Help kids like Lilly - get the Ray Allen Muze premium T-shirt and help fund research looking to cure juvenile diabetes. 100% proceeds go to JDRF. Get yours at the Muze Clothing website.
Even though this may only affect 3,000 people, just think what else may be discovered in the future! A discovery such as this is a baby step, but one day(and I believe soon) the GIANT LEAP to a cure will be here. We must stay positive. I believe in that for the cure. And I believe in that for my little girl who lives with diabetes everyday. She is the bravest and strongest person I know.
I have to admit that I found the title of this CNN story, "Hope for Diabetics" a bit misleading and very disappointing. For all of us who hold out so much hope for a cure and an end to this suffering, the title is misleading. Most diabetics are not offered HOPE by this story. Although it has a positive ending, it does not provide hope for most of us.
I hear what you're saying mate, I guess its just a head line for CNN, here in Australia every year or two the news comes out with a huge fantastic break though for type 1 and its the same old islet transplantation thing I've been hearing for the last 15 year, quite disgusting. The journalists don't do much research obviously, but this story does give more hope to some thankfully, particularly that little girl, she's a step closer to normal more power to her
I do find it odd that this took so long to gain someone's attention: someone on her diabetes care team should have noticed something was off when she was having seizures - given that it's not normal for any diabetic to do so.
More proof that diabetes (in all guises) is a widely misunderstood condition, especially by GPs.
Seizures are very common when blood sugars are especially low in Type 1 diabetes. Further more, please don't talk about this like you have known that this condition existed all along and is very common. It was actually recently discovered by a scientist in England Dr Andrew Hattersley. There are only 2 possibly even 3000 people in the whole of the US who have this condition. That is less than 1% of the population of the city of Chicago.
Well mate I've been diabetic since I was 9 years old, and thankfully by 23 I've still never seen, nor experienced personally, a seizure related to low blood sugar. As far as I can tell, seizures require extremely low sugars below that of normal hypoglycaemia - and to have that happen frequently indicates a insulin management problem at the very least. I would characterise such mis-management, as not normal.
By the way, I appreciate you're automatically defending your father here - but my point was addressing shortcomings in her _entire_ care team, from GP, consultant, dietitian, to the techs checking her HbA1c. Someone should have been trying to fix her insulin management sooner, and probably have come across this unique condition sooner as a result.
Just adding my experience here. I have had a few seizures with severe low blood sugar. I have also had people tell me that diabetics do not have seizures. I can attest to the fact that some of us do. However, as diabetics we are still individuals and what may be normal for one person is not normal for another. I am saddened to see fellow diabetics get angry with each other. We need a lot of support. This is a hard condition to have.
That is true. If blood sugars are excellently controlled, a diabetic should not get that low. However, I have gastroparesis as a result of having diabetes for over 20 years. I am in my 30s now. Sometimes I cannot judge when the food is going to "hit" my system. Therefore glucose can go too low. Everyone is different. ;)
Do you think they tried? Try managing a 6-year-old's insulin level for a day. They may decide not to eat, or decide to run around. Don't be so quick to judge. :)
I thought it was going to be some boring old post, but it really compensated for my time.
sofiayearwood 2 months ago
a life saving pill. Stay healthy little girl> there is so much more ahead of you.
happinesson 2 months ago
To insect2kill, I hate it how you call yourself a person. You are actually an uneducated turd.
c1nikon 1 year ago
Help kids like Lilly - get the Ray Allen Muze premium T-shirt and help fund research looking to cure juvenile diabetes. 100% proceeds go to JDRF. Get yours at the Muze Clothing website.
tangerine1384 1 year ago
I hate how the announcer calls diabetes a "disease." Diabetes is a terminal illness.
Insect2Kill 2 years ago
i was diagnosed 2 years ago. my sugar count was 1,701 and i ended up getting a blood clot in my brain.
