I am 14 and when I was 12 I had GBS, the doctor took ageeesssss to diagnose me, I wish they saw this video taht is everything I had :'-( my problem is the health system in Perth WA is absolutley crap, and they are worried about money, I never had a spinal tap done until I was completely paralysed and almost becoming better, the doctor didnt believe anything I said and she though I was "mental" for not being able to move as GBS here is uncommon, you certainly dont seem like that you are nice x!
I have a GBS (CIDP mono) for more than 11 years ago ... I'm 26 years old from Egypt & I'm looking for any new treatment for my case .. need any help please ?? my mail is : ye7ia.zakaria@gmail.com
my brother, suddenly lose feelings in his left arm.. then his right arm and then both legs in a matter of 15 minutes and is completely paralyzed from the neck down. and bust out on tears due to the pain.. he is 20 and never cries like that.. they did test for 10 hours and only found that the spinal tap was high in protein.. do u think its GBS?
I got GBS this Year on the 20th of April 2011 and a viral infection started it I had diarrhea which 1 week later turned into GBS the start of it was in the Neck for 2 days It felt like I had a headache in my neck I had never ever had in my life it was the worst ever. I know have drop foot on both my feet and can not walk more then 50 ft I hope I will not have a relapse as I have heard that ppl get relapses
guys i also suffered wid dis atrocious disease alomost 4 yrs ago, i m fed up as i still cant run but can do all the normal things bust sum things like running and wen i walk fast my hips take a round!! dis is really frustating can sum1 help me out???
I had this when i was 10 and it was so weird, it just cam on within an hour (No joke) and i couldnt get up off the floor, doctor said it was growing pains. After this he eventually sent me to see a specialist and it took a lumber punch to find out, so what was the cure ---- 5 hours a day for 5 days worth of 'inuclobin' i think it was through a canula in my wrist, so bored, so tired, so much irritation from the medicine and from the doctors.
Dont dispare I've had GBS four times during my live, the second time I was in an oxygen tent. Whilst at the time you feel there is little hope and think you are the only one in the world going through this ordeal you will get though it. You must stay strong, have faith, keep the hope that another day brings better outcomes. I am 52 now and continue to have a rewarding working life.even though GBS gave me epilepsy which was removed through Brain surgery recently. I never gave up. regards BSH
It's an autoimmune disease, that means the body'S immune system attacks certain parts of the nerval system. Acute auto immune diseases are (often) triggered by an foreign particles like viruses or bacteria that have similarties to other proteins that are contained in nerve structures (At least that is the theory). In this Case, people with guiliain barre syndrome hat an infection in the time before the start of the illness (typically with the bacteria Campilobacter j.)
part2: in Some cases this infection before the GBS is the viral flu and so possibly also acitvated by the flu shot. The were some very rare cases in which people got GBS after a flu vacc, but that doesn't necessarily mean that its caused by that.
It took me more than a year of therapy before I could walk again. If anyone could use any support. Im always here. I was scared and truthfuly still is. Best love and wishes to people who could use it. <3 YOU WILL GET THERE!!!! <3
I am 15 and I am a Guillain Barre Syndrome survivor. I just turned 13 when I was diagnosed with it. It was actualy two days after my birthday. Buit the symptoms started on my birthday, I got a basketball hoop and started to play when my feet felt tingely like they were falling asleep. I know how hard it is but NEVER EVER give up, you will get there.
I know youtube isn't the place for this, but I'm 26 and have had GBS symptoms for the past 8 years. I don't know if I have GBS because my blood tests do not give indication. It started with a mild case of Bronchitis,lower- body muscle weakness and pain-to-touch feeling worked the way to my upper-body, a type of peripheral neuropathy developed all over my body, coupled with other symptoms such as . Does this sound like GBS to anyone who has GBS? My family doctors claims this is stress.
@logicCplusplus I'm no Dr. but I had this terrible disease, in fact I'm in recovery now, but if you had GBS for that long a period without treatment you would probably not be around. there are several ways of determining GBS such as a spinal tap and an EMG. Good luck
Mine started out as lower back pain which I thought was a pulled muscle from taking an Army PT test. In about three days I was unable to move my legs at all and had minimal movement in my arms. Spent two weeks in the ICU with double pneumonia and an additional 3-4 months in the hospital/rehab facility. A little less than a year later I'm still having trouble walking long distances without a cane due to weak ankle muscles. Also have no idea if the Army will take me back.
...this could not have come at a worst time for Normita who suffered the onset of symptoms when she went to visit her family in the Philippines. What was to be a time of rejoicing and celebration has become a nightmare for her family, who has been forced to pay all of her medical costs out of pocket.
Hello, just to give you hope with this horrible disease. I am 1 out of 7 in the world who had a severe case of Guillain-Barre Syndrome, I would be happy to speak with you who needed support, advice, etc... and my book is now out on amazon and kindle called "Why didn't I die?". I was in the hospital for a year. Please read my book and email me at fightgbs@gmail.com. You can also see my youtube videos, key in search:
Visit as often as you can, help to groom (trim nails, brush hair), scratch us behind neck, arm pits, under knees, being itchy sucks. Keep a radio or tv on, it gets lonely, I even enjoyed infomercials, like the Shark Vac then Steam lol. USA is a good all around channel. When you visit tell us about family current events, kid's grades etc, we want to know. Express your love often. I can move my right arm okay now & can type. Bring a laptop when hand can move. I understand your pain and theirs.
I am an expert regarding GBS. I had complete body paralysis head to toe. ICU for 1 month, sub-acute since June 2010. Hospitalized to this day.Don't lose faith in your loved one, inside we can hear you, eventhough we may not respond. Make sure your loved one gets proper care, some CNA's are abusive and physically & mentally injure patients. My story is full of highs and lows. Make an alphabet communication chart, 3 rows, 9 letters a row. Ask for a blink/finger tap for each row, then letter.
my dad has been in hospital(critical care ward) now for 8 weeks. He is still on a respirator. He has had 3 counts of trach phneumonia. I have watched him waste away in his hospital bed. I didnt even know gbs existed until he got it. I worry that he isnt going to make it. He is 65 and a lifetime smoker, which im sure is contributing to his slow recovery. The onset seemed to be caused by him overdoing things after recovering from a flu virus. Im starting to lose hope.
