Both people I knew who have MS also had mononucleosis in their past. Another thing that could have raised their risks of developing MS was the fact that they live in a more northern US climate, therefore low vitamin D levels also linked to MS. The whole thing is suspicious and I think there is definitely a link.
I have been MS free for one year. I had the liberation procedure on 8/27/11 and have not had any MS flare ups or ANY symptoms to speak of.
I also have lost 100 lbs. since I made this video.
I work twice as much as I used to and hike around the Rockies or swim in the pool most days.
Not only do I still believe CCSVI is a huge part of the problem, the wear on the BBB and release of nitric oxide due to the coagulation cascade being set off.
The virus is always going to be in our systems. The question is what makes it flare up? I strongly believe that answer is based in an evolving understanding of our changing environmental signaling molecules, now increasingly absent from most of our food-supply.
Sorry. I had the procedure done on 8/27/2010 (not a time machine owner :)
The theory of CCSVI led me to have a #16 angioplasty balloon go through my femoral, up through my right side of my heart and into my jugular vein and then inflated.
My MS stopped there.
I wrote that I believed in Zamboni, before I had the procedure.
My life is my testimony. I am MS-free and do not suffer from fatigue anymore.
Zamboni was 100% correct with his CCSVI theory, at least in my case
(See wikipedia: calorie restriction mimetics, xenohormesis, foxo and sirtuin genes for more details) But the long and short of it is that we need eat foods rich in phytoestrogens, resveratrol: Try eating more foods that include untreated soybean meal or flour, peanuts, blueberries, and red wine. Likewise, the same results would likely be acheive by practicing Calorie Restriction.
It's fairly well established that EBV is present in the sclerosis or lesions that occurs in the white brain and neuro-protective lipid tissue, so in this regard, yes EPV is MS. But, since 95% of the population has EPV generally benign and dormant in their B-lympocytes (immune system cells), and the great majority don't have M.S., that's not the whole answer. EBV is to MS as Chicken Pox is to Shingles.
These episodes were usually initiated by extreme or constant states of stress and/or a general failure to properly care for my physical self. So, logically, now I asking myself, is this M.S. SINCE THIS IS ALREADY TOO LONG, I"M JUST GOING TO STATE MY HYPOTHESIS.
I've been researching the same issue because recently I had experienced EBV/CF symptoms for about four weeks @ age 48, and now can recall about a dozen incident of EBV/CF over the past twenty-years.
- Mental disorders (infection of certain brain areas and of the sympathetic nerve)
- Slightly increased (subfebrile) body temperature temporarily to 38 ° C, especially in children (infection of various body areas in particular the temperature center in the brain)
- Concentration disorders to ADHD (Attention Deficit Syndrome =, mostly in connection with a toxic strain of the brain and allergies
I was diagnosed with MS 3 years ago. After having a hard time with Copaxone I stopped the therapy and started searching for a alternative. After a long research time I've started a immune regulating therapy with an antigen for herpes (predecessor of Eppstein-Barr). I've been doing it for 3 weeks now, so I can't really say yet if it's working. I've chosen this way because:
When the nurse came to wake me up this morning she was all"big eyed" saying that she's not even suppose to give ANY thoughts cause they leave it to the doctor, but now she does not wonder why I dont wake up refreshed.Whatever that means!?
Well THANK YOU again and again for answering.HOPE we can keep in Contact.I will go to Sunshine Natural Food store and ask about your recommondation.
Your very sleepy german friend Tammy (stuck in big ol' Texas Yeehaaa!)
Thank you for your resonds and I' sorry it took me awhile to answer.This morning I came back from a sleep study my new neurologist ordered.The funny think is that I slept "better" there then at home.Do you expirience muscle soorness or pain when you wake up in the middle o the night?I , most of the times wake up in the night time and can not hardly mov my fingers or my neck and sometimes y entireody feels ike I ran a marathon.And I used to do that when I was younger(seems SOOOOO long ago!)
PS If you are having a little hard time to understand what I'm trying to say I apologize.English is not my native language.I'm from Germany.So PLEASE excuse and don't let this be and issue to not respond.Thanx, Tammy
Tammy. I got what you were saying. I also agree that you do not have to be an M.D. to understand your body, health, etc...
From the info you posted I do not doubt that you feel you have M.S.
Also many MS'ers have fibromyalgia as well from the people I have met online.
Some research suggests that MS'ers have "sticky blood" due to high fibrin levels, People with fibromyalgia also have high fibrin content in their blood. (I have been taking a proteolytic enzyme to help this
You don't have to be a MD to know that there is something wrong with yourself.MD's try to make you look dumb if you search the internet for the answer they don't seem to be able to give you.
It all makes sense what you saying.IT REALLY DOES!
It would be awesome to stay in contact with you.For sure I will follow your postings right here.
It came and went away over the years and now it seems like I'm stuck in it weather I want to or not.They pump me full of all kinds of Anti depressants.And YES I am depressed.Who wouldn't be?
I want my life back !Want my 3 children see to grow up happy with me being able to interact and take part of it!
God bless you my friend.I am happy I found your video.Makes me feel more like a human being again.
No I dont think you wrong.It makes TOTALLY sense.After A LONG time my doctor diagnosed me with Fibro today.They FINALLY found the Eppstein Barr Virus, three times more the normal range.I've researched to exhaustion to the point that I really thought maybe I'm crazy like most of the military doctor's made me feel.My MRI's showed White Matter Disease,my brother(we share the same mom)has MS and I have ALL the symtoms, for SO long.
I think you've hit the nail on the head, guy!!! Kudos to you for putting this out there for all of us who deal with MS, looking for a reason as to why we have it, and in hopes of increasing research for a cure. I am going to expand on my own personal MS journey with you on the site where I found this link. God bless you for taking this stand. Thank you so very much :)
I think you've hit the nail on the head, guy!!! Kudos to you for putting this out there for all of us who deal with MS, looking for a reason as to why we have it, and in hopes of increasing research for a cure. I am going to expand on my own personal MS journey with you on the site where I found this link. God bless you for taking this stand. Thank you so very much :)
I think you've hit the nail on the head, guy!!! Kudos to you for putting this out there for all of us who deal with MS, looking for a reason as to why we have it, and in hopes of increasing research for a cure. I am going to expand on my own personal MS journey with you on the site where I found this link. God bless you for taking this stand.
i am happy olso sad today, i have been tired last 5 years, finally today they find the problem. i have eptein barr virus. i am happy i know the problem but sad part no solution.i have been tired all the time terrible feeling.
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This is not a mystery. It takes at least 2+ years on the diet to take effect, because every one of those cells need to be rebuilt with the right ingredients. Yes, the white blood cells are amok. That may never go away, but at least they can stay out of the CNS. Any virus that triggers permeability of the BBB can lead to MS. Eat less than 10 grams of saturated fat.
It is important to stack the deck on the right fats, because if the blood brain barrier is made out of the right fats (omega 3s) the inflammation response is reduced and the integrity of the barrier is kept intact by limiting the cascading effect from the local hormone responses (prostaglandins) which dilate the blood brain barrier.
I have EBV but i feel like its never dormant bc i'm exhausted aaaalllll the time! How did they diagnose MS. Ive had a neg head CT. I also have adrenal exhaustion tested by a saliva test. The supplements of adrenal PMG seem to help me if you wanna have a saliva test to check your adrenal function it did help some with my chronic fatigue. Do people with MS have low adrenals too?
My sister was stricken with MS in 1985 and had mono in 1975. This is astonishing. What are your feelings or have you heard about the possible connection with people born on the east coast? The amount of people that I grew up with and went to school in NY that now have MS is staggering. Your feelings... Anooch18@yahoo.com
I think you may very well be onto something here. My illness started with EBV in 1995. I had been sick with a flu-like illness for about 6 months (later found to be EBV). I had an attack of what I now realize was ON and went to an ER. The ER doc gave me a flu shot. Next morning I could not walk & was later diagnosed with transverse myelitis. I ended up wtih relapsing/remitting TM. Stress seems to play a huge role in relapses. What you said makes perfect sense to me from my experience.
I think you may very well be onto something here. My illness started with EBV in 1995. I had been sick with a flu-like illness for about 6 months (later found to be EBV). I had an attack of what I now realize was ON and went to an ER. The ER doc gave me a flu shot. Next morning I could not walk & was later diagnosed with transverse myelitis. I ended up wtih relapsing/remitting TM. Stress seems to play a huge role in my relapses. What you said makes perfect sense to me from my experience.
I think you may very well be onto something here. My illness started with EBV in 1995. I had been sick with a flu-like illness for about 6 months (later found to be EBV). I had an attack of what I now realize was ON and went to an ER. The ER doc gave me a flu shot. Next morning I could not walk & was later diagnosed with transverse myelitis. I ended up wtih relapsing/remitting TM. Stress seems to play a huge role in my relapses. What you said makes perfect sense to me from my experience.
I think you may very well be onto something here. My illness started with EBV in 1995. I had been sick with a flu-like illness for about 6 months (later found to be EBV). I had an attack of what I now realize was ON and went to an ER. The ER doc gave me a flu shot. Next morning I could not walk & was later diagnosed with transverse myelitis. I ended up wtih relapsing/remitting TM. Stress seems to play a huge role in my relapses. What you said makes perfect sense to me from my experience
I believe you are dead right on about this - MS, irondeposits - shorting toaster effect - yes.
Also - Copaxone (withmydamagedhyper-immune system) set off an idiopathic allergic reaction ( to milk, cheese (dairy), eggs, tomatoes, oranges, chocolate, (chemicals –sulfa,MSG,&aspartame-aesulfame), some metals (nickel, silver), certain botanicals , and molds. So now have immunehindrances, MS, as well immunologist advised - no C.R.A.B. protection at all for this degenerative disease.
I had Mono goneChronic when I was eight. I was given penicillin - developed an allergic reaction to it. Developed two different types of purpura -henoch schonlein purpura &thrombotic thrombo-cytopenic purpura. Weight - twenty something pounds, nearly died - in hospital several months. Years later had a severe MS attack, got spinal tap, finally knew - had off and on funny symptoms from my teen years to middle age - now it is obvious. developed idiopathic allergy to Copaxone as well.
I had Mono goneChronic when I was eight. I was given penicillin - developed an allergic reaction to it. Developed two different types of purpura -henoch schonlein purpura &thrombotic thrombo-cytopenic purpura. Weight - twenty something pounds, nearly died - in hospital several months. Years later had a severe MS attack, got spinal tap, finally knew - had off and on funny symptoms from my teen years to middle age - now it is obvious. developed idiopathic allergy to Copaxone as well.
I had mono my freshman year in high school and was diagnosed with MS my senior year of high school. thanks for posting your videos :) they've helped me understand & learn a lot.
I enjoy looking at this picture and trying to figure it out.
I have many theories.
I currently am free of any MS symptoms due to having the angioplasty for CCSVI coupled with intervention for my sleep apnea.
I have no doubt that the latent EBV is still in my blood, I just do not think it is crossing the Blood Brain Barrier due the reflux being reversed from my right jugular vein.
