Still get headaches as well and my memorys shot. I'm on Topimax and Lamictal for seizures. Bad combo..but I havent had a seizure. I've been on them for 3 years now.
Update:2 weeks on now. Numb lips, numb fingertips, Dr. pepper tastes horrible, jumbled words,slurred speech where I sound drunk, I talk with a lisp at times and even more dizzy at times. To top it off my Neuro said my dose would be ADJUSTED, so this means UP since I am on a low dose right now. Oh, I have had 2 migraines since starting it too. To those of you who have been on this awhile, if you are on facebook send me a Private inbox message on here and I will tell you my full name.
i know this drug works for a lot of people..however, after taking this drug for 3 years i finally figured out this drug was the reason of my 30% hair loss.. it's caused a lot of short term memory loss for me. i also had horrible problems with my eyes that I thought were new side effects of my migraine headaches.. nope it was because of the dr. upping the dosage of this medication. i lose weight on the medication.. the moment i went off i gained 10 lbs in 1 week. btw it never helped my migraines.
I just started this today. Lets see how this works. I forget things as it is, and I also already have balance issues. So now am I going to forget everything and fall into walls non stop?
A must before taking any of these drugs on offer check out Making a Killing: The Pharmaceutical Industry Pt 1/3 .. its more about physicological drugs but its all the same shit......
IMPORTANT: I was on topamax for 2years....Now I am on Keppra and Lamictal. The minute I went of the topamax it was like i was being born again. My head was clear, I wasnt lazy anymore, I didnt sleep all day, I could communicate effectively and efficiently with the people around me. Topamax took 2 years of my life away from me dont let it do this to you. This drug should not be used...I am only 21 I want those years back
@wharfrat89 Please, do you mind telling me what dosage you were on? Was it for epilepsy or migraine? I've been taking 50 mg per day for the past 3 days, but for psychiatric reasons (compulsive behavior). I imagine your dosage was high, like around 100, 200mg per day, for you to feel sleepy and dizzy?
One thing pharmacist forgets to mention is rare risk of a very dangerous side effect called ACUTE angular glaucoma, which can render you blind. It's rare, so don't freak out, but if your eyes start getting super red, hurt, your vision gets blurry and you feel pressure, see a doctor asap. And God forbid this happens to a NON verbal autistic or disabled or elderly person who can't tell you.
Topamax blocks voltage sodium dependent channels, is an anatagonist of glutamate and works on some of the GABA receptors in brain, basically this means, it's works best for people with broad spectrum seizure activity (many types or tonic clonis, atonic, myoclonic mixes). IT works on brain receptors that other drugs don't work on. It's absorbed quickly into body as well. It's just pathetic to hear "we don't know how it works." Yes they do. And if they don't, it should NOT be on market
@hatelife06 why? i just started taking 50mg a day of this shit and i noticed i have diarhrea after every meal, i lost 10 lbs in 3 days...other then that and the fact that all food taste like shit i see nothing wrong with this pill
@youngnutsack17 Idk, But When I Took It, It Made Me Feel Like Time Was PAssing By So Fast!! And I Felt So High, Like I Was Gonna Die! It Was A Huge Mistake, I Wasnt Prescribed Them So I Got FUcked Up..
@youngnutsack17 Yeah I know, It was Crazy Me And 5 Friends Took Baclofen, Then Some Girl Hands Those To Us, Next Thing You Know There Are 5 Crazy Students Trying To Go Home.. lol
After having an MRi and lumbar puncture to rule out anything sinister that could've been causing my headaches, I was told I was having a less severe migraine than what I'd previously been having. I was prescribed Topiramate yesterday but I'm now having serious doubts about taking this drug. I have two children, one with autism and the thought of having these side effects whilst trying to care for them is making me want to cry.
@michellel807 It's not that bad. I have a kid with autism too. How did the pill work out for you? I been taking it for 7 days now and it's ok just a little airy lol . But, I'm more concern because I heard about glaucoma side effect.
After having an MRi and lumbar puncture to rule out anything sinister that could've been causing my headaches, I was told I was having a less severe migraine than what I'd previously been having. I was prescribed Topiramate yesterday but I'm now having serious doubts about taking this drug. I have two children, one with autism and the thought of having these side effects whilst trying to care for them is making me want to cry.
