For those of you that want to understand more about this Genetic disorder..search the internet for a BBC special called " Can't Stop Eating" it explains in great detail the struggle these people face in everyday life. We sometimes mock things we don't understand..I think the movie should be shown in schools worldwide. Josh, you are a tough young man to battle and keep control of this disease. there are many people out there that know how hard you work to live with it, and we support you.
Nearly 19,000 appreciate you teaching about this Josh. Continue to educate and spread awareness. Very proud of you man, everyone supports you dude! Sean x
FOR THE IGNORANT: I studied this syndrome. Prada-willi syndrome is an uncontrolled appetite due to lesions in the ventromedial hypothalamus. Well, in other words --> the normal homeostatic regulation of body weight through the hunger drive is not working properly! There are several symptoms that effect these people with the syndrome - motivationally, physically, cognitively & hormonally. Hope you understand.
@VpOsiris You are the weak one here, I'm sure the problem you have is that a part of your brain is underdeveloped so therefore its unable to grow develop and learn new things, cavemen suffered with the same problems..this is a genetical disease and be careful as karma has a nasty habit of biting you in the ass..
Karma is bullshit invented by people to try and deter people from doing hurtful things to each other, just as religion is also bullshit to try and deter weak minded people from doing "evil".
Free your mind and stop believing everything you are told.
You have a right to exercise your own opinion use it.
So instead of trying to insult my intellect because you can't see my point of view review your own actions and think for yourself for a change.
@VpOsiris Your the ass here...how can u seriously believe that if someone sits on their backsides all day eating and getting fat will result in Dr`s making up some bullshit illness to allow them to carry on with their lifestyles?? I could never ever insult your intellect because as far as I can see..you have none! I have a genetic illness and believe me..they do exist!
@cassiesmum I know you point but im doing do it for not just everyone and im doing for the people that has pws. I know pws and i don't like you attitude.
@josh5555568 Jos...you have to read the comments again and maybe have you mum explain things to you. It wasn't me who made the nasty comments. I told someone off for having a nasty attitude. I myself have a genetic illness.
@cassiesmum im sorry i miss understanding and i know on the lines. i don't want to have a go at you but you shouldn't let anyone use your profile incase other people have the same situation. i want to believe you and i do but its very hard when it comes up with your name. thanks for telling me.
@VpOsiris Are you freaking serious?????? Educate yourself on this syndrome before speaking about something you know NOTHING about. How asinine can you be? This is NOT a bullshit disease. It is a genetic syndrome. My 2 year old daughter was born with this and it is a horrible syndrome that affects multiple body systems. Has nothing to do with being weak and lack of will power. Don't talk about things you don't know about. It is very hurtful.
@theprincesslexi1234 I do know and i know its a syndrome. you just don't get what i mean and it is as well as a diesase becuase its with you all live. i know its very hurtful and do you even care about it. in information its said genectic. see and im sorry.
@theprincesslexi1234 As for you seeming to think I'm creating a personal attack on the guy in this video you are sadly mislead.
All I'm doing is making a point of how pharmaceutical companies and doctors will look for any abnormality within a person and use it to sell their drugs claiming it will cure it.
Instead of letting your personal feelings cloud reasoning sit back and actually READ what I've put. I will not stoop to your level of making personal remarks.
@VpOsiris you need to be educated ( not to mention Bitch Slapped ) search the internet for a movie called "Can't Stop Eating " it may even be here on YouTube. Prader Willi affects only a trace amount of our population due to the fact that it is very, very rare. So VpOsiris - do us and yourself a favor and research this before you make comments that make you look like a complete Moron. Hope this helps you to become less ignorant about genetic disorders - and 1 more thing there is NO CURE for PWS
You are beautiful...no matter what they say and words shouldn't get you down. Don't listen to all those ignorant individuals out there. commend yourself for this video. It took a lot of courage to do this. Take care and live life to the fullest!!
Perhaps you could do a YouTube video about your teachers in and during high school years. I work with a PW student but this student is reluctant to talk. Perhaps you could share with the viewers what worked for you in high school.
Josh man... Just do your best dude I know it's hard too stop yourself from eating too much... I support you even if you don't even know me... Peace out and eventually you might finally break out off it... Miracles can happen bless you Josh... Always have faith
you don't nothing and you pathetic because you don't how many people suffer from the condition they are and how hard it is than any other person in world. so just careful on what you saying as peoplemay get affended about this.
My Bro has PWS and It gets hard to live with him but at the same time Im saying bad things about him (which I regret) I love Him and I give my full support to a cure and kids who have PWS
Josh, continue to do your best, day after day, one step at time.
The temper tantrums that people with Prader Willi syndrome exhibits are similar to mine, whereas I have "only" ADHD, Single Sided Deafness, sensory issues and a Maths LD (Learning Disability). So causes of tantrums are not the same.
For your appetite, I am sorry to be helpless, I have exactly the opposite problem (I feel full too quickly).
As we say in French, "do well and let people say". I know, much easier said than done :(
Hey man, I am here because I learned through a news paper that a person with the syndrome became a swimming champion (swam 3.2 kilometers) and I wanted to know what Prada-Willi is. Now that I know, all I can say is that you are an example that many should follow. An example of strength, life and overcoming obstacles. God be with you. Thank you.