I had this when i was younger and it has impacted my life a lot but the truth is im just happy to be alive!! And yeas you can get it from the flu shot but its very rare so dont be afraid to get shots because you are worried about GBS.
I also had a slight delay in my reflexes in my knees with my GBS... how strange... my doctor thought it was strange at the time... but it is good to hear that there is at least one case out there that is similar to mine
i had this same syndrome which is call gbs n i can say i went thru hell n back wit this diease.i had a very weak immune system to it.The when the diease went to affect i was paralyze for 6 months and i was in a wheelchair for 3yrs.and faith n pray help me moved to a walk n every since then i was walk i was very young when i had gbs i was 13yrs old.
in other words, what i'm saying is that the patient doesn't have myalgia, per se, but rather just debilitating LMN lesions (most likely with UMNs as well). what i find interesting is that her plantar flexion is strong although she has weak dorsiflexion. that means her tibial nerve is less affected relative to her common peroneal (both branches of the sciatic).
regarding facial weakness, i'm guessing you're referring to bilateral bell's palsy (LMN lesions of the facial nerve), and the limb-dysreflexia as LMN lesions (because if they were UMN than we'd expect hyperreflexia).
IMPORTANT--> you mentioned her difficulty with standing up from the seated position and hip flexion: sounds like inferior gluteal and obturator nerve demyelination, respectively, PRIMARY to the muscle weakness. LMN lesions are also responsible for up-phase hyporeflexia. cheers
regarding facial weakness, i'm guessing you're referring to bilateral bell's palsy (LMN lesions of the facial nerve), and the limb-dysreflexia as LMN lesions (because if they were UMN than we'd expect hyperreflexia)?
IMPORTANT--> you mentioned her difficulty with standing up from the seated position and hip flexion: sounds like inferior gluteal and obturator nerve demyelination, respectively, PRIMARY to the muscle weakness. LMN lesions are also responsible for up-phase hyporeflexia. cheers
im also i gbs survivor, i was hospitalized from october 2009 upto november 2009, my first therapy is done on second week of december 2009, then my first walk and beer drinking is on the eve of xmas. only therapy and sea swimming can manage to walk, today i play basketball. thanks god for the help and miracle, also to philippine general hospital doctor and nurses who take care of me
i had this when i was 18 i still feel the pain still after 20 years in my joints and bones behind my eyes i dont believe you ever fully recover from it some days are better then others
When I was five, I developed GBS. It's terrifying exactly how fast it progresses. You watch your body shut down, as all your limbs start migrating towards the center of your body. Your arms pull towards your chest, and your legs pull back. I'm glad I was so young when it happened to me, though. Idk how I would've handled it as an adult.
My mother had this earlier this year in november is when it was discovered. She was completely paralyzed and she was on a feeding tube and respirator. Everybody was saying she would get better, and i saw that she was. She was in the hospital for 5 weeks and 5 days, but she got an infection in her heart and her heart became very weak. She was off her respirator one day and she couldn't breath so the nurses began bagging her, since her heart was so weak it gave up.She passed away New Years Eve2009
i had that when i was 11,the disease went untill my neck,but i think im the best recovered in my country,i still dont know if im the most recovered in the planet,because i can run 100 meters in 14-15 secs,and i can do everything normally......
excellent case presentation and I do have to say you cannot go textbook with Guillian Barre -I had eveything this girl had and what threw my Neurologist was my intact knee reflexes !! arreflexia is not always classic.
read the isert from h1n1, can cause Guillain Barre Syndrome, also says very bad for pregnant woman, so why are they targeting pregnant woman. also says bad for kids makes you ask questions why are they pushing this poison
The public hears a rare side effect, watches a youtube video, and feel it the place to have others avoid vaccines...it is statistically more probable of getting GBS (which is autoimmune) from the flu, common cold, GI viral infection, mono, hapatitis, or campylobacteriosis (eating undercooked poultry) than a vaccine - there is the same risk after surgery as after a vaccine and please don't suggest we stop surgical procedures because of GBS. I'm a PA-C and thanks for the vid!
oh sorry for reading the insert Mr worshiper of big pharma, what do you think its good to put thimerosal (mercury) in vaccines Mr worshiper, especially the CDC who's got everybody's interest at heart. (factor 8) and allthe people got aids and i know it was a mistake because there retards!
big pharma? i deal with pharm reps everyday. im just telling the 99% probablity of your argument. and I wrote my masters capstone on the mmr vaccine and thimerosal...not that you care i can tell...but there is NO RELATION to thimerosal and autism, read the studies, countries (and the US) have abolished thimerosal and autism continues to rise BECAUSE PHYSICIANS NOW KNOW THE SYMPTOMS. its not that hard, and to you mention AIDS and retards shows how damn ignorant you are, or am i wrong again?
The public hears a rare side effect, watches a youtube video, and feel it the place to have others avoid vaccines...it is statistically more probable of getting GBS (which is autoimmune) from the flu, common cold, GI viral infection, mono, hapatitis, or campylobacteriosis (eating undercooked poultry) than a vaccine - there is the same risk after surgery as after a vaccine and please don't suggest we stop surgical procedures because of GBS. I'm a PA-C and thanks for the vi
You are so smart and such a good doctor. I have injured my pelvic wall and lower back and my legs turned purple as if I had no circulation. I was bed ridden for five months and slowly began to walk but still have sweating in my feet and my big toe turns in when I press the arch tendent. I have hyper reflexis and now vision problems and bladder spasms. It all stemmed from a pelvic accident and crush accident and no doctor can figure out what is wrong with me. sad.
i had GBS in 1996 i couldnt move from head to toe and was hooked up to alot of machines. i never got back my strangth %100 and every few years i get a weakness episode. this past week they sent me for IVIG and was wondering if you know when i should start seeing a change or anything. the IVIG was horrible to get just because all the side effects.
