Hope For a Cure - Type 1 Diabetes - Omnipod User

[Diabeticyogi]

I loved your video. I became very emotional. It reconnected me back to when I was a child and had to start taking shots. No monitors back then so was kind of flying blind. Very scary at times. The Love that you have for your son comes through beautifully in this video. Made me proud of my Mom again. Thank you so much. Be well.

[lsisto1]

@Diabeticyogi Aw - thank you so much! Our best to you. And your mom.

[BePatient4]

Our 12 yr old has had Type 1 for 14 mos. so I thought I'd check out some Type 1 videos. PLEASE don't take this the wrong way, but after viewing this, I got a bit depressed. Yes, Type 1 is a lot of work and yes, things will never be the same for the diabetic involved...but I wish the focus would've been more of what your son CAN still do and CAN still eat instead of all the negatives...just a thought. I'm sure I'll get some hostile replies but oh well. :(

[lsisto1]

@BePatient4 No hostile replies. This was a video I made at the very beginning. It was how I felt at that time. I still feel these things apply, but we have a broadened perspective now, after five years. The point of the video was to emphasize the struggles - to encourage people to donate to Dr. Faustman's research. We have lots of other videos and Caleb and I write a blog which is very celebratory of his life and every he can do. My best to you.

[nicilikepie]

dont ever stop fighting im 14 and i have diabetes its a long way but i know there will be a cure

[321Kershaw]

my son was diagnoised 18mnths ago and it has been a massive learning curve. The omnipod is quite new here in uk and we are currently waiting to hear if our request for one has been successful. It was watching Calebs you tube posts that helped us decide this was the route we wanted to take. From one D mum to another i wish you all the very best and admire all the work you are doing to raise awareness.x

[lsisto1]

@321Kershaw Thank you for your message. All the best to you and yours. When you start, please don't hesitate to contact us if you have any questions. Lorraine

[asdstudios1]

I'm 11 and have it but its awful for a 5-6 year old to do this hang in there we all make somehow :(

[Cheyanneandtaylor1]

nick jonas is my hero too . i have dieabeties type1

[MrJoey761]

my son was diagnosed when he was just 5 mounths old, (He's 2 in july) i worry every night that somethings going to go wrong. the only thing that keeps me going is that if i watch over him he'll be just fine :) I hope all is well with you and Caleb :)

[lsisto1]

@MrJoey761 Nights can be worrisome. I've found as Caleb has grown, things are a little more stable, though I hate to use that word because there really isn't anything stable about diabetes. I wish I had that perspective when he was younger. I think I would have accepted a greater margin of error then. Knowing that it's easier to achieve in range numbers as they get older would have been useful info for me. :)

[Seraphim2019]

Hang in there BIG guy. You are not alone. I was diagnosed with Type I Diabetes 8 years ago. Hold on; be strong,

[kyle95901]

im 10 and i have type 1 diabetes

[cemilyw]

He's such a brave little boy, i've been watching a lot of your videos latley and he is so funny :) you take such good care of him he's so lucky to have parnts like you!! xx

[foxmx526]

I have one thing to say there's a cure out for diabetes 1 aready

[BandNerd2813]

@foxmx526 Oh yeah? And what is it?

[CallaNicole]

great video. im a type one diabetic too caleb... going on 11 years now. check out the video on my page that i just made :)

[fritzthehammer]

Great video dont stop fighting!!!

[lsisto1]

@fritzthehammer

Thank you!

[hypedpotential]

wow..I don't mean any disrespect to my parents but I wish you guys could have been there to take care of me when I became diabetic. Now I just don't know what to do or what to eat or how to treat myself because I was not instructed properly at the age of 11. I remember having burgers and chips and coke and a chocolate bar to top it off during school lunch. This kid is lucky to have such caring people to look after him.

[lace0mafia]

@hypedpotential have you gone into ketoacidoses

[waytohell2]

any tips on how to cure or keep a balanced life for a child who had just been diagnosed with type 1 diabetes? my brothers daughter just got diagnosed with it :( I'm trying my best to figure out a balanced system that i can use to help her get the best life she can while having it ! any tips will be much appreciated :)

[lace0mafia]

@waytohell2 support your niece and dont treat her differently there sweet kids everything is going to be fine with proper training

[sompopthailand]

Hi... Caleb, Hope to see you someday in Thailand or in your country.

