Get screened in the US. Call CCSVI Clinic (404)461-9560 to schedule your pre- and post procedure screening today in Fargo, ND or email us at apply@ccsviclinic.ca. Find out more at ccsviclinic.ca
@danw11yahoo I had the treatment on 10th June and made a short video about it called Post-CCSVI Immediately after Treatment - check on the videos i have made.
you and me both, I don't care much for the different communication set ups for youtube, you just don't know what's private and what's not. Facebook is a bit better in that respect. I hope I get ya on fb!
@pdye39 Excellent news! Be sure to monitor your status before and after the treatment - I am afraid that the powers that decide on giving CCSVI as a regular hospital treatment will do nothing until the sheer weight of "anecdotal" evidence becomes too large to ignore - The media will also pick up on it once the online information reaches a certain saturation point - so be good to the others who cannot afford to do what you and I are doing - put your diary of your CCSVI journey on the internet!
@pdye39 Hi Paul, thanks for your comments. I am sorry that you are as disabled as I am, lord knows how difficult it can be. Will you also try the CCSVI process?
I wish you all the luck in the world. Your son is very lucky to have a father like you and I hope you will become the MS figure head who we look too. The one we can say " Tav15h is now running and swimming since had the CCSVI. He used to be in a wheelchair a few months ago you know"
@JulieGrav Oh thank you sooo much Julie - your kind words are very uplifting. I am only sorry that I just realised there were comments on this video - so a lot of replies done at the same time! - nevermind: we live and learn.
Tavish, you are very brave... a real BRAVEHEART! Good luck. Update us all, we are all keeping our fingers crossed for you that this treatment will give you a better quality of life .
@originalguitarhero96 Thanks for the kind words Sami, I will certainly make another video post-op to illustrate my condition after CCSVI - hopefully better than I am now
@boatjohn1 Hey there boatjohn, well only 7 days left to go now and new posts on here will let you know how things went for me - thanks for the good will.
@Vivianne766 Thank you for your kind wishes, you will know soon ( 7 days ) how it went as I will post another video on here - you might need to be a subscriber of the channel to be alerted though - but I am new to YouTube protocol and functionality, so I could be wrong.
Exciting stuff, I'll keep me fingers crossed for you x
P.S. kids are tough mate. Of course he worries, but I reckon he'll be alright. He needs an example of a strong and available father more than any game of footie, yeah?
You look just like me. Not in the face but in your actions. I'm in the same condition as you. Oh, I so want to be able to play with my little girls too. It is unfair. Good luck and God speed for a quick reversal of your symptoms. I am really looking forward to an after video.
Sincerely, Paul who is also becoming friend with GothicRosie.
dear David, I'm so happy to see you after a few emails ;-)
I pray and hope that the operation makes a world of difference, but do not expect too much! Stopping the progression is where we go, whatever we get there is a gift!
I try to come visit you the 10th, you will maybe not able to dance a tango with me but I'm sure that you will feel a lot better!!
@n33m5 Hi Nathalie - and once again a big thank you for being an essential link in the chain that hooked me to a place where CCSVI is followed - many thanks are not enough...
Tavish, Thank you for this video. I plan to do one before I get scanned for ccsvi. This disease is just so terrible. BUT u have the will. I believe God has smiled upon us. I see that this disease has taught u many things, as it has taught me. IE What matters and what doesn't. Keep truckin, we will get here. kc
@newman50 Thank you for your kind words - I thought I had replied to your comment already, but I don't see my comment anywhere - not yet used to YouTube protocols and functionality - so apologies for being late in my reply and, thanks!
Thank you for doing this 'before' video. It breaks my heart to hear about your son. Although I am not in your position I know the feeling as my 5 year old comes to tears when he asks me why I am sick all the time and can't play with him. I hope you are blessed with newfound abilities from your treatment so you and your son can enjoy a more normal relationship and life.
@TheGothicRosie My son just arrived at my house and he is delighted that some good might come of this. I only hope his wish is granted and the same for you and your family. Will you also try the CCSVI process?
@tav15h Yes, I am actually scheduled for a scan this month. My plans are to do a before video, get scanned, and hope for the CCSVI diagnosis...then start hitting up IRs in my area and presenting my case armed with a bunch of research. I look forward to your after video and hearing about your improved status. ;) Best wishes and good luck!!
Tavish, best wishes for you from a fellow possible CCSVI'er. Your son has a great example already, bike rides or no. I ask that you continue to keep us informed -- just as you I have a date in Poland late this year and will make my own before and after videos. God Bless.
Good luck to you. I will pray for this. I get tested the end of June then we will see what happens. I too look forward to getting life back with my kids and now my young grandson.
