I had an Avastin injection last Wednesday. I have CRVO in my right eye as you said you did. Have you gotten any improvement and if so in how long a time. I just have to ask this question because having this eye problem has made me anxious and looking for answers. I hope your vision is much better after 2 injections. William May
@crvomy hi there thanks for your reply - so far i've had three lucentis injections but for the macular oedema but it seems it wasnt caused by CRVO but from Macular Telangiectasia. So far its reoccured each time around 5-6weeks after injection - i am now in my 5th week and latest appointment shows it has gone done and the fovea is returning to normal, bit of luck thatll be it for a while
hi ken, am 27 and will be having an injection of lucentis this week, can't say am looking forward to it but if it means i get vision back am up for it - is it common for people my age to get cystoid macular oedema from CRVO? from your experience of course
@stemccla82 It is common for anyone (young or old) with CRVO to develop macular edema. But it is not common for someone in their 20's to have a CRVO. Over the past eight or so years a few people in their twenties have come the the CRVO support bulliten board (groups.google.com/group/crvo-support/topics - please join us if you would like) and made comments but not that many. I really hope the lucentis works well and brings down the macular edema. Hang in there, Ken
@stemccla82 It is common for anyone (young or old) with CRVO to develop macular edema. But it is not common for someone in their 20's to have a CRVO. Over the past eight or so years a few people in their twenties have come the the CRVO support bulliten board (please join us if you would like - the link is in the description of the video) and made comments but not that many. I really hope the lucentis works well and brings down the macular edema. Hang in there, Ken
i have had cystoid macular oedema for nearly two months now - my opthamologist is giving me lucentis injection like this next thurs and i can say i am not looking forward to it but you got to do what it take to get vision back esp as am only 28. Do you know anyone else who has had CME from CVI around my age?
i get something similar to this done often. i get a shot of kenalog for iritus(not sure on the spelling im only 16 lol) but basically is imflamation similar to arthritus in the eye
Thanks Ken I understand your position, I do remember she said she wanted to wait and see if the eye improved it just gets so hard to live like this. /But with your help I did find a better Dr. Many thanks again Ken keep up with your good work you have helped me a lot. Sincerely, Susan
Hi Ken I hope this finds you well. a question, I am still having this done with a different Dr.and location. I have one question for you after three injections the Dr Wants to wait over a month is this common? I do not see what we are waiting for as I still cannot drive Thanks again Ken, Susan
@JerryJSKAY Unfortunately I am not a doctor so I really could not tell you even if I knew more about your situation. About the best thing I can tell you to do is to talk to your doctor again and ask him/her straight up. And if they won't explain why, maybe you should find a doctor with whom you can communicate more easily. Hang in there, Ken
Hi Ken I have watched his video many times but have a question. Is this painful? I am having this done this Wednesday the 6th of Oct. and I am very worried about the pain of a needle in my eye, please inform. You have done a great job explaining the procedure. Many thanks, Susan
@JerryJSKAY Hi Susan - My personal experience was that the thought of having the injection was worse than the actual pain of the injection. I did a survey of people with the same eye condition that I have and got 165 responses and about 75% stated that they had minimal to no pain. Hope this helps. If you would like more information on the survey watch my video entitled: Intravitreal Injection Survey Results. Hang in there, Ken
@crvomy Hi Ken, thanks so much for I am due for another injection this Wed in Seattle the first one was a nightmare!! So I'm doing as much reserach before then. What did they use on your eye? Here they put a bit of Lidocaine in the corner of the eye. The pain was...terrible!! I will watch your other video/survey today. I am having a hard time seeing on this page sorry Ken. Many thanks for your responce,Susan
@JerryJSKAY Honestly, I don't recall. It's been more than five years ago. I do recall that I took a dose of tylenol an hour before the injection to help with the irritation but you should call and ask your own physician if that would be ok to do before you do anything like that. I'm sorry to hear that you had a difficult experience during the first injection. I hope the next one is a better. Hang in there, Ken
ouch!
living4adrenaline 2 days ago
Thank you.
lbredikhin5 2 months ago
I had an Avastin injection last Wednesday. I have CRVO in my right eye as you said you did. Have you gotten any improvement and if so in how long a time. I just have to ask this question because having this eye problem has made me anxious and looking for answers. I hope your vision is much better after 2 injections. William May
willieneal57 6 months ago
I just had a Kenalog injection due to cystoid macula edema after cataract surgery, lens implantation and dsaek. Thank you for posting this video.