[xdreamseyx]

Great video! I just made my very first one for my type1 Niece! Together we can beat this. Keep up the fight! Much love... Heidi

[techluvr1234]

"Life was simpler." I'll say! My life was so much easier before another elephant stepped into the room back in August of '09. Keep on going, Caleb!

[zbibful]

I got Type 1 diabetes last year and I am in a diabetes study (Type 1 only) to help preserve Beta Cells and the doctor said that my control is so amazing that you could say I am in remission (taking insulin still). Not bragging, but my A1c iss 5.3.

[rhhd3]

I'VE HAD TYPE 1 FOR 73 YEARS & HAVE BEEN ON MINIMED PUMP FOR 9 YEARS.KEEP GOING & DON'T GIVE UP & GOOD LUCK TO ALL OF US WITH TYPE 1.

[Parkouroujdaw5]

@rhhd3  chapeaauu pouur toi tu ma renduu lespoire vraiment

[Krazy2rk]

i was diagnosed with it when i was 8 months old, and now im almost 16.

[333pixiegirl]

hi, your little boy is so brave, i cried the whole way through the video, my 3 year old boy was diagnosed 4 months ago, its been very hard... i hope your little boy is doing well... x

[kewliokid2008]

A suggestion I have for Caleb is going to Camp. There is a diabetes camp called Camp Kudzu. Its a sleepaway camp at Camp Barney for a week. In my opinion, I finally felt like I fit in. Everyone there has diabetes, even the counselers. When you go there, you KNOW you are not the only one out there with diabetes

[kewliokid2008]

When I first got diabetes, 5 years ago, I was 8. I was scared and lonely. I didnt know what was going on. Now I still don't fully understand it, but I know that I wasn't as unfortunate as some others. Others like Caleb who were very very young when they were diagnosed. Not only is it had for the child, but also for the parent. I am so glad that Caleb still looks at life with a positive attitude. Keep it up Caleb.

[Chantale35]

i...honestly sat here , crying while watching your brave boy.

It reached me so much when you said..that he never ever complains. What can i say ..

I am 37 and i just have type 2, on januvia. I complain all the time, to everyone, about my diabetes because life is no fun since i have it. I think i am depressed because of all the hypos i had, i became scared, i became isolated. I feel oppressed, alone.

I feel so ashamed of myself, when i see your boy.

I salute his strength .

Thank you..

[zigzagrolla]

because we have no other choice? Damn, it pains me to admit it (being a 20 year old diabetic of 16 years, myself), but the truth is, it won't happen in our lifetime, if in anybodys lifetime. Best of luck to you diabetics, and keep your heads up. And best of luck to you, Caleb. I feel your pain (that your 4 year old mind can't comprehend, yet), but you're not alone, buddy.

[zigzagrolla]

I don't mean to put any of you type one diabetics down, but the odds of a cure being released to the public is 1:Infinity. BD and other major medical companies rely on us to buy thier medications ( glucose meters, insulin, needles, ect.), and these companies hunger for our money is far more important than our health. I mean, even if a cure has been found, or will be found, why would these medical companies want us to pay once for a cure when they have us trapped, filling their pockets for life

[ReverseShadows]

some of you are saying it will never be the same enymore but there well be a cure in the futere

[xIGExVideos]

Hi I have diabetes Type 1 with the Pump im only 13 it really is UPSETTING i was Also going to follow my dad and be a lorry driver But now i cannot its upsetting But its a shame really is very unfair

[AutobotsAllDay]

ive had diabetes (type 1) for atleast 11 months so far. i know im normal its just that it will never be the same.

[glitteringgals]

@gang4bang34 I've had Type 1 diabetes for 5 years and I can't remember what it's like to be normal either!

[lsisto1]

You ARE normal! But I know what you mean. Thanks for connecting with us and commenting!

[johnbryce1]

i've had type 1 diabetes for 15 years now.

