Mother with Multiple Sclerosis describes an unusual lifestye

[jdfwood]

You are one incredible woman!!! So glad to see your video and be able to chat with you.

[artisticgypsy]

Excellent video!

[irishbear76]

Yes!

I love this video.

You have to keep truckin'

Attitude is everything.

Total dominion over your MS.

Inspirational.

[nickjluva97]

my mother has multiple sclerosis i never experienced a normal life im only 11 years old and my mother has a very bad case

[Sefardisafran]

I have Progressive MS and MD (non-ALS) two "beuties" at the same time. But I try to keep my life as active as the MS allows me to do. I guess if you were to use gloves your'd be able to stop your manual wheelchair w/o friction in your hands. 5 years ago I went to India, 2 years ago I went to Israel visiting family and acquintaces.

Keep the spirit, I 'm 67 years old and have slowed down somehow, cheers!

Sefardisafran

Hoboke NJ

USA

Planet...Earth?

[MUZZA83]

im gunna burn out not fade away i like that

[Sefardisafran]

Well said, you have MS (me too and very Progressive)and try to keep as free as possible. Good for you!

Sefardisafran

Hoboken NJ

Somewhere in this Galaxy

[dmplaura]

"Who suffers from Multiple Sclerosis. I don't suffer from it. My family do."

Well said. Great video.

[Monklady]

Thank you for your kind comment.

[shiquitatw]

I really love this video,I have MS and the way that you put things really makes me look at things in a new light.When you said that your phone doesn't ring anymore that brought me to tears because that is the same thing that happen to me.When you are no use to people,they have no time.Sometimes I think that God allowed me to get MS so that I could take care of myself and put myself first instead of everyone else.Thanks for sharing your story.

[Monklady]

Thank you for your very kind words. Having M.S. teaches us so much more about life, when we are forced to go slower we see far more...both the good and the bad. You are right about God allowing us to get M.S., we obviously needed to learn some things - and to teach others from our experiences.

[4mytube8]

You are a very brave lady, I am glad you are doing all you can to enjoy life and not let it get you down. Keep it up.

[qualisarx]

It is a horrible disease that is certain. You are right about regrets and I agree with you about the sensationalism of newspapers. Hopefully there will be a cure eventually despite the governments. I have RRMS and I can still walk barely. I can only imagine the uphevals this must and is still causing you.

[7mumfred7]

Hi - have you seen the videos on YouTube about Tysabri infusions ? It helped "vbeachy" (Vern) enormously, also look for the director "schubfrei" and "laurenvparrott". I think you may be able to get reimbursed completely over there in the UK now.

I do agree that is one truly hairy way to launch your way out of the house :o)

[Monklady]

Thank you for the information about Tysabri, I had no idea it was now available in the UK. Sadly, it is not available for those who are 'Chronic progressive' like me. I do not have any remissions so the NHS won't help.

[7mumfred7]

I see now. Well may I suggest to keep an eye for new trials ? The landscape is changing quickly, hopefully they will make even more progress.

Otherwise I am a little inspired by your fortitude.

Travelling the world - what other countries have you been to ? I am surprised you went to India where it is so hot.

[lewdite]

Having watched your father's speech about a candle, I am provoked to say that you are "a flame off the old wick."