Added: 4 years ago
From: ziggyzalewski
Views: 28,695
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  • That is wonderful Jan Rose Shaub, you said will take everyday and try to find something grateful about that day to make life worthwhile. That is truly wonderful! =)

    Thanks to the ALS Foundation for helping those who can't help themselves and to help make a world without ALS.

  • my mom is 2 years into als thank you for this video but it seems like my mom hates life now

  • The video was insightful BUT some of the comments had me weeping like a little kid

  • Comment removed

  • My dad has als. I try to be strong for him and my mother. I cry when he's not around though.

  • I know a man with this and feel so bad for him.

  • My Concern Is For The ALS Patients To Be Able To Have Care At Home Whenever Possible And A Nice Sub-Acute Care Nursing Home When Home Care Is Not Possible. I Am Hoping My Fund Raiser By Calling The Media And Getting ALS Patients Who Are Running Out Of Funds For Home Care And Dread Not Finding A Sub-Acute Nursing Home And Will End Up In A Hospital As A Unwanted Outlier. I Want To Know How Often This Outlier Problems Happens And If It Is True? Please Tell Me If It Is True
  • I Am Talking of Long Turm Care At Home Since Most People Rather Be At Home. Home Care Is Cheaper In Most Cases If It Is Possible To Stay Home. Pluse Their Are Very Few Sub Acute Care Nursing Homes For Specialty Care. Needing Hoyer Lifts, Ventilators, Feeding Tubes That Cost $40,000. to $50,000. A Month For Long Turm Care In Special Nursing Homes. The Sadest Thing Is Some Unlucky ALS Patients Are Left In The Hospital And Hospitals Don't Want Outliers Living At The Hospital At A Loss.
  • My Grandma had ALS and died of it when I was a child of 4 and then my Grandpa took care of me who died when I was 16. My mother could not take care of my brother and me because she had a mental disability and she lived in a mental halfway house until she was moved to a nursing home and died of old age. My am disabled now with a kidney disease any way thats my story. I am writting to ALS patients and or ALS care takers my plan was to fund raise for ALS patients long turm are needs.
  • My grandmother died from this disease in February of 1982 when I was just 9 years old. This video has moved me to find out what I can do in my area...thank you...

  • very worth looking into

    please send this link to any one you know D X ed with A L S

    just delete the spaces and go to that URL to watch the important video

    w w w . you tube.com/watch?v=3nIuIF6q8FA

    i lost my mom to A LS and i wish i new then what i know now

    God speed on getting this to your A L S loved ones

    Scott

  • MY LIFE'S GOAL IS TO FIND A CURE FOR ALS....medschool here i come, hang in there :(, i love all of you!

  • They said that the cure is near.Back in 2004.Mom died 2006.Be as good as you can get!

  • My dad had ALS,he died a little over a year ago i miss him so much

    i hope they find a cure so that nobody has to go through so much pain

    my pryers go out to all those living with ALS and thier familys

  • One of my friends was diagnosed with ALS a few years ago. He is in a wheelchair now, and he can´t speak very well. His arms don´t function properly, either.

    And he is the strongest person I know.

    I hope a cure is found soon.

  • my dad has it and i o wow i cry wen i say it

  • guys, to any of you who has ALS, I bumped into a website.. please check it out. I hope it helps in anyway. h t t p : / / w w w . tcmtreatment. c o m / images / diseases / ALS-Report .h t m -- just delete the spaces and go to that URL.

  • My Mom passed away due to this horrible disease on 02/06/09. If you would like to donate to the foundation please go to:

    alsa org

  • I would like to support or donate to this association (ALS) can anyone give me some info?

  • try googling it. probably alot easier than asking people on youtube. genius.

  • my hero, or uncle, to whom followed my into Christ furthermore- died 3 days ago from this disease.

  • I am very sorry, God bless you and your hero.

  • Thank you.

