College has started (I just got it at the end of the school year) I have noticed its painful if i take notes, but your video shows people that you can still do it as long as you have the courage to do so! Thank you!
KollaBears2010 1 year ago
I read a study that said it was more commong in northern European-aka swedish/scandavian peoples...hey, what do the experts know...they tell me it's just r/a, but I have knots under my skin like rocks, I have a rash that won't go a way and my stomach hates me (feels like IBS--but now I'm begining to wonder) esp. since my 28 year old daughter who also has r/a is now being tested for LUPUS, neither one of us has ever had the facial thing of lupus...BUT a lot of the symptoms are coming together.
yankeegurl62 1 year ago
Your video is wonderful and I love your attitude. You are a strong woman!
lainieculver 1 year ago
my friend has to go to a hospital for 3 to 7 days for lupus and she's only 13 childhood lupus i feel sorry for her
masterchiefjoe 1 year ago
@masterchiefjoe My cousin was not aware that I have something that can help. I have no intention of selling you anything but please take a look at what I know can help her in this situation. I feel so bad that I did not know she was even sick at all when I could have helped her. Let me know if your interested...
TheNaturalmeds 1 year ago
My cousin Jennifer Mayol Just Died today at 9:00 am from Lupus. She is now in peace with God in Jesus name
TheNaturalmeds 1 year ago
@TheNaturalmeds
masterchiefjoe 1 year ago
I have lupus also. Thank you for this. Many people don't understand
Poetyk1 1 year ago
im 18 and i was dignosied with lupus at age 11
psycochick10 1 year ago
Wow i love this my mother was just diagnosed yesterday and i was very depressed and stressed out about the situation, but this video put hope into my heart. May good continue to bless you! :)
SuperModel89 1 year ago
thanx for your video,it´s wonderful
sooka2000 1 year ago
wow. I just made a video for Lupus Awareness because my mother suffered from it and passed away from it. I almost cried because of yur everlasting courage and strength. Please I encourage you to go and view my video as well. I love this video. :
:)
aquaprincess222 1 year ago
@aquaprincess222 Thanks! I subbed to your channel. If you do subscribe to this channel, I'm actually only making videos on my new channel, LiveHopeLupus.
bigsanfer32 1 year ago
well done sweety! this was so very moving! :)
lucytoon 1 year ago
what a video, my sister has lupus, she's 36 , she is trying to be very positive, but sometimes we can't deal with that, I Hope that someone could find a cure for that as soon as possible, thanks for ur video and sorry for my bad english ( we are from Peru)
danielmm15 1 year ago
:(((((
61Surya 1 year ago
raynaud's phenomenon is the worts to me, i feel that i gonna loose my hands and foots!!! my god so hard!!!
uzumakiarual 1 year ago
i have lupus in my joints, i'm 22 and that start at 18!
uzumakiarual 1 year ago
This has been flagged as spam show
use reishi/ganoderma to cure lupus completely. search in google bout it their is tons of info.
devensharma4u 1 year ago
use reishi/ganoderma to cure lupus completely. search in google bout it their is tons of info.
devensharma4u 1 year ago
use reishi/ganoderma to cure your lupus completely. you can get a tons of info in google about reishi/ganoderma
devensharma4u 1 year ago
It's never Lupus.
judemcg 1 year ago
thanks for making this video.. i am really touched. i have a normal life but sometimes i complain with somethings about mylife.. you made me realize how blessed i am. thank you so much. keep fighting. God bless. :))
XXmetalliaXX 1 year ago
God bless you on creating this vid as well as dealing with lupus. I was diagnosed in March 09 last year and I was scared at first but I wish I didn't have to take all of these medicines but I guess its the only correct way to get better. Many thanks, Chelle
dreamer82ful 1 year ago
Hello! My name is Francisca G. I'm from Chile, was moved by your video, so I understood you were diagnosed lupus, you are very strong! matter to me was diagnosed two months ago ...
franciscafernanda21 1 year ago
Hello, I would just like to let anyone who is interested in using electricity to heal I would like to invite you to learn about the Bob Beck Protocol and Blood Electrification Therapy.
There are multiple sites and videos on Youtube explaining how each portion of the Protocol functions to help those suffering from primarily viral diseases but has personally helped me with my CFS. Please visit the Unleash Health site for more information on the Protocol and therapy!
Thank you!
unleashhealth 1 year ago
Such an amazing, strong, beautiful, and inspiring young lady you are. I'm 34, diagnosed at age 21. Seeing this video made me smile and cry. You're an awesome girl. Keep winning that fight, keep inspiring so many of us. Thank you. :)
birchmoon 1 year ago
Don't ever let someone tell you you can't do something and don't doubt your abilities to do something until you try. I have has lupus since I was 7 and I am now finishing up my sophomore year of college with a very difficult double major. Right now I am on the track to graduate with two bachelor of science degrees (150 credits, classes are usually 3 each) in 4 years. I am constantly fighting with my memory, but I am surrounded by people who care and you are too.