However, they just kept getting worse and worse, increased anxiety led to a strange change in consciousness which made me feel out of touch with reality. I didn't know what was real and fake, everything outside of my body felt fake and everything inside felt very very real. I also had anorexia and there was a period where I didn't eat anything for almost a week. I couldn't get out of bed, I couldn't look at people, all I could do was clench my fists and wait for merciful sleep
@Sshelly34213 Please, do you mind telling me what dosage you were on? Was it for epilepsy or migraine? I've been taking 50 mg per day for the past 3 days, but for psychiatric reasons (compulsive behavior). I imagine your dosage was high, like around 100, 200mg per day, for you to feel like you did?
Oh my fucking god, Topamax is the words drug I've ever had the misfortune of taking. I have epilepsy and my doctor suggested it as an alternative to depekote which made me gain massive amounts of weight. Its weight loss side effect was supposed to allow me to be able to lose all that I had gained on Depekote and allow me to live a normal life for once in my life. First side effects included numbness and tingling of the face, this stunk but was marginally bearable to live a life without being fat
i've taken this stuff because i had headaches so bad i had to quit my last semester of my sophomore year in college. i also took zoloft. one of them must have worked because i haven't had a severe headache in a while!
I've been popping TOPIRAMATE 100MG & 200MG twice a day with two 100MG DILANTIN pill's twice a day for about 8 years now, and I will till the day I die. Thank God for generic drugs, because the cost of TOPAMAX will cause you to go broke.
@oldschoolpunkerd "because the cost of TOPAMAX will cause you to go broke"
You can say that again. I take Topamax plus several other very expensive medications every month and as a result I'll NEVER have anything ever again in life due to the high cost of these prescription drugs. Although I'm glad I feel better, one has to choose which method of decline they want: Pain-for-life or Poor-for-life.
My friend has Multiple Sclerosis. She also is a recovering addict. She is having a horrible time getting something to help her with pain. She wants to stay away from Narcotics. She was prescribed Topiramate today but we feel like the doctor is not being proactive in her treatment of MS or the pain. Can anyone tell me if they were prescribed topiramate (Topamax) for pain relief.
has anyone had significant changes in their sight from this? my sight has started to get significantly worse over the last month. I've been on topamax almost a year. 200 mg a day. all other medications have failed miserably and this one has been the only one to keep me seizure free with minimal side-effects (weight loss, memory loss, tingling) up till now. I'm not sure I can take switching meds again. has anyone else had poor sight reactions?????
I have to take 100mg per day (because of my epilepsy).... but then i also started noticing that... so i begin to take 50mg per day.... and now it´s better (maybe because i sometimes forget to take them =/ )
I used to take this med never had migraines or panic attacks but i was young and stopped taking it cold turkey now i have migraines and and panic attacks so bad i go into convulsions never stop a med cold turkey
In the 4-5 years I took Topamax, it not only gave me kidney stones, but it changed the taste of food for me, made me feel completely stupid since I couldn't think of the most obvious words, I now need to wear glasses, and I lost weight. Not to mention it gave me depression. Not worth it.
It causes severe 'tingling' but something like painful pins and needles.. idk, if you're under 110 pounds you're more likely to get side effects. My neurologist warned me about it and I get a lot of the side effects. Fatigue, dizziness, pins and needles, numbness, - here's a hint - TAKE POTASSIUM SUPPLIMENTS! my doctor told me it helps for the side effects and it really does :)
i take topamax. i rub my feet on the ground like crazy to stop the tingling, which helps. i have headaches because of hydrocephalus and Topamax kills them with no problem.
Woow I posted that comment a long time ago. Since then I've found out ALL of my other health issues are due to Topiramate. I'm not kidding - my neurologist told me "Get off of it, right away." I lost about 20 pounds? It's not a good thing cause I can't stop unles I get off. It hurts my joints SOOO BADLY I can't walk. I'm not exaggerating. It hurts my stomach to the point of not eating and my throat to the point of not talking. I'm underweight and almost rotting now, but getting off it.
@NikkiBabycakes when i came off this medication the joint aches were so almost completely unbearable.. i can totally relate. there were days when i did not even get out of bed. i had to go off of this medication very slow because of how bad the joint muscle aches were. i'm so sorry you had the same horrible problems with this medication. i also had my hair falling out as well. once i went off this medication all the horrible side effects reversed.
