Born with a Broken Heart - living with congenital heart disease

[cchaforlife]

Thanks for the feedback! Cardiologists are just beginning to notice a steady stream of young adults with CHD. When I was born in the early 60s only 20% of us survived, but now it's 90%, and the population of "survivors" will keep on growing. Many "regular" cardiologists just have one or two CHD patients and figure they know what to do, until something bad happens. We're trying hard to raise awareness among the cardiologists that adult CHD patients should be seen by adult CHD specialists.

[lcb514]

Great Job!! Alot of people in the USA should watch this! I have been followed since birth..but at eighteen they felt I was "Better" but now that I am older the doctors were trying to treat me like a "Normal" patient and were not listining to me until another doctor said that I had a heart problem. that when they started to listen..

[cchaforlife]

Hm, try turning up your speakers. The sound does work.

[RockPrincess102]

I can't hear what they're saying

[VacationDisney]

Excellent video! My daughter is 17 and having a tough time being positive about her CHD. TGA, post-fontan.

She is very angry. How do I help her? Sandra

[krommydos1985]

Great job!

love from Athens, Greece.

PANHELLENIC CONGENITAL HEART DISEASE ASSOCIATION

[technogeek1964]

Fantastic video!

I am also a CHD patient from the UK. TGA, VSD & PH.

I also hope that this brings better funding to CHD (GUCH)

[LilyPearls]

@technogeek1964 I have the exact same diagnosis! Woo hoo!

[Suki278]

Awesome video! I'm definitely e-mailing a link to it to all my friends.

[annlombard]

Great video and long overdue. I sincerely hope it will be used aggressively to help bring attention to, and better fund, care for these adult patients. My son Matthew is living proof of the dedication he speaks so highly of in the medical community and, of course, the love and support of his family.

[apanrobert]

Great video! I am a GUCH patient myself.

[fearlesssockpuppet]

I liked the background music of this video, it made the atmosphere more upbeat. When I saw Francine...that was really touching. It's so great you managed to get Francine into this video. It was awesome seeing Toby, too!

[steftakespictures]

this is awesome.