I caught the Miller Fisher variant of Guillain Barrie, 18 months ago and within 24hrs was paralysed from head to toe, could not speak and was blind in both eyes. I needed the help of the machines to breathe for me and spent a whole summer in Intensive Care, I can now see though require laser surgery as i have double vision, i can now talk but struggle to feed, I am in a wheelchair and have been told will never get the balance in my body or proper use of my left side including arm and hand.
I had a severe virus which lasted for around a month during mid Dec2008/January 09.
During the illness I was in terrible pain in my ankles and backs of calves and couldn't walk at times. I began to get numbness in my hand - especially 2 fingers. When the virus went, I began to get terrible pain and weakness in my wrist. Eventually I went to the doctor and he said it was gout. Blood tests proved negative so the doctor told me it was smoking related (?)
Just recently, the pain has moved and its now in the centre of my wrist, but I'm more able to do things, but I've been putting it down to a trapped nerve of some kind because I can be using my arm and I'll get a spasm up and down my arm and I will drop things. My arm will then just hang and I'm unable to lift it.
The doctor also mentioned that I had a high white blood cell count. which i think means I'm fighting something off.
Just wanted to ask, if I have tingling and numbness in my shoulders what kind of doctor should I see. My neck is also in so much pain sometimes I get this shooting heat that runs down my back into my hips. I also get this feeling of being unbalanced. Could you please help me out? Thanks for your time....
Indeed this video does help tremendously. I also have and still going through with GBS. I had mine since February of 2007. I am currently 41yrs of age. I would like to be contacted or contact someone and find out more information about GBS. oh I will try to upload my experience also soon.
Yes i too thanks you for the description because i hope it will help some, its a little different from mine though. I too will try to put together a video of my own experiences which are on going. I had GBS in 2005 after a chest infection and although I could walk after 3 months i have never recovered and now seem to be going downhill with the effects. For those interested keep a check on my account because I will try to make a video describing what happened from the pins and needles till now.
I was diagnosed with GBS on 4/28/09 I stayed in the hospital for 10 days, and received IVIG. I am now at home recovering and I have hope that it won't take too long. Thanks for posting this video and helping people learn of this disease.
is it common for someone taking prednisone to develop a rash after discontinuing use of the medication? i came across a link to this video after trying to search for the answer to my question...i had taken prednisone for 5 days and maybe a week or two after stopping it, i developed a rash all over my arms.
i have a neighbor dat the same case of 'GBS', her situation very severe GBS compare to the other patients that can you see in "youtube" upload, 60 percent of her body "deform" sadly she is pregnant,! from philippines ''iloilo''
Thank you so much Dr for helping me understand GB. I will use the information you provided in my OT Rehab Class. Ever thought about teaching in Michigan?
.. Though I am fully cured now over a year, I still have slight shivering in my arms when I am stressed. But otherwise I am able to carry out my day today activities. If u r interested please mail me we could discuss regarding this as this would be a win win situation for both of us. I am 24 male frm (India)
Though I am fully cured now over a year, I still have slight shivering in my arms when I am stressed. But otherwise I am able to carry out my day today activities. If u r interested please mail me we could discuss regarding this as this would be a win win situation for both of us. I am 24 male frm (India)
thanks you for your case presentation :) though my textbook describes ascending weakness but this case is not. its vy difficult to make clinical diagnosis in neuro cases :(
My daughter is 9 - she had a virus at the beginning of October & about 10 days later, she just fell down and hasn't been able to walk now for over 5 weeks -blood tests have come back normal -the pediatric neurologist we saw said that she's either faking it or it's all in her head & didn't do any further tests. I've spoken to some doctors from church who think it's Guillain Barre & from what I've read, I'm inclined to agree - we're very frustrated & concerned - any advice?
hi...my bro is suffering from this disease since age of 9.He is 23yrs old now and in in this span he has got 4attacks. Recent attack was in March 2008. He is taking no medicines except the "Steorid omnicort or wyslone"...please help me out on this.Will this keep repeating because it is a mental trauma for everyone and specially my bro who has lost all his hope in life.Please any doctor respond to this.....
GBS late 1999; 1500mg solumedrol I.V. for 3 days symptoms left 2 months later.
This time my Dr. calls it Chronic Demyelinating Poly-Neuopathy)8 yrs later a variant is back but a less severe case this time...treatment has been 1000mg solumedrol I.V. for 5 days; Lyrica 75mg 3x day, and Immuran 50mg 2xday...the solumedrol sucks because it makes you break out and kills your sleep. The Lyrica is great because it really makes it feel as if you have zero symptoms.
My dad recently got out of the hospital from GBS. It was pretty scary because it came so quickly. He's getting better, but he still has to use a cane to walk and an eyepatch to help with his double vision.
I am 25 and I had GBS back in January 2008, I had never heard of anyone else that suffered form the double vision. That was the last thing to go away and it was the most frustrating. I had a full recovery in about 2 1/2 months. Best of luck to your dad
Our daughter had GBS it was brought on by the flu shot, at first it looked like MS and went to see a MS specialist, but he didn't recognise the problem, it went away by itself, we only found out later what it was she had
Thank you. This really explains what my girl friend has gone through in the past 10 years. She's doing great now, just has to remember she can't over do it. When she was in the hospital 10 years ago, she was on so much morphine that she was hallucinating and didn't know me. I was so afraid for her. But after some infusions and good diet and paying attention to her body symptoms she's been doing great. I'm so proud of her.
My 13 year old daughter got diagnosed with acute GBS on 98 days ago and recivied IVIG plus prednisone 10 days later she had first relapse and recived plazma exchange treatment then 15 days later-2nd relapse/ IVIG treatments-third relpase/IVIG then we left the hospital with no significant improvement, and still today she is still not able to walk. Please give us a relpy with your take. Thanks for the great information on your video.
How refreshing it is to see a knowledgeable physician who is human and down to earth. What a rarity that is, and I wish you worked in one of our local EDs. Thank you for presenting the Guillain Barre information.
How refreshing it is to see a knowledgeable physician who is human and down to earth. What a rarity that is, and I wish you worked in one of our local EDs. Thank you for presenting the Guillain Barre information.
