I have MS and believe in God. I thank God for MS. If I didn't get it I would be dead by now. I also had no ability to look at the world and really appreciate it for what it is before MS. I have done more good for people since I have gotten MS than I ever did before it. The one thing I noticed was a very selfish friend of mine thanked God for me and my MS because he had to change into a good person. A lot of good came from my MS as it happens with other horrid diseases. Praise God!!
I agree with you Chris! Thank God for people like yourself, who are going through such a debilitating disease and perceive it as a blessing. I happen to be one myself, not with MS, but with a genetic disorder that causes excessive tumor growths on the inside of the body. Some of the tumors turn into cancer. Having these types of health issues should not be looked upon negatively, but positively. Good can come from bad. It depends on how you look at it. God Bless You, Chris!
@screamincheetaaah hell yeah , my moms uncle died of cancer but the good part is that his body now feeds worms in his coffin :) positively happy YAY !
God is a good God and heals lots of people. I have been prayed over and had my hip pop back into place. I have felt God and know he is real and alive. The devil is who is to blame for the diseases and sickness of this world. "The devil comes to kill, steal, and destroy." -John 10:10 But in Christ we have ALL authority over the enemy.
@715alex715 Your comments are an insult to those suffering from this inevitably fatal GENETIC disease. Their health can't just *pop* back into place like your hip. If you were born with it, I doubt you would be saying things that make you seem like a pious, judgemental, ignorant d*uchebag. Bad things happen to good people all of the time, and vice versa. Kids die of diabetes while parents pray for their recovery instead of taking them to the hospital...wake up.
@lcozzarelli Faith and hope keeps people going in the worst scenarios, you obviously can't comprehend. Yes , ofcourse awful diseases exsist, and always will, so will hunger, abuse of others, and hatred. its easy to blame a "God" but people have just as much right to believe that a God will help them through Hundred and thousands only have faith to help them through their hard time, so its so not your place to judge anyone, or call anyone ignorent/judgemental, when their opinion is just as valid
@leme20111 I understand and appreciate that faith helps people through horrible times in life, but when people substitute prayer for actual medical care is where I take issue. And the insinuation that in this case a good round or two of prayer would have cured them I feel is an insult to all we know about this disease. If only it were that simple...
@lcozzarelli youre right i have diabetes and i have seen a lot of cases of children dying because of that i do believe in God but people should look a solution by themselves also just like you say
HAHAHAHAHAHAHAHAH YOUR BRAIN DIED OF CANCER OR WHAT NOT AHAHAHAHAHAHAH YOU GOT PWNED TAKE YORU WHITE ASS HOME OH NOW AIT YOU CANT ITS DEAD AHAHAHAHAHAHAHAH
@squirtleenblastoise what would be the purpose of this life/world if everything was perfect....who said we're in the garden of eden? It's a test, this life is like dipping your finger in the ocean and the amount of water left on your finger compared to the ocean, the hereafter.
@crackhead187 i just find it fucked up that some people get these horrible diseases. some things are just too cruel. makes you wonder if there is a god. so yes my argument is pretty solid...
@squirtleenblastoise yes, i agree, it is hard to comprehend, a lot of really bad things happen to people in this world, its shocking and sad, we should be grateful for what we have, and fair enough, your well entitled to your view, i just thought i would try and answer with mine, all the best.
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
Let's just hope there is a cure for this.People do not deserve to live like this while others live until old age and die in their bed.It is just not fair,HD turns a good looking person into a sick weak person who cannot control their movements.My family doesent have this dreadful disease but i do really feel sorry for those who have.It must be horrible knowing you have a limited life.I wish the best of luck for all of you people...
@CuteChick0123 she was, this is how sick our children get before they die. I lost 2 small children to this & Drs didn't even know children could get it!!
@mrisosika why dont we fuck you, you fucking stupid finnish asshole? the russians raped your grandma, and thats how you were born, right? you stupid fuck..i'm just trying to be sympathetic to this girl in the video and there are just some dumbfuck finnish like you ruining it. we all hope your DAUGHTER get Huntington's disease..how does it feel now you little piece of retard shit? I hope the russians rape you guys again..
one step away from a snuff film, you guys should be proud. seriously dont even bother explaining the disease or what we can do to help or prevent it just show pictures of the recently deceased that will surely help.
@chabi3000 not everybody who has children know it's in the family as it is hidden in the family.When an adult takes ill it's too late, their kids have already had kids. Thats why videos like this are there to educate people.