I had mono when I was a teenager. I am now 45 and got diagnosed with MS in 2004. Is your theory that having had mono is connected to getting MS? Do you recommend getting tested for Epstein Barr virus? What exactly is this virus, please elaborate. There just might be a connection. I wish we knew what causes MS it is frustrating not knowing,
I think the public needs more videos from actual patients like yourself...you explained the symptoms accurately and the theories are good ways to help professionals trigger their thinking in different ways for a cure ....
I think the public needs more videos from actual patients like yourself...you explained the symptoms accurately and the theories are good ways to help professionals trigger their thinking in different ways for a cure ....
Irishbear76, you are not full of shite. I had a severe case of mono in HS (missed 76 days of school). Fatigue has been my most constant MS issue besides Optic Neuritis. And yes, my fatigue gets worse when I'm stressed out (which is a lot). Nice post.
It is always good to have someone in agreement with you.
Obviously my views have been changed a bit.
I was treated for CCSVI in August and my MS has vanished.
IF you get a chance go to my channel and check my last half dozen MS posts or so.
Mark
p.s. My MS symptoms were also closely tied to EBV symptoms. I felt like I had mono for 7 years with my MS other than my major attacks which acted more akin to a brain tumor than MS. HORRIBLE MEMORIES.
IB- my MD just informed me that my EBV has been active for many months. I thought it was just my MS going from RRMS to SPMS. maybe not.....think yur right about the nervous system being ovrworked which makes us all very tired sending out varios signals. I'm convinced my EBV is behind my MS symptoms. Wish I had an EBV test done a year ago to see if it was active when I was more physically able as a control but no dice. How's are your CCSVI efforts coming along?
Irishbeer The do say that people with a higher CBC count of Hetrophile antibodies are at a higher risk to develop MS. Get this I had Mono at age 14. 14 years later developed MS related lesions. My HA CBC is still high, which lead to years of Limbic Encephalitis which led to Borderline Personality Disorder. I really do not think kissing Holly Francis was worth all of this. Hey we should share some research. There is definitly something there
Yes! Mono went around the place I worked & I got it. 6 weeks later I had my 1st MS episode (optic neuritis). This was 11 years ago and I continue to battle MS, and chronic fatigue. Also of note, 2 of my co-workers who got mono now have chronic fatigue syndrome. I think your theory of the "double whammy" of residual fatigue from the mono, plus fatigue from the mis-firing nerves, is brilliant. I am going to share it with my doctor (giving you credit, of course). Thanks again, irishbear76!
I've had CFS since I got MONO (that virus almost killed me). That was in 2005.... We are in 2010 and I'm still feeling like crap. I like talking to people that had mono becouse when I say MONO HAD RUINED MY LIFE you really know what I mean.
Hey I like your theoryBut i have my own We are all born with MS somthing must trigger your body to to make disrupt and reverse human nature The gov. does all these crazy supposly nessecery cheical testings weather it is crop panes to kill bigs eating farms or the dangerous west nile sprayings or any miqueteo spraying its a posion MAN made to sttack the nerves of anything with a "WEAK" immune system and if your safe from the initail sprayings it stays in the soil and trees for 16 weeks after
I came across your video by doing a Google search. I did have mono (a very serious case) about 10 years ago and I haven't been the same since. I have also tested positive for EBV since then. In the past couple of years my health has declined to the point that it has really affected my life. I have multiple symptoms and many of them are that of Chronic Epstein Barr Virus and also that of MS. I am currently in the process of trying to get a diagnosis so I know exactly what I'm up against...
I like your video/theory and really think you're onto something.
I have just been diagnosed with MS and have had mono at LEAST 3 times when I was younger. Plus, I used to get a lot of cold sores.
I used to be full of energy--- soccer player, FAST runner, and now, I am tired all of the time not to mention my chronic back pain and optic neuritis. I'm not even out of shape! And I'm only 20. Every day feels like it is hard to do little things, just like you said.
You are not the first person to tell me that they have MS and that they have had MONO more than once.
More and more current research is starting to reveal that I was on to something with this video. (Just in the past 7 months. A definite link between Epstein-Barr and MS has been established).
I have read pubmed articles that confirm this link . I have not seen anything yet that says that the EBV titer is higher when MS patients are in a flair. I would like to know what you think about vaccines and MS. I have read a lot about this as well. I am trying to decide whether myself or my daughter should get vaccinated for H1N1. My daughter had mono when she was 5 yrs old! So I am chicken that if she has enough things happen she will get MS.(I am her mom). Thanks
H1N1 vaccine and our children. I think they are rushing to get a vaccine out which alarms me about the safety of a vaccine when it is developed and given out en masse within 6 months. VERY SCARY.
The only vaccine I have ever heard in the same breath with MS is the Hep B vaccine. They were looking into that and decided there is no link (if you get a series of 3 and NO MORE)
I have read links between the Meningitis shot and Guillen-Barre tho.
No I still work full time because I am a glutton for punishment.
A month after I posted this video, Seatle Neuroscience did a study that effectively linked Epstein-barr with MS. It is just a matter of time before getting the word out.
Hey bear! just catching up on some of your eairler vids! thank you for sharing :) a question?
My son in his teens at least 10 yrs ago came down with mono and a cyst on his lower spine called Poly something can't remember the spelling which they drained etc. etc. he is 23 now and is so tired all the time he works so hard BUT at 23 wheres the energy! as mom I can't see someone so young without more energy. I have said nothing to him but am concerned he may have issues close to my MS ? be well
How can Doctors say MS is not caused by a virus when they treat MS with interferon? Interferon's main job is to fight against viruses and parasites and tumor cells. Interferon assists the immune response by inhibiting viral replication within host cells, activating natural T-killer cells. Kinda weird since killer T-cells are the ones doing the damage in MS.
EBV affects by changing the transcription inside cell. It takes the control of nuclear activities. It might as well cause MS, or increase the possibility or intensify. So, I agree with you. Not just me :) also Levin et al (2003). Do you know something speculative about EBV? Something not written in literature, but you think as your intuition.
I think exacerbations are similar to flare ups of herpes virus. The exception being herpes flare ups occur on the lips, the eyes, the genitals where EBV flare ups occur in the brain or spinal cord.
I believe that these flare ups are merely EBV ending dormancy and becoming active in the CNS. Your immune system says "Not again" and goes under attack accidentally attacking myelin/white matter.
I am proud to say one month after making this vid Seattle Neuro published saying what I said.
This is starting to make me wonder which came first the chicken or the egg? Did EBV really trigger our MS? Or did something else do it and make the EBV that is already in our bodies worse? Since almost everyone world wide gets EBV but they don't get MS. Sure genetics and the location where you live plays a factor but there has to be more to it. MS does make every other condition that you have already have worse.
This is the thing 90% of humans get exposed to EBV. NOt everyone contracts mono from it. SOme people fight it off without so much as a sickly feeling. The thing is with the wonderful people that get MS we are GENETICALLY PREDISPOSED TO GET MS. It is not a slam dunk that because you have a genetic predisposition you will get it.
Latitude (which effects VIt D hormone availability)
Ethnic background (Spec. W. Europe)
genetic makeup.
EBV is the catalyst. Your DNA is the key to if Uget it or not
MS has been called the most complex illness in the world. But is it really? I have always felt the reason for it's existence is staring us right in the face and it's not as complex as researchers or doctors think it is.
MS has many things in common with other illnesses. Like Leukemia. Both have haywire B-cells and are both being treated with a drug called Alemtuzumab, (Campath.) And MS has things in common with HIV/AIDS. MS is the opposite of Aids. In Aids T-suppressor cells are haywire and cause damage by shutting off the immune system. In MS T-Killer cells are haywire and cause the damage in a over active immune system. All MS treatments all do the same thing, they slow, calm down the immune system.
I have done some research (both personal and for school) on this disease. I find your theories to be very interesting because the cause or history of MS is yet to be known.
P.S. You definitely do not have to be a scientist to make a great discovery (going completely off topic but to make a point.) The H-W Equilibrium was discovered my two mathematician and this is now used everywhere. Also Gregor Mendel was a simple Austrian monk that had a garden.
I have always said stay away from the amino acid L-Arginine as much as possible if you have MS because it causes inflammation. Do this by watching foods contain it your diet. And take L-Lysine because L-Lysine counters the affects of L-Arginine. L-Lysine helps control outbreaks of the Herpes simplex virus. MS is related to the Herpes simplex virus. Proving MS is if not totally but partially viral related. L-Lysine is one of the four amino acids in the MS drug Copaxone.
Diet also plays a huge role in the well-being of people who have MS. I have MS and I've noticed that certain foods make my symptoms better or worse. Stay away from processed foods (i.e. foods that have preservatives in them and other stuff you can't pronounce; growth hormones). That's why it's best to eat organic food or just go back to the original way humans used to eat, which is more water, fruits and vegetables, and less red meat and fat.
Hey you guys...Just wanted to thank you all for your cooperation. You are great. The EBV does infect the B cells unfortunately. I have one more month before I can get some tests ran. You all sure have helped me feel better or encourage me - it helps to talk to people. Thanks again.
I forget if you answered this or not. Around your abdomen but over on the left side of the body, do you notice that it looks swollen or sticks out more than your right side? This is where your spleen is located. A clear sign of EBV / MONO is a swollen spleen. The only thing vitamin wise that EBV or Mono seems to dislike is Vitamin C. I can remember my body craving vitamin C years ago. I was taking 6,000 mg's a day or even more. It might not do much but it might give you more energy.
My abdomen swells alot lol and I talked to several people with the CEBV and they have the same symptoms. Swelling, and some pain along with nausea. I never thought about the spleen thing. So I should up my Vit C. I was talking to this guy in Austrialia and he is like me my stomach is so easily irritated and I have tons of supplements just sitting there collecting dust in my cabinet.
Hey guys may I ask another question. With MS do you become really weak? I feel like I am falling apart here now I am getting more muscle weakness and blurred vision? Help. I read on the MS society site that they do speculate that the EBV may trigger MS. I dont think I can wait much longer to find out what is wrong with me. I am growing so impatient. Thanks for your cooperation. And hope you all are doing well and you are happy.
I have never felt so weak in my life. 3 years ago I was into body buiding and had arm muscles bigger than most men. It is hard for me to believe how just doing a simple thing seems so hard.
I have EBV and chronic fatigue and blurry/double vision even though they tell me i have 20/20 vision. one Dr told me it could be fatigue from weak eye muscles but everyone else thinks im crazy bc my vision is blurry even though my eye exams are good. let me know please, if you find out whats causing the vision trouble, thanx. my email is ctadearth@aol.com
I must say it amazes me how our bodies can be so strong and normal and then they just seem to go haywire. For normal healthy people it would be hard to understand. But for those of us who wake up every morning and go through out our days with all these strange symptoms. It is so real. Whether you choose to ignore some of them or not they are there.
Every person who lives with MS and continues to live their lives DESPITE how they feel deserve recognition for their wearwithall and perserverence.
