Thanks for your valuable input about how to treat Fibromyalgia. We look forward to hearing such opinions or any others about the matter. This clip is just a small piece of the documentary we're producing. We're still in the research phase of this documentary and are open to discussing valuable leads about the cause, treatments, and cure, as well as other forms of funding to bring it into fruition as quickly as we can. All assistance is appreciated.
Please keep pushing this fibro agenda....we are making a killing off peddling drugs to keep you even more zombified. We are also paying your doctors kickbacks to tell you to take our meds instead of diet, exercise, and get proper psych treatment. Please keep in mind that in the USA, we make a killing and this silly "disease" isnt an issue as much as most of the real world where you arent handed alotta drugs and disability checks.
I am starting a channel to bring people with&without illness together so they can help eachother and share experiences, also i want to show that you can be positive even if you are disabled, life is tough when you are ill. Youtube helps me connect to the world as i cant go out and do much for myself but theres so much negativety and arguing. I would like to make people laugh and raise awareness about the hardships of disability&bring people together, i can speak personally about fibromyalgia.
Looks great, the few minutes I've seen of it (will come back to it later). But the misuse of "effect" (when it should be "affect") is grating on my nerves. Something intended to be professionally produced (as opposed to a FB post) needs to be absolutely perfect when it comes to grammar and word use. It should be Jenni (or whoever) Affected by Fibromyalgia. I hope that change gets made before the full program is widely distributed.
Thank you so much! After a while I feel like maybe I am crazy, and then I watch videos like this or read a forum or a blog, and it's so reassure that I am not lazy and I'm not crazy or loosing my mind. It's so hard... not that life needs to be easy, but the pain is truly unbareable at times.. much love for all who also live through fibro <3
I may have some fibro symptoms but not really debiliating like the women in this video. I feel so bad they are going through this. I dont have extreme pain but just discomfort/achiness and like I said, I cant stand the feeling of clothing on my skin. It makes me depressed since I feel like a freak. It makes me not want to do things--getting through the day is a challenge.
My skin hurts, especially on my upper arms. I hate wearing clothing with sleeves and the feeling of the fabric hitting my skin. Sometimes it gets worse, sometimes it gets better. I have had this for 20 years and lately, I ache---my back, my neck and my hips hurt. It's pain right underneath the skin. I have this section near my underarms on my sides also hurt to touch. It makes me really tired too. :( IT SUCKS, that is all I can say.
@Gitsie007 I live with a couple of women who have Fibro, and I see what and how they go throw it. I understand every thing you say about your Fibro experience. Don't loose hope. Google UNLEARN YOUR PAIN and see if it can offer any help. Peace
I know how these women feel because I suffer from Fibormyalgia and Erythoremylalgia. Both go hand and hand so I understand, even on my good days I still get really tired. Feeling 100% are days long gone by, I don't pain meds but Lyrica and Cymbalta and those sometimes don't even touch the pain. Telling pepole about they look at you as if you are crazy but you aren't.
@Brandi98225 It is always easy for those who don't have the pain to judge yours as "Crazy". My advice to you, is never try hard to convince anyone to believe you. Because the effort of trying with someone who does't believe you might hurt even more. Best Wishes, Modie
I have had Fibro & CFS for more than 26 years, diagnosed for the last 16. People really do not have a clue of what we go thru. Thank you for this. The more the word and knowledge out there the better our treatments will become and easier to get things do.
@tsb50158 I am sorry to hear about your Fibro experience. I have learned about Fibromyalgia through out the making of this video. I am glad to hear that this video was a benefit to you, and to those who might learn understanding your pain. Best Wishes, Modie
@phaedra528 I am so sorry that making of the full length is pending at this time. Funding is never easy. We will inform you if any changes arise. Thanks
THANK YOUUUUUUU for these Vids. i've saved them. People around me don't get this at all! It's VERY frustrating and embarrassing to sound like a whiner! I have other medical and pain related issues to go with this so ...well depression, anger is also part of my world...Omg, this lady goes out at night..SO DO I. I have debilitating FATIGUE......great vids....TRULY!