This is rude im fifteen years old and I just discoverd that I have hunningtons disease and I watched my biological mom die from it .You should show this because there is people out there like me that are going to fight it. you dont want to discourage them and make them admit to defeat.
The patient is a social parasite, having reached a certain state, it is inappropriate to live a long time, the stubbornness to vegetate cowardly, slave doctors and medical practices,
after we lost the meaning of life right to life, society should despise,
Physicians are responsible beings intermediaries contempt, they will bring more order, but each day their patient another dose of disgust
you need to stop attacking all these people with your hatred the only parasite is you hurting others with these attacks.as you did to me and my son who died of hd.
The one main way to stop the spread of this disease to to have yourself checked for it if you have a relative with it. Unfortunately there is no cure, but that doesn't mean a your child should suffer from it when they grow older.
come on @Tiaxthemighty ! Any disease is horrible and we happen to be in a world which is not perfect... If it is so easy to believe in a beligerant and distant God, why is it so hard to believe that God really IS good and benevolent?
leo is a specialist at iu in bloomington he says you dont die from huntingtons you die with huntingtons......i work in a nursing home where there are 18 our youngest is 31 i get beat up or hit almost everyday....it is a horrible disease....but at our nursing home we try to meet their every need and answer their every wish.....we treat them very well for their final days........
HDs a horrid thing to have to go through when your a kid and you get jhd it hurts every muscle in your body and causes pain in every day life for up to 10 years, can you imagine not being able to talk or move for large amounts of time doesnt sound fun does it, and it only gets worse, me, my little sister, my dad, and my older sister are all sick with jhd/hd its an extremely painful disease
I have HD and I' m only 30 years old. My mom has HD and she is in the last stage. I lost my father 3 years ago from cancer. Yes lige is a bitch but i have to be honest. If I had to choose between cancer and HD I would choose HD. I can't stand thinking that I would live for 3 or 4 years in terrible pain, chemotherapy, etc.
HD is isnt bad..what are you talking about? comon 1080P and a blue ray player is all you need, i dont why your comparing cancer with HD..?? they have nothing in comon silly, If you enjoy watching TV in normal thats messed,so dont be ashamed to have HD!!
we need to make more awareness about this i live in irl and not allot of people understand what it is the more people that know the more people will try to do a cure is around the corner hold on and be strong xx
this killed my grandmother is killing most of my aunts and uncles and we don't know if my dad has it it is causing so much stress on our family we have to take care of everybody it's one of the most awful things
yo comprendo esta enfermedad!! y hasta hoy en dia no hay ninguna cura.. mi abuela y mi madre murieron a causa de chorea de huntington.. y es muy hereditaria.. me refiero a que de cada diez pacientes 9 que tienen hijos minimo unos de los hijos hereda la enfermedad..!! es algo traumatico! un dia ser una persona normal y despues no poder hacer nada es horrible. saludos
i like the way you say in your description "please find a cure for huntingtons disease" you idiot, there will never be any cure, its a passed on disease, 50/50% chance of passing it on to your child if you have it or it runs in the family.
If we continue research there may be a cure and then we can save all these people from the pain and suffering of the disease even in inherited they can be cured
I don't believe he likes to see us suffer but I do believe that this journey makes us stronger and that he does everything out of the best interest of us even if only for a short time
Everyone will die, the difference is how you die. You can die in your sleep or have this disease for 15 years and suffer every single day knowing you won't be able to see you're daughter get married, or hold you're grandchild, or teach your daughter to play softball,. There are so many things you can't do because of this disease. Sure everyone's going to die but people with out a disease aren't robbed of their lives.
it doesn't matter how u die!! the issue is not because they have Huntington but the fact that Huntington causes a person to die...just like aids, dengue, malaria, cancer or even by accident & by simply sleeping.....even those pipol who have diff. diseases can't do those activities u mentioned...atleast w/ Huntington their families still have time to show their love for them even in the end they will die still but unlike pipol who died fr. accident...
what do you mean ur not robbed of ur lives obviously you are if u have a neurological disease that's effecting your movements speech co-ordination it robs every part of ur life aswel as your families dnt u dare try to speak on behalf of people, dying in your sleep is a dream for people with this
i am sorry that is not for you it's for tiaxthemighty...
nway yeah. who doesn't want this people to be cured?? ofcourse, every1 wants that for them....
but i hope no one thinks that it's God who created these diseases..He created human not to suffer but on contrary experience all good things yet we are immortal and all gonna die physically but our soul and spirit are far more important....also we all experienced the pain of losing some1 or will atleast experience it in the future....
oh wait that's so harsh that you blame God for it...
when in fact if people are healthy and strong they can't even remember Him...God is God and no matter what He allows to happen to us then it will happen but even if you die having this disease or not...every1 is subjected to die!! STILL....