I have always told my wife that someone should pin a medal to my chest for continuing to work and get out of bed in the morning because i feel weak, numb, painful, etc;...
With MS I have read you do have Chronic Fatique. Do you have this daily? I have CFS and Fibromyagia also. Ofcourse the CDC tries to say the chronic EBV develops into CFS and I dont necessarily or totally think it is CFS but a reprecussion of the virus reactivating in the system over and over. The EBV is the cause of it anyways.
A lot of people with MS suffer from chronic fatigue. I have mostly when in a relapse. Otherwise I would say no. I have as much energy as some people who don't have MS.
As for chronic EBV, for this to have happened it apparently has infected the B-cells.
It seems since I developed the Chronic EBV my health is detiorating. The EBV patients show elevated levels of Nitric Oxide / Peroxynitrite which can cause glutathione depletion. Has anyone had their NO levels checked? Patients also show elevated levels of citrulline in the cerebral spinal fluid. With MS what shows up in the spinal fluid? Thanks for your listening and any help will be appreciated.
Nitric Oxide is bad for MS as well. Any food, vitamin, herb that helps the body produce more of it I avoid like the plague. As for what shows up in spinal fluid, Irishbear would be able to answer that better. I didn't get a spinal tap.
Oligoclonal bands are what they are looking for. It is a protein byproduct that occurs with myelin or white matter destruction.
They also look for Lyme disease among other things.
There is only one lab in the US they send spinal fluid to that tests for Lyme and it is in Salt Lake City, Utah. That is why you have to wait so long for results.
Hey u guys I am back - can I ask a few questions please. Do you all get muscle tremors? I have been getting them in my legs. Waking up with them in the morning. With MS you have relaspes but do you have troubles with reflexes giving out, bumping into things, lack of coordination in between these relaspes? I will be able to get a MRI in one more month. Also some blood work. I have had a Vit B deficeincy in the past and got shots. Does MS get worse and worse over a period of time? How bad?
MS is unpredictable. Everyone who gets it is dnot the same and it affects people differently at different times. As for being uncoordinated at times, yes that does happen. The first sign of it was dropping things. And as for joints giving out another sign for me was not being able to stand on a ladder.
The general model for Relapsing Remilting MS is that you have waxing and waning periods of flare ups and recovery for awhile and then you convert to Secondary progressive over an undetermined time.
Some people never do and relapse and remit for good. Some immediately lose function. SOme have a benign disease course and have an exacerbation on two and never deal with it again. Some people are diagnosed and go down hill QUICKLY.
Here's a interesting thing. They say there is a link between vitamin D deficiency and MS. A lot of doctors warn not to go out too much into direct sunlight during the summer time, (lots of sunbathing.) because it can make you feel worse or cause you to go into a relapse. This to me didn't make any sense. Until recently they have discovered that during the summer, ultra violet ratings are high. UV light actually sucks vitamin D out of your body. Now it does make sense.
Uhtoff's phenomenon is why I stay out of TOO MUCH HEAT and SUNLIGHT.
I will have a transient return in vertigo if I get too hot for too long.
I would have to say I would probably not be fat if I wasn't so sensitive to the heat or getting hot. It has definitely curbed my enthusiasm for working out.
In the different articles I have read about MS it appears we have a selenium deficiency. We also have a reduced capacity to detoxify free radicals related to reduced activity of glutathione. It appears we are deficient in practically everything! So taking a anti-oxidant such as vitamin C, vitamin E or ALA, Alpha lipoic acid, can't hurt.
what about foods such as white sugar, bleached flour products such as bread, pasta that also contain gluten? or animal products with steriods and such? what is the trigger on a everyday bases continues to feed the virus. we can only be as good as what we see triggers each and everyone of us and think hard & long and bring all the info together if we wish to succeed at winning this fight against MS. I also believe that stem cell research is heading in the right direction . thx.
While there is no over baring proof food causes MS. I believe everyone who has MS should be checked for food allergies. Then stay away from those foods you are allergic to. Why? Because allergic foods cause a inflammation response. If you ever read about the MS diet they recommend staying away from certain types of foods. I notice the foods they recommend to stay away from all containing high levels of a amino acid called L-Arginine. L-Arginine causes inflammation in a few different diseases.
B vitamins are important. People with MS have a deficiency of vitamin B12. (Methylcobalamin is the best form of B12 to take. It helps my energy level.) Vitamin B12 deficiency is associated with demyelination of the CNS. Three other B vitamins that are important in myelin formation. Vitamin B6, B3(Niacin,take the non flushing kind unless you like turning red.) and B2(Riboflavin). You can get all of these in a vitamin B complex.
It is clear that MS affects the B-cells but also it affects the T-Helper cells because they have trouble balancing the other T-cells. The Helper T-cells have been called the brains of the immune system. Because the B-cells wait a signal from them, (In form of a antigen). Then B-cells will make either two different clones of itself. A plasma cell (Antibody) or a Memory cell.
Could MS really be more of a T-helper cell problem rather than a B-cell?
People with MS have been shown to have lower levels of certain T-cells, called FOXP3+ regulatory (Also known as Suppressor T-cells). It's the T-Helpers job to keep a balance.
If you have problems with energy try taking Vitamin B complex, Vitamin B 12 the Methylcobalamin form. Vitamin C which apparently EBV seems to dislike. Drink more water because it contains oxygen. And try glutathion, which the body makes naturally but people with illness have a shortage of it. And stay away from foods you are allergic to. See if all these things or some of them help with your energy. I don't seem to have a problem with it.
As I have stated on here prior, since I've had MS I have only had one cold in 5 years. And for me that's a record! Other people might be different though. If anything we all have a over active immune system.
What has been the most difficult symptom and attack for you all? HOw long has it lasted and do you have Chronic Fatique daily? If MS puts pateints bodies in an over active immune state does that protect them from getting other illnesses or hurt them in other ways?
In 2004 I was hit with so many weird symptoms I had no idea what was wrong with me. I thought I was dying. These were several relapses. This seem to be that initial major stage of MS everyone goes through. After many tests I was finally diagnosed that same year. I did go through extreme fatigue to the point I slept nearly all the time. Since that horrible year I go through 2 to 3 relapses a year. And no you don't seem to get other illnesses more with MS.
Then when our helper T-cells catch up to what is going on with our out of balance killer cells they increase the suppressor cells creating a balance then we go into a remission.
The three Main T-cells are the Killer, Helper and Suppressor cells. It's the helpers job to balance the other two T-cells. In the case of AIDS there is a over balance of T-suppressor cells resulting in shutting down the immune system. I believe in MS we have a over balance of killer cells. Not all out killer T-cells are attacking our myelin. Some are doing their normal jobs. I believe when we have a relapse we have too many Killer cells.
Thank you for responding you guys I greatly appreciate it. Wow, I am like reading your comments and attempting to store all this great info in my brain. In July I will get the MRI and a spinal tap. It seems like I have waited forever. My doc did a Lymes disease test 2 years ago. I have heard they can come back positive and you can still have it. If you have MS it shows up on a MRI right? Brain lesions? Is that how they diagnose it? I heard it is not life threatening but gets worse right?
A spinal tap will show the signs of disease activity. A MRI will show plaques or legions in brain which are signs of inflammation. I was diagnosed with just a MRI. They never did do a spinal tap on me. MS is not life threatening but it can shorten lives it is quite unpredictable. It affects everyone differently.
I was diagnosed with just a MRI. Which seemed to be enough for the neurologists here and the MS society. I haven't got the strongest faith in our medical system here. I wasn't even asked for a spinal tap. I'm not sure if I would go through with one. I had another MRI in 2007 to see disease progression. I went from two legions to over twenty. So it doesn't appear my disease is slowing down any.
It's strange but some people who get HIV never have it grow into AIDS and they can live a life time with it HIV. While some other people who get HIV then get full blown AIDS and die real quickly. If HIV cures MS then I'd rather have MS and take my chances. I don't want people running out and getting infected thinking it will cure their MS. It could end up escalating both diseases and kill the person off real quick. I am curious if their is such a person who has both MS and HIV/AIDS.
If you ever notice MS is almost like the opposite of AIDS? They are both caused by a virus. Both mutate the immune system with haywire B-cells which command the immune system with messed up anti-bodies. Both involve T-cells which end up causing the damage. In MS it's the Killer T-cells in AIDS it's the Suppressor T-cells. MS is a over active immune system. In AIDS it's a immune system that gets shut down. Only difference is that MS isn't contagious but AIDS is.
I thing I have always wondered about viruses. What is it's main objective? To kill it's host? Then that is killing itself which makes no sense. While under attack from the immune system does it sacrifice itself to save others like it? No I think that is too much brains for it's capabilities. Is it's main objective survival at any means possible? Which would mean it's main objective is to mainly to procreate.
Since you have a elevated EBV, have you ever noticed a slight pain in your left side? Like a tightening feeling? It's almost like when you are running to fast and you get a stitch in your side.
I've always tried to look for ways to a to fight a illness with healthy alternatives rather than medicine wise. Though I will be the first to admit both are needed. Most diseases involve inflammation. So eating foods that cause inflammation can't be very helpful. One thing I think everyone should do is be tested for food allergies. And avoid the foods you are allergic to. Every little bit helps and like the old saying goes, you are what you eat.
I don't want to alarm you. But I have MS and I've had a lot of those same symptoms you are describing off and on and on a on going basis. Another thing I wonder reading what you are describing is the possibility of Lyme disease. I used to wonder that about myself more than once since I'm always around animals and live near a forest. Symptoms of Lyme disease can mimick MS almost to a tee. Has your neurologist ever suggested getting a spinal tap besides a MRI?
Thanks for sharing that with me. Over a period of time I have noticed my symptoms get worse and my body reacts the same. It is like you cant judge when or why it is going to happen. It comes out of nowhere. No my doc hasnt suggested a spinal tap...are they better than MRIs?
I wouldn't say they are worse or better. I think it just makes it more definite on what you have. It all depends on the doctors on how they go about diagnosing MS on what they order to have tested.
Sorry for the ongoing discussion here but I wanted to mention that my last EBV test was elevated. Positive is >01 and mine was >5.9. The EBV since day one has caused me to have bad headaches, nausea daily, muscle and joint pain, extreme malaise (feeling flulike symptoms) weak, swollen lymth nodes in my throat when it acts up and get larengitis, and run a low grade fever. I have had some night sweats. I just thought I would explain the viral symptoms I have experienced so others can relate
Your immune system wants to protect you. It t hinks it is killing EBV when it attacks myelin, white matter, and the optic nerve.
The EBV that is not dormant that likes to hide probably hid in your CNS. The immune system went after it. The problem is that it has programmed to destroy the EBV and cannot differentiate your tissue from EBV. It has "special clearance" to cross the BBB. It would be like being a soldier in VIetnam not realizing the war is over. Headquarters cannot relay the message.
At first it seemed to be not so bad but now I have what I would call muscle spasms or shakiness, tremors? some. I get numbness in my hands and feet. My walking issues have worsened and are more noticeable. I slur my speech sometimes. I cant open doors some my hand just stops working. I know you all arent docs...but is this what you go through. I am sorta discouraged and scared? II am not trying to self diagnose..but when you go without insurance for 27 months you sorta just look yourself.
