LDN Awareness & Testimonial with Multiple Sclerosis

[AlexShively]

Wonderful video! Thank you so much for sharing your experience in such a forthright manner! I've been on for almost five years (4.5 mg), having been diagnosed with Primary Progressive Multiple Sclerosis in late 2006. While not a cure, I believe LDN has SAVED me. . .Sincerely, Alexandra

[spencerduru123]

Hi there, what is the name of your doctor? Is he based in London?

[AllTogetherFree]

Thank you Suzanne. What a helpful video. I appreciate your passion. I, too, have MS and am waiting for my LDN from Canada to arrive in a few days time. I will make a video too, to help others, once I see how it works for me. Again, thank you so much.

[sungirllpn]

Thank you so much for your testimonial on this medication. I, like you, do not want to take the risk on the traditional meds for MS. I would love to try LDN. Two Drs. have declined my idea. One Neurologist I have gone to has never even heard of it! Please mention that the side effects of LDN are only irritability and restlessness, very important. No blood test and such, no damage to liver and kidneys on Low Dose..Thank you, Donna.

[wendell3308]

Wonderful that you're doing well on Low Dose Naltrexone [LDN].

LDN is not FDA approved for MS, but some trials are ongoing. Go to PubMed & enter this number 18728058 to see the results of a phase II trial of LDN for Primary Progressive MS. For 40 patients there were 5 dropouts & 2 major adverse events. Risk % sounds high, but I'm not a doctor, so check with yours.

Compare to phase III trial of Tysabri at PubMed article # 19201654.

Good luck with whatever therapy you & your doc choose.

[MYLIFEWITHMS]

@wendell3308 Thx Wendell, it's good to see some trials for LDN have been happening, hope you are well x