Thx for sharing this to help us all learn. In case you didn't hear, the medicine LamictalXR was approved on 1/29/10 for generalized tonic-clonic seizures in 13 year-olds on up (medicine also treats partial onset seizures). This is really good news. The Wall Street Journal and other news sources ran this... Do a Google search for this news and the details b/c YouTube will not accept a URL to share the info. Ask your doctor about the medicine and how it will help.
i used to have seziures when i was a kid but then i out grew them. My daughter started having them at 1month up til she about 7 or 8 months old. Now she is fine and is in headstart.
wow how sad that you think that way theoneballa2526 . It seems that you come from a very uneducated stand point. What makes you think a child that suffers from this is a result of the parent. No worries though cause I have one word for people like you.... KARMA !!!
This is so touching and so heartbreaking. My son starting having grand mals at age 13. I thought it was really hard for a teenager to go through this but this is just as heartbreaking. I guess it's just all bad. You are so loving and patient. You're an inspiriation and an encouragement to me. I feel a little overwhelmed sometimes. How old was she when you noticed something was wrong? What were her first symptoms and how often does she seize now?
my son too started to have grand mals fits at the age of 11 he will have this for the rest of his life. he is on toprimate 100mg morning n at night, his seizures are always on a morning with in 10mins of him getting up. he never has them at night afternnoon alway with in 10mins him getting up. i wonder why that is?
Does he have JME? That's pretty typical with JME but my son also has them in the middle of the night an every once in a "great" while in the afternoon or evening.
You can see the perfect love mommy has for her. I think that though it can't be easy, a role like that only comes to people with a special kind of strength. Jenelle is a precious one. Thank god she has a mom like that.
Does your daughter have Lennox-Gastaut?? I have 2 kids with Dravet Syndrome....similar but some of the LG meds actually make Dravet kids worse. Dravet is characterized with seizures starting bfore 1 year of age and different types of seizures that are difficult to control. Will pray for your kiddo too.God Bless.
Jenelle was actually examined by Dr. Dravet in 2004 when she was in Los Angeles for a conference. Wonderful woman! Jenelle has Lennox Gastaut, and does not have Dravet Syndrome. Dr. Dravet actually worked under Dr. Gastaut, and has observed many LGS kids in her practice.
It's hard on both you and Jenelle, I'm sure, but Epilepsy isn't something we should pity and so I admire both her strength for being so brave and yours for raising awareness.
I feel sorry for the child and mostly for his mother, who have to take care for the child and bear witness his heart breaking agony. I too have Grand Mal seizures.
Just like you are witnessing the epileptic seizure on this video, I learned the hard way from my own family and friends, it's a life time haunting trauma and agony to see your loved ones being struck with seizures. Seizures destroy families. Too bad, there's NOT much that could be done to help the patient or the family. All that "help" advertised by "caring foundations and agencies" is nothing more than empty promises and bureaucratic circus. It's heart breaking, we are on our own. Good luck.
Don't be sad. My child has Epilepsy. There is no cure for Epilepsy. Most people have never seen a seizure before, so I am sharing them to create awareness. Increased awareness about her devastating condition will make her future world a better place. Remember that, and thank you for your comment.
how is the baby doing? i've seen lots before i am a nursing student but i havent seen a baby before having one tears came to my eyes... well i wish you best of luck your moving in the right direction...
Hi, thanks for uploading this. I'm a student in pediatrics so this sort of resource is extremely valuable to me.
Just a question, does Jenelle go into an absence seizure at around 42 secs in this video, because I read somewhere that atypical absence seizures are a part of Lennox-Gastaut.
Yes, Jenelle goes into an absence seizure shortly after the "screaming" part stops. Jenelle has had maybe 10 Grand Mals in her entire life! The majority of her seizures with LGS are absence, tonic seizure (where she stiffens and turns blue), complex partial (absence with jerks) and myoclonic (head drops) with an occassional grand mal once in a blue moon. I'm glad this was helpful to you.
This has been flagged as spam show
gosh man i hope ur bby is doin better now omg i dnt knw how u can see ur bby go through that you are a strong mother
192elizabeth 9 months ago
gosh man i hope ur bby is doin better now omg i dnt knw how u can see ur bby go through that you are a stong mother
192elizabeth 9 months ago
That's so scary. ><
twilightdivamidna 1 year ago
oh my god, poor little baby :(
norra124 1 year ago
OMG,Poor baby!
