I would like to thank u for the video. My 4 year old grandson was born with it. We all love him . We worry that in school he will be teased or bullied about his cae au lait marks. He is so far above average however his motor skills are not great. I wish one and all with NF1 the best in life filled with health, happiness and confidence. Beauty is from within .. never stop to remember this. hugsssssssssssssssss
iv got this disorder and i didnt no it was that bad my mum must of lied 2 me about it told me i wuld only ever have the marks and thats it,... now i jut wanna no more about it now
@amberlbrowning sorry it took so long to respond have not had a computer....i have over 00 friends on fb with nf....come meet us!!!! my name is Siobhan Clarke....if you cant find me....look on Reggie Bibbs, Maurice Simpson, Jerry Wilman...look on their friends lists...they all have nf as well
Very nice video! It's really educational for the world to become aware of this disease. I really do hope a cure can be found, since I've met a few NF'ers already and hear about how the disease affects their lives =(
I'm Todd....I have NF1 and a left leg below knee amputee....Lost my dad and brother to NF and an older brother with NF1 and scoliosis ...
toddstewart1962 1 month ago
I would like to thank u for the video. My 4 year old grandson was born with it. We all love him . We worry that in school he will be teased or bullied about his cae au lait marks. He is so far above average however his motor skills are not great. I wish one and all with NF1 the best in life filled with health, happiness and confidence. Beauty is from within .. never stop to remember this. hugsssssssssssssssss
Helen8019 4 months ago
iv got this disorder and i didnt no it was that bad my mum must of lied 2 me about it told me i wuld only ever have the marks and thats it,... now i jut wanna no more about it now
fukinwally 5 months ago
Sam was a great kid and friend
SuperBcp1 9 months ago
This has been flagged as spam show
hey come to my blog bout NF i support people all over the world
h t t p : // a childs view into nf . blog spot .com no spaces in that tho..........darn youtube won't let me
bailey44422 1 year ago
This has been flagged as spam show
hey come to my blog bout NF i support people all over the world
h t t p : // a childs view into nf . blog spot .com no spaces in that tho..........darn youtube won't let me
bailey44422 1 year ago
hey come to my blog bout NF i support people all over the world
bailey44422 1 year ago
@bailey44422 really that is awesome!!! i will check it out!!!
sib9934 1 year ago
omg i have nf what is your facebook?
amberlbrowning 1 year ago
@amberlbrowning sorry it took so long to respond have not had a computer....i have over 00 friends on fb with nf....come meet us!!!! my name is Siobhan Clarke....if you cant find me....look on Reggie Bibbs, Maurice Simpson, Jerry Wilman...look on their friends lists...they all have nf as well
sib9934 1 year ago
great video. as an nf 1 suffer it's good to see the smiles behind the pain that this can cause.
jaspernt 1 year ago
@jaspernt thank you i am glad you liked it
sib9934 1 year ago
thank you for sharing.
Boursta555 1 year ago
@Boursta555 thanks for watching
sib9934 1 year ago
This is done so well. I love it.
morguebabe 1 year ago
@morguebabe thank you
sib9934 1 year ago
Very nice video! It's really educational for the world to become aware of this disease. I really do hope a cure can be found, since I've met a few NF'ers already and hear about how the disease affects their lives =(
heather621 1 year ago
@heather621 thank you and thanx for watching
sib9934 1 year ago