I had this at 2 days old and 31 weeks gest. I'm 39 now. I had half my large intestine removed along with the valve between the small and large intestines. I have been fine with the exception of recurrent ileitis- thought to be because of the missing valve.
mi hijo tiene 14 años y tuvo enterocolitis necrotizante grado 3 + colectomia total , a los 3 dias de nacido gracias a Dios ha podido sobrevivir a esto, pero quiero mas informacion sobre el tratamiento pues en esta edad que tiene, es importante una buena dieta y un especialista
my daughter died of this last december 24, 2010... while her twin brother died last december 18,2010..... =(.. their death left a wound in my heart that will never be healed....and i can never recover from it...
@cristysantome man i really feel for you, i cant imagine what ur goin thru but if it helps, i'll definately pray 4 u. your babies are in heaven in peace now and im sure they were so haapy to have a caring mother like u xxxx
My grandson was born at 24 wks he devolope nec his stomach became so swollen and black the doc said there was nothing they could do but cont with the antibodies that night me and my daughter prayed and i laid hands on him the next day he had completely healed no trace at all the staff was in shock so do what ever you believe in and dont give up it aint over till its over
@xxodus2012 that is truly a miracle....u need to spread this story around, show ppl to not give up hope. im so happy how things turned out 4 u and ur family xxx
@mchudi91 Thank you for that i actually posted up a music video on yt that his mother performed entitled 'my miracle baby' but i pulled it because of copyright concerns i will re-upload , it does a good job of conveying the msg.
I wish u guys the best I was diagnosed from birth with NEC. I live with its secondary condition everyday of my life. Im 21 now. I wanted you to know not give up hope cause i am proof u can beat this.
@Sesshoumaru42289 This comment really made my day! My cousin is suffering from this disease now. she just got a transplant this past friday! I would like to know what types of obstacles you have to phase now.
My 24 day old baby son Liam died of this, it all happened within a 12 hour period. It's a horrible, destructive disease and the doctors don't know much about it. More research into it's prevention needs to be done.
my son had nec several time he has had 3 operations on his bowel and several other operation he was in hospital for 8 months due to him not being able to thrive without total parental nutrition he is nearly one now and seems to be doing well!
My daughter was diagnosed with NEC at 3 weeks of age she was not a premature baby thou, she is now 10 months old and fighting fit! MY HEART goes out to all those that have lost loved ones from this horrible illness! xx
my heart and prayers go out to all of of you, my son had NEC he was born march 1st 2007 and he recovered after two surgeries, he's had no problems since then and I praise God everyday that he made it . I feel the pain in my heart for any parent who's child had to suffer ,
my son has this and he will not be able to make it. He is 15 days old and just had surgery. THe Doc said there was to much damagae and did not have enough to do a tie in.
My son is still in the hospital as of now. he was born on 26 July 2009. He's had 3 surgeries and still cannot have feedings. At first, doctors didn't think he would make it, but he's still fighting.
n 1908 a lady named sally rusa was in the woods looking for a dog until a ghost came and killed her so if ur reading this u will find a bloody body in your closet hanging there haunting you and will kill you and ur family and if u want to stop this just sends this to 6 videos in 30 mins or this will happen good luck!!!
n 1908 a lady named sally rusa was in the woods looking for a dog until a ghost came and killed her so if ur reading this u will find a bloody body in your closet hanging there haunting you and will kill you and ur family and if u want to stop this just sends this to 6 videos in 30 mins or this will happen good luck!!!
Your baby is soo cute! I bet you are very dedicated to your son.
My son Jaydon was born september 4 2008 at 31 weeks and developed NEC about a week later. Im soo thankful for the NICU in Anchorage Alaska ( Providence Hospital) Jaydon first lost about 1/3 of his small intestine at his first surgery and was doing fine but about a month later when they went to reconect him, he had lost more. remaining was 1/3 of his small intes. thentheydecided2give him agtube.he isdoinggreat! He is alst home!:)
my 10 day old nephew jsut died from this. sad to see a casket with a little baby inside being lowered into the ground. nec is a very serious. my brother was told that he would be taking his baby home in the next few days and on jan 17 he developed nec and was dead the next day. with in 12 hrs my nephew went from almost going home to the grave in 1 day. he was on life support.they removed it he moved for about a minute rested the next and then took one final breath. rip mason 1-7-09 to 1-17-09
I have this too. im 19 yrs old now but if any of you have questions please do not hesistate to ask no matter how embarrassing.
Ive had an ileostomy, colostomy, durhumel procedure, short gut syndrome and golden staph. as well. am am at the moment (although since born)experiencing difficulties with diet among many other probs. but finding it REALLY difficult cos i cant go out and party with my friends or drink alcohol cos it has negative impact on my stomach. is anyone finding that with alcohol?