I work in a group home setting assisting individuals with Prader-Willi syndrome. I think it's an extraordinary thing that you're going on youtube and talking about your experience living with this disorder, and I'm impressed with the quality of your video. I would be interested in hearing more from your perspective about living with PWS, and would encourage you to keep speaking out, and to be an advocate for yourself.
This video is amazing and so are you. Please don't let anyone discourage you! Do you think I can email you some time? I have a lot of questions, thanks Josh!
OH MY GOSHHH this video is amazing...YOU'RE AMAZING! I'm sorry you have this disease, but it's so great that you're sharing it with us...I had no idea what it was like</3 Oh and I think it's sooooooo cool that your British, you are British right? haha k, byeeee(:
OH MY GOSHHH this video is amazing...YOU'RE AMAZING! I'm sorry you have this disease, but it's so great that you're sharing it with us...I had no idea what it was like</3 Oh and I think it's sooooooo cool that your British, you are British right? haha k, byeeee(:
Thanks for sharing Josh. I'm currently in medical school studying to be a doctor and your video helped me gain a better understanding of this rare syndrome. I urge you to continue to share your knowledge with the rest of the world.
Josh, thanks for making this video. You're awesome and it sucks that you have to deal with this, but you seem pretty tough. Does it really make you feel like you are starving all the time? I wish they could invent a drug that would make your brain think you are full.
You are amazing. I loved the video and I'm so proud of you for making it. I would love to see more in the future if that is what you would like to do. Thank you again and know how much you are appreciated and loved.
Does your stomach growl all the time, or do you just feel like you want food all the time? You're very brave for putting this video online to talk to people about it. I hope you're doing well.
my 18 year old daughter has pws, i have just read all the comments on here and some people are unreal, yes it is a genetic disorder just like downs syndrome, guess that must be bullshit too hey, if these people making these nasty comments were anything but stupid pathetic prats they may just find a pair of brain cells to rub together!!!! idiots, love to you josh, very courageous thing to do xx
Thank you for posting this video honey. It is great that you are letting the world know what it is like having your condition. More people need to be more informed. Stand tall and confident against the ignorant people out there. Take care.
you are a inspiration josh!! i work with young adults with pws i love my job and have learnt so much. i wish you all the luck in the world, keep strong josh!! xx
Josh, no offense, but if girls kept calling you fatass, would you eat less and try to workout to become an alpha male? And when you become the alpha male, would you fuck them then dump them? Or would you marry one of them, even though they were being mean to you?
@josh5555568 You are young my dear son, You will realize women are selfish heartless creatures. They will steal your soul Josh. You need to be like, fuck I am fat, and workout then fuck some bitches, then LEAVE THEY ASS ON THE STREET. Or else you will be some standard ass white man that white women cheat on with guys like me.
He has delay in development, start to walk at 22 months old. Right now he can't talk yet.
About less than a week ago doctor told me that my boy have a Prader-Willi Syndrome. After searching in the internet I just found that all the symtom just match with my boy condition (small feet, low muscle, bone, light hair color, and hungger as well)
I curious about how PWS live after adult and so on
Hey Josh do you have an Email Address? I would love to talk to you.. my name is Vanessa I'm 21 years old & I Also have Prader Willi I have a hard time getting others to understand how I feel
& often feel the same way you do about wanting it to go away.. but I always remember it's part of who I am & I wouldn't be me without it Would Love to Email You if you do have an Email Thanks ~ Vanessa
Josh thank you so much for talking about your syndrome. Your amazing and an inspiration to many people. I am so proud of you for trying to live a healthy life style when its so hard for you to do it becuase of your syndrome. You are an extremely brave and stong person!!!!!
Josh thank you so much for talking about your syndrome. Your amazing and an inspiration to many people. I am so proud of you for trying to live a healthy life style when its so hard for you to do it becuase of your syndrome. You are an extremely brave and stong person!!!!!
Josh thank you so much for talking about your syndrome. Your amazing and an inspiration to many people. I am so proud of you for trying to live a healthy life style when its so hard for you to do it becuase of your syndrome. You are an extremely brave and stong person!!!!!
Josh thank you so much for talking about your syndrome. Your amazing and an inspiration to many people. I am so proud of you for trying to live a healthy life style when its so hard for you to do it becuase of your syndrome. You are an extremely brave and stong person!!!!!
Thank you for making this video Josh! :) my little cousin has PWS and she is turning 6 this year. She is so beautiful! Just like you. The hunger is hard, and sometimes she gets very upset and its heartbreaking to see her suffer with her emotions, but she is strong and so smart! God made you beautiful, and one day you will be in a place where your difficulties will not burden you anymore. You have a beautiful heart, God bless!
I'm glad you can teach people about your disorder. I wish you the best of luck with your future, and I hope you can keep up the good work on your videos as well. I like your birds.
@crannagio how cruel are you? these poor people cant control their eating habits, talking about and looking at food can make them lose control!! many have to have food CHAINED AWAY! UNDER LOCK AND KEY! my son was almost diagnosed with it and luckily doesnt have it! how would u like to b constantly hungry, and be disabled? i'm sure u wouldnt like it! give this poor kid a go! they dont have a cure and u r sooo heartless!
you are an amazing amazing person. Keep your head up, don't listen to such stupid and ignorant people. your stronger then them and you know that. Keep it up Josh, i admire you and your courage astonishes me.