When you speak of an attack do you mean you get these symptoms and then they go away or you go into remission. Do attacks last for days? It seems my symptoms are slowly but surely developing and getting worse. Some days are better than others. Oh wow thanks, I will contact the MS Society and thanks for the excellant advice.
A MS attack or relapse can happen quite suddenly and can last for days, weeks sometimes months to go away. Sometimes it never goes away completely. It can affect something and when it comes back it can be not quiet the same as it was before the attack.
My doc has repeatidly ordered MRIs due to other symptoms I have developed yet I have no health insurance. My Medicare kicks in July 1st. For over a year now my body has been freaking out. It started with me dropping things, my hands freezing up, tripping over things, and my legs feeling like they weigh a ton. Then came the loss of balance or coordination, staggering, bumping into things, muscle weakness, and delayed reflexes. Lately I feel like I have gotten worse. Bear with me please as I cont.
If you guys dont mind I would like to share my story and ask for help please. You may wonder why I am interested in your feedback. On Jan 07 I developed the chronic EBV along with Chronic Fatique, Fibromyagia, then started having migrianes for up to 4 days in a row, mild seizures, muscle and joint pain, addisons disease and a sluggish thyriod. I lost my mental and physical abilities and was bedridden for 6 months. I have been under the care of a nuerologist specialist for over 2 years. (next)
I am the same with the symptoms just no seizure actitivity. Please let me know if you find help from the fatigue. i'm on hydrocortizone for my adrenals. is that the same as you? ctadearth@aol.com
I am the same with the symptoms just no seizure actitivity. Please let me know if you find help from the fatigue. i'm on hydrocortizone for my adrenals. is that the same as you? ctadearth@aol.com
B-cells are the main problem with MS because of the antibodies they are making. My theory all along to stop MS was to fight anti-bodies with anti-bodies. It's interesting now that they are using a clinical trial with a Leukemia drug called Alemtuzumab marketed as Campath. This drug is a anti-body which targets the B-cells. This I feel is on the right track.
Yes that's what I am saying, in the case of MS the immune system is attacking itself. Why it does this is because something has mutated or tricked the immune system. Most likely a virus. But more likely a combination of them over time. Now why are teenagers starting to get MS when that was virtually unheard of before? Are viruses changing and becoming stronger? Is it because of worsening environmental factors? Or are our children being overly vaccinated?
I understand the etiology of MS has been obsure and highly continous and that genetics and viral infections are thought to trigger it. So what you are saying is the immune system is attacking itself. Right? Viruses infect all cellular life: genes, DNA and RNA, the protein coat that protects genes, & envelope of fat that surrounds them when they are outside the cell. B cells and T cells are lymphocyte. Problems with the bodies lymth system can impair the bodies ability to fight infections
According to Doctors there is no clear cut case supporting that EBV is responsible for MS. In fact they cannot pin point to any particular single virus. The more things I read the more I feel it's a combination of different viruses at different times all causing a different immune response. Which explains why all of us with MS get hit with it at different times in our life. One thing for sure, people are getting diagnosed with MS at younger ages than ever before.
MS is caused when the B-cells go haywire or are reprogrammed by something to make anti-myelin anti-bodies. These anti-bodies tell a particular group of T-cells, (The Killer T-cells) to attack any myelin. The T-cells are only doing what they are told to do. The B-cells are the real culprit of MS and are what's needed to be targeted so they stop producing these anti-myelin anti-bodies.
I believe that the epstein-barr virus like every other virus HIDES when it is being attacked.
Think of Type 1 diabetes (juvenile onset).
The causative organism MUST hide in the Islets of Langerhans located in the pancreas. This area has insulin producing b cells. The immune systems destroys it and the person cannot make insulin. Insulin Dependent Diabletes Mellitus is the result. It is pretty much understood that herpes virus can hide in eyes, white matter, myelin. Our immune system do its job
It does aggravate the T cells and then the T cells attack.
The problem is they attack EBV in all the nooks and crannys.
EBV (and other herpes viruses) are exceptionally good at hiding.
The T cell attacks EBV even after EBV takes on characteristics of your own cells.
Eventually the immune system cannot differentiate the two and gets trapped in the CNS. Where the immune system may have an answer the t cell is left behind with one order.
Both people I knew who have MS also had mononucleosis in their past. Another thing that could have raised their risks of developing MS was the fact that they live in a more northern US climate, therefore low vitamin D levels also linked to MS. The whole thing is suspicious and I think there is definitely a link.
koyokoyo78 1 month ago
I read your profile where you state CCSVI therapy may be the cure. CCSVI therapy is not a robust enough MS theory for me.
biotecfoods 5 months ago
@biotecfoods
I have been MS free for one year. I had the liberation procedure on 8/27/11 and have not had any MS flare ups or ANY symptoms to speak of.
I also have lost 100 lbs. since I made this video.
I work twice as much as I used to and hike around the Rockies or swim in the pool most days.
Not only do I still believe CCSVI is a huge part of the problem, the wear on the BBB and release of nitric oxide due to the coagulation cascade being set off.
I could tell you, but my last MS vid...
irishbear76 5 months ago
The virus is always going to be in our systems. The question is what makes it flare up? I strongly believe that answer is based in an evolving understanding of our changing environmental signaling molecules, now increasingly absent from most of our food-supply.
biotecfoods 5 months ago
@biotecfoods
Sorry. I had the procedure done on 8/27/2010 (not a time machine owner :)
The theory of CCSVI led me to have a #16 angioplasty balloon go through my femoral, up through my right side of my heart and into my jugular vein and then inflated.
My MS stopped there.
I wrote that I believed in Zamboni, before I had the procedure.
My life is my testimony. I am MS-free and do not suffer from fatigue anymore.
Zamboni was 100% correct with his CCSVI theory, at least in my case
Blessings
irishbear76 5 months ago
(See wikipedia: calorie restriction mimetics, xenohormesis, foxo and sirtuin genes for more details) But the long and short of it is that we need eat foods rich in phytoestrogens, resveratrol: Try eating more foods that include untreated soybean meal or flour, peanuts, blueberries, and red wine. Likewise, the same results would likely be acheive by practicing Calorie Restriction.
biotecfoods 5 months ago
(See Calorie Restriction at wikipedia.)
biotecfoods 5 months ago
It's fairly well established that EBV is present in the sclerosis or lesions that occurs in the white brain and neuro-protective lipid tissue, so in this regard, yes EPV is MS. But, since 95% of the population has EPV generally benign and dormant in their B-lympocytes (immune system cells), and the great majority don't have M.S., that's not the whole answer. EBV is to MS as Chicken Pox is to Shingles.
biotecfoods 5 months ago
These episodes were usually initiated by extreme or constant states of stress and/or a general failure to properly care for my physical self. So, logically, now I asking myself, is this M.S. SINCE THIS IS ALREADY TOO LONG, I"M JUST GOING TO STATE MY HYPOTHESIS.
biotecfoods 5 months ago
I've been researching the same issue because recently I had experienced EBV/CF symptoms for about four weeks @ age 48, and now can recall about a dozen incident of EBV/CF over the past twenty-years.
biotecfoods 5 months ago
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TheViragocska 7 months ago
- Nerve pain (infection of several sensitive nerves)
- Thyroid disorders (over-or underactive, infection of the thyroid)
- Heart palpitations, cardiac arrhythmias, heart to heart pulling pain (infection of the conduction system, Cardiac plexus and / or heart muscle)
- Liver dysfunction (hepatopathy) with or without elevated liver enzymes (liver infection)
- Digestive problems such as flatulence and loose stools to diarrhea (infection of the pancreas
TheViragocska 7 months ago
- Epilepsy (infection of certain brain areas)
- Mental disorders (infection of certain brain areas and of the sympathetic nerve)
- Slightly increased (subfebrile) body temperature temporarily to 38 ° C, especially in children (infection of various body areas in particular the temperature center in the brain)
- Concentration disorders to ADHD (Attention Deficit Syndrome =, mostly in connection with a toxic strain of the brain and allergies
- Sleep problems (infection of the sleep centers)
TheViragocska 7 months ago
- What is MS? Not even the doctors really know. Is it really a disease?
- Your theory: We are always tired (and also have some other problems)
- My test on herpes and eppstein-barr was 200x higher than normal!
- I found a list of symptoms for eppstein-barr:
- Chronic Fatigue - CFS to complete (vagus nerve)
- Restlessness (sympathetic nerve)
- Headaches (different cerebral areas)
- Dizziness (infection of the vestibular or hearing and balance nerve)
TheViragocska 7 months ago
I was diagnosed with MS 3 years ago. After having a hard time with Copaxone I stopped the therapy and started searching for a alternative. After a long research time I've started a immune regulating therapy with an antigen for herpes (predecessor of Eppstein-Barr). I've been doing it for 3 weeks now, so I can't really say yet if it's working. I've chosen this way because:
(see next comment)
TheViragocska 7 months ago
When the nurse came to wake me up this morning she was all"big eyed" saying that she's not even suppose to give ANY thoughts cause they leave it to the doctor, but now she does not wonder why I dont wake up refreshed.Whatever that means!?
Well THANK YOU again and again for answering.HOPE we can keep in Contact.I will go to Sunshine Natural Food store and ask about your recommondation.
Your very sleepy german friend Tammy (stuck in big ol' Texas Yeehaaa!)
texas1708 8 months ago
Thank you for your resonds and I' sorry it took me awhile to answer.This morning I came back from a sleep study my new neurologist ordered.The funny think is that I slept "better" there then at home.Do you expirience muscle soorness or pain when you wake up in the middle o the night?I , most of the times wake up in the night time and can not hardly mov my fingers or my neck and sometimes y entireody feels ike I ran a marathon.And I used to do that when I was younger(seems SOOOOO long ago!)
texas1708 8 months ago
PS If you are having a little hard time to understand what I'm trying to say I apologize.English is not my native language.I'm from Germany.So PLEASE excuse and don't let this be and issue to not respond.Thanx, Tammy
texas1708 8 months ago
@texas1708
Tammy. I got what you were saying. I also agree that you do not have to be an M.D. to understand your body, health, etc...
From the info you posted I do not doubt that you feel you have M.S.
Also many MS'ers have fibromyalgia as well from the people I have met online.
Some research suggests that MS'ers have "sticky blood" due to high fibrin levels, People with fibromyalgia also have high fibrin content in their blood. (I have been taking a proteolytic enzyme to help this
Bless
irishbear76 8 months ago
You don't have to be a MD to know that there is something wrong with yourself.MD's try to make you look dumb if you search the internet for the answer they don't seem to be able to give you.
It all makes sense what you saying.IT REALLY DOES!
It would be awesome to stay in contact with you.For sure I will follow your postings right here.
THANK YOU and GOD bless you and your loved once.
texas1708 8 months ago
It came and went away over the years and now it seems like I'm stuck in it weather I want to or not.They pump me full of all kinds of Anti depressants.And YES I am depressed.Who wouldn't be?