@dbritton41 Hi, there...do you mind telling me what daily dosage you were taking? My psychiatrist prescribed 50 mg per day for my humor alterations. Not for migraines.
@dsampaio81 i started out on 50 mgs and had the most problems with the medication at my highest dose of 200 mgs. i believe 50 mg is just the starting dose though...
@dbritton41 Were you taking it for epilepsy, migraine or for psychiatric reasons, though? What my doctor told me is that I will never take more than 50mg per day. Anyhow...I am afraid of all the comments of people here....they're all freaking me out...
@howardkevinm I was born with hydrocephalus and an arachnoid cyst..I had a shunt revision in 2009, and my headaches got better..but now they're coming back..I was on Elavil for 2 months and I've been off of it for 4 days now (due to heart palpitations). My French teacher told me to talk to my doctor about Topamax, but I'm..kind of scared. It seems like all it really does is make headaches go away, but it piles on MORE side effects. do you...think Topamax is worth asking my Neurologist about?
Topamax is a wonder drug. Other than dehydration and memory loss i have very little to no side effects. I love it, especially after spending 12 years on depakote, the pill from hell. Kepra is ok, but at a 3000mg a day will actually cause seizures, atleast it did in me. I just love topamax. I know its different in each person.
I've been taking topamax now for over 2 years. My dose is 900mg a day. (500mg in morning, 400mg at night) Seizure free for over a year now. I was diagnosed with Adult Onset epilepsy in May 2007.
My life has changed dramatically and so has my personality on this drug, however, I prefer to stay seizure free and happy. Weightloss is one of the side effects I have encountered on the meds in addition to taste change and memory loss. Fatigue is also an issue.
topamax in some rare cases can lead to severe bouts of depression. Since it has been prescribed to my sister as a preventitve for migraines and mild seizures her mood and general attitude about life has changed drastically. I feel this medicine while beneficial to some needs more FDA research. There are numerous reports of strange mood swing and depression linked to this drug
In Israel, it's sold as Topamax and Topatrim and you can only get it through a neurologist.
I know people who get results ONLY from it and I know people who get no results from it. I just started it for migraines, strange aura that's "seizurelike," bipolar, and also cuz I'm overweight. If it helps with some of those... well.. I'll be happy!
I've been taking this for migraine for the past 8 months or so - pretty impressed with it's effectiveness so far. No weight loss though unfortunately!
This drug made me feel like a zombie I could hardly remember my name and 6 weeks down the line and it was doing nothing to reduce my migraines. I was all bad side effects and no real benefits. I really bad experience avoid at all costs.
before taking any preventative meds I was basicly living at the hospital. I've been on it for on month now. I am switching from from Elavil which packed the weight on and I still had many breakthrough migraines.
So far so good with topamax. I haven't had a migraine in a month which hasn't happened in years.
@Chrstna72 I was on Elavil for 2 months :( and i've been off it for 4 days now..did you feel...more..aggravated when you got off? I'm going to my Neurologist on the 29th and I'm going to ask him about this..
just wondering...do you know what was causing your migraines?
I took it for 2 months, then changed because of side effects were doing my head in, 3 years later I was riding my bike and forgot where I was for a minute, totally
This shit ruined my life. It changed the way everything tastes, how I think, and how I react to things. I did not lose weight and it had no impact on my headaches.
its the best newer anticonvulsant I think as i was on dilantin for 38 years! yikes it ruined all my bones then it was ruining my liver so I had to get off of the dilantin. So now Im on the topamax. No med is 100 percent safe I think
@wharfrat89 I'm taking this mess for anxiety, I don't know why it was prescribed to me, I haven't heard this lady say anything really related to anxiety.
@BIGJAC2699 Me too...taking it for anxiety, compulsive behavior and mood swings......50 mg per day.....wonder if I am gonna become a zombie like people are saying...
I just started taking Topamax yesterday, and I really hope that it does help with the weight loss. That might actually be a nice side effect. I'm on it to treat my migraines and to help with my mood swings. My neurologist referred me to a psychiatrist, because they think I'm bipolar, and apparently this medication can be used for that as well
I take topamax, and I have memory problems and a pins and needles feeling in my legs and feet throughout the day. I'm on 100 mg. So, it's not the best medication to be on.
the pins and needles go away. I think 400 mgs a day might have been making my hair fall out, so I went off it. I did lose a TON of weight on it though.