Thank you for this. I was diagnosed with GBS in 2006 in Austria, after my doctors in the UK struggled to diagnose it ! TO LITTLE IS KNOWN about it by professionals! Today, I still suffer from residue weekness and strong neurpathic pain.
I developed gullain-berre 9/29/06.I woke with numb feet and by noon it had spread through my body.I was 29 when it happened to me.They said it was rare but it doesn't seem rare...just unknown by most.I refuse to give it control over me.
I have guillain-barre and almost two years later haven't recovered 100%. This video is something I can show my doctors, seeing how they have NO clue what my syndrome is.
They still don't know how to get rid of my symptoms, two years later.
I've had it for almost two years also,not only do they not know how to stop it,but they don't know what caused it and I'm not sure I'm getting the right medicine to treat it. Good luck
very nice!! I'm a medicine student from Brazil in the 4th year (here we graduate after 6 years of study) and searching about Guillain Barre I could learn something on this syndrome!! thank you and congratulations!!
i was diagnosed with GBS in 2002 and have been hospitalized 14 times since then with relapses which changed my diagnosis to CIDP i am now permanently disabled with weakness in my right side and atrophy of the muscles on the right
hi,i am 33, mother of 7,after having my baby i had fever for 6 days blood infection,tingling in the hands legs,bad shoulder pain and lost all feeling over my body i was weak,i was in hosptal for 4 weeks i was given immunglobin for 5 days,l i have bells palsy on my face as the muscle are very weak,my blood preasure went up and my heart beat,i was closly montred all the time,i never had BP before,but its controling now,
It´s very interesting that you post this video because not many doctors can diagnose this syndrome, and it´s very importan to know this affeccion, so there can be more research about it, and to make better diagnose and treatment.
You don't just get this from the flu vaccine. That's generalizing the cause of the disease a lot.
Jamaalinnit 5 days ago
I am 14 and when I was 12 I had GBS, the doctor took ageeesssss to diagnose me, I wish they saw this video taht is everything I had :'-( my problem is the health system in Perth WA is absolutley crap, and they are worried about money, I never had a spinal tap done until I was completely paralysed and almost becoming better, the doctor didnt believe anything I said and she though I was "mental" for not being able to move as GBS here is uncommon, you certainly dont seem like that you are nice x!
66brianna99 2 weeks ago
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Ouch what happened
530BigBen 3 months ago
I have this now, the syndrome itself isn't as bad as the weakness it left behind. It nearly killed me =/
jennifer 3 months ago
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I have a GBS (CIDP mono) for more than 11 years ago ... I'm 26 years old from Egypt & I'm looking for any new treatment for my case .. need any help please ?? my mail is : ye7ia.zakaria@gmail.com
ye7iazakaria 4 months ago
my brother, suddenly lose feelings in his left arm.. then his right arm and then both legs in a matter of 15 minutes and is completely paralyzed from the neck down. and bust out on tears due to the pain.. he is 20 and never cries like that.. they did test for 10 hours and only found that the spinal tap was high in protein.. do u think its GBS?
jullz59 4 months ago
I got GBS this Year on the 20th of April 2011 and a viral infection started it I had diarrhea which 1 week later turned into GBS the start of it was in the Neck for 2 days It felt like I had a headache in my neck I had never ever had in my life it was the worst ever. I know have drop foot on both my feet and can not walk more then 50 ft I hope I will not have a relapse as I have heard that ppl get relapses
supersunshine451 5 months ago
guys i also suffered wid dis atrocious disease alomost 4 yrs ago, i m fed up as i still cant run but can do all the normal things bust sum things like running and wen i walk fast my hips take a round!! dis is really frustating can sum1 help me out???
chanz64 5 months ago
my best friend has this.. he got it when he went to india for 3 weeks.. he is only 15 and i really dont want anything to happen to him.
redhotzepp 6 months ago
I had this when i was 10 and it was so weird, it just cam on within an hour (No joke) and i couldnt get up off the floor, doctor said it was growing pains. After this he eventually sent me to see a specialist and it took a lumber punch to find out, so what was the cure ---- 5 hours a day for 5 days worth of 'inuclobin' i think it was through a canula in my wrist, so bored, so tired, so much irritation from the medicine and from the doctors.
EPiCJonnoman 6 months ago
Dont dispare I've had GBS four times during my live, the second time I was in an oxygen tent. Whilst at the time you feel there is little hope and think you are the only one in the world going through this ordeal you will get though it. You must stay strong, have faith, keep the hope that another day brings better outcomes. I am 52 now and continue to have a rewarding working life.even though GBS gave me epilepsy which was removed through Brain surgery recently. I never gave up. regards BSH
bh1529 8 months ago
Studying this in nursing school, thanks for the great information!
luvddz 8 months ago
@luvddz why is it that the flu vaccine gives people this?
alexzracer2008 4 months ago
@alexzracer2008
It's an autoimmune disease, that means the body'S immune system attacks certain parts of the nerval system. Acute auto immune diseases are (often) triggered by an foreign particles like viruses or bacteria that have similarties to other proteins that are contained in nerve structures (At least that is the theory). In this Case, people with guiliain barre syndrome hat an infection in the time before the start of the illness (typically with the bacteria Campilobacter j.)
Falap85 2 months ago
@alexzracer2008
part2: in Some cases this infection before the GBS is the viral flu and so possibly also acitvated by the flu shot. The were some very rare cases in which people got GBS after a flu vacc, but that doesn't necessarily mean that its caused by that.
Falap85 2 months ago
i still havent gotten my reflects back in my legs its so funny when my neurologist kept trying to get some kind of movement
howmayipwnu96 8 months ago
It took me more than a year of therapy before I could walk again. If anyone could use any support. Im always here. I was scared and truthfuly still is. Best love and wishes to people who could use it. <3 YOU WILL GET THERE!!!! <3
CaitiBrooklyn 8 months ago
I am 15 and I am a Guillain Barre Syndrome survivor. I just turned 13 when I was diagnosed with it. It was actualy two days after my birthday. Buit the symptoms started on my birthday, I got a basketball hoop and started to play when my feet felt tingely like they were falling asleep. I know how hard it is but NEVER EVER give up, you will get there.
