Added: 3 years ago
From: LaffingMom
Views: 9,747
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  • "His body will literally attack itself..." Kind of sounds a little like Crohn's, when ya think about it...Mmm, deer meat...

  • poor kid, i hope he gets to eat real food one day

  • Hey! Have you considered intellectus 424 diet (do a google search)? Ive heard some unbelivable things about it and my work buddy lost crazy amounts of weight with it.

  • I really do hope they find a cure.

    Poor Timmy... just never give up hope. :)

  • keep on fighting timmy,i know u can do it little dude,god bless you

  • This is my son's story! He just started cyclosporine and it has made a huge difference. I KNOW how much this hurts as a parent. Miles got a gtube and has nightly feedings of Neocate Jr. Don't give up! Keep pushing your doctors to use research to help him.We are actually considering a stem cell transplant for Miles. God bless you. My email is donnaszewczyk@ymail.com. Please write me if you want..

  • This is just so sad! No one let alone a child should have to go through something like this :( I pray they find a cure for this and I pray he is doing well God Bless!

  • its so sad!! god bless this poor child =[

  • God Bless his Brave Little Soldier Timmy x

  • Wow, this is amazing. He has such a serious problem and he seems like such a happy and cheerful kid. I hope that he gets better and keep going, he deserves it so much. Thumbs up if you agree

  • I had forgotten all about this video being here! I had no idea about all the comments! You're all amazing! 

  • ommmggggg thiss madee mee crrryyyy :(

  • How is your precious little boy doing now? I'm praying for him. He is SO strong. You have done a great job with him. I'm hoping he is doing better...I've heard the immune system gets stronger as they get older. Please let us know. Love and prayers from AL!!

  • i feel so sorry for him noone should live with this and its not fair

  • Wow that is depressing.

  • this is SO sad!! it made me cry 

  • There's no alternative to the formula? I don't know much about EOS, but would his body also react to being fed parenterally (through a vein into his heart, called TPN feeding)? Is it only his digestive tract which attacks food or would his body react as if TPN was a 'parasite' in his blood?

  • poor kid , i cant even imagine having that , i hope they find a cure soon , god bless his little soul for keeping a positive attitude

  • NOT TRYING TO BE RUDE CAN'T THEY PUT FLAVOUR IN THE ICE CHIPS??

  • @TheSackboy101

    He'd more than likely react to the sugar/dyes/flavourings if they added any.  This kid s allergic to EVERY food.

  • @TheSackboy101 he will have a bad reaction to the flavoring

  • @TheSackboy101 he's allergic to so many things including artificial and natural flavors.. :( We do put sugar sometimes though.. :)

  • hope he will be able to eat soon he is so brave

  • hes amazing major respect for the little bhudda

  • My baby brother has EE.. He is deathly allergic to peanuts, eggs, dairy, and he cant eat any other food. He has to eat his food from a feeding tube, and it's only formula.. We give him ice cubes to eat when he wants a snack.. :(

  • This situation is so similar to my son - he is almost 8 yrs old and has EE and a G-tube. In general he has a great attitude - just like Timmy - but there are days that he's really down. Playing ice hockey has been his saving grace as it is something he loves and it helps keep his mind off food.

    'll keep your family in my prayers.

  • my little boy cannot eat either and he has only ice and neocate he is 5 and we live in britain he has never eaten and is diagnosed with Eosinphillic mucosol diseaes god bless you lad and keep him safe

  • This kid is so amazingly strong and mature. All my best wishes honey.

  • Comment removed

  • Wow. Poor kid. :/ I couldn't imagine having to go through this.

  • poor kid

  • i have EE :( im alergic to milk, peanuts, and soy... but wow... compared to him i have it easy. This is realy sad...:( i hope he gets better and can eat again soon. :D

  • brave brave kid. thanks for posting it up. more people should kno

  • My son also has EE. The Elecare and Neocate formula is corn syrup based. My son is now trying SUSTAIN, a rice based formula.

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