I was taking 2 in the morning and 2 at night I thnk it was so it was like 200mg a day.. cant remember i dont take them anymore because I changed doctors but they really helped me.. trying to get them again for my migraines
het is zelfs van een nederlandse fabricant (mede). Dus je kunt het gewoon met een recept van de arts krijgen. Weet niet of je het snel krijgt. Ik krijg het via de psychiater, gezien ik het voor mn PTSS heb (nog niet begonnen overigens).
Denise B Jan.23,2012
NurseRNish 6 days ago in playlist Seizures
Maranda G. Jan. 23,2012
MissAssbutt 6 days ago in playlist Seizures
"In children as young as two" ... I take this for my epilepsy and i'm 20 ...
LanguageNerd09 1 month ago
New FDA Warning Against Topamax Migraine Medicine
FDA Warning: Do You Take Topamax? See it here: vicodinsite.info
smiulika 3 months ago
Comment removed
JTHEGR81 4 months ago
Awful; 4 Days blurred vision,confusion. Please stay away from this stuff.
TheDodson25 5 months ago
Still get headaches as well and my memorys shot. I'm on Topimax and Lamictal for seizures. Bad combo..but I havent had a seizure. I've been on them for 3 years now.
whudafxuptoomey 6 months ago
I was on this and Adderall for bipolar I disorder and it made me stupid and I looked like Nicole Ritchie on it...
MrSpemat 6 months ago
Update:2 weeks on now. Numb lips, numb fingertips, Dr. pepper tastes horrible, jumbled words,slurred speech where I sound drunk, I talk with a lisp at times and even more dizzy at times. To top it off my Neuro said my dose would be ADJUSTED, so this means UP since I am on a low dose right now. Oh, I have had 2 migraines since starting it too. To those of you who have been on this awhile, if you are on facebook send me a Private inbox message on here and I will tell you my full name.
pris72 8 months ago
i know this drug works for a lot of people..however, after taking this drug for 3 years i finally figured out this drug was the reason of my 30% hair loss.. it's caused a lot of short term memory loss for me. i also had horrible problems with my eyes that I thought were new side effects of my migraine headaches.. nope it was because of the dr. upping the dosage of this medication. i lose weight on the medication.. the moment i went off i gained 10 lbs in 1 week. btw it never helped my migraines.
dbritton41 8 months ago
I just started this today. Lets see how this works. I forget things as it is, and I also already have balance issues. So now am I going to forget everything and fall into walls non stop?
pris72 8 months ago
A must before taking any of these drugs on offer check out Making a Killing: The Pharmaceutical Industry Pt 1/3 .. its more about physicological drugs but its all the same shit......
dosh228 9 months ago
IMPORTANT: I was on topamax for 2years....Now I am on Keppra and Lamictal. The minute I went of the topamax it was like i was being born again. My head was clear, I wasnt lazy anymore, I didnt sleep all day, I could communicate effectively and efficiently with the people around me. Topamax took 2 years of my life away from me dont let it do this to you. This drug should not be used...I am only 21 I want those years back
wharfrat89 10 months ago
@wharfrat89 keppra is FUCKED i was on both Epilim Lamictal tregatol keppra etc there all fucked all the meds are..
dosh228 9 months ago
Comment removed
dbritton41 8 months ago
@wharfrat89 Please, do you mind telling me what dosage you were on? Was it for epilepsy or migraine? I've been taking 50 mg per day for the past 3 days, but for psychiatric reasons (compulsive behavior). I imagine your dosage was high, like around 100, 200mg per day, for you to feel sleepy and dizzy?
dsampaio81 7 months ago
One thing pharmacist forgets to mention is rare risk of a very dangerous side effect called ACUTE angular glaucoma, which can render you blind. It's rare, so don't freak out, but if your eyes start getting super red, hurt, your vision gets blurry and you feel pressure, see a doctor asap. And God forbid this happens to a NON verbal autistic or disabled or elderly person who can't tell you.
kgaccount 10 months ago
This has been flagged as spam show
Topamax blocks voltage sodium dependent channels, is an anatagonist of glutamate and works on some of the GABA receptors in brain, basically this means, it's works best for people with broad spectrum seizure activity (many types or tonic clonis, atonic, myoclonic mixes). IT works on brain receptors that other drugs don't work on. It's absorbed quickly into body as well. It's just pathetic to hear "we don't know how it works." Yes they do. And if they don't, it should NOT be on market
kgaccount 10 months ago
Comment removed
kgaccount 10 months ago
crap does not work on me feel the same every freaking day i take 2 pills every night before i go to bed. I think i am gonna try medical weed
finddavid7 11 months ago
this shit fucks you up soo hard!