I want my life back !Want my 3 children see to grow up happy with me being able to interact and take part of it!
God bless you my friend.I am happy I found your video.Makes me feel more like a human being again.
texas1708 8 months ago
No I dont think you wrong.It makes TOTALLY sense.After A LONG time my doctor diagnosed me with Fibro today.They FINALLY found the Eppstein Barr Virus, three times more the normal range.I've researched to exhaustion to the point that I really thought maybe I'm crazy like most of the military doctor's made me feel.My MRI's showed White Matter Disease,my brother(we share the same mom)has MS and I have ALL the symtoms, for SO long.
texas1708 8 months ago
I think you've hit the nail on the head, guy!!! Kudos to you for putting this out there for all of us who deal with MS, looking for a reason as to why we have it, and in hopes of increasing research for a cure. I am going to expand on my own personal MS journey with you on the site where I found this link. God bless you for taking this stand. Thank you so very much :)
cosima1956 9 months ago
I think you've hit the nail on the head, guy!!! Kudos to you for putting this out there for all of us who deal with MS, looking for a reason as to why we have it, and in hopes of increasing research for a cure. I am going to expand on my own personal MS journey with you on the site where I found this link. God bless you for taking this stand. Thank you so very much :)
cosima1956 9 months ago
I think you've hit the nail on the head, guy!!! Kudos to you for putting this out there for all of us who deal with MS, looking for a reason as to why we have it, and in hopes of increasing research for a cure. I am going to expand on my own personal MS journey with you on the site where I found this link. God bless you for taking this stand.
cosima1956 9 months ago
i am happy olso sad today, i have been tired last 5 years, finally today they find the problem. i have eptein barr virus. i am happy i know the problem but sad part no solution.i have been tired all the time terrible feeling.
mark i watched your video very positive.
thank you.
mistik69ful 9 months ago
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Gregmills007 10 months ago
This is not a mystery. It takes at least 2+ years on the diet to take effect, because every one of those cells need to be rebuilt with the right ingredients. Yes, the white blood cells are amok. That may never go away, but at least they can stay out of the CNS. Any virus that triggers permeability of the BBB can lead to MS. Eat less than 10 grams of saturated fat.
seekirk 11 months ago
It is important to stack the deck on the right fats, because if the blood brain barrier is made out of the right fats (omega 3s) the inflammation response is reduced and the integrity of the barrier is kept intact by limiting the cascading effect from the local hormone responses (prostaglandins) which dilate the blood brain barrier.
seekirk 11 months ago
I have EBV but i feel like its never dormant bc i'm exhausted aaaalllll the time! How did they diagnose MS. Ive had a neg head CT. I also have adrenal exhaustion tested by a saliva test. The supplements of adrenal PMG seem to help me if you wanna have a saliva test to check your adrenal function it did help some with my chronic fatigue. Do people with MS have low adrenals too?
add2109 11 months ago
My sister was stricken with MS in 1985 and had mono in 1975. This is astonishing. What are your feelings or have you heard about the possible connection with people born on the east coast? The amount of people that I grew up with and went to school in NY that now have MS is staggering. Your feelings... Anooch18@yahoo.com
padanell18 1 year ago
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I think you may very well be onto something here. My illness started with EBV in 1995. I had been sick with a flu-like illness for about 6 months (later found to be EBV). I had an attack of what I now realize was ON and went to an ER. The ER doc gave me a flu shot. Next morning I could not walk & was later diagnosed with transverse myelitis. I ended up wtih relapsing/remitting TM. Stress seems to play a huge role in relapses. What you said makes perfect sense to me from my experience.
KSBWildcatMom 1 year ago
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I think you may very well be onto something here. My illness started with EBV in 1995. I had been sick with a flu-like illness for about 6 months (later found to be EBV). I had an attack of what I now realize was ON and went to an ER. The ER doc gave me a flu shot. Next morning I could not walk & was later diagnosed with transverse myelitis. I ended up wtih relapsing/remitting TM. Stress seems to play a huge role in my relapses. What you said makes perfect sense to me from my experience.
KSBWildcatMom 1 year ago
I think you may very well be onto something here. My illness started with EBV in 1995. I had been sick with a flu-like illness for about 6 months (later found to be EBV). I had an attack of what I now realize was ON and went to an ER. The ER doc gave me a flu shot. Next morning I could not walk & was later diagnosed with transverse myelitis. I ended up wtih relapsing/remitting TM. Stress seems to play a huge role in my relapses. What you said makes perfect sense to me from my experience.
KSBWildcatMom 1 year ago
I think you may very well be onto something here. My illness started with EBV in 1995. I had been sick with a flu-like illness for about 6 months (later found to be EBV). I had an attack of what I now realize was ON and went to an ER. The ER doc gave me a flu shot. Next morning I could not walk & was later diagnosed with transverse myelitis. I ended up wtih relapsing/remitting TM. Stress seems to play a huge role in my relapses. What you said makes perfect sense to me from my experience
KSBWildcatMom 1 year ago
I believe you are dead right on about this - MS, irondeposits - shorting toaster effect - yes.
Also - Copaxone (withmydamagedhyper-immune system) set off an idiopathic allergic reaction ( to milk, cheese (dairy), eggs, tomatoes, oranges, chocolate, (chemicals –sulfa,MSG,&aspartame-aesulfame), some metals (nickel, silver), certain botanicals , and molds. So now have immunehindrances, MS, as well immunologist advised - no C.R.A.B. protection at all for this degenerative disease.
kaedajs 1 year ago
@kaedajs
It is apparent that there is still an autoimmune component to MS despite CCSVI being a huge contributor.
I am thinking that the latent EBV virus is detected and attacked when the macrophages pass the BBB.
My most recent research points to there being several factors on top of CCSVI.
OF course, I still continue to tweek and fine tune my theory.
Thank you for watching.
irishbear76 1 year ago
I had Mono goneChronic when I was eight. I was given penicillin - developed an allergic reaction to it. Developed two different types of purpura -henoch schonlein purpura &thrombotic thrombo-cytopenic purpura. Weight - twenty something pounds, nearly died - in hospital several months. Years later had a severe MS attack, got spinal tap, finally knew - had off and on funny symptoms from my teen years to middle age - now it is obvious. developed idiopathic allergy to Copaxone as well.
kaedajs 1 year ago
@kaedajs
I hope all is well with you.
It seems that you have been through the ringer with your health.
I pray that you get some relief.
God bless,
Mark
irishbear76 1 year ago
I had Mono goneChronic when I was eight. I was given penicillin - developed an allergic reaction to it. Developed two different types of purpura -henoch schonlein purpura &thrombotic thrombo-cytopenic purpura. Weight - twenty something pounds, nearly died - in hospital several months. Years later had a severe MS attack, got spinal tap, finally knew - had off and on funny symptoms from my teen years to middle age - now it is obvious. developed idiopathic allergy to Copaxone as well.
kaedajs 1 year ago
I had mono my freshman year in high school and was diagnosed with MS my senior year of high school. thanks for posting your videos :) they've helped me understand & learn a lot.
meganrenae1424 1 year ago
@meganrenae1424
No problem.
I enjoy looking at this picture and trying to figure it out.
I have many theories.
I currently am free of any MS symptoms due to having the angioplasty for CCSVI coupled with intervention for my sleep apnea.
I have no doubt that the latent EBV is still in my blood, I just do not think it is crossing the Blood Brain Barrier due the reflux being reversed from my right jugular vein.
irishbear76 1 year ago
I had mono when I was a teenager. I am now 45 and got diagnosed with MS in 2004. Is your theory that having had mono is connected to getting MS? Do you recommend getting tested for Epstein Barr virus? What exactly is this virus, please elaborate. There just might be a connection. I wish we knew what causes MS it is frustrating not knowing,
Jeanne
jeannelovesjon1 1 year ago
@jeannelovesjon1
Jeanne.
Sorry for the late reply.
I so think EBV is connected but not necessarily the sole cause.
If you watch my last few videos you will see where my research ended up taking me.
Good luck and God bless.
irishbear76 1 year ago
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Hey Mark,
I think the public needs more videos from actual patients like yourself...you explained the symptoms accurately and the theories are good ways to help professionals trigger their thinking in different ways for a cure ....
whoobie2008 1 year ago
Hey Mark,
I think the public needs more videos from actual patients like yourself...you explained the symptoms accurately and the theories are good ways to help professionals trigger their thinking in different ways for a cure ....
whoobie2008 1 year ago
@whoobie2008
Thank you very much for the encouragement.
Blessings,
Mark
irishbear76 1 year ago
I had a serious case of Mono in High School. It went on for all 4 years. My MS is very similar to mono.
lightweaver7 1 year ago
@lightweaver7
So it is easy for you to see the connection.
Awesome.
Blessings,
Mark
irishbear76 1 year ago
Irishbear76, you are not full of shite. I had a severe case of mono in HS (missed 76 days of school). Fatigue has been my most constant MS issue besides Optic Neuritis. And yes, my fatigue gets worse when I'm stressed out (which is a lot). Nice post.
pattipdx 1 year ago
@pattipdx
It is always good to have someone in agreement with you.
Obviously my views have been changed a bit.
I was treated for CCSVI in August and my MS has vanished.
IF you get a chance go to my channel and check my last half dozen MS posts or so.
Mark
p.s. My MS symptoms were also closely tied to EBV symptoms. I felt like I had mono for 7 years with my MS other than my major attacks which acted more akin to a brain tumor than MS. HORRIBLE MEMORIES.
irishbear76 1 year ago
IB- my MD just informed me that my EBV has been active for many months. I thought it was just my MS going from RRMS to SPMS. maybe not.....think yur right about the nervous system being ovrworked which makes us all very tired sending out varios signals. I'm convinced my EBV is behind my MS symptoms. Wish I had an EBV test done a year ago to see if it was active when I was more physically able as a control but no dice. How's are your CCSVI efforts coming along?
MrMacatak007 1 year ago
Irishbeer The do say that people with a higher CBC count of Hetrophile antibodies are at a higher risk to develop MS. Get this I had Mono at age 14. 14 years later developed MS related lesions. My HA CBC is still high, which lead to years of Limbic Encephalitis which led to Borderline Personality Disorder. I really do not think kissing Holly Francis was worth all of this. Hey we should share some research. There is definitly something there
thedavisgroup 1 year ago
what a head!
stzebi 1 year ago
Yes! Mono went around the place I worked & I got it. 6 weeks later I had my 1st MS episode (optic neuritis). This was 11 years ago and I continue to battle MS, and chronic fatigue. Also of note, 2 of my co-workers who got mono now have chronic fatigue syndrome. I think your theory of the "double whammy" of residual fatigue from the mono, plus fatigue from the mis-firing nerves, is brilliant. I am going to share it with my doctor (giving you credit, of course). Thanks again, irishbear76!
mariarhines 1 year ago
I've had CFS since I got MONO (that virus almost killed me). That was in 2005.... We are in 2010 and I'm still feeling like crap. I like talking to people that had mono becouse when I say MONO HAD RUINED MY LIFE you really know what I mean.