LivvytheWitch009 2 years ago
Good for this girl, but the truth is your insulin amount depends on your size, weight? What was her ratio? 1/30? im at 1/12 and thats just a start.
francoamerican99 3 years ago
i have it too!!!! i just got diagnosed april 1 2008
luvmuffine09 3 years ago
The title of the video is misleading, seeing as only 2-3000 people in the US have this condition. Definitely hold out for a cure, its coming!
jbph 3 years ago
way way way more people have diabetes! as many as 3 million people have type i diabetes.
runningswimqueen 3 years ago
Dr. Faustman is our biggest and best hope to cure type 1 google her and search for her on you tube she need all the support she can get.
toranacar 4 years ago
hey 28mom78 it's more than 3,00 i should know, both me and my BFF have it
alexist94 4 years ago
its like wayyyyyy more than 3,000, like you were sayin
clairebear235 3 years ago
Even though this may only affect 3,000 people, just think what else may be discovered in the future! A discovery such as this is a baby step, but one day(and I believe soon) the GIANT LEAP to a cure will be here. We must stay positive. I believe in that for the cure. And I believe in that for my little girl who lives with diabetes everyday. She is the bravest and strongest person I know.
28Mom78 4 years ago
actually.. it's a little more than 3 MILLION people who have type 1 diabetes.
runningswimqueen 3 years ago
I have to admit that I found the title of this CNN story, "Hope for Diabetics" a bit misleading and very disappointing. For all of us who hold out so much hope for a cure and an end to this suffering, the title is misleading. Most diabetics are not offered HOPE by this story. Although it has a positive ending, it does not provide hope for most of us.
Rh1no1 4 years ago
I hear what you're saying mate, I guess its just a head line for CNN, here in Australia every year or two the news comes out with a huge fantastic break though for type 1 and its the same old islet transplantation thing I've been hearing for the last 15 year, quite disgusting. The journalists don't do much research obviously, but this story does give more hope to some thankfully, particularly that little girl, she's a step closer to normal more power to her
Google Dr. Faustman
toranacar 4 years ago
i know him and his family!
swimmy08 4 years ago
I do find it odd that this took so long to gain someone's attention: someone on her diabetes care team should have noticed something was off when she was having seizures - given that it's not normal for any diabetic to do so.
More proof that diabetes (in all guises) is a widely misunderstood condition, especially by GPs.
lionrampant31 4 years ago
Seizures are very common when blood sugars are especially low in Type 1 diabetes. Further more, please don't talk about this like you have known that this condition existed all along and is very common. It was actually recently discovered by a scientist in England Dr Andrew Hattersley. There are only 2 possibly even 3000 people in the whole of the US who have this condition. That is less than 1% of the population of the city of Chicago.
jbph 4 years ago
Well mate I've been diabetic since I was 9 years old, and thankfully by 23 I've still never seen, nor experienced personally, a seizure related to low blood sugar. As far as I can tell, seizures require extremely low sugars below that of normal hypoglycaemia - and to have that happen frequently indicates a insulin management problem at the very least. I would characterise such mis-management, as not normal.
lionrampant31 4 years ago
...cont
By the way, I appreciate you're automatically defending your father here - but my point was addressing shortcomings in her _entire_ care team, from GP, consultant, dietitian, to the techs checking her HbA1c. Someone should have been trying to fix her insulin management sooner, and probably have come across this unique condition sooner as a result.
lionrampant31 4 years ago
Just adding my experience here. I have had a few seizures with severe low blood sugar. I have also had people tell me that diabetics do not have seizures. I can attest to the fact that some of us do. However, as diabetics we are still individuals and what may be normal for one person is not normal for another. I am saddened to see fellow diabetics get angry with each other. We need a lot of support. This is a hard condition to have.
tc,
Linds
Rh1no1 4 years ago
Now, I never said Diabetics don't have seizures. I said they shouldn't have, if their control is worth a dot.
lionrampant31 4 years ago
That is true. If blood sugars are excellently controlled, a diabetic should not get that low. However, I have gastroparesis as a result of having diabetes for over 20 years. I am in my 30s now. Sometimes I cannot judge when the food is going to "hit" my system. Therefore glucose can go too low. Everyone is different. ;)
Rh1no1 4 years ago
Do you think they tried? Try managing a 6-year-old's insulin level for a day. They may decide not to eat, or decide to run around. Don't be so quick to judge. :)
jasonjayhawk 4 years ago
Thank you for the information on the video. I would love more information!
leahwellsjoe 5 years ago
My Dad is her doctor!!!
jbph 5 years ago
hey joe......:) its jessie. your dad said he was on youtube so i decided to check it out!
swimmy08 4 years ago
She's is my cousin!!!
saguaroangel 5 years ago
I am encouraged and hopeful after reading Lilly's "cure"!
leahwellsjoe 5 years ago