Frank, I wish I had seen this video back in 2003. I wondered why my daughter seemed a little "thick" around the middle, but she was ten years old and every one said it was just baby fat, but her legs and arms were thin. Long story short, by the time my girl was diagnosed she was a stage 3 Renal Cell Carcinoma/Wilm's Tumor. She was treated at the Children's Hospital in Philadelphia and is 19 and doing well today.
mi sobrinita de tan solo 3 años se le ha manifestado hoy un tumor de wilms, ella en estos momentos esta hospitalizada, luchando .Ella se llama Francisca Labrin Ortiz, estamos todos esperanzados que saldra de esta enfermedad tan horrible y angustiosa sobre todo para sus padres y familia.Es por eso que les pido que recen por ella, estria eternamente agrdecida...gracias y que Dios los bendiga....
@ThePrediego69 Lo siento para la enfermedad de su sobrinita. Estoy rezando por ella. ¿Cómo está ella hoy? Estoy investigando este enfermedad en la universidad, y recientemente ocho personas de mi área natal se les ha manifestado un tumor de Wilms. Quiero ayudarlos en cualquier manera posible.
@ThePrediego69 Lo siento para la enfermedad de su sobrinita. Estoy rezando por ella. ¿Cómo está ella hoy? Estoy investigando este enfermedad en la universidad, y recientemente ocho personas de mi área natal se les ha manifestado un tumor de Wilms. Quiero ayudarlos en cualquier manera posible.
my son was diagnosed with a wilms tumor when he was 20 months old in may of 2008. I noticed his side was puffed out. He goes to St. Jude at johnson city medical center in TN, his tumor took up his entire left kidney and it was removed it weighed 2 pounds and was the size of a softball. He did 21 weeks of chemo. He has been cancer free 1 year so far...all his tests have been coming back clear..
I had Wilm's tumor too TWICE! Once at 9 months and then again at 3. Needless to say both my kidneys have been removed, except for 20% of my left one, and I recieved a kidney transplant at 18 years old. I'm 22 years old now and partying it up in Europe!! Woohoo! Live life <3
@mspepperr I am shocked that you had two bouts with Wilms tumor. Usually one gets it and continues treatment with chemo and or radiation for a period of time.. I am glad you are ok now. Live it up! Prof.Frank Friedman
@outstounding sir im earl from philipines my 4 year old sister has wilm`s she had already undergo surgery last jan.10,2011. the left kidney was taken and acording to the doctor here she is already in stage 4...... they said that she should undergo radiotherapy and chemotherapy.... and it should be done in U.S but we cant sustain that huge expenses. is there any group in your country that may help us? pls email me at earlpiecagadas@ymail.com.....
I am currently 15 but I had Wilms Tumor when I was 8. I was stage 4 of 5 stages - 5 being incurable. I can tell you, IT SUCKS! I had it in my left kidney (now removed) but it had spread to my stomach, a little to my lungs I belive and I had a mass in my artery in my heart. I had gone through many months of chemo/radiation tharapy.. My simptoms where Stomach pains, high blood pressure, headaches, and finally I urinated straight blood with clots. Like I said, this cancer straight up SUCKS!
@braaup 15 years old. I am sorry for all the trouble you had. I hope you are feeling better. Wilms hits about 500+children every year. Many times we dont know why it happens. Thanks for your comment.
@outstounding I am feeling great! Next Feburay, it'll be 8 years since I have been diagnosed, Next August, I would have been cancer free 8 years! The doctors had told me that they believe when I was born a cell or two where messed up when I was born and it has grown over the years. My kidney was massively oversized. I have a picture somewhere on my computer of it. Looks horrible! Had, you, yourself have cancer or does the topic just intreeg (sp?) you?
@yurtoobe It is unususal that Wilms hits at age 24. If you want email me for further discussion. My prayers are with you. I hope you get the right treatment
I am a thirty two year survivor of Wilms Tumor ( had it at age seven in 1977) It is awesome there is such a high survival rate and I feel blessed that my chemo proocol worked so well.. im a blessed mom of 4 healthy children!
