I am so glad to see that she is doing well. I am 32 weeks along with my second child. When we found out she would be born with gastroschisis and a month early we were terrified. We are still afraid but stories like this give me hope. :)
I just want Ashley to know that she's isn't the only child to be born with gastrochisis but that I am too a gastrochisis born baby and now am currently 15 years old (male). Its good to know that I am not the only odd one out anymore :D
i was a gastro baby in 1997 im glad too here that ur babay pulled through god knows what ive been through and yet here i am they said i wasnt ganna make it but i pulled through always know that survivers of gastro are conciderd mirical babys but i guess you already know that there is no better fealing then to hold your baby in your arms and knowing that god gave her a second chance
@idahoforsale - research does show a strong correlation to environmental causes, but not enough has been done yet. Please fill out the survey at birth defects org . Also, I would love to include your story in my upcoming trip to Spain (in 2 weeks) to present the family perspective of gastroschisis to a group of international doctors. Please email me at kayte (at) averysangels (dot) org. For some reason youtube doesn't let me post that correctly! thanks
In 1956 my mother gave birth to my brother, Ricky. He had gastroschisis. The OB doc took my dad to the nursery to show him the problem, and told him Ricky would not survive. He lived for only 18 hours. I was born later, in 1957, then my sister in 1958. I've always felt the loss of my brother, even though he and I never met. Thank you, survivors, for sharing your stories!
It's a huge blessing that this condition is now treatable, albeit without its complications. and I'm so happy to hear from p
I have just found out at my 19 week scan that my daughter has a Gastroschisis. i have an appointment at KING EDWARD MEMORIAL HOSPITAL if anyone knows of it.
i would love someone who has been through this to talk to. a personal experience.
@mommy2at my daughter was born with this i found out on my 20week scan and have never heard of Gastrochisis untill then was the worst moment of my life i had her in southampton hospital at 31 weeks weighing 2lb11 it was horrible not knowing what had caused all this and i still dont know my daughter spent 9 weeks in intensive care and im glad to say she has just had her 4th birthday and has just had an operation to fix her hernia its amazing what doctors can do i wish u the best of luck xx
@dannithegirl100 Happy belated birthday to your little miracle! Ongoing research is still needed to find the cause - to date there are some promising research avenues but no specific reason as to why this is happening to our babies. I'm the CAO of Avery's Angels Gastroschisis Foundation & one of the many things we do is to collaborate with doctors across the globe & help push for more reasearch. We also do parent support, contact me anytime!
@hollynsarahrhot Wow! I'm just 20 weeks and found out at 19 weeks the same thing! I heard there is a group on the internet called "GEEPS" that is for people who have been through and are going through the same thing. Feel free to message me if you need to talk!
my son had gastroscisis & a mid intestinal atresia where the intestines are pinched off for those who dont know what that is, had six surgeries, got a feeding tube he didn't come home fromt he hospital for the first time until was 7 months old, and it's still a battle he has trouble gaining weight because they removed half his intestines and he's shorter and skinnier than he should be, and sadly there isn't as many organizations or support groups for our babies with special tummies god bless you
yeah my daughters 16 and has a leaky gut because of her gastroschisis she is allergic to everything and can olny eat rice and potatoes it has a huge effect on her
@John1962R Is she on feed tube still? Our daughter is almost 2. She had atresias dead end branches on small and large that where cut out thus becoming TRiple whamy, short gut, gastroschisis and liver hanging in balance. I think there is a site one of our nurse talked about just for gastroschis.
How crazy. My name is Ashley, and I was born with this too! I had to be taken to another town to get everything taken care of, because we were in a small town in Iowa.
Now I'm 18, and everything seems to be doing a-o-k with my belly! Lol.
Beautiful video...I know exactly what u went through, i was born with gastroschisis and the recovery wasnt easy at all... But thanx to God, im 20 years old and life a healthy normal life. God bless ur child. She's a strong survivor.
best of the wishes.
Natasha From Puerto Rico
P.s.Can you send me the link for the Gastroschisis cause???? thank you.
continued;and my heart goes out to you all. It's strange at the time you think your the only person going through this and that nobody understands. I think Ashley's a wee star and obviously a fighter, and I send the warmest wishes for the future and great big hugs too xxxxxxxxxxxx
I'm so glad your daughter is doing well I know exactly what you were going through. My son now 6 was also born with gastroschisis and left hospital at 4wks, he had a double hernia repair at 8wks and had been healthy up until mid june this yr when we almost lost him again. His bowel had twisted through a hole in the fat covering the bowels, he had 90cm of the small 1 removed but thankfully was only in hosp for 2wks. It is a constant worry that something else will happen,
I am so glad to see that she is doing well. I am 32 weeks along with my second child. When we found out she would be born with gastroschisis and a month early we were terrified. We are still afraid but stories like this give me hope. :)
Enolasmom 2 weeks ago
I just want Ashley to know that she's isn't the only child to be born with gastrochisis but that I am too a gastrochisis born baby and now am currently 15 years old (male). Its good to know that I am not the only odd one out anymore :D
IAmGoodBoy69 8 months ago
Congrats!! I am a 15year old boy who was born with gastrochisis and although my naval is stitched up I am a proud to say I am a miracle baby :D
IAmGoodBoy69 8 months ago
@IAmGoodBoy69 ((hugs)) to you! :)
mommy2at 7 months ago
Congrats again, she is adorable
from Father of 17 year old gastro baby :)
John1962R 9 months ago
i was a gastro baby in 1997 im glad too here that ur babay pulled through god knows what ive been through and yet here i am they said i wasnt ganna make it but i pulled through always know that survivers of gastro are conciderd mirical babys but i guess you already know that there is no better fealing then to hold your baby in your arms and knowing that god gave her a second chance
Joshslv 10 months ago
@idahoforsale - research does show a strong correlation to environmental causes, but not enough has been done yet. Please fill out the survey at birth defects org . Also, I would love to include your story in my upcoming trip to Spain (in 2 weeks) to present the family perspective of gastroschisis to a group of international doctors. Please email me at kayte (at) averysangels (dot) org. For some reason youtube doesn't let me post that correctly! thanks
mommy2at 1 year ago
In 1956 my mother gave birth to my brother, Ricky. He had gastroschisis. The OB doc took my dad to the nursery to show him the problem, and told him Ricky would not survive. He lived for only 18 hours. I was born later, in 1957, then my sister in 1958. I've always felt the loss of my brother, even though he and I never met. Thank you, survivors, for sharing your stories!