CaitiBrooklyn 8 months ago
I know youtube isn't the place for this, but I'm 26 and have had GBS symptoms for the past 8 years. I don't know if I have GBS because my blood tests do not give indication. It started with a mild case of Bronchitis,lower- body muscle weakness and pain-to-touch feeling worked the way to my upper-body, a type of peripheral neuropathy developed all over my body, coupled with other symptoms such as . Does this sound like GBS to anyone who has GBS? My family doctors claims this is stress.
logicCplusplus 8 months ago
@logicCplusplus I'm no Dr. but I had this terrible disease, in fact I'm in recovery now, but if you had GBS for that long a period without treatment you would probably not be around. there are several ways of determining GBS such as a spinal tap and an EMG. Good luck
Wafeek007 3 weeks ago
Mine started out as lower back pain which I thought was a pulled muscle from taking an Army PT test. In about three days I was unable to move my legs at all and had minimal movement in my arms. Spent two weeks in the ICU with double pneumonia and an additional 3-4 months in the hospital/rehab facility. A little less than a year later I'm still having trouble walking long distances without a cane due to weak ankle muscles. Also have no idea if the Army will take me back.
Fbueller129 9 months ago
thank you. this is a brilliant review.
ainehannity 9 months ago
helpnormita.ca
...this could not have come at a worst time for Normita who suffered the onset of symptoms when she went to visit her family in the Philippines. What was to be a time of rejoicing and celebration has become a nightmare for her family, who has been forced to pay all of her medical costs out of pocket.
Simha123456789 11 months ago
helpnormita.ca
Simha123456789 11 months ago
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Hello, just to give you hope with this horrible disease. I am 1 out of 7 in the world who had a severe case of Guillain-Barre Syndrome, I would be happy to speak with you who needed support, advice, etc... and my book is now out on amazon and kindle called "Why didn't I die?". I was in the hospital for a year. Please read my book and email me at fightgbs@gmail.com. You can also see my youtube videos, key in search:
barbra gbs
babsgbs 11 months ago
Visit as often as you can, help to groom (trim nails, brush hair), scratch us behind neck, arm pits, under knees, being itchy sucks. Keep a radio or tv on, it gets lonely, I even enjoyed infomercials, like the Shark Vac then Steam lol. USA is a good all around channel. When you visit tell us about family current events, kid's grades etc, we want to know. Express your love often. I can move my right arm okay now & can type. Bring a laptop when hand can move. I understand your pain and theirs.
munchiesthemonkey 11 months ago
I am an expert regarding GBS. I had complete body paralysis head to toe. ICU for 1 month, sub-acute since June 2010. Hospitalized to this day.Don't lose faith in your loved one, inside we can hear you, eventhough we may not respond. Make sure your loved one gets proper care, some CNA's are abusive and physically & mentally injure patients. My story is full of highs and lows. Make an alphabet communication chart, 3 rows, 9 letters a row. Ask for a blink/finger tap for each row, then letter.
munchiesthemonkey 11 months ago
my dad has been in hospital(critical care ward) now for 8 weeks. He is still on a respirator. He has had 3 counts of trach phneumonia. I have watched him waste away in his hospital bed. I didnt even know gbs existed until he got it. I worry that he isnt going to make it. He is 65 and a lifetime smoker, which im sure is contributing to his slow recovery. The onset seemed to be caused by him overdoing things after recovering from a flu virus. Im starting to lose hope.
dr4gonish 1 year ago
thank you for sharing your knowledge!
nauticapnoy12 1 year ago
hey doc, which has the worser prognosis GBS or the chronic inflamm demyelinaing type?
connaught2008 1 year ago
@connaught2008 Yes but yanks don't even speak English properly let alone French!
DazandReb 1 year ago
I had this when i was younger and it has impacted my life a lot but the truth is im just happy to be alive!! And yeas you can get it from the flu shot but its very rare so dont be afraid to get shots because you are worried about GBS.
hotgirl1355 1 year ago 2
I also had a slight delay in my reflexes in my knees with my GBS... how strange... my doctor thought it was strange at the time... but it is good to hear that there is at least one case out there that is similar to mine
sarahmegh 1 year ago
Why does he pronounce Guillain Barre with a French accent??
DazandReb 1 year ago
@DazandReb cos its named after 2 frenchies
connaught2008 1 year ago
i had this same syndrome which is call gbs n i can say i went thru hell n back wit this diease.i had a very weak immune system to it.The when the diease went to affect i was paralyze for 6 months and i was in a wheelchair for 3yrs.and faith n pray help me moved to a walk n every since then i was walk i was very young when i had gbs i was 13yrs old.
inktown2theyak 1 year ago
in other words, what i'm saying is that the patient doesn't have myalgia, per se, but rather just debilitating LMN lesions (most likely with UMNs as well). what i find interesting is that her plantar flexion is strong although she has weak dorsiflexion. that means her tibial nerve is less affected relative to her common peroneal (both branches of the sciatic).
mehlmoh 1 year ago
sorry. i was having trouble loading my comment here...
mehlmoh 1 year ago
regarding facial weakness, i'm guessing you're referring to bilateral bell's palsy (LMN lesions of the facial nerve), and the limb-dysreflexia as LMN lesions (because if they were UMN than we'd expect hyperreflexia).
IMPORTANT--> you mentioned her difficulty with standing up from the seated position and hip flexion: sounds like inferior gluteal and obturator nerve demyelination, respectively, PRIMARY to the muscle weakness. LMN lesions are also responsible for up-phase hyporeflexia. cheers
mehlmoh 1 year ago
This has been flagged as spam show
regarding facial weakness, i'm guessing you're referring to bilateral bell's palsy (LMN lesions of the facial nerve), and the limb-dysreflexia as LMN lesions (because if they were UMN than we'd expect hyperreflexia)?
IMPORTANT--> you mentioned her difficulty with standing up from the seated position and hip flexion: sounds like inferior gluteal and obturator nerve demyelination, respectively, PRIMARY to the muscle weakness. LMN lesions are also responsible for up-phase hyporeflexia. cheers
mehlmoh 1 year ago
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mehlmoh 1 year ago
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mehlmoh 1 year ago
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mehlmoh 1 year ago
Thanks Dr Gary - great presentation for something so frequently encountered
nevinl 1 year ago
my grandma had guillan barre. she is perfectly fine now
Kylo90 1 year ago
I survived this desease.