@tayboissoneau Thanks for the kind wishes, it is strange to be so elated that I have a problem with my veins, but the implications could mean the treatment brings me some of my mobility back - even if it is only a small influence in the positive it will be worth it.
Tavish, I pray that you will get as much benefit from the Liberation procedure as I have! I too am SPMS but I'm doing so much better now. Bless you for making this before video and I look forward to your after video. This will help our cause! May the Lord hold you and comfort you all the days of your life, may He send His angles to guard and keep you.
@9gabbycats Many thanks for your kind words and thoughtful comments. It must have been poor sound quality on the video as I actually am diagnosed as Primary Progressive for the last 4 years of my MS sentence.
@9gabbycats I forgot to say that I loved your "I can Jump" video and am responsible for posting a link to all my friends in Scotland - as you may know, Scotland has the highest incidence rate of MS in the world with a staggering 1 in 500 ratio!
@tav15h Hey thanks for passing my video's around Scotland! Your's is all over facebook, I've posted it myself. I'm looking forward to your after video! Please join me on facebook, Denise Manley or gabbycats I wear my green ribbon for Liberation and my orange ribbon of hope!
@9gabbycats Good grief! I was not aware that these comments did not come directly to my email address! - A bit of a newbie on YouTube protocol - will find you on FB shortly...thanks for the reply
@daviniaalison Thanks, but I think I am just the first of many more from the site that will get this treatment done and the more evidence we can collect the better it is.
@golsol It's a strange day indeed when someone informs you that you have a lousy condition on your veins and it makes you happy ! - hopefully even better news on 10th June when they treat my CCSVI
As a fellow Scotsman of similar age I wish you the very best 'tav'. I have SPMS and was diagnosed 16 years ago and am still ambulant (just). My wheelchair sits in the understairs cupboard waiting for what I hope is not the inevitable. I have 3 kids who have watched my steady deterioration. I'm sure your son is strengthened by your resilience and bravery. Good luck on the 10th and I look forward to a positive follow-up from you.
@TheWhoHe The Essential Health Clinic in Glasgow are also able to do the scan and the treatment - If you can, I suggest you do it before your condition advances in the wrong direction
@Bear2XL I had my scan done today and the result was that I definitely have CCSVI and have a stenosis of 95% on my right hand jugular vein. I am now scheduled to have the angioplasty procedure on the 10th June. Hopefully I can make another video clip with some good news on it. Interestingly they used a CT Angiogram to detect the stenosis. Thanks very much for your comment.
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Get screened in the US. Call CCSVI Clinic (404)461-9560 to schedule your pre- and post procedure screening today in Fargo, ND or email us at apply@ccsviclinic.ca. Find out more at ccsviclinic.ca
derekdadey1 1 year ago
good luck with your ccsvi treatment in Belgium. Please let us know how you get on.
danw11yahoo 1 year ago
@danw11yahoo I had the treatment on 10th June and made a short video about it called Post-CCSVI Immediately after Treatment - check on the videos i have made.
tav15h 1 year ago
@tav15h good to see your post procedure posts. I hope your improvements continue and look forward to seeing you get better and better :)
danw11yahoo 1 year ago
@danw11yahoo Thanks for your kind thoughts, if ther are further improvements I will certainly post them on here.
tav15h 1 year ago
you and me both, I don't care much for the different communication set ups for youtube, you just don't know what's private and what's not. Facebook is a bit better in that respect. I hope I get ya on fb!
9gabbycats 1 year ago
@9gabbycats I semt you a friend request on FB - did you get it?
tav15h 1 year ago
@tav15h what name do you go by?
9gabbycats 1 year ago
@9gabbycats David Boyle is the name I go by on FB
tav15h 1 year ago
i'm praying for june 24th.
pdye39 1 year ago
@pdye39 Excellent news! Be sure to monitor your status before and after the treatment - I am afraid that the powers that decide on giving CCSVI as a regular hospital treatment will do nothing until the sheer weight of "anecdotal" evidence becomes too large to ignore - The media will also pick up on it once the online information reaches a certain saturation point - so be good to the others who cannot afford to do what you and I are doing - put your diary of your CCSVI journey on the internet!
tav15h 1 year ago
@pdye39 Hi Paul, thanks for your comments. I am sorry that you are as disabled as I am, lord knows how difficult it can be. Will you also try the CCSVI process?
tav15h 1 year ago
I wish you all the luck in the world. Your son is very lucky to have a father like you and I hope you will become the MS figure head who we look too. The one we can say " Tav15h is now running and swimming since had the CCSVI. He used to be in a wheelchair a few months ago you know"
God Bless you - I will keep everything crossedxx
JulieGrav 1 year ago
@JulieGrav Oh thank you sooo much Julie - your kind words are very uplifting. I am only sorry that I just realised there were comments on this video - so a lot of replies done at the same time! - nevermind: we live and learn.
tav15h 1 year ago
Tavish, you are very brave... a real BRAVEHEART! Good luck. Update us all, we are all keeping our fingers crossed for you that this treatment will give you a better quality of life .
