I just wanted to say I am praying for you guys and I know how you feel. My monther had Huntington's Chorea. She died when I was 9. I remember having to deal with that and caring for her at such a young age. It is hard. I also worry that my sister and I will get it. I know it is tough but just keep you faith and you can deal with anything. God bless you!
I'm doing a speech on Huntington's disease at my Community College to a full class who know nothing about it or who haven't even heard about it. (Don't even know I'm doing it, me and the Professor made the decision.) My mother has been a nurse for over 42 years and has been working on a nursing facility in NJ, only 2 in the state who take patients with Huntington's, and her facility has the most in the state. I visit them all the time. I will use this video in my speech. God bless your family <3
i have HD and i am a mommy of 3 girls who have not been tested my dad died with it in 2007 and i have 2 siblings not been tested . pray for all of you
my mom has huntingtons. i recently had a son, and luckily when i was pregnant i was tested and neither of us have been passed to disease. its almost like it tourtures me more than my mom.... :(
im 15 and i live each day with my dad as he is slowly dieing from HD and its sad to say but im glad he will die before me so he cant see me die from it if he saw me being tourtured by HD i dnt think he could forgive himself i pray for him and the thousands of others that have HD and their familys i pray for a cure each day and i pray for ppl to be more aware of HD
I will start research on Huntington's disease in graduate school this August, and I have been researching polyglutamine aggregation as an undergrad as well. I'm optimistic that a drug or gene therapy will be developed sometime in the near future, and seeing this young girl's struggle inspires me to work harder. It is unfortunate that the US is willing to give tax cuts to the wealthy and spend so much on defense when what we really need is more funding for disease research.
@sarge525 tax cuts to the wealthy? Dont be such an ahole..What kind of nonsense is this? This is a horrible disease and not the fault of the "wealthy".
@mgallant01 And you enjoy attacking straw men. I never said such a thing, but I doubt you'll be able to distinguish between the two. Nor do I expect you to have any kind of informed opinion on the state of research funding in today's climate. I agree it's a terrible disease, and the US should re-prioritize what we consider worthy of tax payer dollars. Troll elsewhere.
@mgallant01 Actually I'm not done. You know what pisses me off? Seeing brilliant scientists who research Huntington's not receive the funding they need to not only train future scientists in the fight against the disease but make contributions in the field now. Why? Because HD is not a hot topic in the field of neurodegeneration because of the relatively low number of people that are affected by the disease and the limited amount of funding available for new grant proposals. So fuck off.
@sarge525 No asslint. You are an idiot. Blaming rich people? They pay MORE than their share you ass canker sore. Faulting them for lack of funding? Stop being an anal fissure you idiot.
@mgallant01 Wow, you just reinforce my rebuttal even further with your inability to grasp the fallacy you are making. Where did I explicitly state that HD is the fault of rich people? The sad thing is I'm spending my time belittling you. Which is too easy and a waste of my time. So I'm done.
Why didn't the dad get himself fixed after the first child. He knew he was a carrier and still he kept producing more children. What a shame. He is selfish.
xxxAlphaxxx5...she didnt lose all her abilities at age 11 but yes she was completely dependant on others for all her care and needs and even when she could no longer speak or walk or use her hands ,age 12,she still found a way to share her needs and thoughts and she was still quite aware.
@xxxAlphaxxx5 she passed away 1 year ago at age 13..the young gal who made this film has now begun a similar battle it has been her wish for others to know about the kids with this disease and the whole reason she made the films she has!
her whole family has huntington's? isn't that statistically extremely unlucky?
alphafour 1 week ago
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I just wanted to say I am praying for you guys and I know how you feel. My monther had Huntington's Chorea. She died when I was 9. I remember having to deal with that and caring for her at such a young age. It is hard. I also worry that my sister and I will get it. I know it is tough but just keep you faith and you can deal with anything. God bless you!
kathvwhit 2 weeks ago
I'm doing a speech on Huntington's disease at my Community College to a full class who know nothing about it or who haven't even heard about it. (Don't even know I'm doing it, me and the Professor made the decision.) My mother has been a nurse for over 42 years and has been working on a nursing facility in NJ, only 2 in the state who take patients with Huntington's, and her facility has the most in the state. I visit them all the time. I will use this video in my speech. God bless your family <3
NevRav 1 month ago
OMG this video made me cry so hard! The commentary by the little girl along with the already sad music just really shook me to my core.
astardustparade 1 month ago
this made me cry keep staying strong
bluberry868 1 month ago
let evolution and natural selection take it's course and we won't have these type of dna diseases. eventually, huntingtons will wipe itself out.