I just learned about Prader-Willi syndrome in my class, but in class you just learn the name and the genetics behind it. I wanted to see what people living with this disease are like.
This is a terrific video and I am so glad you put it up! Your courage and strength astound me.
Ignore all those jerks who commented. Some people are completely ignorant!
Wow. I am a "normal" person but I admire you. You have an inner strength, courage and determination that can only dream of having. My problems don't involve food but I could overcome them easily if I had your lion's heart.
I wish you all the best and thank you for being a living inspiration to me and others as well I'm sure.
Thanks so much Josh, this is so sweet and encouraging. You are strong, and i tell you what, PWS has got just a little strenght compared to yours. you are being admired.
Hi, my son has Prader-Willi syndrome, you are simple well done!! I admire you, come to look our video about the son, to it 2 years of 8 months!!! I will be glad to communicate with you))) Natalia.
JOSH, YOU ROCK! I'm more than three times your age, but not half the man you are! I know why you can't be bothered by the ignorant haters. Because you're smarter and stronger than all of them put together! Hold tight, Lion! 'Nuf Respect.
Wow Josh. You have posted such an informative video. My sister has PW so I can understand everything you have told the world about. Well done. You are a smart young man!
Hey Josh your video was great keep up the good work buddy. My son has Prader-Willi Syndrome and I know how hard it is for you but just try your hardest to stay fit and healthy. I hope you can make another video soon and let us see how you are getting on. Please dont pay attention to the nasty comments people have left on here, they have no idea what it is like feeling hungry 24 hours a day 7 days a week. People like that will never go far in life. Thanks again for the video its great xxxx
thanks that made me cheer up and wonder why people are so caring to me. people that love me and who i am. really awsome that comment and thanks its mean so much to me so cheers.
kudos for posting this video. I admire your courage and strength through this disability. You look great and it looks like you are really taking care of yourself. Keep up the hard work. My prayers are with you.
This comment has received too many negative votesshow
fake ass disease you fat fucks piss me off you need to shut the fuck up and quit blaming your fat retarded ass on some bullshit disease i bet your mother is a liberal
what a horrible thing to say about something you all know nothing about. Prader-willi syndrome is a real genetic disease occuring on chromosome 15. It is very well documented, and can be tested for. How would you like it if your hypothalamus wasn't working properly and sent signals to your brain making you feel like you were starving to death all the time? This young boy probably has more will power than any of you will ever know. Shame on you for your comments, and good for him for his courage.
This comment has received too many negative votesshow
prada willi is a load of bullshit. This type of thing didn't happen 50 years ago when food wasn't in abundance, so clearly it's a modern invention given a name by some fancy psychologist out to make a name for himself.
Stop eating you greedy fat fuck and go do some exercise. God knows you need it.
You're an asshole. Prader-Willi Syndrome is real, my son has it, and its people like you who should be so unfortunate to be afflicted with the disorder.
"people like you who be so unfortunate to be afflicted with the disorder"?
That doesn't even make any sense: tell me has your son's prada-willi syndrome resulted in him eating all the fish in your household, thus depriving your brain from much needed brain-food?
Wow, I can't believe people like you can be so mean. Seriously, you're going to burn in hell. My son has PW if you were saying this crap to him, I'd hunt you down, and I'd hurt you, badly.
My son is four months old, He was diagnosed two months ago. He is beautiful a total angel. You are an inspiration. As others said you look great. Best of luck, keep strong x
this is a good video you have made and im glad that you had made it, because it raises awareness about pw syndrome. from your point of view - well done josh and i hope you have have a bright and happy future -)
Hope things are going good for you. My son has Prader Willi Syndrome he will be 2 in June! I am so proud of him, he is the light of my life and he has a smile that melts my heart! Keep up the good work you look great!
i am not saying that you dont have it i really believe you . I think you are in pretty good shape for having Prader Willi syndrome. keep it up. i think you are a trooper. as i said before, keep it up.
For those of you that want to understand more about this Genetic disorder..search the internet for a BBC special called " Can't Stop Eating" it explains in great detail the struggle these people face in everyday life. We sometimes mock things we don't understand..I think the movie should be shown in schools worldwide. Josh, you are a tough young man to battle and keep control of this disease. there are many people out there that know how hard you work to live with it, and we support you.
Offskew 2 days ago
thank you. you are courageous and amazing. incredible
dmbball15 1 week ago
@dmbball15 thanks
josh5555568 3 days ago
Why do you have a doll house in your room? lol
pepsiturtle22 2 weeks ago
@pepsiturtle22 My mums a dolls house and she makes things lol
josh5555568 2 weeks ago
Nearly 19,000 appreciate you teaching about this Josh. Continue to educate and spread awareness. Very proud of you man, everyone supports you dude! Sean x
ClaytonSummersville 1 month ago
@ClaytonSummersville Thanks sean
josh5555568 1 month ago
Proud of you josh love grace x
ClaytonSummersville 1 month ago
@ClaytonSummersville Thanks grace and i will carry on what i do best and have success.
josh5555568 1 month ago
And good for you Josh! You are one confident individual to speak publically about your syndrome :]
GodReignsInMe 2 months ago
@GodReignsInMe thanks and that grown my confidents even more
josh5555568 2 months ago
@josh5555568 It should! Don't let society dictate who you are; because everyone is unique. Embrace it.