hatelife06 1 year ago
@hatelife06 why? i just started taking 50mg a day of this shit and i noticed i have diarhrea after every meal, i lost 10 lbs in 3 days...other then that and the fact that all food taste like shit i see nothing wrong with this pill
youngnutsack17 11 months ago
@youngnutsack17 Idk, But When I Took It, It Made Me Feel Like Time Was PAssing By So Fast!! And I Felt So High, Like I Was Gonna Die! It Was A Huge Mistake, I Wasnt Prescribed Them So I Got FUcked Up..
hatelife06 11 months ago
@hatelife06 hahaha thats true i feel like i got drunk as shit last night and woke up slightly buzzed but not happy naw mean?
youngnutsack17 11 months ago
@youngnutsack17 Yeah I know, It was Crazy Me And 5 Friends Took Baclofen, Then Some Girl Hands Those To Us, Next Thing You Know There Are 5 Crazy Students Trying To Go Home.. lol
hatelife06 11 months ago
@hatelife06 hahahahah!!! good thing you guys didnt drink with them, you all wouldve died! ahah or passed out! ahah
youngnutsack17 11 months ago
After having an MRi and lumbar puncture to rule out anything sinister that could've been causing my headaches, I was told I was having a less severe migraine than what I'd previously been having. I was prescribed Topiramate yesterday but I'm now having serious doubts about taking this drug. I have two children, one with autism and the thought of having these side effects whilst trying to care for them is making me want to cry.
michellel807 1 year ago
@michellel807 It's not that bad. I have a kid with autism too. How did the pill work out for you? I been taking it for 7 days now and it's ok just a little airy lol . But, I'm more concern because I heard about glaucoma side effect.
neoherrera101 10 months ago
@neoherrera101 I didn't take it.
michellel807 10 months ago
@michellel807 aw ok
neoherrera101 10 months ago
After having an MRi and lumbar puncture to rule out anything sinister that could've been causing my headaches, I was told I was having a less severe migraine than what I'd previously been having. I was prescribed Topiramate yesterday but I'm now having serious doubts about taking this drug. I have two children, one with autism and the thought of having these side effects whilst trying to care for them is making me want to cry.
michellel807 1 year ago
I will never forget my experiences on this drug as long as I live.
Sshelly34213 1 year ago
However, they just kept getting worse and worse, increased anxiety led to a strange change in consciousness which made me feel out of touch with reality. I didn't know what was real and fake, everything outside of my body felt fake and everything inside felt very very real. I also had anorexia and there was a period where I didn't eat anything for almost a week. I couldn't get out of bed, I couldn't look at people, all I could do was clench my fists and wait for merciful sleep
Sshelly34213 1 year ago
This has been flagged as spam show
@Sshelly34213 Please, do you mind telling me what dosage you were on? Was it for epilepsy or migraine? I've been taking 50 mg per day for the past 3 days, but for psychiatric reasons (compulsive behavior). I imagine your dosage was high, like around 100, 200mg per day, for you to feel like you did?
dsampaio81 7 months ago
Oh my fucking god, Topamax is the words drug I've ever had the misfortune of taking. I have epilepsy and my doctor suggested it as an alternative to depekote which made me gain massive amounts of weight. Its weight loss side effect was supposed to allow me to be able to lose all that I had gained on Depekote and allow me to live a normal life for once in my life. First side effects included numbness and tingling of the face, this stunk but was marginally bearable to live a life without being fat
Sshelly34213 1 year ago
can you drink on topamax?
lickmytwat 1 year ago
do this afect a baby if the mom takesit beacuse my girlfriend takesit n she might get pregnant anytime
Elcarlillos100 1 year ago
@Elcarlillos100 wear a condom.... unless you plan to have a baby then consult her GP
wrightie008 1 year ago
i've taken this stuff because i had headaches so bad i had to quit my last semester of my sophomore year in college. i also took zoloft. one of them must have worked because i haven't had a severe headache in a while!
MissMaddy881 1 year ago
Maybe try conservative treatment first, before you take a medication where no one knows how it works. And people think medicine is scientific!
