{Infantile Spasms} West Syndrome Awarness Video

[colleenknight26]

MY SON WAS DX WITH SPASMS AT 10 MONTH OLD BUT STARTED LONG BEFORE THAT HE STARTED SHOW SIGN OF SEIZURE IN NICU ... HE PASSED AWAY AUG 7 2011 AT THE AGE 19 MONTH OLD DO TO SEIZURE THAT CAUSE HEART ATTACK AND STOP HIS BREATHING .. HIS DEVELOPMENT WAS JUST LIKE NEWBORN BABY .. HE HAD FEEDING TUBE AND O2 .... ETC...... :(

[kckhalid1]

hi i am from nepal and my boy is having a seizure also. he is not following light and sound. i dont' know if he would be okay or not.. or what will happen to him in future. i am so worried.

[midlandinns]

RIP Sid Carroll 02/09/07 - 17/06/09 see sidcarroll com not just anyone he's my son.

[XDinexitaXD]

@midlandinns I cannot see the whole story, it doesn't appear.. I am so, so sorry that your little boy passed away. He'll always be in our hearts.

[djsilbs42]

My infantile spasms 'baby' is in college making straight As. There is always hope. What a overly child you have.

[sjoeleo2]

My baby boy Leo had inantile spasms at 6 months back in Aug 2002. The seizures lasted for 1 month. The Neurologist put him on a med called Zonegran. We were told he had a 15% chance of coming out of this syndrom. He is now in the 3rd grade in reg school. He is a very happy child, very Hyper, but he cant stay focused. He thinks out of the box and comes up with some things that make you laugh. We love him he is our world. Our prayers go out to your family and your child.

[savera777]

@sjoeleo2 i found my baby boy having this west syndrome only a couple of weeks ago. he is under medicaiton now. but lots of question are hunting my mind. is your boy okay now.? is he like other child? please give me more information so that i cud help my baby. now he seems lost in his own world. he cudn't raise his head. and he doesn;t follow light and sound whereas his VEP and AEO reports are alright..

[XDinexitaXD]

@sjoeleo2 thank you so much. that gives me so much comfort. Carolina's not doing good at all but we'll still be praying for a miracle to come. We believe in her.

- Carolina's cousin.

[mom2ericnb]

The seizure activity in children is definitely attributed to vaccines, especially the aluminum in them!

[djsilbs42]

@mom2ericnb

That has been disproved over and over again. No serious researcher into IS takes that seriously.

[ShawnaMckay]

There is a medication used in Canada called Vigabitrin (Sabril). My daughter was diagnosed Jan 2010 at the age of 6months

[XDinexitaXD]

Shawna, I truely hope she gets well soon, only us, families with children dealing with this situation, know the pain of dealing with it, God bless you and her.

[isisisabel]

didn't know about infantile spasm till my 11 month old sister got diagnosed with it..i'm so heartbroken, babies should not get sick, bad people should.

[XDinexitaXD]

that is very sad; Im sorry. I never knew about this neither untill on October 2008 Carolina was diagnosticed and I started my research. I hope your sister gets healed and I hope my Carolina does too! lets find a cure.

[XDinexitaXD]

I couldn't agree more with you. My Baby Girl, Carolina is just a light in this world and we love her so much. Please pray for us, Ill pray for your little Girl aswell.

[cinnamoncandy674]

I would do anything to help this poor little girl. May god bless little Carolina

[XDinexitaXD]

beutiful, Anastacia.

you got me in tears.

west syndrome..the worst is seeing her in pain, knowing we can not do anything at all, and one of the things we daily think is about the future, will she be able to grow up like other children or will she be traped into the dark world of epilepsy?

this is brilliant,

please, help us find a cure.

Carolina, you're my angel and I am always with you, never forget Im always by your side. you're only mine, baby!

thanks sooo much Anastacia !!!

[theKathy1989]

Beautiful video .. Thanks for sharing!!

[look4maddy]

really sad, good to raise awarness for this!