[lsisto1]

Congrats! We celebrated Caleb's diaversary for the first time this past year (three years w TiD). It was the first time we were ready to celebrate the success we have in the diabetes battle! 15 years is nothing to sneeze at!

[lankandjz]

I fuken hate my life i was dianosed with tis 2 weeks ago sorry for my harsh words tha anger and depression i am feeling is something i never had to bare in my life now i am forced to

[gunchester2k7]

i have had it for 5 fucking years now it takes the piss i wanted to join the army now i cant life is so unfair

[toadstool4279]

@gunchester2k7 i also wanted to join the marines but i got type 1, 4 years ago and i have a omni pod

and im pissed but nothing going to change

[TheArrogantPhysicist]

life is unfair, i wanted to go into the military too before i was diagnosed, but its just not an option anymore and theres no use in being upset about it when theres nothing u can do about it

[TheArrogantPhysicist]

@Iankandjz ya it sucks, and two weeks in to the disease i felt the same, but you shouldnt be depressed about it, u are just like everyone else in the world except that u actually have to pay attention to what u eat and u have to take care of what ur body doesnt do automatically, the sooner u stop complaining about the card uve been dealt and the sooner u start living YOUR life the happier ull be...nothing is going to change soon so its really pointless to get worked up about it

[warhawksxaid]

i was diagnosed type 1 at the age of 10 and am now 14, it has been soooo difficult( a bit easier with my cozmore pump) i cannot even think of how difficult it would be at such a young age! good luck with ur diabetes Caleb!

[gang4bang34]

i am a type one diabetic and ive had it for 3 years and 11 months, eveerythin you have mentioned in this video is very true, i almost started crying becus i cant even remember what it was like with out diabetes. i understand how your son feels. he is very cute, i just got the insulin pump and im scared but its already life changin. thank you for this video it reminds me of exactly what i was like when i was diagnosed.

[lkymky]

I would have much rather had it at a younger age, Its tough knowing what its like "not" having it, I guess if I had it when I was younger i would not have known any better

[mommybear06]

Thank you so much for this video!! My daughter was diagnosed at 2. This video really helped me bring out some emotions I have been fighting off since she was diagnosed less than a year ago. Thank YOU! We are also in the process of purchasing omnipod and I was curious as to what your thoughts are on this pump.

Thanks

[chad7472]

live every day to the fullest. i have had type 1 for 18 years, and i feel great. i have a medtronic pump and check my blood sugar 6 to 8 times a day. if you keep a good attitude and don't let it get you down, life can be more normal. it's not always easy, but just take care of yourself so that others don't worry about you. and don't feel guilty for being a burden, because you are not.

[noladol]

I was diagnosed in January of 1997. I was 9 years old.

[Blondie8402]

NICK Jonas....I meant Nick....don't know why I typed Joe.....

[Blondie8402]

Oh holy cow. I'm sitting here now with tears rolling down my cheeks. I'm 25 and also a type 1 diabetic. I know how hard it was for me to adjust to this terrible disease when I was diagnosed 2 years ago, I can't imagine what its like for a innocent little boy. I know his hero is Joe Jonas...but your little boy is MY new hero. He's an inspiration to us all. God bless your beautiful family.

oh...p.s....I LOVE the OmniPod Christmas ornaments. Too Cute!!

[jrsandin]

inspiring and powerful video , your son is the same age as our son who also was diagonsed with type 1 at 3 1/2 years

[TypeOneDiabetes]

Just wanted to tell you that you have a beautiful family and a great son! You remind me of my mother. I was diagnosed at age 16 ( a lot older than caleb) but a mom is a mom no matter what. I am now 27 an doing great! Keep up the good work.....

[lsisto1]

Hey there. Thanks for the comment. It's nice to hear such things from someone who has been through it!

[kovboj2001]

Here in UK to have this omni pod impossible, even you have (3000£) +you need to pay every month (200£),im diagnosed 2 years type 1 ,everyday my mind drive me crazy, ,but omni pod is power for as so why we cant have support from government here in UK?.

[kotabrowning1]

Im The Same Way!

