Hello Just Wondering If the parents of Naomi are on you tube? my son has the same Deletion and we can't find anyone else with it .. would like to talk to them and ask questions...
My daughter, Reid, featured in this video, passed away 10 months ago. She was such a blessing to all who knew her and is deeply missed. She is the closest I have, or will probably ever get to knowing the pure love of God here on Earth. Reid had partial trisomy 2, partial monosomy 13, with a translocation, that resulted in many severe medical problems. She passed away from congestive heart failure after VP shunt surgery March 13, 2010.
thanks for send me this video,is awesone,the doctor told me abaout my bebe has deletion 7q36.1 i want i know when she born what i need to do because the genetic ,said the baby has feeding problem and mental problem,but i want to know more information ,if you know could help me please is hard for me ,i speak spanish and i dont know ,how i help my bebe she born,than you ,god bless.
this messege is for chrmosome 16disorder, I have a daughter she s 17 years old now with duplication of 12p , i rememebr when she was 6 - 7 years I was always wonder how she wil be when she get older, any how the only think will help is a website called unique rare chromosome , google it try to read about chrmosme 16, hope this will help you
Thank you so much for making such wonderful videos and getting the word out there. I am so proud of my beautiful daughter, Reid. In responce to "chromosome16disorder", I too wonder what life will be like for my little girl. Will she grow up? Will she ever be able to be independent? There is no other documented case like hers either, so we don't know. I do know that I will love her and enjoy her everyday that she is here and make her as happy as I possibly can. My prayers are with all of you.
How beautiful my precious girl, Jamie! We are so proud of you and all your accomplishments. Thank you CDO for sharing this video so the world can learn more about these disorders and our beautiful, precious children. This video warms my heart!
everytime i watch these videos i can't stop the tears from flowing. you guys have older chromosome kids in this vid. i sometimes get worried about what my son will be like when he gets older. he is 6 now and at a 2 year old level. but its very hard to get a mental image of him as an adult. i have never seen another person with a similar deletion. i dont know what to expect. will he be able to live a farely normal life? will he be independant or will i be his carer for the rest of my life??
Hello Just Wondering If the parents of Naomi are on you tube? my son has the same Deletion and we can't find anyone else with it .. would like to talk to them and ask questions...
downbarrel 3 months ago
What constitutes a "rare" disorder?
XXYSexChromosomes 3 months ago
at 1:11 Naomi..My son has almost the same deletion..his is 1p 34.3 1p 34.2
downbarrel 1 year ago
My daughter, Reid, featured in this video, passed away 10 months ago. She was such a blessing to all who knew her and is deeply missed. She is the closest I have, or will probably ever get to knowing the pure love of God here on Earth. Reid had partial trisomy 2, partial monosomy 13, with a translocation, that resulted in many severe medical problems. She passed away from congestive heart failure after VP shunt surgery March 13, 2010.
KieBaby1980 1 year ago
thanks for send me this video,is awesone,the doctor told me abaout my bebe has deletion 7q36.1 i want i know when she born what i need to do because the genetic ,said the baby has feeding problem and mental problem,but i want to know more information ,if you know could help me please is hard for me ,i speak spanish and i dont know ,how i help my bebe she born,than you ,god bless.
ismael064 1 year ago
this messege is for chrmosome 16disorder, I have a daughter she s 17 years old now with duplication of 12p , i rememebr when she was 6 - 7 years I was always wonder how she wil be when she get older, any how the only think will help is a website called unique rare chromosome , google it try to read about chrmosme 16, hope this will help you
TheCalana 2 years ago
Thanks for making this! My daughter Teralynn was the 1st in the video. She is 3 1/2 and continues to improve daily.
~Tonya~
davidNtonya 2 years ago
Alexis - The Joy of my Life. Thank you.
eggswork 2 years ago
Thank you so much for making such wonderful videos and getting the word out there. I am so proud of my beautiful daughter, Reid. In responce to "chromosome16disorder", I too wonder what life will be like for my little girl. Will she grow up? Will she ever be able to be independent? There is no other documented case like hers either, so we don't know. I do know that I will love her and enjoy her everyday that she is here and make her as happy as I possibly can. My prayers are with all of you.
KieBaby1980 2 years ago
I love you Amileh...We're not alone!
aoa0378 2 years ago
How beautiful my precious girl, Jamie! We are so proud of you and all your accomplishments. Thank you CDO for sharing this video so the world can learn more about these disorders and our beautiful, precious children. This video warms my heart!
aigilmv 2 years ago
WHOO HOO, our Angel, Samantha, tetrasomy 18p is a shining star... 25 seconds in to watch:
(Beautiful baby girl, I love you!)
Beautiful, beautiful children. My heart just swells and my eyes tear up viewing them.
Thank you CDO for showing the world that 'our' children are precious and lovely people who touch all of our lives.
tdhssp 2 years ago
everytime i watch these videos i can't stop the tears from flowing. you guys have older chromosome kids in this vid. i sometimes get worried about what my son will be like when he gets older. he is 6 now and at a 2 year old level. but its very hard to get a mental image of him as an adult. i have never seen another person with a similar deletion. i dont know what to expect. will he be able to live a farely normal life? will he be independant or will i be his carer for the rest of my life??
chromosome16disorder 2 years ago
AWESOME!!!!!!!!!!!!!!!
jcarey02 2 years ago