My daughter was a full term baby that was diagnosed with necortizing entercolitis, she is now 17 months old and already had 4 surgery's. She had all of her large intestines and her whole colon and part of her small intestines removed. She is now doing great for a short gut baby. When she came home when had to hook iv fluids to her central line at night, she has been off of TPN for awhile now. We don't no why this happen because usually this condition is in premature babies.
I hope your little one is home and doing well. My daughter was born at 27 weeks (now 8 yrs. old) and developed NEC at 21 days old. She has short-bowel syndrome from the loss of much of her intestine, thankfully though not needing a transplant. NEC still has an unknown cause, but prematurity is the biggest risk factor. Zantac has also been thought to increase the risk of NEC. There have been babies that have been formula fed, breastfed, or neither one (on TPN, etc.) that have gotten NEC.
My boyfriend was diagnosed with this disease when he was born and the video taped the whole thing for our local hospital... he's now almost 18 years old and he has two scars (one from sergery and one from that bag on the side)and is living a healthy normal life.
I'm not a doctor. My opinion is only speculative, but I don't necessarily agree with you there. During the three months we spent in NICU I saw several cases of nec. In one case, there was one triplet who developed it while his two brothers were fine. Yes there was a small amount of formula given early on to supplement the natural breast milk. I don't feel like it was a contributing factor. There was a steroid injection given prior to the C-Section. That may be suspect as well.
The physicians don't tell you that even one "formula" feed does irreversible damage to the digestive system. I have been working with infants and mothers for several years, I would urge any parent that intends on breastfeeding to insist the infant only be supplemented with human milk. There are several milk banks around the country. It can mean the difference between life and death.
this advice is pretty rediculous...youre basing your judgement on an single case. if formula or "non human" supplements were harmful then they wouldnt be on the market...and im not sure what kind of "work" you do with women and children.youre obviously not a nurse or doc otherwise you would have said so. i doubt you know your ass from 3rd base.
I am a CLC and an RN with 8 years of ongoing resarch into the effects of artificial feeding. Any person with minimal computer skills could locate the same information. The only reason there are supplementary foods is because the WIC program receives 21.6 billion tax-free dollars per year and Similac makers are donating $3 million buildings for the AAP and of course throwing lavish parties. So before you judge anyone else, do your own research.
my 5 year old daughter developed nec when she was born premature and i expressed my milk and she did not recieve formula milk!!! so this comment is not necessarily true. prem babies are fed by tubes which drs put in so if their hands are not 100% clean, germs can get to the intestines this way, i am not saying this causes it there are countless possibilties for the cause of nec!!
Necrotixing Enterocolitis can happen with any baby who is considered ill. Ones at higher risk are premies, transplant babies, heart babies, babies in nurseries where an, "outbreak has occured", and babies who have recieved blood transfusions. My daughter developed NEC after undergoing surgery for a major heart defect. She passed away at fifteen days old, NEC was a contributing factor to her passing.
my baby was a 27 weeker. She developed NEC at about 1.5 weeks old, she was a breast fed only baby.
parkerkayleiallie 7 months ago
@parkerkayleiallie she lost just over 2/3rds of her intestine
parkerkayleiallie 7 months ago
why was the small intestine connected to the skin? for circulation?
TheMuziekmann 8 months ago
I had this at 2 days old and 31 weeks gest. I'm 39 now. I had half my large intestine removed along with the valve between the small and large intestines. I have been fine with the exception of recurrent ileitis- thought to be because of the missing valve.
Nathan1097 10 months ago
dirty hospital
jetsamjetsam 10 months ago
This has been flagged as spam show
My daughter was born at 27 weeks and at 29 weeks she had to have surgery and lost over 2/3rds of her intestines. She was ONLY breast fed.
parkerkayleiallie 11 months ago
My daughter was born at 27 weeks and at 29 weeks she had to have surgery and lost over 2/3rds of her intestines. She was ONLY breast fed.
parkerkayleiallie 11 months ago
mi hijo tiene 14 años y tuvo enterocolitis necrotizante grado 3 + colectomia total , a los 3 dias de nacido gracias a Dios ha podido sobrevivir a esto, pero quiero mas informacion sobre el tratamiento pues en esta edad que tiene, es importante una buena dieta y un especialista
MsDaviduchiha 1 year ago
Comment removed
MsDaviduchiha 1 year ago
my daughter died of this last december 24, 2010... while her twin brother died last december 18,2010..... =(.. their death left a wound in my heart that will never be healed....and i can never recover from it...