Hope all the monotubes get better!!!!!!
Thanx for the video Irishbear!!!
danpaz25 1 year ago
Hey I like your theoryBut i have my own We are all born with MS somthing must trigger your body to to make disrupt and reverse human nature The gov. does all these crazy supposly nessecery cheical testings weather it is crop panes to kill bigs eating farms or the dangerous west nile sprayings or any miqueteo spraying its a posion MAN made to sttack the nerves of anything with a "WEAK" immune system and if your safe from the initail sprayings it stays in the soil and trees for 16 weeks after
luckycharmed96 2 years ago
I had mono in high school and was diagnosed with MS in 2003.
canadarobin 2 years ago
AND mono fits into the whole CCSVI that Dr. Zamboni from Italy is working on.
Please check out my video regarding Dr. Zamboni's groundbreaking research.
irishbear76 2 years ago
@irishbear76
I was diagnoised with with ms afew years ago..
But now im nearly recovered,
Tests i done was cortisol saliva test(adrenal status) mine was low,i worked with a adrenal fatigue dr and my fatigue went..
I also had a high ebv count, but since addressing my adrenals this as improved..
coconut oil 3 x aday was ALSO helpful
I also tested positive for lyme, though the tests are not very reliable even through igenex..
I recommend Autonomic Response Testing (ART)
bamptonbred 1 year ago
@bamptonbred
Thank you for the info.
irishbear76 1 year ago
I came across your video by doing a Google search. I did have mono (a very serious case) about 10 years ago and I haven't been the same since. I have also tested positive for EBV since then. In the past couple of years my health has declined to the point that it has really affected my life. I have multiple symptoms and many of them are that of Chronic Epstein Barr Virus and also that of MS. I am currently in the process of trying to get a diagnosis so I know exactly what I'm up against...
randnandc 2 years ago
Hopefully, you do not have multiple sclerosis, but even if you do you can still have a good quality of life.
I hope that you get the answers to what is going wrong with your body.
I hope for the best for you and I certainly hope your health improves.
God bless.
Mark
irishbear76 2 years ago
I like your video/theory and really think you're onto something.
I have just been diagnosed with MS and have had mono at LEAST 3 times when I was younger. Plus, I used to get a lot of cold sores.
I used to be full of energy--- soccer player, FAST runner, and now, I am tired all of the time not to mention my chronic back pain and optic neuritis. I'm not even out of shape! And I'm only 20. Every day feels like it is hard to do little things, just like you said.
Well, enough about me. Good video!
conanobriengirl 2 years ago
You are not the first person to tell me that they have MS and that they have had MONO more than once.
More and more current research is starting to reveal that I was on to something with this video. (Just in the past 7 months. A definite link between Epstein-Barr and MS has been established).
Thank you for your comment!!!!!!!!!!
irishbear76 2 years ago
I have read pubmed articles that confirm this link . I have not seen anything yet that says that the EBV titer is higher when MS patients are in a flair. I would like to know what you think about vaccines and MS. I have read a lot about this as well. I am trying to decide whether myself or my daughter should get vaccinated for H1N1. My daughter had mono when she was 5 yrs old! So I am chicken that if she has enough things happen she will get MS.(I am her mom). Thanks
ashcondad1 2 years ago
I was just talking with my wife about the
H1N1 vaccine and our children. I think they are rushing to get a vaccine out which alarms me about the safety of a vaccine when it is developed and given out en masse within 6 months. VERY SCARY.
The only vaccine I have ever heard in the same breath with MS is the Hep B vaccine. They were looking into that and decided there is no link (if you get a series of 3 and NO MORE)
I have read links between the Meningitis shot and Guillen-Barre tho.
irishbear76 2 years ago
IrishBear it is linked...Iknow this for a fact.I have Epstein Barr & suffering for years,Are you on disability?
nese67 2 years ago
No I still work full time because I am a glutton for punishment.
A month after I posted this video, Seatle Neuroscience did a study that effectively linked Epstein-barr with MS. It is just a matter of time before getting the word out.
irishbear76 2 years ago
Chronic fatigue is common after having mono.
Mono is not a slam dunk that you will get MS. I just think there are tons of things associated with MS that people are not looking at.
Have him checked for chronic fatigue and they have a test that identifies people who are at risk for developing mulitple sclerosis. If this helps.
irishbear76 2 years ago
Hey bear! just catching up on some of your eairler vids! thank you for sharing :) a question?
My son in his teens at least 10 yrs ago came down with mono and a cyst on his lower spine called Poly something can't remember the spelling which they drained etc. etc. he is 23 now and is so tired all the time he works so hard BUT at 23 wheres the energy! as mom I can't see someone so young without more energy. I have said nothing to him but am concerned he may have issues close to my MS ? be well
ThePennygirl 2 years ago
How can Doctors say MS is not caused by a virus when they treat MS with interferon? Interferon's main job is to fight against viruses and parasites and tumor cells. Interferon assists the immune response by inhibiting viral replication within host cells, activating natural T-killer cells. Kinda weird since killer T-cells are the ones doing the damage in MS.
notapplicable66 2 years ago
Interferon works by activating supressor T cells that stop T cell aggression.
A virus is starting this stuff. I am convinced of that.
irishbear76 2 years ago
I read something once that if you get mono later in life you are at more risk of getting MS than someone who it younger that gets mono.
notapplicable66 2 years ago 3
I have not heard that research.
IT wouldn't surprise me.
I know if you get Chicken Pox later in life you are more likely to get shingles unless you get it much later in life it can be actually FATAL.
Thanks.
irishbear76 2 years ago
Hi Irish,
EBV affects by changing the transcription inside cell. It takes the control of nuclear activities. It might as well cause MS, or increase the possibility or intensify. So, I agree with you. Not just me :) also Levin et al (2003). Do you know something speculative about EBV? Something not written in literature, but you think as your intuition.
thanks
tryourbest 2 years ago 2
yes,
I think exacerbations are similar to flare ups of herpes virus. The exception being herpes flare ups occur on the lips, the eyes, the genitals where EBV flare ups occur in the brain or spinal cord.
I believe that these flare ups are merely EBV ending dormancy and becoming active in the CNS. Your immune system says "Not again" and goes under attack accidentally attacking myelin/white matter.
I am proud to say one month after making this vid Seattle Neuro published saying what I said.
irishbear76 2 years ago
This is starting to make me wonder which came first the chicken or the egg? Did EBV really trigger our MS? Or did something else do it and make the EBV that is already in our bodies worse? Since almost everyone world wide gets EBV but they don't get MS. Sure genetics and the location where you live plays a factor but there has to be more to it. MS does make every other condition that you have already have worse.
notapplicable66 2 years ago 2
This is the thing 90% of humans get exposed to EBV. NOt everyone contracts mono from it. SOme people fight it off without so much as a sickly feeling. The thing is with the wonderful people that get MS we are GENETICALLY PREDISPOSED TO GET MS. It is not a slam dunk that because you have a genetic predisposition you will get it.
Latitude (which effects VIt D hormone availability)
Ethnic background (Spec. W. Europe)
genetic makeup.
EBV is the catalyst. Your DNA is the key to if Uget it or not
irishbear76 2 years ago
I firmly believe that whoever solves MS will be a person with MS.
notapplicable66 2 years ago
That would be poetic wouldn't it?
A person with MS solving the puzzle.
From your lips to God's ears..
IRISH
irishbear76 2 years ago
MS has been called the most complex illness in the world. But is it really? I have always felt the reason for it's existence is staring us right in the face and it's not as complex as researchers or doctors think it is.
notapplicable66 2 years ago
I couldn't agree with you more.
irishbear76 2 years ago
MS has many things in common with other illnesses. Like Leukemia. Both have haywire B-cells and are both being treated with a drug called Alemtuzumab, (Campath.) And MS has things in common with HIV/AIDS. MS is the opposite of Aids. In Aids T-suppressor cells are haywire and cause damage by shutting off the immune system. In MS T-Killer cells are haywire and cause the damage in a over active immune system. All MS treatments all do the same thing, they slow, calm down the immune system.
notapplicable66 2 years ago
I have done some research (both personal and for school) on this disease. I find your theories to be very interesting because the cause or history of MS is yet to be known.
P.S. You definitely do not have to be a scientist to make a great discovery (going completely off topic but to make a point.) The H-W Equilibrium was discovered my two mathematician and this is now used everywhere. Also Gregor Mendel was a simple Austrian monk that had a garden.
charmedpr17 2 years ago
Thank you for reminding me that it is the QUESTION that is important.
What causes this disease?
I do not think MS sufferers give a shit what credentials the person has that finds the cure for this disease and the cure always follows the cause.
IRISH
irishbear76 2 years ago
I have always said stay away from the amino acid L-Arginine as much as possible if you have MS because it causes inflammation. Do this by watching foods contain it your diet. And take L-Lysine because L-Lysine counters the affects of L-Arginine. L-Lysine helps control outbreaks of the Herpes simplex virus. MS is related to the Herpes simplex virus. Proving MS is if not totally but partially viral related. L-Lysine is one of the four amino acids in the MS drug Copaxone.
notapplicable66 2 years ago
Diet also plays a huge role in the well-being of people who have MS. I have MS and I've noticed that certain foods make my symptoms better or worse. Stay away from processed foods (i.e. foods that have preservatives in them and other stuff you can't pronounce; growth hormones). That's why it's best to eat organic food or just go back to the original way humans used to eat, which is more water, fruits and vegetables, and less red meat and fat.
kamiru617 2 years ago
I agree with you totally.
We pretty much eat shit anymore.
Between monosodium glutamate, aspartame, high fructose corn syrup, and the list goes on.
Not only are we generally more sickly we actually are MALNOURISHED despite being so fat as a country.
Free range meat and organic veggies is probably the only way to go.
IRISH
irishbear76 2 years ago
Its not to blame...everyone has it
ONeilTD 2 years ago
90% of the population have it in their blood. I have no doubt that it is responsible for MS.
Varicella for Type I Diabetes mellitiis
All the autoimmune disorders can probably be traced to an infection.
I believe that with MS it is Epstein-Barr
irishbear76 2 years ago
Hey you guys...Just wanted to thank you all for your cooperation. You are great. The EBV does infect the B cells unfortunately. I have one more month before I can get some tests ran. You all sure have helped me feel better or encourage me - it helps to talk to people. Thanks again.
danejett 2 years ago
I forget if you answered this or not. Around your abdomen but over on the left side of the body, do you notice that it looks swollen or sticks out more than your right side? This is where your spleen is located. A clear sign of EBV / MONO is a swollen spleen. The only thing vitamin wise that EBV or Mono seems to dislike is Vitamin C. I can remember my body craving vitamin C years ago. I was taking 6,000 mg's a day or even more. It might not do much but it might give you more energy.
notapplicable66 2 years ago
My abdomen swells alot lol and I talked to several people with the CEBV and they have the same symptoms. Swelling, and some pain along with nausea. I never thought about the spleen thing. So I should up my Vit C. I was talking to this guy in Austrialia and he is like me my stomach is so easily irritated and I have tons of supplements just sitting there collecting dust in my cabinet.
danejett 2 years ago
Try taking Ester C in capsule form. Start with 1,000 mg. Don't go higher than 3 or 4 thousand.
notapplicable66 2 years ago
I will do this and thanks for the advice
danejett 2 years ago
Hey guys may I ask another question. With MS do you become really weak? I feel like I am falling apart here now I am getting more muscle weakness and blurred vision? Help. I read on the MS society site that they do speculate that the EBV may trigger MS. I dont think I can wait much longer to find out what is wrong with me. I am growing so impatient. Thanks for your cooperation. And hope you all are doing well and you are happy.
danejett 2 years ago 2
Yes I have muscle weakness. I'm not as strong as I used to be. Doing any kind of muscle excursion I can't do for any great length of time.