Touristo07 1 year ago
im also i gbs survivor, i was hospitalized from october 2009 upto november 2009, my first therapy is done on second week of december 2009, then my first walk and beer drinking is on the eve of xmas. only therapy and sea swimming can manage to walk, today i play basketball. thanks god for the help and miracle, also to philippine general hospital doctor and nurses who take care of me
bits2010 1 year ago
Hi Dr.Gary i have some quastions to you and will you answer me? can i contact you in facebook or through mail? answer me please. :)
Ruso716 1 year ago
i got GBS in bootcamp and spent 8 months there.
canadablue3 1 year ago
i had this when i was 18 i still feel the pain still after 20 years in my joints and bones behind my eyes i dont believe you ever fully recover from it some days are better then others
darrenbiggar 1 year ago
thank you very helpful
barbarakielek 1 year ago
When I was five, I developed GBS. It's terrifying exactly how fast it progresses. You watch your body shut down, as all your limbs start migrating towards the center of your body. Your arms pull towards your chest, and your legs pull back. I'm glad I was so young when it happened to me, though. Idk how I would've handled it as an adult.
Jaken213 1 year ago
My mother had this earlier this year in november is when it was discovered. She was completely paralyzed and she was on a feeding tube and respirator. Everybody was saying she would get better, and i saw that she was. She was in the hospital for 5 weeks and 5 days, but she got an infection in her heart and her heart became very weak. She was off her respirator one day and she couldn't breath so the nurses began bagging her, since her heart was so weak it gave up.She passed away New Years Eve2009
power2thepeeps124 1 year ago
i had that when i was 11,the disease went untill my neck,but i think im the best recovered in my country,i still dont know if im the most recovered in the planet,because i can run 100 meters in 14-15 secs,and i can do everything normally......
DJKHOTTA 1 year ago
did she get a flu shot??!!!
cassidy1227 1 year ago
Clear & concise. Great work; Very neat presentation; Very useful; Keep posting videos; You must be very good in teaching
THEODY82 1 year ago
excellent case presentation and I do have to say you cannot go textbook with Guillian Barre -I had eveything this girl had and what threw my Neurologist was my intact knee reflexes !! arreflexia is not always classic.
erwinsml 2 years ago
My sister just took the h1n1 vacine, she is pregnant and due this December.
sweetdictator 2 years ago
Wonderful overview!!! Thank you!
MsSofia333 2 years ago
read the isert from h1n1, can cause Guillain Barre Syndrome, also says very bad for pregnant woman, so why are they targeting pregnant woman. also says bad for kids makes you ask questions why are they pushing this poison
esther19741974 2 years ago 3
The public hears a rare side effect, watches a youtube video, and feel it the place to have others avoid vaccines...it is statistically more probable of getting GBS (which is autoimmune) from the flu, common cold, GI viral infection, mono, hapatitis, or campylobacteriosis (eating undercooked poultry) than a vaccine - there is the same risk after surgery as after a vaccine and please don't suggest we stop surgical procedures because of GBS. I'm a PA-C and thanks for the vid!
astrolux12 2 years ago
oh sorry for reading the insert Mr worshiper of big pharma, what do you think its good to put thimerosal (mercury) in vaccines Mr worshiper, especially the CDC who's got everybody's interest at heart. (factor 8) and allthe people got aids and i know it was a mistake because there retards!
esther19741974 2 years ago
big pharma? i deal with pharm reps everyday. im just telling the 99% probablity of your argument. and I wrote my masters capstone on the mmr vaccine and thimerosal...not that you care i can tell...but there is NO RELATION to thimerosal and autism, read the studies, countries (and the US) have abolished thimerosal and autism continues to rise BECAUSE PHYSICIANS NOW KNOW THE SYMPTOMS. its not that hard, and to you mention AIDS and retards shows how damn ignorant you are, or am i wrong again?
astrolux12 2 years ago
@astrolux12 Too true!
hoverflysmiles 1 year ago
Thank you! Great job of explaining the symptoms.
knazir 2 years ago
certain vaccines and viruses can cause this condition
thehantavirus 2 years ago 6
u mean h1n1 vaccine?
what a hoax
PreCurSeD 2 years ago 2
The public hears a rare side effect, watches a youtube video, and feel it the place to have others avoid vaccines...it is statistically more probable of getting GBS (which is autoimmune) from the flu, common cold, GI viral infection, mono, hapatitis, or campylobacteriosis (eating undercooked poultry) than a vaccine - there is the same risk after surgery as after a vaccine and please don't suggest we stop surgical procedures because of GBS. I'm a PA-C and thanks for the vi
astrolux12 2 years ago
When I was five I spent my birthday at Kosair hospital bedridden with Guillan Barre.
Not much fun, man. Not fun at all.
Jaken213 2 years ago
You are so smart and such a good doctor. I have injured my pelvic wall and lower back and my legs turned purple as if I had no circulation. I was bed ridden for five months and slowly began to walk but still have sweating in my feet and my big toe turns in when I press the arch tendent. I have hyper reflexis and now vision problems and bladder spasms. It all stemmed from a pelvic accident and crush accident and no doctor can figure out what is wrong with me. sad.