cristysantome 1 year ago
@cristysantome man i really feel for you, i cant imagine what ur goin thru but if it helps, i'll definately pray 4 u. your babies are in heaven in peace now and im sure they were so haapy to have a caring mother like u xxxx
mchudi91 11 months ago
My grandson was born at 24 wks he devolope nec his stomach became so swollen and black the doc said there was nothing they could do but cont with the antibodies that night me and my daughter prayed and i laid hands on him the next day he had completely healed no trace at all the staff was in shock so do what ever you believe in and dont give up it aint over till its over
xxodus2012 1 year ago
@xxodus2012 that is truly a miracle....u need to spread this story around, show ppl to not give up hope. im so happy how things turned out 4 u and ur family xxx
mchudi91 11 months ago
@mchudi91 Thank you for that i actually posted up a music video on yt that his mother performed entitled 'my miracle baby' but i pulled it because of copyright concerns i will re-upload , it does a good job of conveying the msg.
xxodus2012 11 months ago
I wish u guys the best I was diagnosed from birth with NEC. I live with its secondary condition everyday of my life. Im 21 now. I wanted you to know not give up hope cause i am proof u can beat this.
Sesshoumaru42289 1 year ago
@Sesshoumaru42289 This comment really made my day! My cousin is suffering from this disease now. she just got a transplant this past friday! I would like to know what types of obstacles you have to phase now.
jenanoel12 11 months ago
My 24 day old baby son Liam died of this, it all happened within a 12 hour period. It's a horrible, destructive disease and the doctors don't know much about it. More research into it's prevention needs to be done.
Rest in peace Liam Oct 17, 2009 - Nov 11, 2009.
akimbocat123 2 years ago
@akimbocat123
So sorry, my daughter died of this as well. I wish the doctors knew more.
Cheyenne Elizabeth April 28th 2008 - May 27th 2008
Countrygirl81886 1 year ago
@Countrygirl81886 I'm so sorry to hear about Cheyenne. Lets hope that they continue to research and can rid the world of NEC.
akimbocat123 1 year ago
my son had nec several time he has had 3 operations on his bowel and several other operation he was in hospital for 8 months due to him not being able to thrive without total parental nutrition he is nearly one now and seems to be doing well!
lyndzee86 2 years ago
My daughter was diagnosed with NEC at 3 weeks of age she was not a premature baby thou, she is now 10 months old and fighting fit! MY HEART goes out to all those that have lost loved ones from this horrible illness! xx
shelly0283 2 years ago
my heart and prayers go out to all of of you, my son had NEC he was born march 1st 2007 and he recovered after two surgeries, he's had no problems since then and I praise God everyday that he made it . I feel the pain in my heart for any parent who's child had to suffer ,
tadowfromkc 2 years ago
my daughter had that
Nautical00mommy 2 years ago
my daughter had that also. i had twins at 32 weeks on june 4, 2009. they both passed. hope your baby is still doing good.
gititgurls08 2 years ago
my son has this and he will not be able to make it. He is 15 days old and just had surgery. THe Doc said there was to much damagae and did not have enough to do a tie in.
thai32usa 2 years ago
my daughter had that to. i had twins at 32 weeks june 4, 2009. they both passed
gititgurls08 2 years ago
My son is still in the hospital as of now. he was born on 26 July 2009. He's had 3 surgeries and still cannot have feedings. At first, doctors didn't think he would make it, but he's still fighting.
thai32usa 2 years ago
Poor little one. They deserve the very best for a good start in life, not a struggle.
123wendykins 2 years ago
This has been flagged as spam show
n 1908 a lady named sally rusa was in the woods looking for a dog until a ghost came and killed her so if ur reading this u will find a bloody body in your closet hanging there haunting you and will kill you and ur family and if u want to stop this just sends this to 6 videos in 30 mins or this will happen good luck!!!
THEIRONCLAYMAN 2 years ago
This has been flagged as spam show
n 1908 a lady named sally rusa was in the woods looking for a dog until a ghost came and killed her so if ur reading this u will find a bloody body in your closet hanging there haunting you and will kill you and ur family and if u want to stop this just sends this to 6 videos in 30 mins or this will happen good luck!!!
Bounzer88 2 years ago
Your baby is soo cute! I bet you are very dedicated to your son.
