Meniere's disease

[bleechedbones]

is this a joke?? if you had a vertigo attack you won't be holding your ear to think or ask what's wrong with you!

[menieresworld]

There's a social network for Meniere's Disease sufferers, their family and friends. It has forums, groups, video, chatrooms, games and loads more.

Just Google menieresworld

[blacksultan85]

BINGO!

[MsChococat99]

My mom has Meniere's disease.She's had it for a long time.she used to get attacks alot and would have to go to the hospital.She had a hard time because all the doctors could tell us was that it was just vertigo.Shes also deaf in one ear.it went on for a few years and my mom kept going to special doctors.it was so frustrating because nobody knew.a doctor finally diagnosed it and now with the right diet and everything she doesnt have as many attacks.now if she has an attack.she just takes a pill.

[pmvonrabenau1]

AnkoLightAngel : Attention: How did your Romainian visit go ? It has been 2 months now. Any results to share?

[DenriTheWolf]

I find this terribly hard to masterbate to.

[AnkoLightAngel]

Hey! I have Meniere's disease and in my country (Romania) can be cured. Next month i'll go in Bucharest to the hospital Sfanta Maria to make therapy there with something named Meniett and i understood that in 5 weeks i will be cured. So, i'm very happy, that here, in Europe, this disease can be cured.

[babsyluv]

@tiborzkarate could be an allergy to Rye please check it out took me several visits to figure that out check your allergist

[babsyluv]

I have had this since I was a child how I wish the doctors had diagnosed it then. It could have saved a few broken bones bumps bruises I got from just doing the things kids do.

[outraged4U]

Does this mean I have to give up swimming at the public pools? I wonder if swimming makes it worse or more likely?

Seems similar to Labrynthitis.

[elliebabe155]

@outraged4U Hey i have Labrynthitis! and i used to swim alot my doctor told me to do less swimming because it can and will upset the Middle ear and effect your balance and can cause more Dizziness attacks so i do less swimming now hope that helps :) x

[outraged4U]

@elliebabe155 Ah. Thank You. Dissapointing from me then, as I do like swimming and the exercise is good.

[Boudiicca]

Thanks for sharing. I also have meniere's disease...nice to see I'm not alone!

[johnjroberts1]

For those of you who are on facebook, there is a support group for menier's people called ''LIVING WITH MENIERS"  alot of support from people just like us

[dbarry1000]

Alcohol is a huge factor! Can't drink like I used to, hard to give it up completely. Epley couldn't hurt either.

[hollysmedia]

Jesus heals

[yuzuney]

well done!

[YourSexToys]

Thanks I really enjoyed this my mom-in-law actually suffers with meniere's...

[tgon1563]

Dietary Goals For Meniere's Disease - The overall goal is to provide stable body fluid/blood levels so that secondary fluctuations in inner ear fluid can be avoided.

To achieve this goal, take the following steps:

Distribute your food and fluid intake evenly throughout the day and from day to day.

Eat approximately the same amount of food at each meal, and do not skip meals. If you eat snacks, have them at regular times.

[tgon1563]

Meniere's Disease Dietary Suggestions

Certain substances in your blood and other body fluids influence the inner ear fluid. For instance, when you eat foods that are high in salt or sugar, your blood level concentration of salt or sugar increases, and this, in turn, will affect the concentration of substances in your inner ear.

[UnionCheb]

Ménière's disease can also cause Candida Albicans

[jamal03]

im suffering from this right now!!! i feel so sick....and as i read the comments im starting to figure out other stuff that has been going on with me thats associated this this disease and i cant believe i have it!!!

[plapnab]

Can someone tell me if you can have Meniere's disease and not get severe dizzy spells? About four years ago I was diagnosed with it. All my symptoms vairy in severity from day to day (i.e. pressure and fullness in ear, hearing loss, tinnitus from faint to roaring, brain fogginess) yet I have never had an episode of vomiting or the drunken dizziness that is associated with Meniere's. Treatment with Dyzide, low salt, no alcohol all help. Have I been misdiagnosed? Should I get a 2nd opinion?

[denimdizzy]

@plapnab make sure you have an mri of the brain and an ENG done my your ENT. I have it in both ears, I now where hearing aides, some have it more servere then others but make sure you have those 2 tests done, don't believe they should diagnoses without it. God Bless

[StalkerSwim]

@plapnab I have the fog bad almost everyday all day, with brief moments maybe 13-17 seconds where I feel ok. Not alot of time to enjoy life with this disease. Tinnitus and dizzy usually hit me all at once maybe once a day once a week it's unpredictable. Anyway my point is... One symptom of menieres everyday is enough to fuck up your life.... So Be thankful I guess that you don't have all the symptoms, but don't for one minute think it's not horrible just because you have good days. -Menierian

[sirlanc]

Meniere's Syndrome (III) means this is the number III paper written on this subject by this doctor.

[55098]

I throw up from this shit when it happens its so bad I cant even pick myself off the floor the symptoms usually last for atleast 2.5hrs

[sUUpErC00W]

When i do sports or anything really active my vision gets blurry and starts to move and bend forward and backward. If i stop and take a break its gone but when i start it returns. Help?!

[sirlanc]

It's becoming common knowledge that Meniere's is caused by a viral infection and can be cured in 85%~90% of cases by taking Valtrex 1000mg or Zovirex 800mg three times a day for 4~6 weeks. These drugs are not even mentioned by most ENTs could lead many a reader to consider drastic, ineffective and irreversible surgical management which is still being pushed by many lagging doctors.

