My daughter was born with a very massive (and malignant) SCT. Good work on the video, although I'll admit I cried. My daughter is now a very healthy toddler, and we're lucky to have her.
She had her teratoma resected at one day of age. It was 3 pounds, solid tissue mass & hyper vascular. She developed heart failure as a result. Once the teratoma was resected, the heart failure was able to reverse it's self, as it wasn't having to pump so much blood anymore. When we got pathology reports back, a Pediatric Oncologist took over her case & we watched her closely with blood work and many, many CT scans. She is still followed by an oncologist but just goes once a year now.
I was born with a SCT as well, in 1990, when there wasn't much info about it. I only just recently became interested in my condition, so I decided to youtube it and see what came up:) I am now 18 and perfectly healthy, just have had a few reconstructive surgeries. I'm so glad your daughter is now healthy and healing, Jade!
I am going to try to email you off list, I am in an online support group with members around the world. There are a few teen survivors in there right now. =) It is a good place to be.
wow a body in a body
CoolKillerClan 1 week ago
poor baby
007chica 1 year ago
Do u have any video's of teratoma in adults? I got diagnosed when i was 19, and i can't find anything a mature person being treated.
subhanrukh 3 years ago
arent some terratomas made of hari nd teeth!!!!!
kurfew1100 3 years ago
Yes , some teratomas contain hair, teeth & bone .. one or more tissues .
egydoctorsnet 3 years ago
@kurfew1100 they can contain any tissue or organ...
Mwitamath 2 years ago
My daughter was born with a very massive (and malignant) SCT. Good work on the video, although I'll admit I cried. My daughter is now a very healthy toddler, and we're lucky to have her.
JadeSanford519 3 years ago
Congratulation Jade .. with my pleasure that your daughter become healthy now , and may Allah save kate for her parents.
Can you supply us with any useful data about Katelyn .. her disease history and the management till become good .
egydoctorsnet 3 years ago
She had her teratoma resected at one day of age. It was 3 pounds, solid tissue mass & hyper vascular. She developed heart failure as a result. Once the teratoma was resected, the heart failure was able to reverse it's self, as it wasn't having to pump so much blood anymore. When we got pathology reports back, a Pediatric Oncologist took over her case & we watched her closely with blood work and many, many CT scans. She is still followed by an oncologist but just goes once a year now.
JadeSanford519 3 years ago
Thank you Jade for attention !!
egydoctorsnet 3 years ago
I was born with a SCT as well, in 1990, when there wasn't much info about it. I only just recently became interested in my condition, so I decided to youtube it and see what came up:) I am now 18 and perfectly healthy, just have had a few reconstructive surgeries. I'm so glad your daughter is now healthy and healing, Jade!
MmmmmmHmmmmm 3 years ago
I am going to try to email you off list, I am in an online support group with members around the world. There are a few teen survivors in there right now. =) It is a good place to be.
JadeSanford519 3 years ago
i'm glad for you!
edwardgreat 2 years ago