Sometimes I get funny vision in the form of double vision and sometimes sensitivity to light.
notapplicable66 2 years ago
I have never felt so weak in my life. 3 years ago I was into body buiding and had arm muscles bigger than most men. It is hard for me to believe how just doing a simple thing seems so hard.
danejett 2 years ago
@danejett
I have EBV and chronic fatigue and blurry/double vision even though they tell me i have 20/20 vision. one Dr told me it could be fatigue from weak eye muscles but everyone else thinks im crazy bc my vision is blurry even though my eye exams are good. let me know please, if you find out whats causing the vision trouble, thanx. my email is ctadearth@aol.com
add2109 11 months ago
I must say it amazes me how our bodies can be so strong and normal and then they just seem to go haywire. For normal healthy people it would be hard to understand. But for those of us who wake up every morning and go through out our days with all these strange symptoms. It is so real. Whether you choose to ignore some of them or not they are there.
danejett 2 years ago 2
Every person who lives with MS and continues to live their lives DESPITE how they feel deserve recognition for their wearwithall and perserverence.
I have always told my wife that someone should pin a medal to my chest for continuing to work and get out of bed in the morning because i feel weak, numb, painful, etc;...
irishbear76 2 years ago
With MS I have read you do have Chronic Fatique. Do you have this daily? I have CFS and Fibromyagia also. Ofcourse the CDC tries to say the chronic EBV develops into CFS and I dont necessarily or totally think it is CFS but a reprecussion of the virus reactivating in the system over and over. The EBV is the cause of it anyways.
danejett 2 years ago
A lot of people with MS suffer from chronic fatigue. I have mostly when in a relapse. Otherwise I would say no. I have as much energy as some people who don't have MS.
As for chronic EBV, for this to have happened it apparently has infected the B-cells.
notapplicable66 2 years ago
It seems since I developed the Chronic EBV my health is detiorating. The EBV patients show elevated levels of Nitric Oxide / Peroxynitrite which can cause glutathione depletion. Has anyone had their NO levels checked? Patients also show elevated levels of citrulline in the cerebral spinal fluid. With MS what shows up in the spinal fluid? Thanks for your listening and any help will be appreciated.
danejett 2 years ago
Nitric Oxide is bad for MS as well. Any food, vitamin, herb that helps the body produce more of it I avoid like the plague. As for what shows up in spinal fluid, Irishbear would be able to answer that better. I didn't get a spinal tap.
notapplicable66 2 years ago
Oligoclonal bands are what they are looking for. It is a protein byproduct that occurs with myelin or white matter destruction.
They also look for Lyme disease among other things.
There is only one lab in the US they send spinal fluid to that tests for Lyme and it is in Salt Lake City, Utah. That is why you have to wait so long for results.
Good luck and God bless.
IRISH
irishbear76 2 years ago
Hey u guys I am back - can I ask a few questions please. Do you all get muscle tremors? I have been getting them in my legs. Waking up with them in the morning. With MS you have relaspes but do you have troubles with reflexes giving out, bumping into things, lack of coordination in between these relaspes? I will be able to get a MRI in one more month. Also some blood work. I have had a Vit B deficeincy in the past and got shots. Does MS get worse and worse over a period of time? How bad?
danejett 2 years ago
MS is unpredictable. Everyone who gets it is dnot the same and it affects people differently at different times. As for being uncoordinated at times, yes that does happen. The first sign of it was dropping things. And as for joints giving out another sign for me was not being able to stand on a ladder.
notapplicable66 2 years ago
notapplicable66 told you right.
MS takes its own course.
The general model for Relapsing Remilting MS is that you have waxing and waning periods of flare ups and recovery for awhile and then you convert to Secondary progressive over an undetermined time.
Some people never do and relapse and remit for good. Some immediately lose function. SOme have a benign disease course and have an exacerbation on two and never deal with it again. Some people are diagnosed and go down hill QUICKLY.
irishbear76 2 years ago
Here's a interesting thing. They say there is a link between vitamin D deficiency and MS. A lot of doctors warn not to go out too much into direct sunlight during the summer time, (lots of sunbathing.) because it can make you feel worse or cause you to go into a relapse. This to me didn't make any sense. Until recently they have discovered that during the summer, ultra violet ratings are high. UV light actually sucks vitamin D out of your body. Now it does make sense.
notapplicable66 2 years ago
Uhtoff's phenomenon is why I stay out of TOO MUCH HEAT and SUNLIGHT.
I will have a transient return in vertigo if I get too hot for too long.
I would have to say I would probably not be fat if I wasn't so sensitive to the heat or getting hot. It has definitely curbed my enthusiasm for working out.
irishbear76 2 years ago
In the different articles I have read about MS it appears we have a selenium deficiency. We also have a reduced capacity to detoxify free radicals related to reduced activity of glutathione. It appears we are deficient in practically everything! So taking a anti-oxidant such as vitamin C, vitamin E or ALA, Alpha lipoic acid, can't hurt.
notapplicable66 2 years ago
what about foods such as white sugar, bleached flour products such as bread, pasta that also contain gluten? or animal products with steriods and such? what is the trigger on a everyday bases continues to feed the virus. we can only be as good as what we see triggers each and everyone of us and think hard & long and bring all the info together if we wish to succeed at winning this fight against MS. I also believe that stem cell research is heading in the right direction . thx.
joevenditti 2 years ago
While there is no over baring proof food causes MS. I believe everyone who has MS should be checked for food allergies. Then stay away from those foods you are allergic to. Why? Because allergic foods cause a inflammation response. If you ever read about the MS diet they recommend staying away from certain types of foods. I notice the foods they recommend to stay away from all containing high levels of a amino acid called L-Arginine. L-Arginine causes inflammation in a few different diseases.
notapplicable66 2 years ago
B vitamins are important. People with MS have a deficiency of vitamin B12. (Methylcobalamin is the best form of B12 to take. It helps my energy level.) Vitamin B12 deficiency is associated with demyelination of the CNS. Three other B vitamins that are important in myelin formation. Vitamin B6, B3(Niacin,take the non flushing kind unless you like turning red.) and B2(Riboflavin). You can get all of these in a vitamin B complex.
notapplicable66 2 years ago
It is clear that MS affects the B-cells but also it affects the T-Helper cells because they have trouble balancing the other T-cells. The Helper T-cells have been called the brains of the immune system. Because the B-cells wait a signal from them, (In form of a antigen). Then B-cells will make either two different clones of itself. A plasma cell (Antibody) or a Memory cell.
notapplicable66 2 years ago
Here is a interesting list........
The Epstein Barr Virus (EBV) infects B-cells.
The Cytomegalovirus (CMV) infects B-cells.
HIV/AIDS infects Helper T-cells, and others.
HHV6 (Herpes) infects B cells.
Could MS really be more of a T-helper cell problem rather than a B-cell?
People with MS have been shown to have lower levels of certain T-cells, called FOXP3+ regulatory (Also known as Suppressor T-cells). It's the T-Helpers job to keep a balance.
notapplicable66 2 years ago
This has been flagged as spam show
If you have problems with energy try taking Vitamin B complex, Vitamin B 12 the Methylcobalamin form. Vitamin C which apparently EBV seems to dislike. Drink more water because it contains oxygen. And try glutathion, which the body makes naturally but people with illness have a shortage of it. And stay away from foods you are allergic to. See if all these things or some of them help with your energy. I don't seem to have a problem with it.
notapplicable66 2 years ago
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notapplicable66 2 years ago
As I have stated on here prior, since I've had MS I have only had one cold in 5 years. And for me that's a record! Other people might be different though. If anything we all have a over active immune system.
notapplicable66 2 years ago
I am rarely sick.
My immune system is pretty damn strong.
The only time I do get sick is when my Rebif seems to be working TOO WELL.
irishbear76 2 years ago
What has been the most difficult symptom and attack for you all? HOw long has it lasted and do you have Chronic Fatique daily? If MS puts pateints bodies in an over active immune state does that protect them from getting other illnesses or hurt them in other ways?
danejett 2 years ago
In 2004 I was hit with so many weird symptoms I had no idea what was wrong with me. I thought I was dying. These were several relapses. This seem to be that initial major stage of MS everyone goes through. After many tests I was finally diagnosed that same year. I did go through extreme fatigue to the point I slept nearly all the time. Since that horrible year I go through 2 to 3 relapses a year. And no you don't seem to get other illnesses more with MS.
notapplicable66 2 years ago
My first attack was the worst.
You can hear all about it on my video: Multiple Sclerosis: It's not THAT bad
irishbear76 2 years ago
Then when our helper T-cells catch up to what is going on with our out of balance killer cells they increase the suppressor cells creating a balance then we go into a remission.
notapplicable66 2 years ago
The three Main T-cells are the Killer, Helper and Suppressor cells. It's the helpers job to balance the other two T-cells. In the case of AIDS there is a over balance of T-suppressor cells resulting in shutting down the immune system. I believe in MS we have a over balance of killer cells. Not all out killer T-cells are attacking our myelin. Some are doing their normal jobs. I believe when we have a relapse we have too many Killer cells.
notapplicable66 2 years ago
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notapplicable66 2 years ago
Thank you for responding you guys I greatly appreciate it. Wow, I am like reading your comments and attempting to store all this great info in my brain. In July I will get the MRI and a spinal tap. It seems like I have waited forever. My doc did a Lymes disease test 2 years ago. I have heard they can come back positive and you can still have it. If you have MS it shows up on a MRI right? Brain lesions? Is that how they diagnose it? I heard it is not life threatening but gets worse right?
danejett 2 years ago
A spinal tap will show the signs of disease activity. A MRI will show plaques or legions in brain which are signs of inflammation. I was diagnosed with just a MRI. They never did do a spinal tap on me. MS is not life threatening but it can shorten lives it is quite unpredictable. It affects everyone differently.
notapplicable66 2 years ago
The MRI report will say this if you have MS.
"Multifiocal lesions consistent with multiple sclerosis"
Basically it looks like a bunch of white spots on the brain.
This is still not enough to diagnose.