gingerbread1231 7 months ago
@crvomy hi there thanks for your reply - so far i've had three lucentis injections but for the macular oedema but it seems it wasnt caused by CRVO but from Macular Telangiectasia. So far its reoccured each time around 5-6weeks after injection - i am now in my 5th week and latest appointment shows it has gone done and the fovea is returning to normal, bit of luck thatll be it for a while
stemccla82 8 months ago
hi ken, am 27 and will be having an injection of lucentis this week, can't say am looking forward to it but if it means i get vision back am up for it - is it common for people my age to get cystoid macular oedema from CRVO? from your experience of course
stemccla82 1 year ago
@stemccla82 It is common for anyone (young or old) with CRVO to develop macular edema. But it is not common for someone in their 20's to have a CRVO. Over the past eight or so years a few people in their twenties have come the the CRVO support bulliten board (groups.google.com/group/crvo-support/topics - please join us if you would like) and made comments but not that many. I really hope the lucentis works well and brings down the macular edema. Hang in there, Ken
crvomy 1 year ago
@stemccla82 It is common for anyone (young or old) with CRVO to develop macular edema. But it is not common for someone in their 20's to have a CRVO. Over the past eight or so years a few people in their twenties have come the the CRVO support bulliten board (please join us if you would like - the link is in the description of the video) and made comments but not that many. I really hope the lucentis works well and brings down the macular edema. Hang in there, Ken
crvomy 1 year ago
i have had cystoid macular oedema for nearly two months now - my opthamologist is giving me lucentis injection like this next thurs and i can say i am not looking forward to it but you got to do what it take to get vision back esp as am only 28. Do you know anyone else who has had CME from CVI around my age?
stemccla82 1 year ago
i get something similar to this done often. i get a shot of kenalog for iritus(not sure on the spelling im only 16 lol) but basically is imflamation similar to arthritus in the eye
dwheeler26 1 year ago
Thanks Ken I understand your position, I do remember she said she wanted to wait and see if the eye improved it just gets so hard to live like this. /But with your help I did find a better Dr. Many thanks again Ken keep up with your good work you have helped me a lot. Sincerely, Susan
JerryJSKAY 1 year ago
Hi Ken I hope this finds you well. a question, I am still having this done with a different Dr.and location. I have one question for you after three injections the Dr Wants to wait over a month is this common? I do not see what we are waiting for as I still cannot drive Thanks again Ken, Susan
JerryJSKAY 1 year ago
@JerryJSKAY Unfortunately I am not a doctor so I really could not tell you even if I knew more about your situation. About the best thing I can tell you to do is to talk to your doctor again and ask him/her straight up. And if they won't explain why, maybe you should find a doctor with whom you can communicate more easily. Hang in there, Ken
crvomy 1 year ago
Hi Ken I have watched his video many times but have a question. Is this painful? I am having this done this Wednesday the 6th of Oct. and I am very worried about the pain of a needle in my eye, please inform. You have done a great job explaining the procedure. Many thanks, Susan
JerryJSKAY 1 year ago
@JerryJSKAY Hi Susan - My personal experience was that the thought of having the injection was worse than the actual pain of the injection. I did a survey of people with the same eye condition that I have and got 165 responses and about 75% stated that they had minimal to no pain. Hope this helps. If you would like more information on the survey watch my video entitled: Intravitreal Injection Survey Results. Hang in there, Ken
crvomy 1 year ago
@crvomy Hi Ken, thanks so much for I am due for another injection this Wed in Seattle the first one was a nightmare!! So I'm doing as much reserach before then. What did they use on your eye? Here they put a bit of Lidocaine in the corner of the eye. The pain was...terrible!! I will watch your other video/survey today. I am having a hard time seeing on this page sorry Ken. Many thanks for your responce,Susan
JerryJSKAY 1 year ago
@JerryJSKAY Honestly, I don't recall. It's been more than five years ago. I do recall that I took a dose of tylenol an hour before the injection to help with the irritation but you should call and ask your own physician if that would be ok to do before you do anything like that. I'm sorry to hear that you had a difficult experience during the first injection. I hope the next one is a better. Hang in there, Ken
crvomy 1 year ago
Dear Ken, very well done, this presentation is excellent both for patients and physicians in training
1297jrv 2 years ago