I have watched this video a number of times, and always enjoy it. As the mother of a wilm's tumor survivor, I am glad the word is getting out to help save other children. Sally Z
i am so glad you are making these videos and getting the message out to people. We were so lucky that my mom knew my brother so well and knew that something was wrong before the tumor burst out of the kidney. thank you for everything you are doing. people need to know the signs to save there child.
The sound quality is way too low. I tried listening on two different computers to no avail. Also, Frank would benefit from a teleprompter. As it is, he is reminiscent of Chet Huntley. Otherwise, it is a nice presentation, and very informative.
Thanks Prof!
dat90zkid 5 days ago
Frank, I wish I had seen this video back in 2003. I wondered why my daughter seemed a little "thick" around the middle, but she was ten years old and every one said it was just baby fat, but her legs and arms were thin. Long story short, by the time my girl was diagnosed she was a stage 3 Renal Cell Carcinoma/Wilm's Tumor. She was treated at the Children's Hospital in Philadelphia and is 19 and doing well today.
themostawesomone 4 months ago
This has been flagged as spam show
I was diagnosed with Wilm's Tumor Stage 3 when I was 23 years old. I am about to celebrate my 51st Birthday...
Since we individuals with Adult Wilm's are a rare bunch I would like to share my e-mail if anyone wants to chat.. lkimveino@hotmail.com 21/04/2011
cookie919260 9 months ago
mi sobrinita de tan solo 3 años se le ha manifestado hoy un tumor de wilms, ella en estos momentos esta hospitalizada, luchando .Ella se llama Francisca Labrin Ortiz, estamos todos esperanzados que saldra de esta enfermedad tan horrible y angustiosa sobre todo para sus padres y familia.Es por eso que les pido que recen por ella, estria eternamente agrdecida...gracias y que Dios los bendiga....
ThePrediego69 1 year ago
@ThePrediego69 Lo siento para la enfermedad de su sobrinita. Estoy rezando por ella. ¿Cómo está ella hoy? Estoy investigando este enfermedad en la universidad, y recientemente ocho personas de mi área natal se les ha manifestado un tumor de Wilms. Quiero ayudarlos en cualquier manera posible.
maizeout2014 7 months ago
This has been flagged as spam show
@ThePrediego69 Lo siento para la enfermedad de su sobrinita. Estoy rezando por ella. ¿Cómo está ella hoy? Estoy investigando este enfermedad en la universidad, y recientemente ocho personas de mi área natal se les ha manifestado un tumor de Wilms. Quiero ayudarlos en cualquier manera posible.
maizeout2014 7 months ago
my son was diagnosed with a wilms tumor when he was 20 months old in may of 2008. I noticed his side was puffed out. He goes to St. Jude at johnson city medical center in TN, his tumor took up his entire left kidney and it was removed it weighed 2 pounds and was the size of a softball. He did 21 weeks of chemo. He has been cancer free 1 year so far...all his tests have been coming back clear..
yhallmomof3 1 year ago
I had Wilm's tumor too TWICE! Once at 9 months and then again at 3. Needless to say both my kidneys have been removed, except for 20% of my left one, and I recieved a kidney transplant at 18 years old. I'm 22 years old now and partying it up in Europe!! Woohoo! Live life <3
mspepperr 1 year ago 2
@mspepperr I am shocked that you had two bouts with Wilms tumor. Usually one gets it and continues treatment with chemo and or radiation for a period of time.. I am glad you are ok now. Live it up! Prof.Frank Friedman
outstounding 1 year ago
@outstounding sir im earl from philipines my 4 year old sister has wilm`s she had already undergo surgery last jan.10,2011. the left kidney was taken and acording to the doctor here she is already in stage 4...... they said that she should undergo radiotherapy and chemotherapy.... and it should be done in U.S but we cant sustain that huge expenses. is there any group in your country that may help us? pls email me at earlpiecagadas@ymail.com.....
nytwalker10 11 months ago
Thank you...your comment inspires me.
My son is now 11. He has relapsed 4 times since 3 yrs old....
