Added: 3 years ago
From: loishack
Views: 17,810
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  • God Bless her :)

  • found out a month ago that my daughter has rett's

  • She's such an adorable girl, I am writing something that involves a character with RS and I was just searching for videos to watch to get an idea of what I'm talking about. But thank you for posting this

  • she so cute

  • have you thought abput getting her a dynavox communiation device

  • Can you give me some news Of Mona please?

  • i think she has cerebral palsy

  • Such a beautiful little girl!!

  • sweet baby. She smiled the whole time <3

  • She is a beautiful little girl, and you do extremely well with her. As a parent with a special needs child I know it can be very trying to feel like you're parenting these kids correctly. She is so happy, and very responsive to you. I love the video, and hope she is doing well. You all are in my prayers.

  • I messaged her mom a while ago and she replied yesterday. She told me Mona had to get a G-tube put in back in January and her scoliosis is starting. She will find out in a few months where they are at with it and what they need to do.

  • Thank you.

    Currently, Mona's scoliosis is getting worse so we have an appt in the orthopedics clinic in the next couple of weeks. Most likely Mona will need surgery to correct her scoliosis. I will update after the appointment to let you guys know what's going on. Thank you you guys. :-)

  • Mona is a beautiful child. Everything she has, my Vanessa had from a young age also. I see the beauty in Mona that I see in my angel. You sound like the perfect mother also. Thank you for sharing. :-) Hugs to (((((((Mona)))))))))

  • u have a really gorgous girl,all she's doing suits her angel face,sooo adorable and cute,may god give u new strength every new day

  • Thank you so much. She is the sweetest girl. Thanks for watching my video of my lil Miss Momo!!

  • i love you mona! i miss you every day.

    love lots,

    -auntie darla

  • Thank you for posting this. Mona is a beautiful little girl who really responds to your voice and interactions! You seem like a wonderful mother.

  • she's beautiful

  • I love this video!! She is adorable!! Thank you for posting it. I posted a video about my dog Lilly who believe has autism.

  • Mona is just beautiful and so happy. :) Thank you for sharing.

  • She is adorable and so happy! What a beautiful little girl. :)

  • She looks like my niece and sounds the same, she is so cute, my niece also has Rett Syndrome and is 8 now. We have noticed that when she is alone she doesnt use her hands that much but when we are beside her she uses then and throws her arms over towards you to say hello. Mona is beautiful.Thanks for sharing her with us xx

  • She is SOOOO BEAUTIFUL!! OMG! She is truly gorgous! I wish I knew what she was saying!

  • She's beautiful & reminds me of my Jess who also has Rett Syndrome & taps her chest & grinds her teeth (the noise also drives me nuts!). Thankyoufor sharing little Mona, I love seeing what other Rett girls are up to, it makes me feel less isolated.

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