Good on ya, a brave massage, one I hope reaches the powers at be. My whole family has CMT, and my grandmother walked like that before Charcot-Marie discovered. The doctors used to laugh at he saying that she was imagining thing, or she had lazy feet, or she was complaining about pain that wasn't there. She died 20 years ago. Now all my brothers and sister have it, and apparently, I have a bit it too. Ours progresses with age. Thanks again, blessings FLETCHER
im 14 i do bmx skateboard and stunt scooter and i have C.M.T. ive had 5 operation since i was 4 my whole life has consisted on going in and out childrens hospitals and my next big opperation is when im 18 like this comment if yu have a muscle waseting condition but dont let it take over ur life i also have mild learning difficultiesxxxx
Thank you Elliot! I have two kids, aged 9 and 11 and they both have CMT. You are right!! The more people who know about your feet...the better the chances for a cure! Awesome job on the video!!
hi Elliot, im shashwat .im 24 yrs old nd was recently diagnosed with cmt . to make matters worse it also caused hip disphasia leadind to arthritis causing extreme pain. however i hope the cure soon comes out....its very brave of you to come out with a video like this gr8 man. also for the foot try the carbon fibre foot braces, they r lighter and more comfortable.
My daughter and I have this too. You are so brave and I am proud of you! There is a book written to teach kids about CMT. It's called Arlene On The Scene, written by Carol Liu. Hopefully someday soon, this book will be at every library for kids to read.
Thanks Elliot for being so willing to talk about our disease. I know that this will reach a large number of people and we will get them talking about the disease. You are amazing!
just got this video from a friend of a friend of a friend of a friend. though i would let you know it's getting around my school rapidly and i hope it keeps going around, good luck! i will send it to more people:)
Elliot,YOU are awesome! I,my daughter,my mon and my sister all have CMT also. Maybe by the time your generation is our age,we will have a cure. lets send this around the world,start spreading the word! CMT awareness month is November,i think,lets ee how many hits you can get by then.
Hi Elliot, my name is Diane and I have CMT too. My feet looked just like yours when I was young like you. I had surgerys on both of my feet when I was 32 years old. I walk a little better now. BUT my muscle wasting is horrible. I have no strength in my legs and arms. I am now 47 years old. I too hope that someday soon they will find a cure for this horrible disease. Hopefully before I die.
Great job Elliot! I'm passing this on to everyone in my CMT group, Facebook, blog, email etc. Thanks for spreading awareness! With your help we'll find a treatment soon.
I have Charcot- marie-tooth 1a and 2a, I am very rare, and I have schizophrenia, a brain Disease.
peterdanid1 1 month ago
Good on ya, a brave massage, one I hope reaches the powers at be. My whole family has CMT, and my grandmother walked like that before Charcot-Marie discovered. The doctors used to laugh at he saying that she was imagining thing, or she had lazy feet, or she was complaining about pain that wasn't there. She died 20 years ago. Now all my brothers and sister have it, and apparently, I have a bit it too. Ours progresses with age. Thanks again, blessings FLETCHER
saintfletcher 3 months ago
im 14 i do bmx skateboard and stunt scooter and i have C.M.T. ive had 5 operation since i was 4 my whole life has consisted on going in and out childrens hospitals and my next big opperation is when im 18 like this comment if yu have a muscle waseting condition but dont let it take over ur life i also have mild learning difficultiesxxxx
namsamram 3 months ago
I have CMT too. It's great to see you spreading the word! :) well done u.
Antty1995 5 months ago
Thank you Elliot! I have two kids, aged 9 and 11 and they both have CMT. You are right!! The more people who know about your feet...the better the chances for a cure! Awesome job on the video!!
mrssarahstrong 6 months ago
*hugs* u rock kid
shelbycobra747 6 months ago
hi Elliot, im shashwat .im 24 yrs old nd was recently diagnosed with cmt . to make matters worse it also caused hip disphasia leadind to arthritis causing extreme pain. however i hope the cure soon comes out....its very brave of you to come out with a video like this gr8 man. also for the foot try the carbon fibre foot braces, they r lighter and more comfortable.
shashwat124 6 months ago
See Elliot featured in my video :)
MissionHappyFeet 8 months ago
Go Elliot! Yep - there's lots of us out there.... 5 in my immediate family and more in my extended family - Go researchers... find that cure!
foundsearcher 9 months ago
My daughter and I have this too. You are so brave and I am proud of you! There is a book written to teach kids about CMT. It's called Arlene On The Scene, written by Carol Liu. Hopefully someday soon, this book will be at every library for kids to read.
PusseeGalore 9 months ago
Elliott you are a brave boy my son michael has cmt too you will get to meet him soon
turnittupx093 9 months ago
Good luck Elliot! Rooting for you!
missonetwo 10 months ago
Thanks Elliot for being so willing to talk about our disease. I know that this will reach a large number of people and we will get them talking about the disease. You are amazing!
RuedigerFamily 10 months ago
just got this video from a friend of a friend of a friend of a friend. though i would let you know it's getting around my school rapidly and i hope it keeps going around, good luck! i will send it to more people:)
qhpluver 10 months ago
Elliot,YOU are awesome! I,my daughter,my mon and my sister all have CMT also. Maybe by the time your generation is our age,we will have a cure. lets send this around the world,start spreading the word! CMT awareness month is November,i think,lets ee how many hits you can get by then.
tatts4mom2000 10 months ago 2
Elliot, you're very brave to step forward like this. Keep it up!
SchwartzKevin 10 months ago
Hi Elliot, my name is Diane and I have CMT too. My feet looked just like yours when I was young like you. I had surgerys on both of my feet when I was 32 years old. I walk a little better now. BUT my muscle wasting is horrible. I have no strength in my legs and arms. I am now 47 years old. I too hope that someday soon they will find a cure for this horrible disease. Hopefully before I die.
ashes2urns 10 months ago
Great job Elliot! I also have CMT, I think what your doing is wonderful!
TheEllis2076 10 months ago
Great job Elliot!
TheEllis2076 10 months ago
thank you. it was my moms idea. but i need to get out of these braces so i did it. thanks.
ElliotsFeet 10 months ago 2
Hi, Elliot! Great job with your video. I have CMT too. Good luck getting the word out!
cyndimichener 10 months ago
Great job Elliot! I'm passing this on to everyone in my CMT group, Facebook, blog, email etc. Thanks for spreading awareness! With your help we'll find a treatment soon.
mlangrph 10 months ago 2
Great job elliot! I remember thinking how funny my feet were.. Your video will help others. There are lots of funny feet supporting you!!
vicki1027 10 months ago 2
Way to go Elliot!!! We love you. Thanks for spreading awareness of CMT.
wizouellette 10 months ago 2