I So Know Every Little Thing Hes Going Threw =/

[edwardcullen15234]

i just got diagnosed today, i'm writting this from the hospital. my blood sugar was over 800. a sucky way to start the summer. any help please contact me

[hermanfamilyfun]

Wow! Go Caleb's Mom! You are a wonderful inspiration and roll model!

My name is Christy and I am 29 year old mother of Olivia 2 1/2 years and I am a type 1 diabetic. I was diagnosed at 23 with type 1 and a Cosmo Deltec pump user. However the way you are organized and manage your son's diabetes is very admirable. I have a very hard time managing my life responsibilities / dutiesI have been researching on ideas to better manage my disease and life to enjoy more. Thank you for your video

[DiabetesGirl3145]

I am type 1 diabetic myself and I must say, calebs videos are what keep me going every day. Seeing his story has motivated me to wake up every morning and fight this deasease head on. Thanks a million.

[Belstarwon]

I am 23 dx'd at 14. Been on a pump since I was 16.

Its tough, but do-able.

life is always a journey. diabetes is a stepping stone for me. It brought me a lot of things I probably wouldn't have had much interest in otherwise.

Diabetes summer camp was THE BEST thing that ever happened to me post diabetes. Be sure to send him to one!

[lsisto1]

Hi there! Thanks for the comment. You are right, it's tough and do-able. Camp is something I want for Caleb. Not yet. He's only 6 right now, but I have only heard great things about it, so I do plan on it. Thanks for the insight. I really value it! Lorraine, Caleb's mom

[ungredda4]

i am 16 diagnosed at age 3. let me tell u that it has been quite a journey but if there is something i can garantee you is that getting him the pump was the smartest thing you could have done. i used needles for about 9 years and my arms were calcified hard as rock. way better solution. and thankfully carb coounting is relatively simple once you have gotten used to it. i hope things with him are well and you should give yourself a pat on the back for making it this far with no complications

[lsisto1]

Hey there. Thanks for the message. Yes Caleb has been pumping almost as long as he had been diagnosed. There was no question in my mind. As you know, there are days that I wish we could get a "do-over" on, but for the most part we manage and Caleb is a champ. All the best to you! Thanks again for posting and of course for watching!

[dophed]

good one

[2tinytots]

My 5 year old daughter Sydney was diagnosed a year ago with Type 1. It certainly is a life changing event. We pray for a cure too. Her video is on here as well.

[samiyogi]

I am 21 years old male..with type 1 diabetes.. it was diagnosed at 18 years of my age..

i am taking 3 insulin injection a day right before meals... and sometimes i just feel so dipressed...but life goes on..

I WISH IN FUTURE THEY FIND A CURE..

peace.. thanks nice ved..

[gummibearmelissa]

nick jonas of the jonas brothers is a hero to many people including me,i love nick

[pinkcloud748]

I really hope they find a cure, i don't have diabetes, but when I started finding out about it, i know how bad and difficult it can be. stary strong caleb :]

[krazypinkaya]

Hi. I was diagnosed when I was 15, now I'm 19. I really want the omnipod. I used to not take any of my shots at all. When I was at the childrens hospital, I just lied to them about my blood sugars and everything. But when I switched to the regular hospital, I decided it was time to change. So now I'm doing good and one of my nurses thinks I'm ready for the omnipod now. So I'm really excited. Anyways, thanks for sharing your story. It made my day brighter. lol.

[Nas2thaT]

Thank you so much for this video!

I have been diagnosed with type 1 diabetes myself just a few weeks ago and find it really hard to manage my life with everything and first year university... but this really gave me strength. Thank you so much for this beautiful video and the inspiraton...

My love goes to Caleb :-)

[dylanstube01]

he must be a good kid!!

[spicynachojp]

i feel the same way when i found out i had type one i really thought it was a dream since i was so tired but you will get use to it trust and i know we dont know each other but im here for you and know what its like warm regards spicynachojp

[kimmmmm04]

I don't have diabetes, but Caleb is very inspirational in many levels.

I hope they find a cure soon.

Stay strong, Caleb!