So rude to talk about the one who created you and everything else like this..!!
We are all his creatures, and no matter whether we are able to understand it or not, there is an a kinda wisdom in everything he makes, like thanking him for you being not like those who suffer from this terrible disease.!!
@Tiaxthemighty God is a good God and heals lots of people. I have been prayed over and had my hip pop back into place. I have felt God and know he is real and alive. The devil is who is to blame for the diseases and sickness of this world. "The devil comes to kill, steal, and destroy." -John 10:10 But in Christ we have ALL authority over the enemy.
@Tiaxthemighty Do u know its Autosomal Dominant...?? i.e. If a guy with Huntington's disease fathers 4 kids, there is a genetic probabililty of 50% transmission down the line among his progeny, therefore 2 of his kids usually do get affected, but even then all 4 of his kids can have the disease...?? Why are you displacing your anger towards God then...?? It is sad... Think about what can be done, instead of just cribbing around and making "smart" but useless comments...
And awesome humans give us wars, death and destruction, what amazing
specie.
The only guilty here are us, if you think that God will give us all, you are wrong, you must make an effort to live, we have taken decisions that make the world to be as we wish, God created the world, and we are going to make it pieces, no offense to you way of thinking.
@Tiaxthemighty I have lost my faith to God too and mostly the will to go on, watching members of my family being treated like lunatics in mental institutions and slowly dying from this horrible disease...all skin and bones. I feel guilty for being healthy and sometimes even guiltier for being able to function like a normal person....my deepest condolences to all affected by HD...
@tasmar555 you cannot be blamed for that is easy to lose faith after watching so much BS in this fucking world, innocent people getting killed, raped, having diseases such as this i do have a disease but its not like this and it breaks my heart to watch videos like this couse i can understand the suffering of their relatives and beloved ones ...
@Tiaxthemighty Dont blame God, Life perspective to Him is not the same as yours. You seek a good pleasure filled life.God knows whats good and beyond human understanding, so dont get God to your base level. We are nothing, and dont get bitter about it, if you think God enjoys it, did you forget what he suffered, without reason, and also dont think you have a better life than these people.
@pra6hakar funny, according to you? and who are you?and what do you understand?explain why suffering exists then, if im satisfied ill go and see videos on delusion.
@lloydsimoesable Sir, suffering exists because it is REALITY . We formulate theories about nature of world by observations . So formulations which are consistent with our observations are more useful compared to theories based on thin air .. I can create any fictional story to comfort my psyche but i need to draw a line if it starts interfering with my perception of reality ..
@lloydsimoesable it is very disturbing to see such things which hit direct on our empathy wiring so to escape from anxiety we generally rationalize or fantasize .. what we choose and what will effect the world we presently live in more positive manner , makes all the difference !
I had a high school science teacher who committed suicide shortly after he was diagnosed with Huntingtons Disease. He was a brilliant man, what a loss!
To all families with Huntington's disease my heart goes out to you. This morning is the first I have ever seen anything of this debilatating disease and I know no words can really help anyone out there. I just wanted you to know that now that I am aware I will help and support any medical advancement that can help cure future generations.
I have been researching Huntington's Disease for about a month now,and my heart goes out to all the people suffering everyday with HD. I 'm running the Rock N Roll marathon to help fight HD. Please check out my website and lets find a cure together.
The disease itself isn't fatal. About a third of them die from pneumonia, then there's heart failure, choking, malnutrition, basically a lot of shit associated with not being able to move. There's also an increased suicide rate.
You sound like you just read Wikipedia! But yes, you're completely right. After the deterioration starts, a lot of people think the person with HD are no longer the people they used to be. The truly sad things is, they are the same people trapped in a body that is slowing losing control.