GodReignsInMe 2 months ago
FOR THE IGNORANT: I studied this syndrome. Prada-willi syndrome is an uncontrolled appetite due to lesions in the ventromedial hypothalamus. Well, in other words --> the normal homeostatic regulation of body weight through the hunger drive is not working properly! There are several symptoms that effect these people with the syndrome - motivationally, physically, cognitively & hormonally. Hope you understand.
This is a good revision for my studies, haha :]
MAIN POINT: Don't judge others.
GodReignsInMe 2 months ago 5
@GodReignsInMe thanks and now i learn more. hope you studies are going well
josh5555568 2 months ago
If anyone doesnt excercise and eats out of boredom because theyre weak minded and cant control themselves they will get fat.
It's a fact of life.
Fucking Dr's diagnosing people with bullshit diseases just because someone doesnt fit in with the "normal" persons manorisms.
VpOsiris 2 months ago
@VpOsiris You are the weak one here, I'm sure the problem you have is that a part of your brain is underdeveloped so therefore its unable to grow develop and learn new things, cavemen suffered with the same problems..this is a genetical disease and be careful as karma has a nasty habit of biting you in the ass..
cassiesmum 2 months ago
@cassiesmum what are on about you are sad and you don't know anything about this
josh5555568 2 months ago
@josh5555568 I know you have a disability, and I bear that in mind when replying to you...but Im not addressing you in my postings.
cassiesmum 2 months ago
@cassiesmum Wrong I just have strong beliefs.
Karma is bullshit invented by people to try and deter people from doing hurtful things to each other, just as religion is also bullshit to try and deter weak minded people from doing "evil".
Free your mind and stop believing everything you are told.
You have a right to exercise your own opinion use it.
So instead of trying to insult my intellect because you can't see my point of view review your own actions and think for yourself for a change.
VpOsiris 1 month ago
@VpOsiris Your the ass here...how can u seriously believe that if someone sits on their backsides all day eating and getting fat will result in Dr`s making up some bullshit illness to allow them to carry on with their lifestyles?? I could never ever insult your intellect because as far as I can see..you have none! I have a genetic illness and believe me..they do exist!
cassiesmum 1 month ago
@cassiesmum I know you point but im doing do it for not just everyone and im doing for the people that has pws. I know pws and i don't like you attitude.
josh5555568 2 weeks ago
@josh5555568 Jos...you have to read the comments again and maybe have you mum explain things to you. It wasn't me who made the nasty comments. I told someone off for having a nasty attitude. I myself have a genetic illness.
cassiesmum 2 weeks ago
@cassiesmum im sorry i miss understanding and i know on the lines. i don't want to have a go at you but you shouldn't let anyone use your profile incase other people have the same situation. i want to believe you and i do but its very hard when it comes up with your name. thanks for telling me.
josh5555568 2 weeks ago
@josh5555568 *Josh*
cassiesmum 2 weeks ago
Comment removed
VpOsiris 1 week ago
@VpOsiris just just think what you are saying and think about how many people have lost lives because of this.
josh5555568 2 weeks ago
@VpOsiris Are you freaking serious?????? Educate yourself on this syndrome before speaking about something you know NOTHING about. How asinine can you be? This is NOT a bullshit disease. It is a genetic syndrome. My 2 year old daughter was born with this and it is a horrible syndrome that affects multiple body systems. Has nothing to do with being weak and lack of will power. Don't talk about things you don't know about. It is very hurtful.
theprincesslexi1234 1 month ago
@theprincesslexi1234 I do know and i know its a syndrome. you just don't get what i mean and it is as well as a diesase becuase its with you all live. i know its very hurtful and do you even care about it. in information its said genectic. see and im sorry.
josh5555568 1 month ago
@theprincesslexi1234 As for you seeming to think I'm creating a personal attack on the guy in this video you are sadly mislead.
All I'm doing is making a point of how pharmaceutical companies and doctors will look for any abnormality within a person and use it to sell their drugs claiming it will cure it.
Instead of letting your personal feelings cloud reasoning sit back and actually READ what I've put. I will not stoop to your level of making personal remarks.
VpOsiris 1 month ago
@VpOsiris you need to be educated ( not to mention Bitch Slapped ) search the internet for a movie called "Can't Stop Eating " it may even be here on YouTube. Prader Willi affects only a trace amount of our population due to the fact that it is very, very rare. So VpOsiris - do us and yourself a favor and research this before you make comments that make you look like a complete Moron. Hope this helps you to become less ignorant about genetic disorders - and 1 more thing there is NO CURE for PWS
Offskew 2 days ago
You are beautiful...no matter what they say and words shouldn't get you down. Don't listen to all those ignorant individuals out there. commend yourself for this video. It took a lot of courage to do this. Take care and live life to the fullest!!
multikyari 4 months ago
Keep up the great videos. Thanks
clobster71 4 months ago
Perhaps you could do a YouTube video about your teachers in and during high school years. I work with a PW student but this student is reluctant to talk. Perhaps you could share with the viewers what worked for you in high school.
clobster71 4 months ago
Good job buddy.
clobster71 4 months ago
Are you good at doing puzzles? I read that puzzle solving is often a strength for Prader Willi Syndrome.