You will need a lumbar puncture (spinal tap) and they will be looking for
2 or more oligoclonal bands.
irishbear76 2 years ago
I was diagnosed with just a MRI. Which seemed to be enough for the neurologists here and the MS society. I haven't got the strongest faith in our medical system here. I wasn't even asked for a spinal tap. I'm not sure if I would go through with one. I had another MRI in 2007 to see disease progression. I went from two legions to over twenty. So it doesn't appear my disease is slowing down any.
notapplicable66 2 years ago
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notapplicable66 2 years ago
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notapplicable66 2 years ago
It's strange but some people who get HIV never have it grow into AIDS and they can live a life time with it HIV. While some other people who get HIV then get full blown AIDS and die real quickly. If HIV cures MS then I'd rather have MS and take my chances. I don't want people running out and getting infected thinking it will cure their MS. It could end up escalating both diseases and kill the person off real quick. I am curious if their is such a person who has both MS and HIV/AIDS.
notapplicable66 2 years ago
First off. I would never advise anyone to INTENTIONALLY GET AIDS.
I have just noted that the symptoms of HIV would be beneficial to an MS patient.
Like the PML you see with Tysabri /Avonex concurrent use.
You only see PML in AIDS with exception to that medication combo.
MS is not deadly AIDS is.
Common sense tells you that you would rather have MS.
I just noticed that one is too aggressive T cells the other is T cells being systematically destroyed.
Interesting they are polar opposites.
irishbear76 2 years ago
I have always said the CURE FOR MS is HIV.
Now if we could only cure HIV after it kills the rogue Tcells.
irishbear76 2 years ago
If you ever notice MS is almost like the opposite of AIDS? They are both caused by a virus. Both mutate the immune system with haywire B-cells which command the immune system with messed up anti-bodies. Both involve T-cells which end up causing the damage. In MS it's the Killer T-cells in AIDS it's the Suppressor T-cells. MS is a over active immune system. In AIDS it's a immune system that gets shut down. Only difference is that MS isn't contagious but AIDS is.
notapplicable66 2 years ago
I thing I have always wondered about viruses. What is it's main objective? To kill it's host? Then that is killing itself which makes no sense. While under attack from the immune system does it sacrifice itself to save others like it? No I think that is too much brains for it's capabilities. Is it's main objective survival at any means possible? Which would mean it's main objective is to mainly to procreate.
notapplicable66 2 years ago
A bacterium has its own DNA and can reproduce at will.
A virus has no means of survival than using a hosts DNA to replicate.
You are exactly right.
The virus does not set out to KILL the host.
It sets out to merely USE the host's DNA as a mechanism for procreation.
It is only when the virus grows in such numbers that it becomes virulent and harms the host that it threatens killing its only means of survival.
That is why viruses are contagious. SO they can survive even if the host doesn't
irishbear76 2 years ago
Since you have a elevated EBV, have you ever noticed a slight pain in your left side? Like a tightening feeling? It's almost like when you are running to fast and you get a stitch in your side.
notapplicable66 2 years ago
Yup.
irishbear76 2 years ago
Yes I have and what about you?
danejett 2 years ago
I've always tried to look for ways to a to fight a illness with healthy alternatives rather than medicine wise. Though I will be the first to admit both are needed. Most diseases involve inflammation. So eating foods that cause inflammation can't be very helpful. One thing I think everyone should do is be tested for food allergies. And avoid the foods you are allergic to. Every little bit helps and like the old saying goes, you are what you eat.
notapplicable66 2 years ago
I am hoping to be able to smoke a natural substance that protects neurons and helps with neuropathy and spasticity.
The only problem is I may go to jail and lose my job:)
irishbear76 2 years ago
I don't want to alarm you. But I have MS and I've had a lot of those same symptoms you are describing off and on and on a on going basis. Another thing I wonder reading what you are describing is the possibility of Lyme disease. I used to wonder that about myself more than once since I'm always around animals and live near a forest. Symptoms of Lyme disease can mimick MS almost to a tee. Has your neurologist ever suggested getting a spinal tap besides a MRI?
notapplicable66 2 years ago
No Lyme disease in my spinal fluid.
They had to send a portion of my CSF to a lab in Salt Lake CIty, UTah. Not too many labs do the test. IRISH
irishbear76 2 years ago
Thanks for sharing that with me. Over a period of time I have noticed my symptoms get worse and my body reacts the same. It is like you cant judge when or why it is going to happen. It comes out of nowhere. No my doc hasnt suggested a spinal tap...are they better than MRIs?
danejett 2 years ago
I wouldn't say they are worse or better. I think it just makes it more definite on what you have. It all depends on the doctors on how they go about diagnosing MS on what they order to have tested.
notapplicable66 2 years ago
Sorry for the ongoing discussion here but I wanted to mention that my last EBV test was elevated. Positive is >01 and mine was >5.9. The EBV since day one has caused me to have bad headaches, nausea daily, muscle and joint pain, extreme malaise (feeling flulike symptoms) weak, swollen lymth nodes in my throat when it acts up and get larengitis, and run a low grade fever. I have had some night sweats. I just thought I would explain the viral symptoms I have experienced so others can relate
danejett 2 years ago
Your immune system wants to protect you. It t hinks it is killing EBV when it attacks myelin, white matter, and the optic nerve.
The EBV that is not dormant that likes to hide probably hid in your CNS. The immune system went after it. The problem is that it has programmed to destroy the EBV and cannot differentiate your tissue from EBV. It has "special clearance" to cross the BBB. It would be like being a soldier in VIetnam not realizing the war is over. Headquarters cannot relay the message.
irishbear76 2 years ago
At first it seemed to be not so bad but now I have what I would call muscle spasms or shakiness, tremors? some. I get numbness in my hands and feet. My walking issues have worsened and are more noticeable. I slur my speech sometimes. I cant open doors some my hand just stops working. I know you all arent docs...but is this what you go through. I am sorta discouraged and scared? II am not trying to self diagnose..but when you go without insurance for 27 months you sorta just look yourself.
danejett 2 years ago
The slurred speech and walking issues make em think that you have cerebellar involvement.
My first attack caused me to talk like I was retarded and crawl around like I was too drunk to walk.
I remember wanting to die and being SO SCARED.
It sounds like you n eed to contact the multiple sclerosis society and see if they can help you get these needed tests without going into debt.
irishbear76 2 years ago
When you speak of an attack do you mean you get these symptoms and then they go away or you go into remission. Do attacks last for days? It seems my symptoms are slowly but surely developing and getting worse. Some days are better than others. Oh wow thanks, I will contact the MS Society and thanks for the excellant advice.
danejett 2 years ago
A MS attack or relapse can happen quite suddenly and can last for days, weeks sometimes months to go away. Sometimes it never goes away completely. It can affect something and when it comes back it can be not quiet the same as it was before the attack.
notapplicable66 2 years ago
My doc has repeatidly ordered MRIs due to other symptoms I have developed yet I have no health insurance. My Medicare kicks in July 1st. For over a year now my body has been freaking out. It started with me dropping things, my hands freezing up, tripping over things, and my legs feeling like they weigh a ton. Then came the loss of balance or coordination, staggering, bumping into things, muscle weakness, and delayed reflexes. Lately I feel like I have gotten worse. Bear with me please as I cont.
danejett 2 years ago
If you guys dont mind I would like to share my story and ask for help please. You may wonder why I am interested in your feedback. On Jan 07 I developed the chronic EBV along with Chronic Fatique, Fibromyagia, then started having migrianes for up to 4 days in a row, mild seizures, muscle and joint pain, addisons disease and a sluggish thyriod. I lost my mental and physical abilities and was bedridden for 6 months. I have been under the care of a nuerologist specialist for over 2 years. (next)
danejett 2 years ago
@danejett
I am the same with the symptoms just no seizure actitivity. Please let me know if you find help. ctadearth@aol.com
add2109 11 months ago
@danejett
I am the same with the symptoms just no seizure actitivity. Please let me know if you find help from the fatigue. i'm on hydrocortizone for my adrenals. is that the same as you? ctadearth@aol.com
add2109 11 months ago
@danejett
I am the same with the symptoms just no seizure actitivity. Please let me know if you find help from the fatigue. i'm on hydrocortizone for my adrenals. is that the same as you? ctadearth@aol.com
add2109 11 months ago
B-cells are the main problem with MS because of the antibodies they are making. My theory all along to stop MS was to fight anti-bodies with anti-bodies. It's interesting now that they are using a clinical trial with a Leukemia drug called Alemtuzumab marketed as Campath. This drug is a anti-body which targets the B-cells. This I feel is on the right track.
notapplicable66 2 years ago
This is definitely interesting and it seems like your theory would be effective. I hope this research pans out and people can be helped.
danejett 2 years ago
Yes that's what I am saying, in the case of MS the immune system is attacking itself. Why it does this is because something has mutated or tricked the immune system. Most likely a virus. But more likely a combination of them over time. Now why are teenagers starting to get MS when that was virtually unheard of before? Are viruses changing and becoming stronger? Is it because of worsening environmental factors? Or are our children being overly vaccinated?
notapplicable66 2 years ago
I understand the etiology of MS has been obsure and highly continous and that genetics and viral infections are thought to trigger it. So what you are saying is the immune system is attacking itself. Right? Viruses infect all cellular life: genes, DNA and RNA, the protein coat that protects genes, & envelope of fat that surrounds them when they are outside the cell. B cells and T cells are lymphocyte. Problems with the bodies lymth system can impair the bodies ability to fight infections
danejett 2 years ago
According to Doctors there is no clear cut case supporting that EBV is responsible for MS. In fact they cannot pin point to any particular single virus. The more things I read the more I feel it's a combination of different viruses at different times all causing a different immune response. Which explains why all of us with MS get hit with it at different times in our life. One thing for sure, people are getting diagnosed with MS at younger ages than ever before.
notapplicable66 2 years ago
Dont you believe the EBV causes inflammation of the T cells and they gain entry to the BBB
danejett 2 years ago
MS is caused when the B-cells go haywire or are reprogrammed by something to make anti-myelin anti-bodies. These anti-bodies tell a particular group of T-cells, (The Killer T-cells) to attack any myelin. The T-cells are only doing what they are told to do. The B-cells are the real culprit of MS and are what's needed to be targeted so they stop producing these anti-myelin anti-bodies.
notapplicable66 2 years ago
I believe that the epstein-barr virus like every other virus HIDES when it is being attacked.
Think of Type 1 diabetes (juvenile onset).
The causative organism MUST hide in the Islets of Langerhans located in the pancreas. This area has insulin producing b cells. The immune systems destroys it and the person cannot make insulin. Insulin Dependent Diabletes Mellitus is the result. It is pretty much understood that herpes virus can hide in eyes, white matter, myelin. Our immune system do its job
irishbear76 2 years ago
It does aggravate the T cells and then the T cells attack.
The problem is they attack EBV in all the nooks and crannys.
EBV (and other herpes viruses) are exceptionally good at hiding.
The T cell attacks EBV even after EBV takes on characteristics of your own cells.
Eventually the immune system cannot differentiate the two and gets trapped in the CNS. Where the immune system may have an answer the t cell is left behind with one order.
KILL KILL KILL
irishbear76 2 years ago