Yes and no. Although we don't know how alert and oriented a person with dementia really is, clinical manifestations show that they are not there; hence demented. HD is a dementia causing disease, so the person has devastating deterioration in mental functions and abilities. So basically they're not really all there, not the healthy mind trapped in a failing body. That's ALS (lou gehrics disease). Crazy people are don't know that they're crazy, or going crazy.
yeah true, although if you survive long enough the disease will eventually break down your bodies natural ability to breath and pump blood. Although im not disagreing with you, the disease itself is in fact fatal.
i enjoyed this vid
clairebehun 2 hours ago
Awwww, so sad and they act look so innocent and cute and sweet.
classysassy3 1 day ago
The video was very nice, eerie correctly:)
Solarblume94 1 week ago
This is a great video
MrJonkelp 1 week ago
@MrJonkelp thank you.
EvAnEsNcELuVr 1 week ago
PRAYER IS THE ANSWERE!!!
ekpp60 2 weeks ago
r.i.p. heather
sweetgyy 2 weeks ago
huntingtons disease runs in my family... my dad has it and can barely speak or move
FatBabiesWithAids 1 month ago
@FatBabiesWithAids if i had HD i wouldnt MAKE KIDS i would adopt :) sorry to hear what you said :(
Cobac 1 month ago
poor people... I hope you are in peace right now...
majmunko23 1 month ago
i thought that bitch in the thumbnail looked dead that shit is fucked up
IFknHateUTube 3 months ago
If those kids were from a foreign country they'd just laugh, or actually want them to die. Fucking racists.. poor kids, RIP :(
peterinfamilyguy 3 months ago
I have MS and believe in God. I thank God for MS. If I didn't get it I would be dead by now. I also had no ability to look at the world and really appreciate it for what it is before MS. I have done more good for people since I have gotten MS than I ever did before it. The one thing I noticed was a very selfish friend of mine thanked God for me and my MS because he had to change into a good person. A lot of good came from my MS as it happens with other horrid diseases. Praise God!!
ChrisHadMS 4 months ago
I agree with you Chris! Thank God for people like yourself, who are going through such a debilitating disease and perceive it as a blessing. I happen to be one myself, not with MS, but with a genetic disorder that causes excessive tumor growths on the inside of the body. Some of the tumors turn into cancer. Having these types of health issues should not be looked upon negatively, but positively. Good can come from bad. It depends on how you look at it. God Bless You, Chris!
screamincheetaaah 4 months ago
@screamincheetaaah hell yeah , my moms uncle died of cancer but the good part is that his body now feeds worms in his coffin :) positively happy YAY !
Cobac 1 month ago
There is a community of people who race lawn mowers who are doing their part to raise money for a cure. I am working on a documentary about them.
BurningtunaDC 6 months ago
I have HD!
vamplykin666 8 months ago
God is a good God and heals lots of people. I have been prayed over and had my hip pop back into place. I have felt God and know he is real and alive. The devil is who is to blame for the diseases and sickness of this world. "The devil comes to kill, steal, and destroy." -John 10:10 But in Christ we have ALL authority over the enemy.
715alex715 9 months ago
@715alex715 Your comments are an insult to those suffering from this inevitably fatal GENETIC disease. Their health can't just *pop* back into place like your hip. If you were born with it, I doubt you would be saying things that make you seem like a pious, judgemental, ignorant d*uchebag. Bad things happen to good people all of the time, and vice versa. Kids die of diabetes while parents pray for their recovery instead of taking them to the hospital...wake up.
lcozzarelli 9 months ago
@lcozzarelli Faith and hope keeps people going in the worst scenarios, you obviously can't comprehend. Yes , ofcourse awful diseases exsist, and always will, so will hunger, abuse of others, and hatred. its easy to blame a "God" but people have just as much right to believe that a God will help them through Hundred and thousands only have faith to help them through their hard time, so its so not your place to judge anyone, or call anyone ignorent/judgemental, when their opinion is just as valid
leme20111 8 months ago
@leme20111 I understand and appreciate that faith helps people through horrible times in life, but when people substitute prayer for actual medical care is where I take issue. And the insinuation that in this case a good round or two of prayer would have cured them I feel is an insult to all we know about this disease. If only it were that simple...
lcozzarelli 8 months ago
@lcozzarelli youre right i have diabetes and i have seen a lot of cases of children dying because of that i do believe in God but people should look a solution by themselves also just like you say
TheJck2116 6 months ago
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HAHAHAHAHAHAHAHAH YOUR BRAIN DIED OF CANCER OR WHAT NOT AHAHAHAHAHAHAH YOU GOT PWNED TAKE YORU WHITE ASS HOME OH NOW AIT YOU CANT ITS DEAD AHAHAHAHAHAHAHAH
Trollz0Be0Trollin 10 months ago
How old was Heather Stice in these photographs?