Abnormaldiversity 5 months ago
Josh man... Just do your best dude I know it's hard too stop yourself from eating too much... I support you even if you don't even know me... Peace out and eventually you might finally break out off it... Miracles can happen bless you Josh... Always have faith
maxellaz 5 months ago
Actually, it's a genetic disorder. Now go eat an armchair and choke on the staples.
ericlynch1975 5 months ago
you don't nothing and you pathetic because you don't how many people suffer from the condition they are and how hard it is than any other person in world. so just careful on what you saying as peoplemay get affended about this.
josh5555568 5 months ago
@josh5555568 Perhaps you should start the 5th grade over, because that didn't make any sense whatsoever.
ericlynch1975 5 months ago
@ericlynch1975 just be careful what you say and you don't know anything and you pathetic as you don't this condition is bad.
josh5555568 5 months ago
@ericlynch1975 Seriously your going to be that ignorant you sick fuck my older brother happens to have it:/
skatemehard23 4 months ago
i've got ganja willi syndrome. whenever there's weed in my sight, I can't stop myself from smoking it
jimmyshitbags 5 months ago
My Bro has PWS and It gets hard to live with him but at the same time Im saying bad things about him (which I regret) I love Him and I give my full support to a cure and kids who have PWS
fusionfallfan1 5 months ago
Josh, continue to do your best, day after day, one step at time.
The temper tantrums that people with Prader Willi syndrome exhibits are similar to mine, whereas I have "only" ADHD, Single Sided Deafness, sensory issues and a Maths LD (Learning Disability). So causes of tantrums are not the same.
For your appetite, I am sorry to be helpless, I have exactly the opposite problem (I feel full too quickly).
As we say in French, "do well and let people say". I know, much easier said than done :(
giulia271 8 months ago
@giulia271 i feel when i know i eaten too much but i just want loose weight but im thinking what shall i do but i hate having this condition
josh5555568 7 months ago
@josh5555568 I didn't say the contrary !! :) I just said that I have the exactly opposite problem : I sometimes don't eat enough.
Unfortunately, I have no idea on how can I help you for the appetite problem, as I am in the opposite situation.
That's all : relax Max as we say in France ;)
giulia271 7 months ago
Hey man, I am here because I learned through a news paper that a person with the syndrome became a swimming champion (swam 3.2 kilometers) and I wanted to know what Prada-Willi is. Now that I know, all I can say is that you are an example that many should follow. An example of strength, life and overcoming obstacles. God be with you. Thank you.
chriswonderboy 10 months ago
I work in a group home setting assisting individuals with Prader-Willi syndrome. I think it's an extraordinary thing that you're going on youtube and talking about your experience living with this disorder, and I'm impressed with the quality of your video. I would be interested in hearing more from your perspective about living with PWS, and would encourage you to keep speaking out, and to be an advocate for yourself.
Mistraker 11 months ago
@Mistraker thanks
josh5555568 11 months ago
Thanks for responding so quickly!! You can email me at: sandyyybabyyy@yahoo.com ...I would love to talk to you thanks Josh!
sandyyybabyyy69 11 months ago
This video is amazing and so are you. Please don't let anyone discourage you! Do you think I can email you some time? I have a lot of questions, thanks Josh!
sandyyybabyyy69 1 year ago
@sandyyybabyyy69 hey thanks that u think im amazing i really appeciate that and yes u can email me when ever you like and look forward hearing you
josh5555568 11 months ago
This has been flagged as spam show
OH MY GOSHHH this video is amazing...YOU'RE AMAZING! I'm sorry you have this disease, but it's so great that you're sharing it with us...I had no idea what it was like</3 Oh and I think it's sooooooo cool that your British, you are British right? haha k, byeeee(:
sandylovesyou123 1 year ago
OH MY GOSHHH this video is amazing...YOU'RE AMAZING! I'm sorry you have this disease, but it's so great that you're sharing it with us...I had no idea what it was like</3 Oh and I think it's sooooooo cool that your British, you are British right? haha k, byeeee(:
sandylovesyou123 1 year ago
@sandylovesyou123 thanks and ikm suprised this video is popular and yes i am brittish.
josh5555568 1 year ago
Josh, Well done on this video its a fantastic video which is one of few that have not had degrading comments on.
Like Josh we have care homes for PWS and advice anyone if they want to talk or advice please feel free to discuss Hathaway Care Home UK
People like Josh need support and advice along with the families we should all be there to help
Well done Josh you are a star in the making
kellywalker0708 1 year ago
THANKS SO MUCH AND I LOOK INTO THAT
josh5555568 1 year ago
Thanks for sharing Josh. I'm currently in medical school studying to be a doctor and your video helped me gain a better understanding of this rare syndrome. I urge you to continue to share your knowledge with the rest of the world.