  • rip to your uncle

    god bless

  • great vid.. God bless

  • My daddy just passed from ALS 3/1/09 This the hardest thing to deal with I dont no what to do. I still do not believe he is gone I love and miss him so! The advice I can give anyone who is going through this is be strong be prayerful and patience this is a very tough disease for that of who has and that of the family stay strong and spend as much time as possible with that person as possible!

  • My daddy has the same thing =/ hes still with us tho but is suffering tremendously. and yeah i take ur advice, my advice to you is its ok to cry and be sad but dont feel like your life is done, know that one day ull see ur daddy again just like i know ill see mine when he passes. know hes in a better place now and no longer hurting. <33

  • HI great vid! my Mom died from als in 2002 ,,,thank you for the post

  • My best wishes to everyone with ALS . My favorite guitarist Jason Becker has ALS

  • I knew Jason had a disease, but not this, I got one of his cd's..

  • SIR STEPHEN HAWKING > ALS

  • Hello everyone,

    My goal here is to educate people on Lyme disease. I don't have ALS but I do have Lyme disease. Many of us within the Lyme disease community believe that some people that have been diagnosed with ALS, ALZHEIMERS, MS, ANOREXIA NERVOSA, ETC... MAY ACTUALLY HAVE LYME DISEASE. Wrote an informative LYME DISEASE BROCHURE with the help of 2 specialists that I will email to anyone.

    Elaine in VA

  • ALS sucks :(

  • im only 12 and my dad was diagnosed and i dont know wut to do about it, i no i need to spent alot of time with and help him when i can but my parents are divorced so i dont c him every day

  • Hi there- I am the one who made this video and my father was diagnosed when I was your exact age. Love him as much as you can, pray and try not to be hard on yourself if you can't be with him.

  • wow..my dad died from ALS about 5 years ago. it's so hard to watch someone you love get worse and worse by the day..and knowing you cant do anything to stop it no matter how hard you try,.i was only 9, but this is the kind of expeirence that i will never forget,. my thoughts and prayers are with everyone that ALS has or is affecting..rest in peace dad.

  • My dad died from ALS!!! :( RIP DAD 06/12/07

  • my dad has ALS and i am the youngest child of four at home helping my dad,but now its my time, like my siblings, to go away to college. im scared to go away knowing he needs my help. i want to stop this disease and i want to help others with it. my prayers go to the rest of you who are affected by this disease

  • my uncle died from similar disease which called GBS, very similar symptomp

  • My father passed away last March(07) from this disease. He was 64. Hope there is a cure found for this disease. Thanks for the video and support.

  • Tomorrow my dad would have turned 64 if it were not for ALS. My prayers are out to those who have been forced to confront this motherf*cker of a disease. And to those who will. I don't think there is anything that can prepare you for the challenges this disease throws at you.

  • ALS is so frustrating....im verry sorry for those people who got this disease..i hope they find a cure very soon...

    cheers

  • I can't even imagine the heartbreak one must face when confronted with a disease like this. It feels so unfair that people are robbed of their ability to be independent...thoughts go out to all those with ALS...

  • You can say that again. My grandmother has ALS.

  • very touching...

  • That is an AWESOME VIDEO!!!

  • My dad has this, and its bad. My prayers go out to all of you who are affected by this.

    I Love you dad.

  • Thanks for the response...continue fighting for a cure. My father also passed away from ALS. Prayers to you.

  • My dad has ALS, too. Stay strong and know you aren't alone.

  • Excellent video!

  • great video... I miss you mom...

  • Love you mom and miss you!

  • my mom passed to because of this when i was in 5th grade!

    this is terrible! they need to have a cure! i miss you soo much mom and love you!!! i know your smiling down on me!

  • Come join us on the Ride to Defeat ALS on 9/30 in Napa,ca.

  • Please Sign My Petition To Support The Stem Cell Research Enhancement Act that could help my Brother (and thousands more) With ALS-Lou Gehrigs Disease. There are no Cures for these and many more horrible death sentence of Diseases.

    Please Help! Go to i p e t i t i o n s .c o m and searach for als

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