Carefree0101 10 months ago
Hey, does anyone know about the first symptoms of this disease? I've been getting the same kind of movements on my feet and toes on my left leg...
0nethatisQUEER 11 months ago
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this proves that god doesnt exist.
squirtleenblastoise 1 year ago 6
@squirtleenblastoise
Or that he doesn't care, or that they deserved it or whatever.
tybash 1 year ago
@squirtleenblastoise thats rediculous
cjones582 10 months ago
@squirtleenblastoise what would be the purpose of this life/world if everything was perfect....who said we're in the garden of eden? It's a test, this life is like dipping your finger in the ocean and the amount of water left on your finger compared to the ocean, the hereafter.
crackhead187 9 months ago
@crackhead187 i just find it fucked up that some people get these horrible diseases. some things are just too cruel. makes you wonder if there is a god. so yes my argument is pretty solid...
squirtleenblastoise 9 months ago
@squirtleenblastoise yes, i agree, it is hard to comprehend, a lot of really bad things happen to people in this world, its shocking and sad, we should be grateful for what we have, and fair enough, your well entitled to your view, i just thought i would try and answer with mine, all the best.
crackhead187 9 months ago
@crackhead187 thank you. you too. i do understand your point, life is about 'tests'. every roadblock has to be conquered to fully succeed in life.
squirtleenblastoise 9 months ago
@squirtleenblastoise
shut the fuck up. i hope u die of cancer the most painful way
pimpmaster007 3 months ago
So unfair!
BCAD01 1 year ago
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In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
swhitt21 1 year ago
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Rinsedpie you piece of shit I'll come down to your house and rape your family for being a big FUCKING ass and saying those things
TheBadbowman 1 year ago
Let's just hope there is a cure for this.People do not deserve to live like this while others live until old age and die in their bed.It is just not fair,HD turns a good looking person into a sick weak person who cannot control their movements.My family doesent have this dreadful disease but i do really feel sorry for those who have.It must be horrible knowing you have a limited life.I wish the best of luck for all of you people...
Lvieru96 1 year ago
wait...is she still alive at 0:22
CuteChick0123 1 year ago
@CuteChick0123 she was, this is how sick our children get before they die. I lost 2 small children to this & Drs didn't even know children could get it!!
time4sleeping 1 year ago
wish they were still alive so that i could tell em how beautiful they all are..
rinsedpie 1 year ago
@rinsedpie Please just fuck you...
mrisosika 1 year ago
@mrisosika why dont we fuck you, you fucking stupid finnish asshole? the russians raped your grandma, and thats how you were born, right? you stupid fuck..i'm just trying to be sympathetic to this girl in the video and there are just some dumbfuck finnish like you ruining it. we all hope your DAUGHTER get Huntington's disease..how does it feel now you little piece of retard shit? I hope the russians rape you guys again..
rinsedpie 1 year ago
@rinsedpie You are as low as he is because you are writing retarded, sick shit like this.
GinGeri84 1 year ago
@mrisosika we hope YOUR DAUGHTER get Huntington's disease you dumbfuck
rinsedpie 1 year ago
@mrisosika we hope YOUR DAUGHTER gets Huntington's..your finnish shit
rinsedpie 1 year ago
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@rinsedpie they are not beautiful.. dont you see?
kebabmaxdu 1 year ago
one step away from a snuff film, you guys should be proud. seriously dont even bother explaining the disease or what we can do to help or prevent it just show pictures of the recently deceased that will surely help.
Cptheadstomp420 1 year ago
EVERYBODY WITH THIS DISEASE ! STOP MAKING CHILDREN ! So this sad tragedy wont happen again !
chabi3000 1 year ago
Comment removed
united768 1 year ago
@chabi3000 not everybody who has children know it's in the family as it is hidden in the family.When an adult takes ill it's too late, their kids have already had kids. Thats why videos like this are there to educate people.
time4sleeping 1 year ago
This is rude im fifteen years old and I just discoverd that I have hunningtons disease and I watched my biological mom die from it .You should show this because there is people out there like me that are going to fight it. you dont want to discourage them and make them admit to defeat.
scope465 1 year ago
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The patient is a social parasite, having reached a certain state, it is inappropriate to live a long time, the stubbornness to vegetate cowardly, slave doctors and medical practices,
after we lost the meaning of life right to life, society should despise,
Physicians are responsible beings intermediaries contempt, they will bring more order, but each day their patient another dose of disgust
welwitcha2000 1 year ago
@welwitcha2000 your a sick person.
you need to stop attacking all these people with your hatred the only parasite is you hurting others with these attacks.as you did to me and my son who died of hd.