Thank you. It was our vision to give a snapshot of what it is like to live with Fibromyalgia. We are working on a documentary about Fibromyalgia, and your feedback is important. You have our empathy and our support. Do not give up hope. There are resources out there to help you through this. As we create this documentary, it will include large doses of HOPE. Until then, keep hope alive within you. Know that you're valuable and that you will overcome.
@riverlaken Thank you very much for being part of this and for the generous comment about the video. Why do you think Doctors wouldn't subscribe the Narcotic pain?
All of the doctors here in Arkansas will NOT prescribe narcotic pain relievers. There is such extreme discrimination towards being a chronic pain patient. Even my Rheumy doctor says no. Because, only Savella, Lyrica and Cymbalta are allowed to treat fibromyalgia. I can get Flexeril, a muscle relaxer 3x a day. This is not just happening to me, although everyone else that I know from my fibro support group attendees too.
@riverlaken It sounds strange that Doctors don't give you what you believe it works for you and for the the other patients in your community. I can tell you that some Doctors don't want to deal with Fibromyalgia at all. Let discuss your matter with some of the passionate experts in this field here in Minnesota and I will get back to you.
@Modie2005 Great, I look forward to finding out why, no pain medicine. I do not have any issues with drug abuse or do I drink alcohol., nor do others at my fibromyalgia group. I do believe that the FDA needs to change by including narcotic pain relievers for the treatment option for suffers with fibromyalgia. I myself have a severe case of fibromyalgia and lupus.
@riverlaken I got some response regarding your inquiry above from Nicola, but I am having a hard time paste it on here. I will try sending them to you in smaller paragraphs.
@riverlaken Hello, I'm sorry you're in so much pain and the doctors won;t prescribe pain meds for you. It must be so frustrating. There is new science out that shows people getting relief from their pain.
@riverlaken Dr. Schubiner recently came to The Marsh in Minnesota to talk about his book and this body of work that is giving people relief. It's not a drug, and the patient is required to take action and make efforts toward their own healing.
@riverlaken At this point Modie knowing what we do about Fibro and how there is no correlating tissue damage giving folks narcotics may take away their pain but the side effects are always an issue and we know it's just a band aid fix.
@riverlaken Spreading the word about Unlearn your Pain and how Mind/Body Syndrome works in regard to nerve pathways and the fact that folks can affect their pain through the techniques in Dr. Schubiners book is ultimately the information I believe that will best serve MBS sufferers.
@riverlaken In saying that I imagine there will be those that don't want to hear it, that won't want to do the work, that are attached to their pain and stories and that simply aren't ready to do whats required. Those folks have to come to it when their ready, if ever.
@riverlaken Ok, now this is me Modie writing to you. Please let me know your input. Discuss this with the Fibromyalgia community in Arkansas, and share with us your opinions. Should it be both, Narcotics and the Dr. Schubiners method, at least during the first stages?
@realwoman50 Sorry to hear that, just know that we understand your pain, and we hope the best for you. Please stay in touch as we are researching the matter, and we are finding out valuable informations that would help you eliminating the pain or at least relieve it.
And lose some weight will ya.
lk34rr 1 week ago
Baloney. It's called depression with somatic symptoms.
lk34rr 1 week ago
Thank you for this video!!
blueglitter5 1 week ago
why does it only effect ugly fat women?
noisemademedoit 1 week ago
Thanks for your valuable input about how to treat Fibromyalgia. We look forward to hearing such opinions or any others about the matter. This clip is just a small piece of the documentary we're producing. We're still in the research phase of this documentary and are open to discussing valuable leads about the cause, treatments, and cure, as well as other forms of funding to bring it into fruition as quickly as we can. All assistance is appreciated.
Modie2005 3 weeks ago
Please keep pushing this fibro agenda....we are making a killing off peddling drugs to keep you even more zombified. We are also paying your doctors kickbacks to tell you to take our meds instead of diet, exercise, and get proper psych treatment. Please keep in mind that in the USA, we make a killing and this silly "disease" isnt an issue as much as most of the real world where you arent handed alotta drugs and disability checks.