I can;t wait till he is in Europe at 22 partying too!!!!!!!!!!!!!!!!!!
TheGlo2glo2 11 months ago
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Thank you...your comment inspires me.
My son is now 11. He has relapsed 4 times since 3 yrs old....
I can;t wait till he is in Europe at 22 partying too!!!!!!!!!!!!!!!!!!
TheGlo2glo2 11 months ago
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@mspepperr Thank you...your comment inspires me.
My son is now 11. He has relapsed 4 times since 3 yrs old....
I can;t wait till he is in Europe at 22 partying too!!!!!!!!!!!!!!!!!!
TheGlo2glo2 11 months ago
I am currently 15 but I had Wilms Tumor when I was 8. I was stage 4 of 5 stages - 5 being incurable. I can tell you, IT SUCKS! I had it in my left kidney (now removed) but it had spread to my stomach, a little to my lungs I belive and I had a mass in my artery in my heart. I had gone through many months of chemo/radiation tharapy.. My simptoms where Stomach pains, high blood pressure, headaches, and finally I urinated straight blood with clots. Like I said, this cancer straight up SUCKS!
braaup 1 year ago
@braaup 15 years old. I am sorry for all the trouble you had. I hope you are feeling better. Wilms hits about 500+children every year. Many times we dont know why it happens. Thanks for your comment.
outstounding 1 year ago
@outstounding I am feeling great! Next Feburay, it'll be 8 years since I have been diagnosed, Next August, I would have been cancer free 8 years! The doctors had told me that they believe when I was born a cell or two where messed up when I was born and it has grown over the years. My kidney was massively oversized. I have a picture somewhere on my computer of it. Looks horrible! Had, you, yourself have cancer or does the topic just intreeg (sp?) you?
braaup 1 year ago
I was just diagnosed with Adult Wilms Tumor and I'm 24 years old.
yurtoobe 1 year ago
@yurtoobe It is unususal that Wilms hits at age 24. If you want email me for further discussion. My prayers are with you. I hope you get the right treatment
outstounding 1 year ago
Comment removed
yurtoobe 10 months ago
@outstounding
There was a mistake.. My diagnosis is Desmoplastic Small Round Cell Tumor and I am now in remission.
Thank you for your kind words.
yurtoobe 10 months ago
I am a thirty two year survivor of Wilms Tumor ( had it at age seven in 1977) It is awesome there is such a high survival rate and I feel blessed that my chemo proocol worked so well.. im a blessed mom of 4 healthy children!
bahlee100 2 years ago
you go girl;)
ladikira86 2 years ago
@bahlee100 I am so glad you are fine and that you have 4 healthy children. Good luck.
outstounding 1 year ago
i had wilms tumer when i was 5 or 6 cant exactly remember well im 14 now and not a trace of it left so far
pyrath1 2 years ago
Yeah me too i had it at 3 yrs old. 18 years old now and loving life!
ladikira86 2 years ago
Hola, veo este video desde México, me entusiasmo cada vez que lo veo, gracias por compartir
ObedJr123 2 years ago
I have watched this video a number of times, and always enjoy it. As the mother of a wilm's tumor survivor, I am glad the word is getting out to help save other children. Sally Z
jojozoski 2 years ago
Frank, I watched this video too. Hopefully this post will show up.
Joni
medemar 2 years ago 2
i am so glad you are making these videos and getting the message out to people. We were so lucky that my mom knew my brother so well and knew that something was wrong before the tumor burst out of the kidney. thank you for everything you are doing. people need to know the signs to save there child.
krism2186 2 years ago 2
Very nicely done, Professor Friedman. Thanks for sharing this. Ben A, WMU--alumni, 2 sems of French, MCC 1971
benjatchison 2 years ago
This has been flagged as spam show
The sound quality is way too low. I tried listening on two different computers to no avail. Also, Frank would benefit from a teleprompter. As it is, he is reminiscent of Chet Huntley. Otherwise, it is a nice presentation, and very informative.
amalek27 2 years ago
Nice job Prof Frank. I will be looking forward to your next video. sally Z
jojozoski 2 years ago