Noah walking unassisted! (Spina Bifinda) Thu, 25 Nov

[fairytrixy]

Yes! I just saw your post from a few years ago when he was walking with a walker. This is so wonderful. My son, Noah is 14 and started walking at 3.5 years on his own. L5S1 Myelomenigeocyle with a VP shunt, and has struggled with bowel and bladder issues that he is now managing(that has been so hard socially) But, he is ready for high school in the fall. He will go to Marin school of the arts for theater arts(he loves Shakespeare). Your Noah is a joy to see you are doing a wonderful job.

[SabelleandNoah]

@fairytrixy

We are just now starting to address the b/b issues. Not going to be a fun transition getting out of pull-ups and cathing and starting the b program but it is necessary and once he gets used to it, it will be great. Thanks for stopping by to say hello. Your Noah sounds like he is thriving. I think our Noah is going to enjoy theater as well. LOVES to be on stage. :)

[Mikyajful]

thats so great, hes gonna do well and well when he grow up! im glad.. im 18 with SB! managing so well too ! thankgodddd for everything.. just know that there are people have worse cases and connot move a toe .. so thank god

[SabelleandNoah]

@Mikyajful

Thank you. We count our blessings every single day and know how lucky we are! :)

[Mikyajful]

@SabelleandNoah i just wanna ask u.. does he deal with cathetrization? or any bladder , bowel movements

[SabelleandNoah]

@Mikyajful

We are going to start cathing in about 2 weeks actually. And I'm sure cone enemas are soon to follow so he can wear "big boy" underwear. :)

[SabelleandNoah]

@Mikyajful

Thank you. We count our blessings every single day and know how lucky we are! :)

[Lindybel]

Awesome!!!!