It's a huge blessing that this condition is now treatable, albeit without its complications. and I'm so happy to hear from p
Cheri174evr 1 year ago
I have just found out at my 19 week scan that my daughter has a Gastroschisis. i have an appointment at KING EDWARD MEMORIAL HOSPITAL if anyone knows of it.
i would love someone who has been through this to talk to. a personal experience.
hollynsarahrhot 1 year ago
@hollynsarahrhot , I sent you a message with my info :) hugs!
mommy2at 1 year ago
@mommy2at my daughter was born with this i found out on my 20week scan and have never heard of Gastrochisis untill then was the worst moment of my life i had her in southampton hospital at 31 weeks weighing 2lb11 it was horrible not knowing what had caused all this and i still dont know my daughter spent 9 weeks in intensive care and im glad to say she has just had her 4th birthday and has just had an operation to fix her hernia its amazing what doctors can do i wish u the best of luck xx
dannithegirl100 1 year ago
@dannithegirl100 Happy belated birthday to your little miracle! Ongoing research is still needed to find the cause - to date there are some promising research avenues but no specific reason as to why this is happening to our babies. I'm the CAO of Avery's Angels Gastroschisis Foundation & one of the many things we do is to collaborate with doctors across the globe & help push for more reasearch. We also do parent support, contact me anytime!
mommy2at 1 year ago
@hollynsarahrhot Wow! I'm just 20 weeks and found out at 19 weeks the same thing! I heard there is a group on the internet called "GEEPS" that is for people who have been through and are going through the same thing. Feel free to message me if you need to talk!
armyofflowers 1 year ago
@armyofflowers I'm CAO of Avery's Angels Gastroschisis foundation. We're based in the US but have families all over the world available for support!
mommy2at 7 months ago
my son had gastroscisis & a mid intestinal atresia where the intestines are pinched off for those who dont know what that is, had six surgeries, got a feeding tube he didn't come home fromt he hospital for the first time until was 7 months old, and it's still a battle he has trouble gaining weight because they removed half his intestines and he's shorter and skinnier than he should be, and sadly there isn't as many organizations or support groups for our babies with special tummies god bless you
MuddyDaisy 2 years ago
yeah my daughters 16 and has a leaky gut because of her gastroschisis she is allergic to everything and can olny eat rice and potatoes it has a huge effect on her
John1962R 2 years ago
@John1962R Is she on feed tube still? Our daughter is almost 2. She had atresias dead end branches on small and large that where cut out thus becoming TRiple whamy, short gut, gastroschisis and liver hanging in balance. I think there is a site one of our nurse talked about just for gastroschis.
idahoforsale 1 year ago
How crazy. My name is Ashley, and I was born with this too! I had to be taken to another town to get everything taken care of, because we were in a small town in Iowa.
Now I'm 18, and everything seems to be doing a-o-k with my belly! Lol.
xheartagramxVALOx 2 years ago
I was a gastro baby in 1993 the docs told my parents i would not be coming home and even asked them to donate my organs but i fought and here i am
imo07 2 years ago
@imo07 one of the common things about gastro babies is that they are all so strong & resilient! :)
mommy2at 1 year ago
Comment removed
Maverick2591b 3 years ago
Beautiful video...I know exactly what u went through, i was born with gastroschisis and the recovery wasnt easy at all... But thanx to God, im 20 years old and life a healthy normal life. God bless ur child. She's a strong survivor.
best of the wishes.
Natasha From Puerto Rico
P.s.Can you send me the link for the Gastroschisis cause???? thank you.
Selene0017 3 years ago
continued;and my heart goes out to you all. It's strange at the time you think your the only person going through this and that nobody understands. I think Ashley's a wee star and obviously a fighter, and I send the warmest wishes for the future and great big hugs too xxxxxxxxxxxx
chelle1babz 3 years ago
I'm so glad your daughter is doing well I know exactly what you were going through. My son now 6 was also born with gastroschisis and left hospital at 4wks, he had a double hernia repair at 8wks and had been healthy up until mid june this yr when we almost lost him again. His bowel had twisted through a hole in the fat covering the bowels, he had 90cm of the small 1 removed but thankfully was only in hosp for 2wks. It is a constant worry that something else will happen,
chelle1babz 3 years ago