Nonya63 1 year ago 7
The one main way to stop the spread of this disease to to have yourself checked for it if you have a relative with it. Unfortunately there is no cure, but that doesn't mean a your child should suffer from it when they grow older.
hnksnw 1 year ago
come on @Tiaxthemighty ! Any disease is horrible and we happen to be in a world which is not perfect... If it is so easy to believe in a beligerant and distant God, why is it so hard to believe that God really IS good and benevolent?
Wevitox87 1 year ago
leo is a specialist at iu in bloomington he says you dont die from huntingtons you die with huntingtons......i work in a nursing home where there are 18 our youngest is 31 i get beat up or hit almost everyday....it is a horrible disease....but at our nursing home we try to meet their every need and answer their every wish.....we treat them very well for their final days........
TheTaylorenee19 1 year ago
RIP.
Jordunnn 1 year ago
degenerative diseases are horrible things
danthemanzizzle 1 year ago 2
What the shit was the point of that shit
iemsquare123 1 year ago
"These are people who peacefully rest in peace..."
Brought to you by the Department of Redundancy Department.
fjohnson747 2 years ago
HDs a horrid thing to have to go through when your a kid and you get jhd it hurts every muscle in your body and causes pain in every day life for up to 10 years, can you imagine not being able to talk or move for large amounts of time doesnt sound fun does it, and it only gets worse, me, my little sister, my dad, and my older sister are all sick with jhd/hd its an extremely painful disease
sabraelluver 2 years ago
I have HD and I' m only 30 years old. My mom has HD and she is in the last stage. I lost my father 3 years ago from cancer. Yes lige is a bitch but i have to be honest. If I had to choose between cancer and HD I would choose HD. I can't stand thinking that I would live for 3 or 4 years in terrible pain, chemotherapy, etc.
zfot66 2 years ago 11
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HD is isnt bad..what are you talking about? comon 1080P and a blue ray player is all you need, i dont why your comparing cancer with HD..?? they have nothing in comon silly, If you enjoy watching TV in normal thats messed,so dont be ashamed to have HD!!
TheEchechech 2 years ago
we need to make more awareness about this i live in irl and not allot of people understand what it is the more people that know the more people will try to do a cure is around the corner hold on and be strong xx
xxkarmaxx1 2 years ago
this disease sucks i might have it and all my dads side of the family have it
Hoops355 2 years ago
this killed my grandmother is killing most of my aunts and uncles and we don't know if my dad has it it is causing so much stress on our family we have to take care of everybody it's one of the most awful things
TheQueenRat 2 years ago
yo comprendo esta enfermedad!! y hasta hoy en dia no hay ninguna cura.. mi abuela y mi madre murieron a causa de chorea de huntington.. y es muy hereditaria.. me refiero a que de cada diez pacientes 9 que tienen hijos minimo unos de los hijos hereda la enfermedad..!! es algo traumatico! un dia ser una persona normal y despues no poder hacer nada es horrible. saludos
Satriani9130 2 years ago
i wish there was justice.
chadinterrupted 2 years ago
i like the way you say in your description "please find a cure for huntingtons disease" you idiot, there will never be any cure, its a passed on disease, 50/50% chance of passing it on to your child if you have it or it runs in the family.
corrosivegamer 2 years ago
If we continue research there may be a cure and then we can save all these people from the pain and suffering of the disease even in inherited they can be cured
sabraelluver 2 years ago
There could be a treatment
And stop being such a dick, okay, don't stamp out all hope that anyone might have for a "cure" or anything else.
circoheeve 2 years ago
@corrosivegamer It could be cured... they just need to figure out how to change your genes. It'd be some real Gattaca shit all up in there.
quicksilvertaint 1 year ago 2
@quicksilvertaint I'm sure a gaming wastrel like you will be the one to cure it!
MrGrevy 11 months ago
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wow idc
damanda1212 2 years ago
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It is God's will.
juslookin3 2 years ago
Sure. An omnipotent and omnibenevolent God who just happens to enjoy giving people crippling, fatal neurodegenerative diseases. What a guy.