Sami x
originalguitarhero96 1 year ago
@originalguitarhero96 Thanks for the kind words Sami, I will certainly make another video post-op to illustrate my condition after CCSVI - hopefully better than I am now
tav15h 1 year ago
Thank you for sharing.. I wish u all the best with ur liberation treatment and i will u on the other side soon!
Keep us updates please
Omar
omexmc80 1 year ago
@omexmc80 Thanks Omar, not long to go now - 7 days left and time is moving so slowly.
tav15h 1 year ago
@tav15h I am just packing and will be leaving for bulgaria on the 10th, my appointment is on the 11th.. cant wait..
omexmc80 1 year ago
@omexmc80 All the best for your trip and your procedure - I will think of you when I am in hospital on 10th - it's not long now
tav15h 1 year ago
Thanks for keeping us in the picture David
Its allarming that Neurologists are advising us on a vasular problem.
Would one consult an electrician to fix a blocked drain ?
Your liberation Will have a positive result on recent evidence !!
All the very best,..... boatjohn
boatjohn1 1 year ago
@boatjohn1 Hey there boatjohn, well only 7 days left to go now and new posts on here will let you know how things went for me - thanks for the good will.
tav15h 1 year ago
Hope your treatment goes on with GREAT success.
best health wishes for you and all.
Vivianne766 1 year ago
@Vivianne766 Thank you for your kind wishes, you will know soon ( 7 days ) how it went as I will post another video on here - you might need to be a subscriber of the channel to be alerted though - but I am new to YouTube protocol and functionality, so I could be wrong.
tav15h 1 year ago
Exciting stuff, I'll keep me fingers crossed for you x
P.S. kids are tough mate. Of course he worries, but I reckon he'll be alright. He needs an example of a strong and available father more than any game of footie, yeah?
lovingfatalist 1 year ago
@lovingfatalist You are right, they are tough wee things - but still feel terrible what my condition has imposed on him and on us.
But we still can laugh and play at some things, so all is not lost - just harder to find.
tav15h 1 year ago
Tavish,
You look just like me. Not in the face but in your actions. I'm in the same condition as you. Oh, I so want to be able to play with my little girls too. It is unfair. Good luck and God speed for a quick reversal of your symptoms. I am really looking forward to an after video.
Sincerely, Paul who is also becoming friend with GothicRosie.
pdye39 1 year ago
dear David, I'm so happy to see you after a few emails ;-)
I pray and hope that the operation makes a world of difference, but do not expect too much! Stopping the progression is where we go, whatever we get there is a gift!
I try to come visit you the 10th, you will maybe not able to dance a tango with me but I'm sure that you will feel a lot better!!
Looking forward to see the next video ;-)
greetz, Nathalie x (Belgium)
n33m5 1 year ago
@n33m5 Hi Nathalie - and once again a big thank you for being an essential link in the chain that hooked me to a place where CCSVI is followed - many thanks are not enough...
tav15h 1 year ago
Tavish, Thank you for this video. I plan to do one before I get scanned for ccsvi. This disease is just so terrible. BUT u have the will. I believe God has smiled upon us. I see that this disease has taught u many things, as it has taught me. IE What matters and what doesn't. Keep truckin, we will get here. kc
kcapozza 1 year ago
@kcapozza We are very lucky to live in a timr of the internet and Mr Zamboni - very lucky indeed.
tav15h 1 year ago
God speed and a quick and successful recovery. !!!
newman50 1 year ago
@newman50 Thank you for your kind words - I thought I had replied to your comment already, but I don't see my comment anywhere - not yet used to YouTube protocols and functionality - so apologies for being late in my reply and, thanks!
tav15h 1 year ago
Tavish,
Thank you for doing this 'before' video. It breaks my heart to hear about your son. Although I am not in your position I know the feeling as my 5 year old comes to tears when he asks me why I am sick all the time and can't play with him. I hope you are blessed with newfound abilities from your treatment so you and your son can enjoy a more normal relationship and life.