LupusButterfly98 1 year ago
i love the fact that your so positive about it all....well done and continue to fight it......
i have had symptoms for over 5 years and still the docs are finding it hard to diagnose it....but now i have the facial rash i think they may confirm its lupus....
its a hard struggle but am going to fight it too.....thanks for posting this
msmuaythai 1 year ago
Recently found out my mom has this =(
FiswaT 1 year ago
Why can't she play basketball? Is it because of the pain?
taylorsacracker 1 year ago
Don't worry you are cute and stronger nobody is't perfect =D
xzfire2552 1 year ago
I am twenty years old, and I just got diagnosed with Lupus. I am scared out of my mind; your video has helped me so much! God bless you!
irishflutist17 1 year ago
This is a great video you've made, you're giving so people so much help and hope who have the disease.
I was diagnosed when I was 12, Im now 22 and living my life to the fullest.
Lupus is just another obstacle in our lives which has been placed in our path so we can fight through it and come out the other end as a better person.
911pineapple 1 year ago
it lupus
jordanpasek 1 year ago
it lupus
jordanpasek 1 year ago
it lupus
jordanpasek 1 year ago
Your Sooo Awesome!!! ^,^ I have a friend with lupus & she is the bass guitarist in a band... she's awesome too =D
DirektaDonovan 1 year ago
I just want to let you know as another Lupus patient to keep up the great work that you are doing in helping to educate and spread awareness for this disease. You are inspiring to others with the disease. <3 I've posted your videos on facebook multiple times.
Krystalanne0568 1 year ago
youre so young god bless you and well done youre a star x x x
physcosis 1 year ago
You go girl!
MaidNAmerica 1 year ago
hello, i'am french with a lupus to...where do you find this energy ...i want the same energy ...
i play music, and its very strong to stay performer .
see ya
thierrymaranhao 1 year ago
the math is wrong. If 16000 get the disease each year, how do you get to 1.5 million cases? Would take 100 years to get there.
wihenao 1 year ago
you'll be fine. You look very strong.
wihenao 1 year ago
Keep fighting!! I am very impressed with your resiliance. I have had lupus for 6 yrs. When I was diagnosed, I felt like my life was over. Since then, I have gotten married and had 2 children. You can accomplish your goals!!!!
menum19 1 year ago
Thanks for sharing, it is inspiring to see. Continue pushing and fighting as I am I have been affected with SLE for 10 years now. I have had my bouts with Lupus but I consider myself a warrior
GodIsReal24 1 year ago
It's never Lupus...
blackt12 1 year ago
@blackt12 i agree its never lupus "house is the best"
scotty2hoty09 1 year ago
It's both encouraging to see you fighting, and heartbreaking to know you have a lifetime of pain to live with. I'm in the same boat with another autoimmune disease - Ankylosing Spondylitis. Let's hope for the best for both of us, okay? :)
EldestElders 1 year ago
This is a very encouraging video, may God bless!
HeatherElKhiyari 2 years ago
great video.
MsBunnyLove4Ever 2 years ago
When can I get the bracalettes? I´m a Girl from spain afected by lupus
MiReNVG 2 years ago
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Reply | Remove i have lupus sle and skin lupus, plus lupus panculiiltis,
i have aps hughes syndrome, i have lost 10 babies due to this, i have sjrgens syndrome as well thanks goodness for st thomas in london for taking note of me and listnen my own hos in yor wouldnt and i was not treated or listen to or yrs by herts hos and gps in wales , why dont doct listen we no our bodies,,,,,,,,,,,,,keep up the great work make your gp liste n to you if you dont feel right
dorawakley 2 years ago
i love your video check out mind if you get a chance. Also hang in there, don't give up and only wish you only the best.
lupusyme313 2 years ago
Great video.
jjmnky 2 years ago
you are sooo buetiful
suhaib4uu 2 years ago
God bless you for your courage in sharing this with the world. You are so young to have this disease. I also have lupus but I am much older (52). I am a nurse practitioner (told by 3 MDs to go on disability but I refuse to give in) and frequently see many patients in my office that have lupus and have no idea I also suffer from it as well. All my best to you and your family!
welitlpigs 2 years ago 3
Thank you! And that is great that your able to be a nurse practitioner. I'd like to be a pediatric rheumatologist but I know it's going to be so hard to do.
bigsanfer32 2 years ago
i was 6 when i was giagnosed it cared my family more than me because i didnt have a clue what i was going on. the paint stopped when i was about ten but when i hit 16 it was back and its the worst feeling ever always in pain and always depressed
soniya786 2 years ago
Thanks girl. I needed a boost today and you gave it. Appreciate cha!
Howlinatthemoon 2 years ago
i was diagnosed in july 1 month b4 my 22 bday. i cried alot still do at times but i have hope. thanks for the video. p.s. i am concerned about the sideeffects of the drug esp moonface. but i thank god for life
zalli30 2 years ago
i was diagnosed 3 months ago, my sister was diagnosed a few days ago and my mom goes in for testing tomorrow she has had pain for the last 10 years but never thought it was that serious till i was diagnosed. I have only had one flare up but i havent been feeling well this week. I think its back :(
supermommy61182 2 years ago
It's not lupus. It's never lupus.