Tiaxthemighty 2 years ago 60
I don't believe he likes to see us suffer but I do believe that this journey makes us stronger and that he does everything out of the best interest of us even if only for a short time
sabraelluver 2 years ago
with or without huntington's disease you will still die...well atleast all of us....
lasthalfhour 2 years ago
Everyone will die, the difference is how you die. You can die in your sleep or have this disease for 15 years and suffer every single day knowing you won't be able to see you're daughter get married, or hold you're grandchild, or teach your daughter to play softball,. There are so many things you can't do because of this disease. Sure everyone's going to die but people with out a disease aren't robbed of their lives.
mickiemoomoo 2 years ago
it doesn't matter how u die!! the issue is not because they have Huntington but the fact that Huntington causes a person to die...just like aids, dengue, malaria, cancer or even by accident & by simply sleeping.....even those pipol who have diff. diseases can't do those activities u mentioned...atleast w/ Huntington their families still have time to show their love for them even in the end they will die still but unlike pipol who died fr. accident...
lasthalfhour 2 years ago
what do you mean ur not robbed of ur lives obviously you are if u have a neurological disease that's effecting your movements speech co-ordination it robs every part of ur life aswel as your families dnt u dare try to speak on behalf of people, dying in your sleep is a dream for people with this
xxkarmaxx1 2 years ago
i am sorry that is not for you it's for tiaxthemighty...
nway yeah. who doesn't want this people to be cured?? ofcourse, every1 wants that for them....
but i hope no one thinks that it's God who created these diseases..He created human not to suffer but on contrary experience all good things yet we are immortal and all gonna die physically but our soul and spirit are far more important....also we all experienced the pain of losing some1 or will atleast experience it in the future....
lasthalfhour 2 years ago
oh wait that's so harsh that you blame God for it...
when in fact if people are healthy and strong they can't even remember Him...God is God and no matter what He allows to happen to us then it will happen but even if you die having this disease or not...every1 is subjected to die!! STILL....
lasthalfhour 2 years ago
Comment removed
sabraelluver 2 years ago
So rude to talk about the one who created you and everything else like this..!!
We are all his creatures, and no matter whether we are able to understand it or not, there is an a kinda wisdom in everything he makes, like thanking him for you being not like those who suffer from this terrible disease.!!
doctorshahin 2 years ago
Everything in life is dumb, random luck. If you think otherwise, you are a fool.
Tiaxthemighty 2 years ago
@Tiaxthemighty I knew something was up when I used to pray for my dad with HD as a kid and nothing happened. Fuck religion.
ZQman666 11 months ago
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@Tiaxthemighty God is a good God and heals lots of people. I have been prayed over and had my hip pop back into place. I have felt God and know he is real and alive. The devil is who is to blame for the diseases and sickness of this world. "The devil comes to kill, steal, and destroy." -John 10:10 But in Christ we have ALL authority over the enemy.
715alex715 9 months ago
@Tiaxthemighty and darwins theory is so great that it let it happen, amazing stuff
jubealee 7 months ago
@Tiaxthemighty you're stupid! things happen...but don't insult god!
CashSmeller 7 months ago
@Tiaxthemighty Do u know its Autosomal Dominant...?? i.e. If a guy with Huntington's disease fathers 4 kids, there is a genetic probabililty of 50% transmission down the line among his progeny, therefore 2 of his kids usually do get affected, but even then all 4 of his kids can have the disease...?? Why are you displacing your anger towards God then...?? It is sad... Think about what can be done, instead of just cribbing around and making "smart" but useless comments...
saracentiano 7 months ago
@Tiaxthemighty
And awesome humans give us wars, death and destruction, what amazing
specie.
The only guilty here are us, if you think that God will give us all, you are wrong, you must make an effort to live, we have taken decisions that make the world to be as we wish, God created the world, and we are going to make it pieces, no offense to you way of thinking.
Wolfowarrior 7 months ago
@Tiaxthemighty I have lost my faith to God too and mostly the will to go on, watching members of my family being treated like lunatics in mental institutions and slowly dying from this horrible disease...all skin and bones. I feel guilty for being healthy and sometimes even guiltier for being able to function like a normal person....my deepest condolences to all affected by HD...
tasmar555 7 months ago
@tasmar555 you cannot be blamed for that is easy to lose faith after watching so much BS in this fucking world, innocent people getting killed, raped, having diseases such as this i do have a disease but its not like this and it breaks my heart to watch videos like this couse i can understand the suffering of their relatives and beloved ones ...