miller6604 2 months ago
i have HD and i am a mommy of 3 girls who have not been tested my dad died with it in 2007 and i have 2 siblings not been tested . pray for all of you
melissapontremoli 3 months ago
my mom has huntingtons. i recently had a son, and luckily when i was pregnant i was tested and neither of us have been passed to disease. its almost like it tourtures me more than my mom.... :(
dupre240 5 months ago
im 15 and i live each day with my dad as he is slowly dieing from HD and its sad to say but im glad he will die before me so he cant see me die from it if he saw me being tourtured by HD i dnt think he could forgive himself i pray for him and the thousands of others that have HD and their familys i pray for a cure each day and i pray for ppl to be more aware of HD
aussiemax101 5 months ago
i am trying to use this as a power point for school and it keep telling me that this is blocked on certain sites.. Any idea's how to bypass this?
msmarniece 5 months ago
does she has juvenille HD?never seen juvenille HD ever,bless you
Bahamut347 5 months ago
I will start research on Huntington's disease in graduate school this August, and I have been researching polyglutamine aggregation as an undergrad as well. I'm optimistic that a drug or gene therapy will be developed sometime in the near future, and seeing this young girl's struggle inspires me to work harder. It is unfortunate that the US is willing to give tax cuts to the wealthy and spend so much on defense when what we really need is more funding for disease research.
sarge525 7 months ago 8
@sarge525 Thank you
SonofOxford 6 months ago
@sarge525 tax cuts to the wealthy? Dont be such an ahole..What kind of nonsense is this? This is a horrible disease and not the fault of the "wealthy".
mgallant01 1 month ago
@mgallant01 And you enjoy attacking straw men. I never said such a thing, but I doubt you'll be able to distinguish between the two. Nor do I expect you to have any kind of informed opinion on the state of research funding in today's climate. I agree it's a terrible disease, and the US should re-prioritize what we consider worthy of tax payer dollars. Troll elsewhere.
sarge525 1 month ago
@mgallant01 Actually I'm not done. You know what pisses me off? Seeing brilliant scientists who research Huntington's not receive the funding they need to not only train future scientists in the fight against the disease but make contributions in the field now. Why? Because HD is not a hot topic in the field of neurodegeneration because of the relatively low number of people that are affected by the disease and the limited amount of funding available for new grant proposals. So fuck off.
sarge525 1 month ago
@sarge525 No asslint. You are an idiot. Blaming rich people? They pay MORE than their share you ass canker sore. Faulting them for lack of funding? Stop being an anal fissure you idiot.
mgallant01 1 month ago
@mgallant01 Wow, you just reinforce my rebuttal even further with your inability to grasp the fallacy you are making. Where did I explicitly state that HD is the fault of rich people? The sad thing is I'm spending my time belittling you. Which is too easy and a waste of my time. So I'm done.
sarge525 1 month ago
@InternetILoveTeh yes she was he had no idea of the disease to worry about kids i miss you daddy <3
sabraelluver 7 months ago
Why didn't the dad get himself fixed after the first child. He knew he was a carrier and still he kept producing more children. What a shame. He is selfish.
zuniga6412 11 months ago
que pena cocnhetumaree por que tiene que pasarr estooooooooooooooooooooooooo
sidecmatu 1 year ago
@sidecmatu Tienes razon porque tiene que pasar eeeeeeeeeestooo. Queee penaaaaaaaaa
ceskauchiha 6 months ago
xxxAlphaxxx5...she didnt lose all her abilities at age 11 but yes she was completely dependant on others for all her care and needs and even when she could no longer speak or walk or use her hands ,age 12,she still found a way to share her needs and thoughts and she was still quite aware.
jym092000 1 year ago
@jym092000 Is this a genetic disease ?
xxxAlphaxxx5 1 year ago
@xxxAlphaxxx5 yes,... damned genetics...
tasmar555 8 months ago
She loses all her ability at age 11?
xxxAlphaxxx5 1 year ago
the saddest 4 minutes of life..may i know how she is now?
rinsedpie 1 year ago
@rinsedpie totally agree with you.Sad,How is she now?
xxxAlphaxxx5 1 year ago
@xxxAlphaxxx5 she passed away 1 year ago at age 13..the young gal who made this film has now begun a similar battle it has been her wish for others to know about the kids with this disease and the whole reason she made the films she has!
jym092000 1 year ago
Like, even though your brains are hosed, the folks at YouTube still killed your audio. Have they no compassion? How inhumane. So sad, babes!
pantyflash 1 year ago