I was diagnosed with MS back in 1983.Recently I came across ccsviclinic.ca. They are screening in Fargo, ND. Called (404)461-9560 and spoke to Nurse Lisa. Their Liberation Package includes pre-op video consultation with their doctors, flight costs, visas, accommodation within their hospital premises. The treatment includes stent, medications, reports & post-op followup for next 6 mths. Email:apply@ccsviclinic.ca. Getting liberated mid-November. Thankful to CCSVI Clinic for making this happen!
Look, so many Dr.'s eat sleep and breath all because we were lucky enough to have obtained MS! This is very complicated. Money shifts have to be made. The Research must be done. I am though curious why the Venous Dr.'s are so quiet??? Just wondering.
Good presentation with financial details I'm sure are ballpark.I think your presentation is good but looking at the camera is better. Your eyes are pretty. Canadian and US MS Societies are in bed together and your problems with CCSVI funding are the same as ours. Canadian movement toward CCSVI seems to be more aggressive than here in the states. We'll have to keep pushing to get the word out about CCSVI. I would also like to see more monies allocated for CCSVI. Potiential cure for MS?
Boycotting is not the best way to go. I was diagnosed in 1995, and my sister in 1993. My family and friends have raised almost $50,000.00 to date mostly through Bike Tours, but some through walks. When we receive donations by cheque, we ask the people to write in the subject line "FOR MS RESEARCH ONLY" The MS Society cannot use ANY of that money for operating costs or anything else. That's the law.
stop lying. $200,000 is NOT the only money the MS Society is going to give to CCSVI. That is a special grant because their usual annual granting period had just closed. They will likely contribute millions to CCSVI come the annual research grant this year (these monies go out in October, I believe).
If they really are misdirecting funds at odds why not pursue them legally? Most people don't know the difference between ms organizations and the splash over could reduce donations to all. And people might not know when they are 'supposed' to start giving again. I'm not disagreeing with the contention something needs to be done because I haven't done the same research, just questioning if this is a productive way to go about it because of impact on others with different needs.
Montel Williams noted only a portion of the budget of MS Societies goes to research. Recognizing much of the rest of the money goes to other valuable services he chose not to drag them down but instead to set up an organization to raise funds strictly for research. His actions made the 'pie' of funds for ms larger. What you are doing seems to me to be simply make for a smaller pie. Why not just move on and create rather than destroy?
I HEAR YOU. My family refused to participate the walk on April 18/10 just for those reasons alone. I did feel embarrassed saying do not support MSS because I had supported them in all years past. And yes I made sure my donation was made to McMaster University for Dr. Haacke this year instead.
Thanks for the video. I posted it with a few others that are similar on CCSVI Worldwide Victory. It's on the MS Societies tab. I totally agree! The walks are supposed to be monies for research, but it gets split up as you are saying. In the U.S. only 17% goes to research.
Hi Ginger . I am not sure where you got your figures but you were being generous on your figures acording to what CTV or CBC posted after auditing the MS SOCIETY financial books. From what I read only 1.3 million went to research across Canada, 200,000 will be allocated to fund CCSVI research.WHAT A JOKE! I agree STOP funding the MS society!
My wife was 1 of the people in the Buffalo Research one of the 500 she was positive
Both she and me are now liberated she is from Toronto and I from the UK but we both had to go to Serbia to have it done!
gekiryudojo 1 year ago
Hi Ginger Great video will share everywhere
gekiryudojo 1 year ago
I was diagnosed with MS back in 1983.Recently I came across ccsviclinic.ca. They are screening in Fargo, ND. Called (404)461-9560 and spoke to Nurse Lisa. Their Liberation Package includes pre-op video consultation with their doctors, flight costs, visas, accommodation within their hospital premises. The treatment includes stent, medications, reports & post-op followup for next 6 mths. Email:apply@ccsviclinic.ca. Getting liberated mid-November. Thankful to CCSVI Clinic for making this happen!
rebecawatson57 1 year ago
Look, so many Dr.'s eat sleep and breath all because we were lucky enough to have obtained MS! This is very complicated. Money shifts have to be made. The Research must be done. I am though curious why the Venous Dr.'s are so quiet??? Just wondering.
violetmatthers 1 year ago
yea we are guinea pigs for them, they don't want to cure us, just keep us sick enough to need there help ... frustrating!
frankknarffrankknarf 1 year ago
Good presentation with financial details I'm sure are ballpark.I think your presentation is good but looking at the camera is better. Your eyes are pretty. Canadian and US MS Societies are in bed together and your problems with CCSVI funding are the same as ours. Canadian movement toward CCSVI seems to be more aggressive than here in the states. We'll have to keep pushing to get the word out about CCSVI. I would also like to see more monies allocated for CCSVI. Potiential cure for MS?
tru2wrd75 1 year ago
Boycotting is not the best way to go. I was diagnosed in 1995, and my sister in 1993. My family and friends have raised almost $50,000.00 to date mostly through Bike Tours, but some through walks. When we receive donations by cheque, we ask the people to write in the subject line "FOR MS RESEARCH ONLY" The MS Society cannot use ANY of that money for operating costs or anything else. That's the law.
bubba22st 1 year ago
stop lying. $200,000 is NOT the only money the MS Society is going to give to CCSVI. That is a special grant because their usual annual granting period had just closed. They will likely contribute millions to CCSVI come the annual research grant this year (these monies go out in October, I believe).
nomisinfo 1 year ago
If they really are misdirecting funds at odds why not pursue them legally? Most people don't know the difference between ms organizations and the splash over could reduce donations to all. And people might not know when they are 'supposed' to start giving again. I'm not disagreeing with the contention something needs to be done because I haven't done the same research, just questioning if this is a productive way to go about it because of impact on others with different needs.
gphx 1 year ago
Montel Williams noted only a portion of the budget of MS Societies goes to research. Recognizing much of the rest of the money goes to other valuable services he chose not to drag them down but instead to set up an organization to raise funds strictly for research. His actions made the 'pie' of funds for ms larger. What you are doing seems to me to be simply make for a smaller pie. Why not just move on and create rather than destroy?
gphx 1 year ago
I HEAR YOU. My family refused to participate the walk on April 18/10 just for those reasons alone. I did feel embarrassed saying do not support MSS because I had supported them in all years past. And yes I made sure my donation was made to McMaster University for Dr. Haacke this year instead.
SHIRLEYRENSHAW 1 year ago
Hi Ginger,
Thanks for the video. I posted it with a few others that are similar on CCSVI Worldwide Victory. It's on the MS Societies tab. I totally agree! The walks are supposed to be monies for research, but it gets split up as you are saying. In the U.S. only 17% goes to research.
CCSVIVictory 1 year ago
Hi Ginger . I am not sure where you got your figures but you were being generous on your figures acording to what CTV or CBC posted after auditing the MS SOCIETY financial books. From what I read only 1.3 million went to research across Canada, 200,000 will be allocated to fund CCSVI research.WHAT A JOKE! I agree STOP funding the MS society!
passdoutcouchpotatos 1 year ago
@passdoutcouchpotatos Dr. Brandes obtained a copy of the Societys most recent financial statement, audited by Price, Waterhouse, Coopers, LLP.
H
gingermacqueen 1 year ago