PureChiropractic 1 year ago
I take it - no wonder they call it "dope-amax" because I sometimes find it hard to remember simple words and how to spell them.
oliviasdaddy1 1 year ago
I've been popping TOPIRAMATE 100MG & 200MG twice a day with two 100MG DILANTIN pill's twice a day for about 8 years now, and I will till the day I die. Thank God for generic drugs, because the cost of TOPAMAX will cause you to go broke.
oldschoolpunkerd 1 year ago
@oldschoolpunkerd "because the cost of TOPAMAX will cause you to go broke"
You can say that again. I take Topamax plus several other very expensive medications every month and as a result I'll NEVER have anything ever again in life due to the high cost of these prescription drugs. Although I'm glad I feel better, one has to choose which method of decline they want: Pain-for-life or Poor-for-life.
Only In America :(
thebakerman1 1 year ago
o love smoking weed poping my dopeamax an a monster lol
blakkjadez 1 year ago
the voice of the doctor is relaxing
Elchesterblasterkick 1 year ago
My friend has Multiple Sclerosis. She also is a recovering addict. She is having a horrible time getting something to help her with pain. She wants to stay away from Narcotics. She was prescribed Topiramate today but we feel like the doctor is not being proactive in her treatment of MS or the pain. Can anyone tell me if they were prescribed topiramate (Topamax) for pain relief.
lesliegg1961 1 year ago
it's also effective with PTSD
ayellessnuffelhoek 1 year ago
ugh Topamax made me go crazy........It also didn't help my seizures
TooShy22 1 year ago
...oh but p.s. it cures my migranes -_-
espressotruths 1 year ago
yeahhh mood swings like fucking crazy =(
also it makes horrible ringing in my ears and tingly fingers
espressotruths 1 year ago
I've taken topamax for a really long time, and within the last couple of months I've really started to notice that my eyesight has gotten really bad.
adirtysunset 1 year ago
@adirtysunset Do you mean you reavently started noticing the difference in you eye sight with topamax?
neoherrera101 10 months ago
has anyone had significant changes in their sight from this? my sight has started to get significantly worse over the last month. I've been on topamax almost a year. 200 mg a day. all other medications have failed miserably and this one has been the only one to keep me seizure free with minimal side-effects (weight loss, memory loss, tingling) up till now. I'm not sure I can take switching meds again. has anyone else had poor sight reactions?????
sushi062000 2 years ago
I have to take 100mg per day (because of my epilepsy).... but then i also started noticing that... so i begin to take 50mg per day.... and now it´s better (maybe because i sometimes forget to take them =/ )
19marry87 1 year ago
@sushi062000 Well I have the same question about the eye sight. Why is your eye sight messing up?
neoherrera101 10 months ago
I used to take this med never had migraines or panic attacks but i was young and stopped taking it cold turkey now i have migraines and and panic attacks so bad i go into convulsions never stop a med cold turkey
nicksanimegurl987 2 years ago
It worked great for me, no headaches in 3 months! And mood was leveld out
zmae22 2 years ago
POISON, POISON, POISON
mohammedlovespork 2 years ago
fuck motherfucking topamax
Chudstoned79 2 years ago
This has been flagged as spam show
Topamax: The night time, sneezing, coughing, aching, stuff head, fever, so you can blow your fuckin brains out medicine
TomAndJanieBrode 2 years ago
In the 4-5 years I took Topamax, it not only gave me kidney stones, but it changed the taste of food for me, made me feel completely stupid since I couldn't think of the most obvious words, I now need to wear glasses, and I lost weight. Not to mention it gave me depression. Not worth it.
Sozzney 2 years ago
It causes severe 'tingling' but something like painful pins and needles.. idk, if you're under 110 pounds you're more likely to get side effects. My neurologist warned me about it and I get a lot of the side effects. Fatigue, dizziness, pins and needles, numbness, - here's a hint - TAKE POTASSIUM SUPPLIMENTS! my doctor told me it helps for the side effects and it really does :)
NikkiBabycakes 2 years ago
i take topamax. i rub my feet on the ground like crazy to stop the tingling, which helps. i have headaches because of hydrocephalus and Topamax kills them with no problem.
howardkevinm 2 years ago
Woow I posted that comment a long time ago. Since then I've found out ALL of my other health issues are due to Topiramate. I'm not kidding - my neurologist told me "Get off of it, right away." I lost about 20 pounds? It's not a good thing cause I can't stop unles I get off. It hurts my joints SOOO BADLY I can't walk. I'm not exaggerating. It hurts my stomach to the point of not eating and my throat to the point of not talking. I'm underweight and almost rotting now, but getting off it.