[Alicastayflyy]

I dont have diabetics but i've been watching these videos to learn more about diabties and how i can spred the word for a cure. Nick Jonas Is My Idol also and i pray that one day your son can be cured...

[tweakersholiday]

Is the Omnipod for everyone?

I'm 16 and I have type 1 diabetes, I have to take shots 12 times a day and check my sugar all the time

Everything that goes along with diabetes as well. How has the Ominpod helped Caleb?

Can you shower with it or does it have to be placed in a certain spot?

Thanks for sharing this video It was so inspirational to see that he never complains Diabetes has changed my life but its kids like Caleb that make it easier to live with

I think you guys are really brave.

[lsisto1]

Is it for everyone, I couldn't say. I can only speak to our experience and we are very happy with it. There are different pumps to choose from, we however are please with how Caleb's fits in with his life. You can wear it on the belly, back, buttocks, arms or legs. Swimming and showering are definites. I will send his other vid showing him in action. Thanks for posting! Best wishes to you! You are inspirational too - to take such an active role in your D care. Lo

[Amonephis]

why do you have to monitor his blood sugar that often ? because of the pump? i was diagnoesd with type 1 diabetes 4 weeks ago and i currently use insulin pens 6 times a day long lasting and rapid ones, and i dont use anny diet, i can eat pretty much what i want and adjust my insulin acordingly, although i avoid things with sugar

[lsisto1]

Hi. I'm sorry to hear about your diagnosis. Yes, we have found that injection therapy and pump therapy are very different. When Caleb was on shots, we checked his sugar 4 to 6 times a day and he had a rigid meal plan requiring him to eat the same amount of carbs at the same time each day for all meals and snacks. With the pump, Caleb has a great amount of freedom of what and when he can eat, but we have to watch his BG more closely since he is using 100% fast acting insulin.

[erininct]

Ack, these comments make me wanna cry!!

[JUN3N10R]

hi iam have diabetes and if u go 2 what a game.wmv that is me pitching after i came out of the hospitel

[lsisto1]

Thanks! Caleb's reaction - "WOW!"

[lisavaas]

I was diagnosed at the age of 3 and am going to be 47 in April. Lordy, how things have changed! The technology just gets better and better! Tell Caleb I have climbed mountains and kayaked and travelled the world and that there is nothing I wouldn't try and nowhere I wouldn't go, and I can tell from that wonderful video that he has everything he needs to live a similarly long, happy life: a great attitude and a family who is behind him 100%. You go, boy!

[1HappyDiabetic]

Such an impactful video. Very well done. Wish you the Best Caleb my Diabetic Buddy!!

[RSCheapButChic]

You should let him listen to the song "A little bit Longer" it's by the jonas brothers, nick jonas sings it, and its a song about his diabetes!

[lsisto1]

We know the song quite well. Caleb performs it often. He saw them in concert in August and Nick's performance of "A Little Bit Longer" was really great. Caleb, his brother and I got to meet them before the show and Nick was very attentive to Caleb when I told him he was diabetic. They were all very nice.

[alligap]

HI there!Just had to say your son is amazing.i was diagnosed when i was 12... and I am now 25.I am going to go on a pump in about a month.I am amazed at how strong and reziliant your son is! I don't know if I could have been that strong at that age. He is very lucky to have you as a mom - taking care of him. Please tell your little boy that he is amazing..and I have no doubt that he will help people with this disease when he is older just as much,if not more than he already is from your videos.

[lsisto1]

Thank you, thank you, thank you!  Caleb is an inspiration to me because he really does handle his diabetes beautifully. It's nice to know that he impacts other people that way too. He is always amazed to hear what other people say - thanks for taking the time to comment!

[onelove897]

wow- caleb seems like an awesome person. i was diagnosed last year, and after looking into the different pumps, im going to go on the omnipod next week. i really am inspired by him by being able to continue on as normal, and i hope within a few years there will be a cure for diabetes. good luck caleb!

[lsisto1]

Thanks!  Caleb loves to hear everyone's comments! She just brightens up when he hears all the kind things people say about him. Thank you thank you thank you!