TheGothicRosie 1 year ago
@TheGothicRosie My son just arrived at my house and he is delighted that some good might come of this. I only hope his wish is granted and the same for you and your family. Will you also try the CCSVI process?
tav15h 1 year ago
@tav15h Yes, I am actually scheduled for a scan this month. My plans are to do a before video, get scanned, and hope for the CCSVI diagnosis...then start hitting up IRs in my area and presenting my case armed with a bunch of research. I look forward to your after video and hearing about your improved status. ;) Best wishes and good luck!!
TheGothicRosie 1 year ago
@TheGothicRosie Great news - I hope everything goes well for you, actually goes well for us both!
Take Care and let us know how it goes.
tav15h 1 year ago
Tavish, best wishes for you from a fellow possible CCSVI'er. Your son has a great example already, bike rides or no. I ask that you continue to keep us informed -- just as you I have a date in Poland late this year and will make my own before and after videos. God Bless.
SixtyFiveDropTop 1 year ago
@SixtyFiveDropTop I will definitely post another video after my treatment and perhaps a continued video release if the improvements continue.
Good luck to you on your trip to Poland, at least there you will have everything done in a short period of time.
tav15h 1 year ago
Good luck to you. I will pray for this. I get tested the end of June then we will see what happens. I too look forward to getting life back with my kids and now my young grandson.
tayboissoneau 1 year ago
@tayboissoneau Thanks for the kind wishes, it is strange to be so elated that I have a problem with my veins, but the implications could mean the treatment brings me some of my mobility back - even if it is only a small influence in the positive it will be worth it.
tav15h 1 year ago
Tavish, I pray that you will get as much benefit from the Liberation procedure as I have! I too am SPMS but I'm doing so much better now. Bless you for making this before video and I look forward to your after video. This will help our cause! May the Lord hold you and comfort you all the days of your life, may He send His angles to guard and keep you.
9gabbycats 1 year ago
@9gabbycats Many thanks for your kind words and thoughtful comments. It must have been poor sound quality on the video as I actually am diagnosed as Primary Progressive for the last 4 years of my MS sentence.
tav15h 1 year ago
@9gabbycats I forgot to say that I loved your "I can Jump" video and am responsible for posting a link to all my friends in Scotland - as you may know, Scotland has the highest incidence rate of MS in the world with a staggering 1 in 500 ratio!
Keep jumping !
tav15h 1 year ago
@tav15h Hey thanks for passing my video's around Scotland! Your's is all over facebook, I've posted it myself. I'm looking forward to your after video! Please join me on facebook, Denise Manley or gabbycats I wear my green ribbon for Liberation and my orange ribbon of hope!
9gabbycats 1 year ago
@9gabbycats Good grief! I was not aware that these comments did not come directly to my email address! - A bit of a newbie on YouTube protocol - will find you on FB shortly...thanks for the reply
tav15h 1 year ago
@daviniaalison Thanks, but I think I am just the first of many more from the site that will get this treatment done and the more evidence we can collect the better it is.
tav15h 1 year ago
Good luck Tavish and best wishes from all of us on the MS website.
I know you will keep us informed how you get on. We all wait in hopeful anticipation for you and a speedy recovery after treatment.
Anonymouse
Sorry utube made me put a z in my name must be all the other anony mice in the world.
Anonyzmouse 1 year ago
@Anonyzmouse Interestingly the treatment process is an out patient format. So I go in the morning and come out in the afternoon !
Well they offer to patients to stay for a couple of nights if you want, but as I have a visitor arriving on the same day I better be home for them!
BTW Cinderellie is my visitor! She's coming over with the kids for her son's birthday - should be fun.
tav15h 1 year ago
Best of luck. Hope everything goes perfect and you get great results.
golsol 1 year ago
@golsol It's a strange day indeed when someone informs you that you have a lousy condition on your veins and it makes you happy ! - hopefully even better news on 10th June when they treat my CCSVI
tav15h 1 year ago
As a fellow Scotsman of similar age I wish you the very best 'tav'. I have SPMS and was diagnosed 16 years ago and am still ambulant (just). My wheelchair sits in the understairs cupboard waiting for what I hope is not the inevitable. I have 3 kids who have watched my steady deterioration. I'm sure your son is strengthened by your resilience and bravery. Good luck on the 10th and I look forward to a positive follow-up from you.
TheWhoHe 1 year ago
@TheWhoHe The Essential Health Clinic in Glasgow are also able to do the scan and the treatment - If you can, I suggest you do it before your condition advances in the wrong direction
tav15h 1 year ago
@Bear2XL I had my scan done today and the result was that I definitely have CCSVI and have a stenosis of 95% on my right hand jugular vein. I am now scheduled to have the angioplasty procedure on the 10th June. Hopefully I can make another video clip with some good news on it. Interestingly they used a CT Angiogram to detect the stenosis. Thanks very much for your comment.
tav15h 1 year ago