DezzyRayz 2 years ago
u get this from the flu vaccine
singlaprety12 2 years ago 5
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astrolux12 2 years ago
i had GBS in 1996 i couldnt move from head to toe and was hooked up to alot of machines. i never got back my strangth %100 and every few years i get a weakness episode. this past week they sent me for IVIG and was wondering if you know when i should start seeing a change or anything. the IVIG was horrible to get just because all the side effects.
lizhagag 2 years ago
i was born in 1996
singlaprety12 2 years ago
I caught the Miller Fisher variant of Guillain Barrie, 18 months ago and within 24hrs was paralysed from head to toe, could not speak and was blind in both eyes. I needed the help of the machines to breathe for me and spent a whole summer in Intensive Care, I can now see though require laser surgery as i have double vision, i can now talk but struggle to feed, I am in a wheelchair and have been told will never get the balance in my body or proper use of my left side including arm and hand.
burkey365 2 years ago
The tingling
sensation I have throughout my body will never leave me so I cant
distinguish between what things feel like to touch, I cant hold a pen or
tie a lace, button a shirt and all this for a young healthy sports minded
and active young man of 34..I cant really remember too much of what it was
like in hospital but I am reminded when I watch this video and realise how
little is known on the condition.
burkey365 2 years ago
I get told I am lucky to be alive and
that there are worse people than myself around and I try to believe that
but its hard to comprehend when I feel my life and my choices have been
taken away from me.
burkey365 2 years ago 2
I had a severe virus which lasted for around a month during mid Dec2008/January 09.
During the illness I was in terrible pain in my ankles and backs of calves and couldn't walk at times. I began to get numbness in my hand - especially 2 fingers. When the virus went, I began to get terrible pain and weakness in my wrist. Eventually I went to the doctor and he said it was gout. Blood tests proved negative so the doctor told me it was smoking related (?)
gangstagrannie 2 years ago
Just recently, the pain has moved and its now in the centre of my wrist, but I'm more able to do things, but I've been putting it down to a trapped nerve of some kind because I can be using my arm and I'll get a spasm up and down my arm and I will drop things. My arm will then just hang and I'm unable to lift it.
The doctor also mentioned that I had a high white blood cell count. which i think means I'm fighting something off.
Should I worry? Is it guillain Barre?
gangstagrannie 2 years ago
Just wanted to ask, if I have tingling and numbness in my shoulders what kind of doctor should I see. My neck is also in so much pain sometimes I get this shooting heat that runs down my back into my hips. I also get this feeling of being unbalanced. Could you please help me out? Thanks for your time....
Pacerjames 2 years ago
Indeed this video does help tremendously. I also have and still going through with GBS. I had mine since February of 2007. I am currently 41yrs of age. I would like to be contacted or contact someone and find out more information about GBS. oh I will try to upload my experience also soon.
kernanman08 2 years ago
thanks
bite3187 2 years ago
Yes i too thanks you for the description because i hope it will help some, its a little different from mine though. I too will try to put together a video of my own experiences which are on going. I had GBS in 2005 after a chest infection and although I could walk after 3 months i have never recovered and now seem to be going downhill with the effects. For those interested keep a check on my account because I will try to make a video describing what happened from the pins and needles till now.
sparkymachine 2 years ago
I have Guillain Barre Syndrome..I should make a video about my experience...Bless and Good Recovery to all..
angelluv2cum 2 years ago
I was diagnosed with GBS on 4/28/09 I stayed in the hospital for 10 days, and received IVIG. I am now at home recovering and I have hope that it won't take too long. Thanks for posting this video and helping people learn of this disease.
214SoUtHDaLLaS214 2 years ago
Awesome description! Thanks so much for sharing this.
chunks1 2 years ago
Really helpful! Thanks!
summerchc04 2 years ago
is it common for someone taking prednisone to develop a rash after discontinuing use of the medication? i came across a link to this video after trying to search for the answer to my question...i had taken prednisone for 5 days and maybe a week or two after stopping it, i developed a rash all over my arms.
borat123 2 years ago
Thank you doctor. I was a neuro ICU nurse in Philly for three years and now teach nursing school and will share this with my students.
usnrnurse 2 years ago
Thanks so much! That was so helpful!
rizziriccardo 2 years ago
her "GBS" start in she was 7 years old, now she is 25 years old
phylobatez 2 years ago
i have a neighbor dat the same case of 'GBS', her situation very severe GBS compare to the other patients that can you see in "youtube" upload, 60 percent of her body "deform" sadly she is pregnant,! from philippines ''iloilo''
phylobatez 2 years ago
Thank you so much Dr for helping me understand GB. I will use the information you provided in my OT Rehab Class. Ever thought about teaching in Michigan?
AtiaoftheJulii 2 years ago
Thank you, found the video helpful!
Sergeigay 2 years ago
It reoccurs in about 3% of patients.
giles1331 3 years ago
can GB syndrome recur...?
mvimal2008 3 years ago
This has been flagged as spam show
.. Though I am fully cured now over a year, I still have slight shivering in my arms when I am stressed. But otherwise I am able to carry out my day today activities. If u r interested please mail me we could discuss regarding this as this would be a win win situation for both of us. I am 24 male frm (India)
mvimal2008 3 years ago
Though I am fully cured now over a year, I still have slight shivering in my arms when I am stressed. But otherwise I am able to carry out my day today activities. If u r interested please mail me we could discuss regarding this as this would be a win win situation for both of us. I am 24 male frm (India)
mvimal2008 3 years ago
thanks you for your case presentation :) though my textbook describes ascending weakness but this case is not. its vy difficult to make clinical diagnosis in neuro cases :(
thanks :)
leekingdak 3 years ago
Great info. Thanks for this vid.
sincerepinayx626 3 years ago
My daughter is 9 - she had a virus at the beginning of October & about 10 days later, she just fell down and hasn't been able to walk now for over 5 weeks -blood tests have come back normal -the pediatric neurologist we saw said that she's either faking it or it's all in her head & didn't do any further tests. I've spoken to some doctors from church who think it's Guillain Barre & from what I've read, I'm inclined to agree - we're very frustrated & concerned - any advice?
Temokalati 3 years ago
My father (72) having GBS for 3 weeks. He's improving with the ability to walk.
Any one seen GBS fatal cases?
garwooi 3 years ago
hi...my bro is suffering from this disease since age of 9.He is 23yrs old now and in in this span he has got 4attacks. Recent attack was in March 2008. He is taking no medicines except the "Steorid omnicort or wyslone"...please help me out on this.Will this keep repeating because it is a mental trauma for everyone and specially my bro who has lost all his hope in life.Please any doctor respond to this.....
piyuji 3 years ago
thank you! It was very helpful.
jambo2500 3 years ago
thanks
devyatka 3 years ago
thx to the video :)
acoh17 3 years ago
I had Guillain Barre Syndrome when I was 8. now i am 14 in nov.