Boardinbry 1 year ago
THANKS
josh5555568 1 year ago
Josh, thanks for making this video. You're awesome and it sucks that you have to deal with this, but you seem pretty tough. Does it really make you feel like you are starving all the time? I wish they could invent a drug that would make your brain think you are full.
dbohls 1 year ago
NOT ALL THE TIME
josh5555568 1 year ago
You are amazing. I loved the video and I'm so proud of you for making it. I would love to see more in the future if that is what you would like to do. Thank you again and know how much you are appreciated and loved.
lynnlaswell 1 year ago
YEAH I WOULD THANKS
josh5555568 1 year ago
I NORMALLY TAKE THE PISS BUT I THINK UVE HAD ENOUGH FAIR PLAY M8 HOPE U WILL LIVE TO SEE 30
kinganthony1984 1 year ago
STOP IT
josh5555568 1 year ago
Josh you're very smart and taught me a lot about Prader Willi, thank you! You look healthy and just need to keep it up!
michaelphillips6 1 year ago
thanks very much
josh5555568 1 year ago
Thank you for teaching us to understand our grandson who has the same syndrome.
Maria
patriciapuga 1 year ago
thats ok and i hope he can cope with it
josh5555568 1 year ago
You seem high-functioning, try to control the cravings and keep your head up high. Theres something wrong with everybody ya know.
be4realyo 1 year ago
thanks
josh5555568 1 year ago
Does your stomach growl all the time, or do you just feel like you want food all the time? You're very brave for putting this video online to talk to people about it. I hope you're doing well.
Rubystars1000 1 year ago
sometime it does but when i have a lot and it makes me stop as i felt its too much iside for my body to cope
josh5555568 1 year ago
My littlesister has PWS
sasa11698 1 year ago
oh really
josh5555568 1 year ago
my 18 year old daughter has pws, i have just read all the comments on here and some people are unreal, yes it is a genetic disorder just like downs syndrome, guess that must be bullshit too hey, if these people making these nasty comments were anything but stupid pathetic prats they may just find a pair of brain cells to rub together!!!! idiots, love to you josh, very courageous thing to do xx
l00pylise 1 year ago
thanks
josh5555568 1 year ago
Thank you for posting this video honey. It is great that you are letting the world know what it is like having your condition. More people need to be more informed. Stand tall and confident against the ignorant people out there. Take care.
normaad 1 year ago
yep
josh5555568 1 year ago
you are a inspiration josh!! i work with young adults with pws i love my job and have learnt so much. i wish you all the luck in the world, keep strong josh!! xx
clairey2kuk 1 year ago
thanks so much i never knew that
josh5555568 1 year ago
Josh, no offense, but if girls kept calling you fatass, would you eat less and try to workout to become an alpha male? And when you become the alpha male, would you fuck them then dump them? Or would you marry one of them, even though they were being mean to you?
bosboz 1 year ago
sorry but thats personal and i would not dump any girl because its wrong
josh5555568 1 year ago
@josh5555568 You are young my dear son, You will realize women are selfish heartless creatures. They will steal your soul Josh. You need to be like, fuck I am fat, and workout then fuck some bitches, then LEAVE THEY ASS ON THE STREET. Or else you will be some standard ass white man that white women cheat on with guys like me.
bosboz 1 year ago
soory but i don't dump woman for wrong reason because its horrible and cruel
josh5555568 1 year ago
You're very courageous. stay strong
mawiebie 1 year ago
Hi Josh, I had a boy 2 years and 8 months old.
He has delay in development, start to walk at 22 months old. Right now he can't talk yet.
About less than a week ago doctor told me that my boy have a Prader-Willi Syndrome. After searching in the internet I just found that all the symtom just match with my boy condition (small feet, low muscle, bone, light hair color, and hungger as well)
I curious about how PWS live after adult and so on
Thx for this
I'm in Indonesia, excuse about my english
singachu 1 year ago
im sorry to hear that and if you need speak to me if you worried about you can always talk to me
josh5555568 1 year ago
Hello! thank you for making this video, helped me in preparation for my exam and made it more bearable :) Be strong!
22Altaira 1 year ago
i want to be your friend, John.
tekubus 1 year ago
Hey Josh do you have an Email Address? I would love to talk to you.. my name is Vanessa I'm 21 years old & I Also have Prader Willi I have a hard time getting others to understand how I feel
& often feel the same way you do about wanting it to go away.. but I always remember it's part of who I am & I wouldn't be me without it Would Love to Email You if you do have an Email Thanks ~ Vanessa
Princess09843 1 year ago
@Princess09843 its butler-puppy@hotmail.co.uk. you are welcome to speak to me and i would like to hear your thoughts
josh5555568 1 year ago
Josh thank you so much for talking about your syndrome. Your amazing and an inspiration to many people. I am so proud of you for trying to live a healthy life style when its so hard for you to do it becuase of your syndrome. You are an extremely brave and stong person!!!!!
kdh98901 1 year ago
This has been flagged as spam show
Josh thank you so much for talking about your syndrome. Your amazing and an inspiration to many people. I am so proud of you for trying to live a healthy life style when its so hard for you to do it becuase of your syndrome. You are an extremely brave and stong person!!!!!
kdh98901 1 year ago
This has been flagged as spam show
Josh thank you so much for talking about your syndrome. Your amazing and an inspiration to many people. I am so proud of you for trying to live a healthy life style when its so hard for you to do it becuase of your syndrome. You are an extremely brave and stong person!!!!!
kdh98901 1 year ago
Josh thank you so much for talking about your syndrome. Your amazing and an inspiration to many people. I am so proud of you for trying to live a healthy life style when its so hard for you to do it becuase of your syndrome. You are an extremely brave and stong person!!!!!