Daisy72762 1 year ago
my sons seizures look like this but the are not sure what type of seizure he has and he has to be put on oxygen....good luck and stay strong
m0mmieMika 1 year ago
Thx for sharing this to help us all learn. In case you didn't hear, the medicine LamictalXR was approved on 1/29/10 for generalized tonic-clonic seizures in 13 year-olds on up (medicine also treats partial onset seizures). This is really good news. The Wall Street Journal and other news sources ran this... Do a Google search for this news and the details b/c YouTube will not accept a URL to share the info. Ask your doctor about the medicine and how it will help.
lfazzina 2 years ago
what are seziures and do they hurt?
hamzakillerboy 2 years ago
i used to have seziures when i was a kid but then i out grew them. My daughter started having them at 1month up til she about 7 or 8 months old. Now she is fine and is in headstart.
lilmelt02 2 years ago
poor baby
NyraRachelle 2 years ago
breaks my heart
sarahcobbold 2 years ago
This has been flagged as spam show
wow how sad that you think that way theoneballa2526 . It seems that you come from a very uneducated stand point. What makes you think a child that suffers from this is a result of the parent. No worries though cause I have one word for people like you.... KARMA !!!
ElleBardeau 2 years ago
it must be heart breaking to see ur own baby having a seizure in ur own arms.
hockeymaster2000 3 years ago 6
This is so touching and so heartbreaking. My son starting having grand mals at age 13. I thought it was really hard for a teenager to go through this but this is just as heartbreaking. I guess it's just all bad. You are so loving and patient. You're an inspiriation and an encouragement to me. I feel a little overwhelmed sometimes. How old was she when you noticed something was wrong? What were her first symptoms and how often does she seize now?
kennisings 3 years ago
my son too started to have grand mals fits at the age of 11 he will have this for the rest of his life. he is on toprimate 100mg morning n at night, his seizures are always on a morning with in 10mins of him getting up. he never has them at night afternnoon alway with in 10mins him getting up. i wonder why that is?
joanne7195 2 years ago
Does he have JME? That's pretty typical with JME but my son also has them in the middle of the night an every once in a "great" while in the afternoon or evening.
kennisings 2 years ago
This breaks my heart to see but looks like Jenelle's the luckiest girl to have a mother that's going to take great care of her. God bless you both!
jjconfucius81 3 years ago 2
You can see the perfect love mommy has for her. I think that though it can't be easy, a role like that only comes to people with a special kind of strength. Jenelle is a precious one. Thank god she has a mom like that.
jenlyn77 3 years ago 3
Does your daughter have Lennox-Gastaut?? I have 2 kids with Dravet Syndrome....similar but some of the LG meds actually make Dravet kids worse. Dravet is characterized with seizures starting bfore 1 year of age and different types of seizures that are difficult to control. Will pray for your kiddo too.God Bless.
dravet2mommy 3 years ago
Jenelle was actually examined by Dr. Dravet in 2004 when she was in Los Angeles for a conference. Wonderful woman! Jenelle has Lennox Gastaut, and does not have Dravet Syndrome. Dr. Dravet actually worked under Dr. Gastaut, and has observed many LGS kids in her practice.
Jenellesmommy 2 years ago
It's hard on both you and Jenelle, I'm sure, but Epilepsy isn't something we should pity and so I admire both her strength for being so brave and yours for raising awareness.
It's people like yourself that make a difference.
Again, wishing you all the best.
Chelle x
ChelleAmy 3 years ago 7
my mom had 2 children with epilepsy me and my sister then mom went on to nursing school became nurse of the year I say she deserved it
elleanor07 4 years ago
Right on!-Congrats to her! Honorable profession you all chose! xo
ShockResistor 3 years ago
I feel sorry for the child and mostly for his mother, who have to take care for the child and bear witness his heart breaking agony. I too have Grand Mal seizures.
I hope, God help you cope with this misery.
MySeizures 4 years ago
Just like you are witnessing the epileptic seizure on this video, I learned the hard way from my own family and friends, it's a life time haunting trauma and agony to see your loved ones being struck with seizures. Seizures destroy families. Too bad, there's NOT much that could be done to help the patient or the family. All that "help" advertised by "caring foundations and agencies" is nothing more than empty promises and bureaucratic circus. It's heart breaking, we are on our own. Good luck.
MySeizures 4 years ago
this is very sad
legallypretty 4 years ago
Don't be sad. My child has Epilepsy. There is no cure for Epilepsy. Most people have never seen a seizure before, so I am sharing them to create awareness. Increased awareness about her devastating condition will make her future world a better place. Remember that, and thank you for your comment.
Jenellesmommy 4 years ago
how is the baby doing? i've seen lots before i am a nursing student but i havent seen a baby before having one tears came to my eyes... well i wish you best of luck your moving in the right direction...
legallypretty 4 years ago
Hi, thanks for uploading this. I'm a student in pediatrics so this sort of resource is extremely valuable to me.
Just a question, does Jenelle go into an absence seizure at around 42 secs in this video, because I read somewhere that atypical absence seizures are a part of Lennox-Gastaut.
hodori1984 4 years ago
Yes, Jenelle goes into an absence seizure shortly after the "screaming" part stops. Jenelle has had maybe 10 Grand Mals in her entire life! The majority of her seizures with LGS are absence, tonic seizure (where she stiffens and turns blue), complex partial (absence with jerks) and myoclonic (head drops) with an occassional grand mal once in a blue moon. I'm glad this was helpful to you.
Jenellesmommy 4 years ago