Everybody Hurts when they have M.E.

[44MandyH]

Wow this vid had me in tears.

I will hold on!!!

[chronicallyfatigued]

Brilliant video!

I am a young sufferer of this awful condition, and have a channel of awareness videos which i would be overjoyed if you would check out! Well done again! x

[Hans021220]

What does it mean when this tape says:"has been given on official cause of death"? My son has been suffering from ME for years,but I did not know you can die from it...

[Sophieepie]

Hello my name is sophiee i got diagnosed with M.E last year i lost all of my friends due to my illness i have home tuition two days a week they are teaching me how to cope with it as the doctors say i will probally have it for the rest of my life if anyone would like to chat please email me on youtube thanks xxx HUGGLES have hope :)

[rowena137]

@Sophieepie you lost all your friends? how? i was diagnosed not long ago, and i find that talking with my friends can help more than talking to my counseler, my doctors, or sometimes my own family, i dont know how i would cope without them. xxxx

[iluvlaughinghard]

this made me tear up as a fellow sufferer i understand i dont think people can understand fully unless they know someone with it (and then it still takes a mature kind of thinking; and a compassionate person.) or if they have it . i have had it for nearly eight years and counting, im not even 21. it stole my teenage experience and isolated me im never getting those years back. a cure needs to be found. peace be with you fellow sufferers, family and friends xxx i hope peolpe get better much love

[angelahallinan]

i know exactly how you feel. You never know how you are going to feel physically minute to minute hour to hour. I have been sick with this since january and it feels endless but, we can not give up hope. All we can do is spread the message so the center of disease control will help us more to find treatments that help or even a cure. if anyone has had any improvements with a doctor please post!

[sibenno1]

please sign the petition justice for cfs/me on google to help our course thanks

[pinkroxysouthmead]

this was a lovely vid i suffer with m.e and i feel like letting go all the time i have no help no body understands i dnt take any medication i feel so alone its hard 2 hold on when ur in so much pain im only 24 i didnt ask for this life it gets frustrating and im sad all the tym :(

[Weallmustlivetodie]

I have CFS, i can so relate to this, its like everyhting in your life has been sped up but you just carn't catch it. People just don't understand. I'v only got it mildly but thats enough, it makes life so difficult.....

Thankyou for this, i to need a cure. We all just need to hold on.

[grettagrids]

LUPUS and CFS and NO CURE for either:( I am ready to go anytime as I tell god. PLZ PLZ GOD help them cure all us sufferers!!

[mezoe1]

Its wierd because when i clicked on this i thought it was to do with "me" as in the person. Its also wierd cause my mum has m.e and she sleeps alot and she gets tired easily :( i want them to find a cure because i want my old mum back. I like your video :) xx

[gillbatty]

Bless you for making this. Im waiting for a cure, ive got this mild, but believe me thats bad enough. Im always so scared it will get worse.

[crash1094]

Oh my. That was very powerful. I have had testing - I know I have the 37kDa Rnase-L defect, low nK function, HHV-6, EBV, CMV, abnormal SPECT scan - FDA took the only drug that helped me away in February, and I am collapsing back into the disease. I am terrified. Hold on.

[antares4141]

I believe cfs is caused by mold exposure so I call it "mold related illness". Problem is it's so difficult to avoid mold few get to see the amazing amount of relief that can come from it. It takes drastic measures. I have a hepa filter in my car and sleep in it at night. I built a truck camper out of non wood products, I moved out west. I am still struggling but I know the truth. I just have to convince others they can get better though mold avoidance. It's not easy but it works! Avoid quacks!

[theonlyfluffyone]

it made me cry, wow

[fogggygyrl]

This video is fantastic! This is the kind of message we need to get across. I thought it was clever of you to blot out your face. You could be anyone and I think that's the point.

[love2love1981]

thank you

[Zarynity]

Thank you for holding on to make this wonderful video. Blessed Be.

[ringokurdt]

omg WOW ive been working on recovering.. And forgetting about other people with ME.. I think I get benefits cause My doctor doesnt regard me as ME but I fit all the symptoms .. Hmm... Because CFS is used as a blanket diagnoses which incorperates lots of other less serious illnesses Doctors palm it off. Who's insurance companies?? Intellectial ignorance?? government liiability?? Law suits??? That whole aids, and MS skeptisism is news to me. Be interesting to go through the history of those.

[ivortick]

A very powerful video, thank you so much!!

[backawayfrmthedonkey]

What a powerfull video, amazing....and a perfect song choice. Thank you for sharing this with us, I am also an M.E suffer and am currently severely effected.

Thank you....this was very touching, its nice to know your not alone.

Take care Rx

[angelsolace]

Thank you for this powerful video.

Its good to know I'm not alone.

Amy x

[Antoinette61]

Brill love the music i put my 14yr old son David there sad isn't it. we need more people to come forward.

I'm Fundraising for MER UK

[taniaaust1]

What a powerful video. This brought tears to my eyes.  Thank you.

[beitinjan]

Excellent video, thanks. Slowly, slowly, slowly.. I think things are changing and it because of the work of people like you that make a difference. Thanks.

[mercy3000]

The power of music to reach the heart. Well done!

[devongirlme]

Brilliant, such a powerful presentation.

Thank you.

[gregcrowhurst]

Wow, this is another excellent, hard-hitting video. It is really important to raise awareness of ME Research UK and the need to fund research. I just haven't got the words to say how good your video's are !!

Greg

[Nettyuk]

This made me cry.

I could put my face in so many of those photos.

The thoughts are what I think many times a week.

its hard for other people to know what living with ME is like - I would not wish it on anyone.

[paula2048]

I really liked this video and the track is one of my favourites. You got a lot of information across and its really important to state that there are people out there trying to help.

[dexhaven]

Thanks for the comment, I do agree with your sentiment. The aim of the presentation was to visually represent what you are saying. Lost identity is just one problem faced by PWME

[neelubird]

You should show your face. ME patients are treated as faceless numbers enough as it is.