kdh98901 1 year ago 2
thanks
josh5555568 1 year ago
Thank you for making this video Josh! :) my little cousin has PWS and she is turning 6 this year. She is so beautiful! Just like you. The hunger is hard, and sometimes she gets very upset and its heartbreaking to see her suffer with her emotions, but she is strong and so smart! God made you beautiful, and one day you will be in a place where your difficulties will not burden you anymore. You have a beautiful heart, God bless!
meanderingmind89 1 year ago
im really sorry she confirmed she had the thing
josh5555568 1 year ago
hey Josh good video I also have PWS i was dignosise when I was 13 days old
56785439 1 year ago
I'm glad you can teach people about your disorder. I wish you the best of luck with your future, and I hope you can keep up the good work on your videos as well. I like your birds.
oyeahimsocool 1 year ago
PWS? I think your lucky to be alive! I saw a kid with that in a hostipal and he was dying :(
ciklprr 1 year ago
Great video josh! thank you for helping to educate people about this genetic disorder. you are an inspiration!
rritcey 1 year ago 2
thanks
josh5555568 1 year ago
N THAT !
crannagio 1 year ago
what do you mean
josh5555568 1 year ago
@crannagio how cruel are you? these poor people cant control their eating habits, talking about and looking at food can make them lose control!! many have to have food CHAINED AWAY! UNDER LOCK AND KEY! my son was almost diagnosed with it and luckily doesnt have it! how would u like to b constantly hungry, and be disabled? i'm sure u wouldnt like it! give this poor kid a go! they dont have a cure and u r sooo heartless!
fibee1380 1 year ago
@fibee1380 Josh is awesome, he will fight through this, show respect to him, I am hungry all the time... cos I need to get bigger and stronger !
crannagio 1 year ago
@crannagio i hope for ur sake that u can keep the will to soldier on, i can sympathise with u totally
fibee1380 1 year ago
hi! nice video don't worry prader willi is isn't your fault. i also have prader-wiilli
nauya 2 years ago 7
i want it to go away but there is no cure to it
josh5555568 1 year ago
I KNOW
josh5555568 1 year ago
I think you are amazing,you go josh
sallyyoungman 2 years ago
thankyou so much
josh5555568 2 years ago
you are an amazing amazing person. Keep your head up, don't listen to such stupid and ignorant people. your stronger then them and you know that. Keep it up Josh, i admire you and your courage astonishes me.
alecwilson09 2 years ago
thanks you very much for comment and yeah they just put stupid comment on to make them feel big
josh5555568 2 years ago
if you run into joe blackburn tell that bastard he owes me a pork pie.
sidchimaera 2 years ago
oh ok
josh5555568 2 years ago
I just learned about Prader-Willi syndrome in my class, but in class you just learn the name and the genetics behind it. I wanted to see what people living with this disease are like.
This is a terrific video and I am so glad you put it up! Your courage and strength astound me.
Ignore all those jerks who commented. Some people are completely ignorant!
Elvishswimmer 2 years ago 11
thats very useful so thank you
josh5555568 2 years ago
OK
josh5555568 1 year ago
Wow. I am a "normal" person but I admire you. You have an inner strength, courage and determination that can only dream of having. My problems don't involve food but I could overcome them easily if I had your lion's heart.
I wish you all the best and thank you for being a living inspiration to me and others as well I'm sure.
1acroyear1 2 years ago
thanks i was thilled to hear that
josh5555568 2 years ago
Thanks so much Josh, this is so sweet and encouraging. You are strong, and i tell you what, PWS has got just a little strenght compared to yours. you are being admired.
TheVmad 2 years ago
thanks so much to you too and you a kind person you do know that.
josh5555568 2 years ago
whats a disabilly?
Bangandurded 2 years ago
good question
josh5555568 2 years ago
Hey Josh,
Great job! Forget about the immature people; they aren't worth your time.
Thanks!
doctvedi 2 years ago
i will do and thatnks. i really appreciate and thanks for the support.
josh5555568 2 years ago
Hi, Josh. I want to tell you that you're very smart and brave to tell people about Prader-Willi Syndrome. You did a great job!
I know things are hard for you sometimes, but you keep on making good choices. You're off to a great start! :)
Christycat35 2 years ago
thanks for that and made me happy boy.
josh5555568 2 years ago
Hi, my son has Prader-Willi syndrome, you are simple well done!! I admire you, come to look our video about the son, to it 2 years of 8 months!!! I will be glad to communicate with you))) Natalia.
Excuse for bad English, we from Russia.
gagosha33 2 years ago
thats ok
josh5555568 2 years ago
JOSH, YOU ROCK! I'm more than three times your age, but not half the man you are! I know why you can't be bothered by the ignorant haters. Because you're smarter and stronger than all of them put together! Hold tight, Lion! 'Nuf Respect.
hottafyah 2 years ago
thanks
josh5555568 2 years ago
oh im sorry to hear that dude
PkDramatic 2 years ago
thats ok and im upset some time trying to say i wish i never had this
josh5555568 2 years ago
Wow Josh. You have posted such an informative video. My sister has PW so I can understand everything you have told the world about. Well done. You are a smart young man!
samschlag 2 years ago
thanks you so much and you swine flu is going round do you need to take a vaccination because you a pws and you have this system in the immune.