My son Jaydon was born september 4 2008 at 31 weeks and developed NEC about a week later. Im soo thankful for the NICU in Anchorage Alaska ( Providence Hospital) Jaydon first lost about 1/3 of his small intestine at his first surgery and was doing fine but about a month later when they went to reconect him, he had lost more. remaining was 1/3 of his small intes. thentheydecided2give him agtube.he isdoinggreat! He is alst home!:)
rachaelroberson20 3 years ago
my 10 day old nephew jsut died from this. sad to see a casket with a little baby inside being lowered into the ground. nec is a very serious. my brother was told that he would be taking his baby home in the next few days and on jan 17 he developed nec and was dead the next day. with in 12 hrs my nephew went from almost going home to the grave in 1 day. he was on life support.they removed it he moved for about a minute rested the next and then took one final breath. rip mason 1-7-09 to 1-17-09
rjakob 3 years ago
Wow, It's scary how fast something so serious can move so quick. I am sorry for your multiple losses.
LarpByCam 2 years ago
I have this too. im 19 yrs old now but if any of you have questions please do not hesistate to ask no matter how embarrassing.
Ive had an ileostomy, colostomy, durhumel procedure, short gut syndrome and golden staph. as well. am am at the moment (although since born)experiencing difficulties with diet among many other probs. but finding it REALLY difficult cos i cant go out and party with my friends or drink alcohol cos it has negative impact on my stomach. is anyone finding that with alcohol?
natthetubanut 3 years ago
i had that when i wuz born!
jue82vdl999 3 years ago
My daughter was a full term baby that was diagnosed with necortizing entercolitis, she is now 17 months old and already had 4 surgery's. She had all of her large intestines and her whole colon and part of her small intestines removed. She is now doing great for a short gut baby. When she came home when had to hook iv fluids to her central line at night, she has been off of TPN for awhile now. We don't no why this happen because usually this condition is in premature babies.
latinflair1979 3 years ago
I hope your little one is home and doing well. My daughter was born at 27 weeks (now 8 yrs. old) and developed NEC at 21 days old. She has short-bowel syndrome from the loss of much of her intestine, thankfully though not needing a transplant. NEC still has an unknown cause, but prematurity is the biggest risk factor. Zantac has also been thought to increase the risk of NEC. There have been babies that have been formula fed, breastfed, or neither one (on TPN, etc.) that have gotten NEC.
cattmeow2 3 years ago
I hope all is well with the beautiful baby :)
fivestring2 3 years ago 2
My boyfriend was diagnosed with this disease when he was born and the video taped the whole thing for our local hospital... he's now almost 18 years old and he has two scars (one from sergery and one from that bag on the side)and is living a healthy normal life.
jsrhwrd 4 years ago
I would like to know how this infant was fed. Generally only unnaturally fed babies will be afflicted with this.
fivestring2 4 years ago
I'm not a doctor. My opinion is only speculative, but I don't necessarily agree with you there. During the three months we spent in NICU I saw several cases of nec. In one case, there was one triplet who developed it while his two brothers were fine. Yes there was a small amount of formula given early on to supplement the natural breast milk. I don't feel like it was a contributing factor. There was a steroid injection given prior to the C-Section. That may be suspect as well.
ianjamesbeck 4 years ago
The physicians don't tell you that even one "formula" feed does irreversible damage to the digestive system. I have been working with infants and mothers for several years, I would urge any parent that intends on breastfeeding to insist the infant only be supplemented with human milk. There are several milk banks around the country. It can mean the difference between life and death.
fivestring2 4 years ago
this advice is pretty rediculous...youre basing your judgement on an single case. if formula or "non human" supplements were harmful then they wouldnt be on the market...and im not sure what kind of "work" you do with women and children.youre obviously not a nurse or doc otherwise you would have said so. i doubt you know your ass from 3rd base.
melonhead79 4 years ago
I am a CLC and an RN with 8 years of ongoing resarch into the effects of artificial feeding. Any person with minimal computer skills could locate the same information. The only reason there are supplementary foods is because the WIC program receives 21.6 billion tax-free dollars per year and Similac makers are donating $3 million buildings for the AAP and of course throwing lavish parties. So before you judge anyone else, do your own research.
fivestring2 3 years ago
my 5 year old daughter developed nec when she was born premature and i expressed my milk and she did not recieve formula milk!!! so this comment is not necessarily true. prem babies are fed by tubes which drs put in so if their hands are not 100% clean, germs can get to the intestines this way, i am not saying this causes it there are countless possibilties for the cause of nec!!
11spidergirly11 3 years ago
Necrotixing Enterocolitis can happen with any baby who is considered ill. Ones at higher risk are premies, transplant babies, heart babies, babies in nurseries where an, "outbreak has occured", and babies who have recieved blood transfusions. My daughter developed NEC after undergoing surgery for a major heart defect. She passed away at fifteen days old, NEC was a contributing factor to her passing.
AddiesMamma 4 years ago
Thank god for todays doctors and nurses hope baby is doing well.
jnmesf49 4 years ago