RoN23Marsala 3 years ago
GBS late 1999; 1500mg solumedrol I.V. for 3 days symptoms left 2 months later.
This time my Dr. calls it Chronic Demyelinating Poly-Neuopathy)8 yrs later a variant is back but a less severe case this time...treatment has been 1000mg solumedrol I.V. for 5 days; Lyrica 75mg 3x day, and Immuran 50mg 2xday...the solumedrol sucks because it makes you break out and kills your sleep. The Lyrica is great because it really makes it feel as if you have zero symptoms.
hippyhunter420 3 years ago
My dad recently got out of the hospital from GBS. It was pretty scary because it came so quickly. He's getting better, but he still has to use a cane to walk and an eyepatch to help with his double vision.
copperowner 3 years ago
Sorry to hear about your Dad, Hope that he continues to get better
garythedo 3 years ago
I am 25 and I had GBS back in January 2008, I had never heard of anyone else that suffered form the double vision. That was the last thing to go away and it was the most frustrating. I had a full recovery in about 2 1/2 months. Best of luck to your dad
mmc2482 3 years ago
Very good doctor. I wonder how many M.D.'s are on Youtube? I do know that for doc's who haven't had much experience with GBS this would be helpful.
py4god 3 years ago
I had GBS when i was 6 years old..i'm 21 now :)
slightlyderanged 3 years ago
Our daughter had GBS it was brought on by the flu shot, at first it looked like MS and went to see a MS specialist, but he didn't recognise the problem, it went away by itself, we only found out later what it was she had
huib2000 3 years ago
Excellent case study!! very informative for nurses students!! thanks!
bettyelvita 3 years ago
I was diganosed with GBS when I was eight years, lucky, I was treated early and I only had it for a couple or so weeks.
PBcup90 3 years ago
Thank you. This really explains what my girl friend has gone through in the past 10 years. She's doing great now, just has to remember she can't over do it. When she was in the hospital 10 years ago, she was on so much morphine that she was hallucinating and didn't know me. I was so afraid for her. But after some infusions and good diet and paying attention to her body symptoms she's been doing great. I'm so proud of her.
katey1dog 3 years ago
My 13 year old daughter got diagnosed with acute GBS on 98 days ago and recivied IVIG plus prednisone 10 days later she had first relapse and recived plazma exchange treatment then 15 days later-2nd relapse/ IVIG treatments-third relpase/IVIG then we left the hospital with no significant improvement, and still today she is still not able to walk. Please give us a relpy with your take. Thanks for the great information on your video.
nmshara58 3 years ago
great for my med school finals! thanks!
zchax2g 3 years ago
thanks! this will help me for my nursing exam on neuro
mojer21 3 years ago
excellent
dotmela2002 3 years ago
How refreshing it is to see a knowledgeable physician who is human and down to earth. What a rarity that is, and I wish you worked in one of our local EDs. Thank you for presenting the Guillain Barre information.
epizooti 3 years ago
How refreshing it is to see a knowledgeable physician who is human and down to earth. What a rarity that is, and I wish you worked in one of our local EDs. Thank you for presenting the Guillain Barre information.
epizooti 3 years ago
Thank you for this. I was diagnosed with GBS in 2006 in Austria, after my doctors in the UK struggled to diagnose it ! TO LITTLE IS KNOWN about it by professionals! Today, I still suffer from residue weekness and strong neurpathic pain.
stinamm2008 3 years ago
I developed gullain-berre 9/29/06.I woke with numb feet and by noon it had spread through my body.I was 29 when it happened to me.They said it was rare but it doesn't seem rare...just unknown by most.I refuse to give it control over me.
kedmond964 3 years ago 2
Salve ho avuto le guillain-barrè nel giugno 99
con 5 mesi di ricovero in rianimazione...
con 4 mesi di intubazione...
ciao...
pulcinaDiabolika 4 years ago
I have guillain-barre and almost two years later haven't recovered 100%. This video is something I can show my doctors, seeing how they have NO clue what my syndrome is.
They still don't know how to get rid of my symptoms, two years later.
angeebaiby 4 years ago
I've had it for almost two years also,not only do they not know how to stop it,but they don't know what caused it and I'm not sure I'm getting the right medicine to treat it. Good luck
kedmond964 3 years ago
Informative with a human touch.
dhukka123 4 years ago
Great video! More please!
Great case presentation and visual depiction of the symptoms!
mobitz57 4 years ago
This was very informative, I am studing for usmle step 1 and this was most helpful! keep posting!!
maryghallinan 4 years ago
much better than our professors over here (belgium)
loeksfloeks 4 years ago
very nice!! I'm a medicine student from Brazil in the 4th year (here we graduate after 6 years of study) and searching about Guillain Barre I could learn something on this syndrome!! thank you and congratulations!!
saviomilbratz 4 years ago
i was diagnosed with GBS in 2002 and have been hospitalized 14 times since then with relapses which changed my diagnosis to CIDP i am now permanently disabled with weakness in my right side and atrophy of the muscles on the right
sapper2503 4 years ago
Much thanks from a DO student who is now in neuroscience module, and studying Guillian Barre!! Great review.
nab1dolac 4 years ago
excellent. we are waiting for more and more presentations. thanku.
bubloojee 4 years ago 2
Great teacher... I wish you could teach my nursing classes! haha. Keep posting videos!
ggdavis 4 years ago
hi,i am 33, mother of 7,after having my baby i had fever for 6 days blood infection,tingling in the hands legs,bad shoulder pain and lost all feeling over my body i was weak,i was in hosptal for 4 weeks i was given immunglobin for 5 days,l i have bells palsy on my face as the muscle are very weak,my blood preasure went up and my heart beat,i was closly montred all the time,i never had BP before,but its controling now,
lalmiah 4 years ago
Gary, Great job!
jgwiencek 4 years ago
It´s very interesting that you post this video because not many doctors can diagnose this syndrome, and it´s very importan to know this affeccion, so there can be more research about it, and to make better diagnose and treatment.
tsuyoikuma 4 years ago