3. Symptoms - Get Well From (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome CFS)

[Rhondamarie00]

and living in so much pain he was not going to give up! God showed satan that Job was a true child of God and that their was NOTHING that satan could do to get Job to lose his faith in the Lord. This is where my inspiration comes from. I don't understand why I have to live like this but I will NOT 'curse God and die." I'm sorry for the biblical rant and I don't mean to offend any non-believers. I just want to let everyone know (including satan himself) that I'm not giving up!

[Rhondamarie00]

inspiration. He served the Lord with all of his heart, his mind and his strength despite the pain he was in and the persecution that he suffered. And just look at Job! Despite all of the horrific things that happened to him and the awful illnesses he had he never gave up on God! He didn't understand why God was letting him suffer BUT he never gave up..not even when his wife told him to "curse God and die!" God allowed Job to suffer in order to prove to the devil rhat despite losing everything

[Rhondamarie00]

ministry work like I used to... but I cant! I know their has to be a reason why God kept me alive. I almost died 7 years ago but he spared my life..their has to be a reason for that! But why? If I have to live everyday of my life in so much pain and so tired why am I still here? God please show me what I am supposed to do! The apostle Paul lived with horrible pain (he described it as a thorn in his flesh but the bible never clarified what it was) I wonder if he had fibromyalgia!!! Paul is my

[Rhondamarie00]

I used to be so active. I used to teach a classroom full of teenagers about Jesus and the Word of God. (and believe me, that took a LOT of energy!!!) I used to work fulltime in a fast paced deli. I have 3 kids (plus a stepson which makes 4) and I used to feel like a good mom and a good wife. I hate that my family has to see me suffer. My hubby works full time and then comes home and has to do MY chores most of the time. I want to GLORIFY GOD! I want to spread the gospel and do ministry work

[Rhondamarie00]

misunderstood. I am NOT lazy. What I wouldn't give to have enough energy to work full time, go to the gym, PLAY WITH MY KIDS, keep up with my wifey and mommy duties. I wish everyone would use the term M.E. and not CFS because it's so much more than just being tired. It's a way of life..or lack their of. I am miserable. I still have my faith in God but I'm just so confused as to what I'm supposed to do to glorify Him,when I can't even live my life! I feel like such a waste ;o(

[Rhondamarie00]

granite, those things will cause fatigue and exhaustion but it's not chronic faituge! I'd love to be able to say that I am fatigued because I just worked out for an hour or worked full time...but I'm too exhausted to do anything at all! I respect the people that hold down full time jobs and other responsibilities and I'm sure they are tired but I hate how so many people act like CFS is no big deal. I hate when people tell me I just need to work out more or whatever. It makes me feel alone and

[Rhondamarie00]

I whs that more doctors would call it M.E. instead of "chronic fatigue syndrom." Telling people that I have "chronic fatigue" makes me feel like I'm just telling people that I'm lazy and so I hide being an excuse...atleast that's how their responses make me feel. When I tell someone I have "chronic fatigue I usually hear people tell me that they "have it too" (example: they can only work out for 1 hr instead of 3, they have CFS because they work 40 hours a week, etc.)

[GetWellFromME]

@Rhondamarie00 Yes, it is truly awful that there was a move (obviously very successful) by the authorities, over the years, to confuse some of the most serious and debilitating neurological and neuro-immune diseases in the world, with a whole range of other illnesses, some much milder and many caused by emotional stress or social factors - all sorts of "long term tiredness" - and called them ALL "chronic fatigue". I would like to think the truth about that will come out one day...

[GetWellFromME]

@Rhondamarie00 I know it is awful when we cannot do the things we would love to do - and which we would love to think we could or should be doing! St Paul talks about our hope for future glory, as Christians, with the whole of creation groaning as if in the pains of childbirth - considering "that our present sufferings are not worth comparing with the glory that will be revealed in us" (Romans 8:18)

[tammyolivo]

I emailed this to friends and family. Thank you for making this easy to explain to them without me trying to get it all out. :)

[GetWellFromME]

@tammyolivo Thank you, really pleased you've found it helpful! :)

[juicylucy1979]

excellent list of symptoms...spot on....the worst thing of all is trying to explain how you feel to another person....

[GetWellFromME]

@juicylucy1979 Thank you... yes, and knowing how much to explain to someone before they get bored!.....

[riverlaken]

Right on target, the way it is, suffering with M.E.

[GetWellFromME]

@riverlaken I so wish it wasn't like that... but it is! :(

[mrsdannyjones1000]

I'm so glad you took the time to make this video. People often ask me to describe it but I obviously can't just stand there and list everything on the spot, but this is perfect in going through ME clearly to people so they can understand. I have 90% of those symptoms, especially the headache, I have a headache 24 hours a day and I'm fed up with it now. Thanks for making the video!

[GetWellFromME]

@mrsdannyjones1000 Thank you! Sorry to hear you are so ill, I do understand being fed up with it. I hope things do improve for you, and glad the video has been of some help :)

[poppiana]

Absolutely brilliant - I have had every one of those symptoms and you have presented them so well in this outstanding video.

[GetWellFromME]

@poppiana Thank you! People can find it difficult to believe that someone can have so many different symptoms which can all be so horrible and debilitating ... but we've been there :/

[ironbith]

Well said!