only 3 years ago, when i was nine, i lost my mom from systematic sclermoderma. im only 13 and i have to take care of her for all my life, i knew something was wrong with her, i knew it wasn't good, then, only a year later after being diagnosed with fibromilasia, the doctors found out is was systematic sclermoderma, and then the day after, she died.
You have a beautiful film made about Scleroderma . My name is Xandra Dekker and I'm also Scleroderma patient. In the Netherlands is little information to find about Scleroderma. That's why I started a blog. Here I have put a lot of information about Scleroderma and your videos posted there. gelukkige-vlinder.50plusser.nl to find out all about Scleroderma on my weblog and everything I enjoy.
@kittywoman5309 ...I work at a salon, and one of my bosses clients have scleroderma. on her, the most obvious is with the hands, facial features second. I guess you would call it "onset" in the beginning, she thought she had arthritis that was becoming painful, and stiff. Somehow over the past few years, she'll put up xmas decorations outside, but now minimally so, since the cold is so painful to her now. I dont know how she does it! I believe that a relative of Bob Saget-comedian-had it, and a
@kittywoman5309 ....(cont)...a tv movie was aired some time back. It made people aware of the existence of scleroderma and how it affects the person, as well as family, friends, etc...educational, but so heartbreaking :(
only 3 years ago, when i was nine, i lost my mom from systematic sclermoderma. im only 13 and i have to take care of her for all my life, i knew something was wrong with her, i knew it wasn't good, then, only a year later after being diagnosed with fibromilasia, the doctors found out is was systematic sclermoderma, and then the day after, she died.
mint200903 2 months ago
there are two types of this disease right lethal and non lethal
semaj175 3 months ago
Scleroderma is a terrible disease as it is, but throw in some creepy music on your informational video why don't you? Sheesh
shalom1973 3 months ago
This has been flagged as spam show
You have a beautiful film made about Scleroderma . My name is Xandra Dekker and I'm also Scleroderma patient. In the Netherlands is little information to find about Scleroderma. That's why I started a blog. Here I have put a lot of information about Scleroderma and your videos posted there. gelukkige-vlinder.50plusser.nl to find out all about Scleroderma on my weblog and everything I enjoy.
Strength and greetings from Xandra
XandraDekker 7 months ago
Very well presented. thanks
DrMojo32 8 months ago
Comment removed
mpattonish 9 months ago
Maybe that chick has scleroderma? What a pitty you cant add1+1. I hope you never have a disease this horrible..
billsbulletsandbeans 11 months ago
lolz
limo3100 1 year ago
@limo3100 how is this funny?? sclermoderma is a verry painful desese and my mom died of it when i was nine from poisoning our water.
mint200903 4 months ago
What is that chick related on Scleroderma?
Vanenix 1 year ago
Yes I call mine "burning claw"!!People make fun of my typing,but do not realize how painfull this really is!!
kittywoman5309 1 year ago
@kittywoman5309 ...I work at a salon, and one of my bosses clients have scleroderma. on her, the most obvious is with the hands, facial features second. I guess you would call it "onset" in the beginning, she thought she had arthritis that was becoming painful, and stiff. Somehow over the past few years, she'll put up xmas decorations outside, but now minimally so, since the cold is so painful to her now. I dont know how she does it! I believe that a relative of Bob Saget-comedian-had it, and a
drkmtl38 10 months ago
@kittywoman5309 ....(cont)...a tv movie was aired some time back. It made people aware of the existence of scleroderma and how it affects the person, as well as family, friends, etc...educational, but so heartbreaking :(
drkmtl38 10 months ago