Love,
Big Pharma Companies
ctnjason 3 weeks ago
Looks like a Great Documentary ! Most don't know what Fibro sufferers go thru on a daily basis.
andreanixon1 1 month ago
@andreanixon1
Thank you.
Modie2005 3 weeks ago
If you wish for FIBRO to stop ruining your life miserably PLEASE contact me NOW !
i3allplaya 1 month ago
I am starting a channel to bring people with&without illness together so they can help eachother and share experiences, also i want to show that you can be positive even if you are disabled, life is tough when you are ill. Youtube helps me connect to the world as i cant go out and do much for myself but theres so much negativety and arguing. I would like to make people laugh and raise awareness about the hardships of disability&bring people together, i can speak personally about fibromyalgia.
LifesMyWife 1 month ago
Looks great, the few minutes I've seen of it (will come back to it later). But the misuse of "effect" (when it should be "affect") is grating on my nerves. Something intended to be professionally produced (as opposed to a FB post) needs to be absolutely perfect when it comes to grammar and word use. It should be Jenni (or whoever) Affected by Fibromyalgia. I hope that change gets made before the full program is widely distributed.
Bluerosesphotography 2 months ago
Thank you so much! After a while I feel like maybe I am crazy, and then I watch videos like this or read a forum or a blog, and it's so reassure that I am not lazy and I'm not crazy or loosing my mind. It's so hard... not that life needs to be easy, but the pain is truly unbareable at times.. much love for all who also live through fibro <3
laurlie05 2 months ago
@laurlie05 Thank you. I pray for you.
Modie2005 2 months ago
I may have some fibro symptoms but not really debiliating like the women in this video. I feel so bad they are going through this. I dont have extreme pain but just discomfort/achiness and like I said, I cant stand the feeling of clothing on my skin. It makes me depressed since I feel like a freak. It makes me not want to do things--getting through the day is a challenge.
Gitsie007 2 months ago
My skin hurts, especially on my upper arms. I hate wearing clothing with sleeves and the feeling of the fabric hitting my skin. Sometimes it gets worse, sometimes it gets better. I have had this for 20 years and lately, I ache---my back, my neck and my hips hurt. It's pain right underneath the skin. I have this section near my underarms on my sides also hurt to touch. It makes me really tired too. :( IT SUCKS, that is all I can say.
Gitsie007 2 months ago
@Gitsie007 I live with a couple of women who have Fibro, and I see what and how they go throw it. I understand every thing you say about your Fibro experience. Don't loose hope. Google UNLEARN YOUR PAIN and see if it can offer any help. Peace
Modie2005 2 months ago
I know how these women feel because I suffer from Fibormyalgia and Erythoremylalgia. Both go hand and hand so I understand, even on my good days I still get really tired. Feeling 100% are days long gone by, I don't pain meds but Lyrica and Cymbalta and those sometimes don't even touch the pain. Telling pepole about they look at you as if you are crazy but you aren't.
Brandi98225 3 months ago
@Brandi98225 It is always easy for those who don't have the pain to judge yours as "Crazy". My advice to you, is never try hard to convince anyone to believe you. Because the effort of trying with someone who does't believe you might hurt even more. Best Wishes, Modie
Modie2005 2 months ago
I have had Fibro & CFS for more than 26 years, diagnosed for the last 16. People really do not have a clue of what we go thru. Thank you for this. The more the word and knowledge out there the better our treatments will become and easier to get things do.
tsb50158 3 months ago
@tsb50158 I am sorry to hear about your Fibro experience. I have learned about Fibromyalgia through out the making of this video. I am glad to hear that this video was a benefit to you, and to those who might learn understanding your pain. Best Wishes, Modie
Modie2005 2 months ago
@Modie2005 Is this going to be a full length documentary? Any ideas on release information?
phaedra528 2 months ago
@phaedra528 I am so sorry that making of the full length is pending at this time. Funding is never easy. We will inform you if any changes arise. Thanks
Modie2005 2 months ago
THANK YOUUUUUUU for these Vids. i've saved them. People around me don't get this at all! It's VERY frustrating and embarrassing to sound like a whiner! I have other medical and pain related issues to go with this so ...well depression, anger is also part of my world...Omg, this lady goes out at night..SO DO I. I have debilitating FATIGUE......great vids....TRULY!