josh5555568 2 years ago
Hey Josh your video was great keep up the good work buddy. My son has Prader-Willi Syndrome and I know how hard it is for you but just try your hardest to stay fit and healthy. I hope you can make another video soon and let us see how you are getting on. Please dont pay attention to the nasty comments people have left on here, they have no idea what it is like feeling hungry 24 hours a day 7 days a week. People like that will never go far in life. Thanks again for the video its great xxxx
fizwizpop 2 years ago
thanks that made me cheer up and wonder why people are so caring to me. people that love me and who i am. really awsome that comment and thanks its mean so much to me so cheers.
josh5555568 2 years ago
kudos for posting this video. I admire your courage and strength through this disability. You look great and it looks like you are really taking care of yourself. Keep up the hard work. My prayers are with you.
tess516 2 years ago
thanks and and i don't feel like inside also want a diffrent person
josh5555568 2 years ago
well done josh, keep going your doing great x
hexagoncardigan 2 years ago
thanks
josh5555568 2 years ago
I was reading some of the comments on here, and some people have nothing better to do than put other people down and their pathetic sorry people.
bishopjulia 2 years ago
thanks
josh5555568 2 years ago
thank you josh. You have alot to deal with and that takes alot of strenth.
bishopjulia 2 years ago
thats ok and yeah it does
josh5555568 2 years ago
This comment has received too many negative votes show
fake ass disease you fat fucks piss me off you need to shut the fuck up and quit blaming your fat retarded ass on some bullshit disease i bet your mother is a liberal
iwasnt76 2 years ago
don't talk about my mum about that
josh5555568 2 years ago
This comment has received too many negative votes show
lolololol josh you are a fat retard
HURRDURRDERPDERP 2 years ago
shut you and load of bollocks.
josh5555568 2 years ago
what a horrible thing to say about something you all know nothing about. Prader-willi syndrome is a real genetic disease occuring on chromosome 15. It is very well documented, and can be tested for. How would you like it if your hypothalamus wasn't working properly and sent signals to your brain making you feel like you were starving to death all the time? This young boy probably has more will power than any of you will ever know. Shame on you for your comments, and good for him for his courage.
alinmu33 2 years ago
haha funny
josh5555568 2 years ago
This comment has received too many negative votes show
prada willi is a load of bullshit. This type of thing didn't happen 50 years ago when food wasn't in abundance, so clearly it's a modern invention given a name by some fancy psychologist out to make a name for himself.
Stop eating you greedy fat fuck and go do some exercise. God knows you need it.
Don't you want to have sex with pretty girls?
xxeternalbeautyxx 2 years ago
stop being silly
josh5555568 2 years ago
@xxeternalbeautyxx ,
You're an asshole. Prader-Willi Syndrome is real, my son has it, and its people like you who should be so unfortunate to be afflicted with the disorder.
chelsea199713 1 year ago
@chelsea199713
"people like you who be so unfortunate to be afflicted with the disorder"?
That doesn't even make any sense: tell me has your son's prada-willi syndrome resulted in him eating all the fish in your household, thus depriving your brain from much needed brain-food?
xxeternalbeautyxx 1 year ago
lulz
you fat cunt
go eat a salad or three
HURRDURRDERPDERP 2 years ago
shut up and im carefull
josh5555568 2 years ago
@HURRDURRDERPDERP
Wow, I can't believe people like you can be so mean. Seriously, you're going to burn in hell. My son has PW if you were saying this crap to him, I'd hunt you down, and I'd hurt you, badly.
chelsea199713 1 year ago
I've only ever seen english people with this disorder. What's up with that?
TryforApples 2 years ago
i think what's "up" with that is you haven't looked at any country other than England. idiot.
porlorlorl 2 years ago
yes i have dougnot
josh5555568 2 years ago
wat?
TryforApples 2 years ago
its where you can't stop eating
josh5555568 2 years ago
My son is four months old, He was diagnosed two months ago. He is beautiful a total angel. You are an inspiration. As others said you look great. Best of luck, keep strong x
TheSabrinabrowne 2 years ago
thanks and im sorry to hear that but hope he keeps well like me.
josh5555568 2 years ago
are you craving sugary sweets and unhealthy things?
or could you just things liek fruits and veggies?
caboose5277 2 years ago
no and iam carefull but if i have a really stressfull day im a pig
josh5555568 2 years ago
maybe one day they will find a cure and they will be able to cure u i dont kno but i hope they do =)
palkia32dialga23 2 years ago
i hope they do as i don't want to be in this mess
josh5555568 2 years ago
this is a good video you have made and im glad that you had made it, because it raises awareness about pw syndrome. from your point of view - well done josh and i hope you have have a bright and happy future -)
PCJoejoe 2 years ago
thanks very much and yeah i hope so
josh5555568 2 years ago
Hope things are going good for you. My son has Prader Willi Syndrome he will be 2 in June! I am so proud of him, he is the light of my life and he has a smile that melts my heart! Keep up the good work you look great!
praderwillimomof1 2 years ago
good luck to him and things are alright at the momment but i want to be a different person
josh5555568 2 years ago
i am not saying that you dont have it i really believe you . I think you are in pretty good shape for having Prader Willi syndrome. keep it up. i think you are a trooper. as i said before, keep it up.
pokeruler100 2 years ago
okaii and thanks
josh5555568 2 years ago