TheJck2116 6 months ago
@Tiaxthemighty Dont blame God, Life perspective to Him is not the same as yours. You seek a good pleasure filled life.God knows whats good and beyond human understanding, so dont get God to your base level. We are nothing, and dont get bitter about it, if you think God enjoys it, did you forget what he suffered, without reason, and also dont think you have a better life than these people.
lloydsimoesable 5 months ago
@lloydsimoesable funniest answer ever .. you should go and watch videos on delusion ..
pra6hakar 5 months ago
@pra6hakar funny, according to you? and who are you?and what do you understand?explain why suffering exists then, if im satisfied ill go and see videos on delusion.
lloydsimoesable 5 months ago
@lloydsimoesable Sir, suffering exists because it is REALITY . We formulate theories about nature of world by observations . So formulations which are consistent with our observations are more useful compared to theories based on thin air .. I can create any fictional story to comfort my psyche but i need to draw a line if it starts interfering with my perception of reality ..
pra6hakar 5 months ago
@lloydsimoesable it is very disturbing to see such things which hit direct on our empathy wiring so to escape from anxiety we generally rationalize or fantasize .. what we choose and what will effect the world we presently live in more positive manner , makes all the difference !
pra6hakar 5 months ago
@pra6hakar ok thats a better outlook.
lloydsimoesable 5 months ago
Thats such bullshit. How the fuck could you watch something like this and still believe in a fairy tale like monotheism?
1933SteelersFan 2 years ago 10
it destroys the nervous system.
Lilromimi 2 years ago
what does this disease do?
cutegirlamelia 2 years ago
I had a high school science teacher who committed suicide shortly after he was diagnosed with Huntingtons Disease. He was a brilliant man, what a loss!
351460 2 years ago 6
To all families with Huntington's disease my heart goes out to you. This morning is the first I have ever seen anything of this debilatating disease and I know no words can really help anyone out there. I just wanted you to know that now that I am aware I will help and support any medical advancement that can help cure future generations.
lolabrigada 2 years ago 7
on a lighter note, god bless those people. There are many a disease that are devastating, and this one ranks up there among the worst of em.
logant2k4 2 years ago
I have been researching Huntington's Disease for about a month now,and my heart goes out to all the people suffering everyday with HD. I 'm running the Rock N Roll marathon to help fight HD. Please check out my website and lets find a cure together.
firstgiving . com /JoeFrisbee
JoeFrisbee1 2 years ago
The disease itself isn't fatal. About a third of them die from pneumonia, then there's heart failure, choking, malnutrition, basically a lot of shit associated with not being able to move. There's also an increased suicide rate.
jizztastic 3 years ago 3
You sound like you just read Wikipedia! But yes, you're completely right. After the deterioration starts, a lot of people think the person with HD are no longer the people they used to be. The truly sad things is, they are the same people trapped in a body that is slowing losing control.
dakfe427 3 years ago 2
Yes and no. Although we don't know how alert and oriented a person with dementia really is, clinical manifestations show that they are not there; hence demented. HD is a dementia causing disease, so the person has devastating deterioration in mental functions and abilities. So basically they're not really all there, not the healthy mind trapped in a failing body. That's ALS (lou gehrics disease). Crazy people are don't know that they're crazy, or going crazy.
logant2k4 2 years ago
yeah true, although if you survive long enough the disease will eventually break down your bodies natural ability to breath and pump blood. Although im not disagreing with you, the disease itself is in fact fatal.
mumyacount 3 years ago
If somebody doesn't mind answering, how do you pass away from huntington's disease?
I'm asking this because i actually don't know.
Thank you so much & I'm really sorry for your loss.
TVfXQs2Cassiopeia 3 years ago
Thats really sad that people have to go threw that and especially the families that have to lose their loved ones
fredlover1515 3 years ago 5
Please know your Family is in our Hearts Forever.
Love Always
Mike & Raima
madrywallmike10 3 years ago 11
im really sorry but this isn't my family but thanks for the support
EvAnEsNcELuVr 3 years ago 8
Nalts
Stsfan7 3 years ago 7
Aww... that's so sad! HD is horrid... noone should ever have to go through it.
sabraelluver 3 years ago 20