NikkiBabycakes 2 years ago
well i only take 25mg. as long as they kill my headaches ill burn holes in my socks ftrom rubbing my feet so much lol.
howardkevinm 2 years ago
@NikkiBabycakes when i came off this medication the joint aches were so almost completely unbearable.. i can totally relate. there were days when i did not even get out of bed. i had to go off of this medication very slow because of how bad the joint muscle aches were. i'm so sorry you had the same horrible problems with this medication. i also had my hair falling out as well. once i went off this medication all the horrible side effects reversed.
dbritton41 8 months ago
@dbritton41 Hi, there...do you mind telling me what daily dosage you were taking? My psychiatrist prescribed 50 mg per day for my humor alterations. Not for migraines.
dsampaio81 7 months ago
@dsampaio81 i started out on 50 mgs and had the most problems with the medication at my highest dose of 200 mgs. i believe 50 mg is just the starting dose though...
dbritton41 7 months ago
@dbritton41 Were you taking it for epilepsy, migraine or for psychiatric reasons, though? What my doctor told me is that I will never take more than 50mg per day. Anyhow...I am afraid of all the comments of people here....they're all freaking me out...
dsampaio81 7 months ago
@howardkevinm I was born with hydrocephalus and an arachnoid cyst..I had a shunt revision in 2009, and my headaches got better..but now they're coming back..I was on Elavil for 2 months and I've been off of it for 4 days now (due to heart palpitations). My French teacher told me to talk to my doctor about Topamax, but I'm..kind of scared. It seems like all it really does is make headaches go away, but it piles on MORE side effects. do you...think Topamax is worth asking my Neurologist about?
cecicouture93 1 year ago
@cecicouture93 i got tired of ripping holes in my socks from scratching my feet on the floor so i stopped taking it.
howardkevinm 1 year ago
Topamax is a wonder drug. Other than dehydration and memory loss i have very little to no side effects. I love it, especially after spending 12 years on depakote, the pill from hell. Kepra is ok, but at a 3000mg a day will actually cause seizures, atleast it did in me. I just love topamax. I know its different in each person.
mohawkj99 2 years ago
I have Pseudo Tumor Cerebri. So i am on Diamox, plus a low dose of Topiramate 25 mg a day to help with the headaches.
Muhajiba 2 years ago
I've been taking topamax now for over 2 years. My dose is 900mg a day. (500mg in morning, 400mg at night) Seizure free for over a year now. I was diagnosed with Adult Onset epilepsy in May 2007.
My life has changed dramatically and so has my personality on this drug, however, I prefer to stay seizure free and happy. Weightloss is one of the side effects I have encountered on the meds in addition to taste change and memory loss. Fatigue is also an issue.
Cheers.
agentren79 2 years ago
topamax in some rare cases can lead to severe bouts of depression. Since it has been prescribed to my sister as a preventitve for migraines and mild seizures her mood and general attitude about life has changed drastically. I feel this medicine while beneficial to some needs more FDA research. There are numerous reports of strange mood swing and depression linked to this drug
cjsheldo 2 years ago
my son marcus he is on this too he has been for last 5 years has he has epilisey..... ive noticed too while on this he has bad mood swings
joanne7195 2 years ago
In Israel, it's sold as Topamax and Topatrim and you can only get it through a neurologist.
I know people who get results ONLY from it and I know people who get no results from it. I just started it for migraines, strange aura that's "seizurelike," bipolar, and also cuz I'm overweight. If it helps with some of those... well.. I'll be happy!
triLcat 2 years ago
I've been taking this for migraine for the past 8 months or so - pretty impressed with it's effectiveness so far. No weight loss though unfortunately!
Sheera2006 2 years ago
it has it's good & bad sides I think the ONE GOOD was there's no labwork to be done w/ this one.
Disneydanny 2 years ago
She explained how it worked by saying that no one knows how it works??
My sister was on this, its been two months and I've yet to see any improvements.
jbnumba1 2 years ago
Taking this drug was the worst thing in my whole life. kidney stone, aphasia and more bad things.