MARKMCMARCUS 2 years ago
i was diagnosed with stage four Lupus one week before my 22nd birthday last february :( i had to spend my bday in the hospital. the worst thing was the joint pain, but i now have a love-hate relationship with prednisone, since it it saved my life and my joint pain is much better, although i hate the moon face, acne and weight gain :( not fun. love your video by the way :) stay strong.
rd19871 2 years ago
oh... thank u for that... you are a true inspiration! your vid made me cry... i love to sing... i will never give it up either :) wishing you all the very very best. you are amazing!!! xoxoxo
humblebusker 2 years ago
Hey! How old were u when u found out u had lupus? Were u scared? Well my name is joy and I'm 26. just yesterday 11/09/09 I found out that I have lupus. I'm very scared of it.
braydenjaye03 2 years ago
Hi! I was 14 when I was diagnosed.. and I'm now 16. You can message me on here if you want to talk about it, cause I know it can be hard when your first diagnosed.
bigsanfer32 2 years ago
Thank you for your great video! I have lupus I was just diagnosed this year and I also have MCTD, its so hard to make it through the day when you are soo tired all the time, I hope one day to return to horse back riding, just like your love of basketball, my love is riding. Kudos to you for doing what you love! keep fighting,we all need to! Thanks for the inspirational video, we need more like these on youtube!
ILUVHORSES1981 2 years ago
I love the video!!! Very encouraging!! Dont stop fighting and may god continue to bless you.
lrstripling 2 years ago
thanks so much for uploading this...my sister whom i really love and care about has just been diagnosed with lupus...and watching your video really strengthen us and gives our family much hope...thanks so much, may God bless you and continue with your fight...you'll be in our prayer daily
cindyjbj79 2 years ago
Thanks so much for this, Hope all is well with your sister.
bigsanfer32 2 years ago
my sister was diagnosed with lupus 4 years ago when she was 15
JapanFan2321 2 years ago
God bless you! Keep fighting and give us all hope and encouragement. I'm 34 yrs old and have been living with lupus for 12 years now..I can't work anymore and my disease has progressed but your story puts a big ole smile on my face :)
jcandies1 2 years ago 6
My aunt was just diagnosed with Lupus and she is in her 50's. Thanks for the awesome video.
GodBlesstheWorld2008 2 years ago
im a 19 yr old and i was digonosed with lupus a year ago! thanks for this:)
lilmeggers90 2 years ago
Great video!!! I was just diagnosed with Lupus at 31 but never gave up on my dreams either. I am a firefighter/paramedic, a hero and a Superwoman just like you .
ANuLifeNow 2 years ago
I was diagnosed at 29-I am a firefighter/first responder and a full-time banker. It doesn't matter how much pain I'm in, I'd rather be figthing fire or lending a helping hand to those in need. I can usually always find the strength to do that task.
dickschick 2 years ago
This is great to hear! I would love to be a paramedic, but I'm scared to persue that dream because of the lupus..
bigsanfer32 2 years ago
Follow your dreams. Being able to help someone by being a paramedic is so rewarding to yourself as well as the person seeking treatment. I will be starting schooling for my EMS Licensing in January and I can't wait!
dickschick 2 years ago
Oh my goodness. I was also expecting to see someone my age (38) and instead see such a young woman. I was dx at age 27 but knew I had Lupus since I was a young teen. You are an inspiration sweetie. Keep up the fight. It can be done!
lupiemelly14 2 years ago
Beautiful. God bless you! Keep reaching for the stars. You are truly an inspiration.
nomordumeez 2 years ago
this is amazing great vid xx
chocolateeklaire 2 years ago
wow nice video this is so cool you never gave up in your dreams way to go you have alot of strangh
salcedo199 2 years ago
I'm a 15 year old and I just got diagnosed with lupus, thank you for this video - it made me feel less alone
BabyIGotsYou 2 years ago 3
God Bless you
rogerwada 2 years ago 2
força!!!!!!
milabelinaso 2 years ago
yuu are a very strong and dedicated person. god bless you
sparergiovanni 2 years ago
you're amazing, i hope you know that. never stop fighting.
syonebayashi 2 years ago
your video really is an inspiration to all living with lupus.
My best friend, Janette passed away from lupus a little less than a year ago.
Keep fighting.
adrii36 2 years ago
A name to a face-I know you from healingwell-excellent video!!! You are a true inspiration to everyone with Lupus-good luck with your b-ball.
dickschick 2 years ago
real hope not just talk, Wonderful to see! you Go!
Attiliod 2 years ago
I have lupus and I was losing hope, but after watching this video, it inspired me to keep fighting!!! My doc told me that my running days are over! I proved him wrong - I finished my first 1/2 marathon a year ago!
lmeskil 2 years ago 3
I am being tested for Lupus. Thank you for the inspiring video. I want to be a teacher! I hope to live a life of determination and not let anything stop me from my dream! Great video!
gfg250 3 years ago
Great video!
Lbgmonchichi 3 years ago
can we just talked about how I teared up a little?
I LOVE YOU (:
TheOtherTyler 3 years ago
i love you.
courtneyanna 3 years ago