LLoll Suzanne.. rant..not a bad attitude. Frustration better word I think... anyway have been looking at your videos and not much energy even to respond..thanks for all of yours..
Rant on !!...This should be broadcasted on TV so others might understand the frustrations we have to live with daily.. I could listen to you rant all day.. makes my day feel a little better.. ;)
A glorious rant! Could not have said it better myself! ME or CFS what ever you want to call it, it all sucks! Exercise = sickness = hell. Do nothing and feel a little better but then risk deconditioning. Either way your always screwed!
Bless your heart. I DO understand. NO ONE will EVER take us seriously until the NAME of CFS is dropped completely. If all criterion are met, it is M.E. This is now official according to the 2011 Canadian International Consensus Criteria. Now, we need the govts. to follow the lead and change the damn name. Lupus, Cancer, etc. NEVER have to defend their dx, and neither should we. I believe that it has to start with US, the patients. I no longer allow it to be called CFS in my case. It is M.E.
@tslu1970 PS, there were 13 countries present, including the US, and a 100% consensus was reached. They also stated, "The label of 'chronic fatigue syndrome' (CFS) has persisted for many years because of lack of knowledge of the etiological agents and of the disease process. In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology...cont.
hehe I know sometimes people don't get it do they. It can be really frustrating! I always get, " o if you start doing some more exercise you can get your fitness up and you won't feel as tired". I just smile and nod. xx
We suffer from the attitudes of others more than from the disease itself- dreadful though that is. My own father believes that I am stressed and that if I took more holidays I would be better!
Go Suzanne Go!!!!! They just don't get it!! It's true!!! I hear ya girl ,...and they will not understand unless they have it themselves. Vent, rant and hang in there. Big hugs Susan
LLoll Suzanne.. rant..not a bad attitude. Frustration better word I think... anyway have been looking at your videos and not much energy even to respond..thanks for all of yours..
chesmoja 2 months ago
It's time to take the "F" word out of CFS and call it what it is: Myalgic Encephalomyelitis (ME)!
In the mean time, Fvck the CDC for belittling this disabling disease with their fvcking "F" word!
There... that felt better.
JesusAteMyElbow 2 months ago 4
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JesusAteMyElbow 2 months ago
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JesusAteMyElbow 2 months ago
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JesusAteMyElbow 2 months ago
This has been flagged as spam show
Now to put things into perspective I propose the CDC do some more renaming. From this point forward:
AIDS will now be known as Chronic Blotchy Skin Syndrome.
Alzheimer's will be known as Chronic Forgetful Syndrome.
Cancer will be known as Chronic Forget to Wake up Syndrome.
- and -
The CDC will be known as the Chronically Corrupt Disease Propagation Agency!
JesusAteMyElbow 2 months ago
@JesusAteMyElbow Good! Glad you feel better. Feel free to rant all you like!
Suzanne42 2 months ago
Rant on !!...This should be broadcasted on TV so others might understand the frustrations we have to live with daily.. I could listen to you rant all day.. makes my day feel a little better.. ;)
faranglaw 3 months ago
@faranglaw Thanks for the nice comment. Rant back all you want!
Suzanne42 2 months ago
A glorious rant! Could not have said it better myself! ME or CFS what ever you want to call it, it all sucks! Exercise = sickness = hell. Do nothing and feel a little better but then risk deconditioning. Either way your always screwed!
jimijamesh 3 months ago
I love this rant. Thank you.
missnikkiann 3 months ago
Bless your heart. I DO understand. NO ONE will EVER take us seriously until the NAME of CFS is dropped completely. If all criterion are met, it is M.E. This is now official according to the 2011 Canadian International Consensus Criteria. Now, we need the govts. to follow the lead and change the damn name. Lupus, Cancer, etc. NEVER have to defend their dx, and neither should we. I believe that it has to start with US, the patients. I no longer allow it to be called CFS in my case. It is M.E.
tslu1970 3 months ago
@tslu1970 PS, there were 13 countries present, including the US, and a 100% consensus was reached. They also stated, "The label of 'chronic fatigue syndrome' (CFS) has persisted for many years because of lack of knowledge of the etiological agents and of the disease process. In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology...cont.
tslu1970 3 months ago
@tslu1970 , it is more appropriate and correct to use the term 'myalgic encephalomyelitis' (ME) because it indicates an underlying pathophysiology."
tslu1970 3 months ago
@tslu1970 So sorry to hijack your video. :( But, in my case, I have Myalgic Encephalomyelitis....NOT CFS or CFIDS. Big hugs and lots of love, Teri
tslu1970 3 months ago
hehe I know sometimes people don't get it do they. It can be really frustrating! I always get, " o if you start doing some more exercise you can get your fitness up and you won't feel as tired". I just smile and nod. xx
TheLipstickhippie 3 months ago
We suffer from the attitudes of others more than from the disease itself- dreadful though that is. My own father believes that I am stressed and that if I took more holidays I would be better!
poppiana 3 months ago
Go Suzanne Go!!!!! They just don't get it!! It's true!!! I hear ya girl ,...and they will not understand unless they have it themselves. Vent, rant and hang in there. Big hugs Susan
JulietsMama 3 months ago
Rant on, girlfriend! I feel you! <3
SheWhoFeels 3 months ago
Nothing wrong with a rant, and you look good today!
Rich4525 3 months ago