Never again!!!
epoxy91 2 years ago
This drug made me feel like a zombie I could hardly remember my name and 6 weeks down the line and it was doing nothing to reduce my migraines. I was all bad side effects and no real benefits. I really bad experience avoid at all costs.
chassa2556 3 years ago
before taking any preventative meds I was basicly living at the hospital. I've been on it for on month now. I am switching from from Elavil which packed the weight on and I still had many breakthrough migraines.
So far so good with topamax. I haven't had a migraine in a month which hasn't happened in years.
Chrstna72 3 years ago
@Chrstna72 I was on Elavil for 2 months :( and i've been off it for 4 days now..did you feel...more..aggravated when you got off? I'm going to my Neurologist on the 29th and I'm going to ask him about this..
just wondering...do you know what was causing your migraines?
cecicouture93 1 year ago
If you had taken topamx b4 is it safe to start taking it again. Some one can answer me thank u...
kmations 3 years ago
I took it for 2 months, then changed because of side effects were doing my head in, 3 years later I was riding my bike and forgot where I was for a minute, totally
wazzok33 2 years ago
This shit ruined my life. It changed the way everything tastes, how I think, and how I react to things. I did not lose weight and it had no impact on my headaches.
rr8ch66 3 years ago
its the best newer anticonvulsant I think as i was on dilantin for 38 years! yikes it ruined all my bones then it was ruining my liver so I had to get off of the dilantin. So now Im on the topamax. No med is 100 percent safe I think
elleanor07 3 years ago
"No one know exactly how topamax works"...Great i have only been taking this shit for 2 years
wharfrat89 3 years ago 9
same here man that scares the shit out of me and i still get the fucking headaches
wykleg 3 years ago 6
@wharfrat89 I'm taking this mess for anxiety, I don't know why it was prescribed to me, I haven't heard this lady say anything really related to anxiety.
BIGJAC2699 1 year ago
@BIGJAC2699 Me too...taking it for anxiety, compulsive behavior and mood swings......50 mg per day.....wonder if I am gonna become a zombie like people are saying...
dsampaio81 7 months ago
@wharfrat89 Hey I started on 25 mg . I read on google that a person taking topiramate can get glaucoma. Have you expirienced blured vision?
neoherrera101 10 months ago
I just started taking Topamax yesterday, and I really hope that it does help with the weight loss. That might actually be a nice side effect. I'm on it to treat my migraines and to help with my mood swings. My neurologist referred me to a psychiatrist, because they think I'm bipolar, and apparently this medication can be used for that as well
a244131f 3 years ago 2
have fun with your mood swings! my doc prescribed it for my anzienty and it made it worse WTF
sugarplumella 2 years ago
I take topamax, and I have memory problems and a pins and needles feeling in my legs and feet throughout the day. I'm on 100 mg. So, it's not the best medication to be on.
maliamoo 3 years ago
the pins and needles go away. I think 400 mgs a day might have been making my hair fall out, so I went off it. I did lose a TON of weight on it though.
onelasssttime 3 years ago
I too was on 100mg & had to stop. I couldn't handle the memory problems & pins and needles. I am now on Inderal
Nola0106 3 years ago
excellent video , i wish they would do this for all medication.
deaddodance 3 years ago
I'm on it and believe me it helps with weight loss.
dantesmommy1223 3 years ago
I know...its weird Ive lost a lot of weight its crazy
VeganChick17 3 years ago
@VeganChick17 what was ur dosage? like how much topamax were u prescribed??
sfashian1187 1 year ago
I was taking 2 in the morning and 2 at night I thnk it was so it was like 200mg a day.. cant remember i dont take them anymore because I changed doctors but they really helped me.. trying to get them again for my migraines
VeganChick17 1 year ago
where can I find topamax in the Netherlands??
boygeorgelover 4 years ago
its prescription only!!!!!!
helpme130 4 years ago
Not in Mexico.
misschii86 3 years ago
can you write a script for some??
DarsowGolf 3 years ago
het is zelfs van een nederlandse fabricant (mede). Dus je kunt het gewoon met een recept van de arts krijgen. Weet niet of je het snel krijgt. Ik krijg het via de psychiater, gezien ik het voor mn PTSS heb (nog niet begonnen overigens).
ayellessnuffelhoek 1 year ago