Essyemmm 4 months ago
@Essyemmm
Thank you. It was our vision to give a snapshot of what it is like to live with Fibromyalgia. We are working on a documentary about Fibromyalgia, and your feedback is important. You have our empathy and our support. Do not give up hope. There are resources out there to help you through this. As we create this documentary, it will include large doses of HOPE. Until then, keep hope alive within you. Know that you're valuable and that you will overcome.
Modie,
Modie2005 4 months ago
Narcotic pain relievers help the most. I believe that it is criminal that most of the doctors, refuse to treat with them. Great job, on this video.
riverlaken 5 months ago
@riverlaken Thank you very much for being part of this and for the generous comment about the video. Why do you think Doctors wouldn't subscribe the Narcotic pain?
Modie2005 5 months ago
@Modie2005
All of the doctors here in Arkansas will NOT prescribe narcotic pain relievers. There is such extreme discrimination towards being a chronic pain patient. Even my Rheumy doctor says no. Because, only Savella, Lyrica and Cymbalta are allowed to treat fibromyalgia. I can get Flexeril, a muscle relaxer 3x a day. This is not just happening to me, although everyone else that I know from my fibro support group attendees too.
riverlaken 5 months ago
@riverlaken It sounds strange that Doctors don't give you what you believe it works for you and for the the other patients in your community. I can tell you that some Doctors don't want to deal with Fibromyalgia at all. Let discuss your matter with some of the passionate experts in this field here in Minnesota and I will get back to you.
Modie2005 5 months ago
@Modie2005 Great, I look forward to finding out why, no pain medicine. I do not have any issues with drug abuse or do I drink alcohol., nor do others at my fibromyalgia group. I do believe that the FDA needs to change by including narcotic pain relievers for the treatment option for suffers with fibromyalgia. I myself have a severe case of fibromyalgia and lupus.
riverlaken 5 months ago
@riverlaken Ok, I will take care of that for you. I might have someone else reply to you if it wasn't me.
ForeverMakeup505 5 months ago
@riverlaken I got some response regarding your inquiry above from Nicola, but I am having a hard time paste it on here. I will try sending them to you in smaller paragraphs.
Modie2005 4 months ago
@riverlaken Hello, I'm sorry you're in so much pain and the doctors won;t prescribe pain meds for you. It must be so frustrating. There is new science out that shows people getting relief from their pain.
Modie2005 4 months ago
@riverlaken Dr. Schubiner recently came to The Marsh in Minnesota to talk about his book and this body of work that is giving people relief. It's not a drug, and the patient is required to take action and make efforts toward their own healing.
Modie2005 4 months ago
@riverlaken At this point Modie knowing what we do about Fibro and how there is no correlating tissue damage giving folks narcotics may take away their pain but the side effects are always an issue and we know it's just a band aid fix.
Modie2005 4 months ago
@riverlaken Spreading the word about Unlearn your Pain and how Mind/Body Syndrome works in regard to nerve pathways and the fact that folks can affect their pain through the techniques in Dr. Schubiners book is ultimately the information I believe that will best serve MBS sufferers.
Modie2005 4 months ago
@riverlaken In saying that I imagine there will be those that don't want to hear it, that won't want to do the work, that are attached to their pain and stories and that simply aren't ready to do whats required. Those folks have to come to it when their ready, if ever.
Nicola
Modie2005 4 months ago
@riverlaken Ok, now this is me Modie writing to you. Please let me know your input. Discuss this with the Fibromyalgia community in Arkansas, and share with us your opinions. Should it be both, Narcotics and the Dr. Schubiners method, at least during the first stages?
Modie2005 4 months ago
OH GOD, welcome to my world.
realwoman50 5 months ago
@realwoman50 Sorry to hear that, just know that we understand your pain, and we hope the best for you. Please stay in touch as we are researching the matter, and we are finding out valuable informations that would help you eliminating the pain or at least relieve it.
Modie2005 5 months ago