[ispykenny]

Hey!, I just wanted to say that your son caleb is a great kid to look up to, I was recently dx with type 1 diabetes last nov, and just started the pod a couple weeks ago and ive seen the videos of caleb and just wanted to say that he is really one of my heroes. Tell caleb to stay strong!

[lsisto1]

Thanks - you are pretty inspirational yourself! I shared your comments with Caleb. His face lights up when he hears what people say about him - you brightened his day! Thanks again!

[love4holiness]

We made Christmas ornaments with our pods too! =) The Omnipod has changed our daughter's life. We love it. Best wishes, Caleb.  Life goes on, it all gets easier, and you must always choose to LAUGH despite the challenges life hands you. =) Looks like you're doing a good job of that!

[chelsx3jonas]

awh, he is adorable :]

good luck with everything!

and it is awesome that he can look up to nick jonas.

i love nick :]

[ddeunant]

Found your video tonight, brought back many thoughts when our son was diagnosed in May of this year, Ioan, he will be three at the end of August. Finding it difficult to stabilise his levels, but recently he has been better, we don`t have a pump yet, we are using short and long acting insulin pens.

Thanks for posting your experiences with diabetes, it helps a great deal to see how you do it, we have been trying to work out tables, and which foods do what and we seem to be getting there slowly.

[mileycyrusaddicted]

i have diabetes too i want the omni pod but they didnt get it yet in my country iwould go to ameica and get it but if it broke there is no one here to fix it or have any supplies ohh and by the way i live in kuwait

[sballash25]

i have type one diabetes tooo and im about to turn 15 ive it had it for about 5 years

im about to go on the omnipod my doctor just got it ever since i got diabtes i take at least 6 shots a day!

its hard to explain to people why i have to have sugar free because they stair at me i cant take shots in public with out some one having a comment i had a lady tell me one time i was taking illegal drugs! im glad they came up with an importvment from shots!!

[lsisto1]

Good luck with the Omnipod! I really think you will like it. We like the freedom it provides very much.

[Momto2inCT]

You said it so well. I love the ornaments you made! Too cute. All of it. We are fellow OmniPod users.

[JonasBrosFan14]

Aww. I have type 1 too, and NICK JONAS IS MY HERO TOO! I want to meet him so bad. But this little boy looks like he is a very, very strong boy. i guess we just have to remember that god chose us to have diabetes because he knows that we are strong enough to handle it. i really want an omnipod, but our insurance wont cover it and my parents cant afford it. HOPE IS IN A CURE! keep holding on :]

[lsisto1]

Type 1 diabetes is an autoimmune disease that people are born with. He was diagnosed after we noticed a dramatic increase in his thirst level and need to urinate - classic symptoms of Type 1 diabetes.  We brought him to the doctor and his blood sugar level was tested, deemed to be excessive and thus diagnosed.

[medfa86]

very nice

[MidnightButterfly222]

stay strong little buddy!!!!, hey, btw, i have the same salter food scale, isn't it great!.. and, I just adored your christmas ornaments! what a genius idea, i dont wear a pod, but..maybe i can turn my test strip vials into ornaments and give them to friends, lol! and instead of giving me gifts, they can be reminded to donate to the JDRF every christmas in my honor... Thanks for helping to spark the idea!!! ;)

[lilmija95]

must be tough to have been diagnosed with diabetes so early in life....my mom was diagnosed while pregnant with my last brother..she's a grown woman and got her really down..she and all the diabetic people out there are my heroes..including your son..each diabetic has their own story...you video relly got me on tears..im sure your son will get used to this new life style..maybe harder but his diabetes is just another obsticle that he must pass,and he shouldnt let this slow him down,

god bless!

[wwwmintworksnet]

Wonderful presentation ! Our little fellow was diagnosed 9 months ago isn´t it amazing that they do not complain instead they give you a heart warming hug and smile which makes all day better, sending warm hugs to Caleb ( such a handsome little guy ) and to whole family and greetings from Finland... and of course keeping thumbs up for cure :)

[PlzBeMineJoeJonas]

Aww his hero's Nick Jonas....he's my hero, too. :)

[daso73]

This video made me want to reach out and give this family and little boy a hug....