[stecos2806]

Sources?

[sirlanc]

Department of Otolaryngology-Head and Neck Surgery, University of Massachusetts Medical School,

Morphological and clinical evidence supports a viral neuropathy in Ménière's disease (MD). Quantitative examination with transmission electron microscopy of vestibular ganglion cells excised from a patient with MD revealed viral particles enclosed in transport vesicles. Antiviral treatment controlled vertigo in 32 of 35 patients with MD (91%). PMID: 19142031 [PubMed - indexed for MEDLINE]

[sirlanc]

"Effectiveness of Acyclovir on Meniere's Syndrome III Observation of Clinical Symptoms in 301 cases," Mitsuo Shichinohe, M.D., Ph.D., The Sapporo Medical Journal, Vol. 68, No. 4-6, Cases of 301 MD patients treated with antiviral meds The results were: In 82.5% of cases diagnosed as Meniere's Disease, 85% of cases diagnosed as Meniere's Syndrome, and 89.1% of cases diagnosed as vestibular dysfunction, vertigo disappeared, and tinnitus and hearing were improved.

[anawin7]

I have a question for you, well i've trying to get information about MD on youtube in spanish, so I'm a little bit unsecure about some things, I understand everything you put here, there is just one thing I want to know, What do you mean by Meniere's Syndrome (III) I dont understand this part (III) ...thanks a lot for your info...

[kamakazzii]

and i lost my right ear not to much later. and to 1groovygroves your right about the 4 symptoms but there is a 5 that can be cause from it head aces sept mines a 24 hour pressure head ace its kinda hard to explain but its really sucks :(

[kamakazzii]

im going to try to keep this short . i went threw everything this guy did i had 5 doctors mess with me before they could finally figure it out and it was me that figured it out looking threw forums. point is your right there is no cure. but there is a drug that really does work. some people may not live in Oregon but if you do we have medical marijuana here. and it work great for everything.trust me. and yes i have lost all my hearing out of left well doc says 90% but i cant here out of it

[TINHET]

I was diagnosed about 4 yrs ago. I've had meds which dont help at all. I've cut out everything possible and it had no effect...I'm just learning to live with it now. I get bouts every few months..today my tinnitus is bad..the fullness is back and that hyper sensitivity to some sounds...I'm almost completely deaf on the left side. I also get nystagmus with the virtigo and vomiting and the pressure build up and tinnitus...could be worse though! and no...there is no cure.

[sirlanc]

It's becoming common knowledge that Meniere's is caused by a viral infection and can be cured in 85%~90% of cases by taking Valtrex 1000mg three times a day or Zovirex 800mg five times a day for 4~6 weeks. These drugs are not even mentioned by most ENTs could lead many a reader to consider drastic, ineffective and irreversible surgical management which is still being pushed bymany lagging doctors. See Sources I have added:

[sirlanc]

Department of Otolaryngology-Head and Neck Surgery, University of Massachusetts Medical School,

Morphological and clinical evidence supports a viral neuropathy in Ménière's disease (MD). Quantitative examination with transmission electron microscopy of vestibular ganglion cells excised from a patient with MD revealed viral particles enclosed in transport vesicles. Antiviral treatment controlled vertigo in 32 of 35 patients with MD (91%). PMID: 19142031 [PubMed - indexed for MEDLINE]

[sirlanc]

"Effectiveness of Acyclovir on Meniere's Syndrome III Observation of Clinical Symptoms in 301 cases," Mitsuo Shichinohe, M.D., Ph.D., The Sapporo Medical Journal, Vol. 68, No. 4-6, Cases of 301 MD patients treated with antiviral meds The results were: In 82.5% of cases diagnosed as Meniere's Disease, 85% of cases diagnosed as Meniere's Syndrome, and 89.1% of cases diagnosed as vestibular dysfunction, vertigo disappeared, and tinnitus and hearing were improved.

[1groovygroves]

there is no cure if you cured it; you never had it. True meniere's causes deafness. it has only four symptoms (see merk manual) 1 hearing loss, 2. fullness in the inner ear. 3. ringing in the ears (so loud it can wake you) 4. spinning that doesn't stop if kept still. (if spinning stop when still it's vertigo not the meniere's symptom). people that say they 'cure', it; might curtail symptoms of vertigo or ringing in the ears but not menieres. stop diminishing the seriousness of menieres

[kamakazzii]

check my post out let me no if you get head aces

[khauul33]

I was diagnosed last year but i suffered from dizzy spells, ear loss, ringing in my ear and headace since I was five years old. I am 24 now and they ran every test and finally got a ENG done and that is when i got the news. i have to stay on a low sodium diet. that means no more than 1500 to 2000 mg of sodium a day, no caffene, no alcohol, and no chocolate. so far that is helping me. They told me they can cut out the inner ear but that will leave me deaf. i'm not going down that road.

[Winter077]

omg I feel sorry for you people...that must suck!

[w4wxp]

I can tell you, from being in support groups with people that have had it, and from having it for years, that there are more than the 4 official symptoms, the number one one being "Brain Fog" which does a number on memory, balance, thinking, and concentration.

[reaper172010]

Try Chiropractic care, go listen to a health talk about improving how your nerve system function.

You have nothing to loose, but everything to gain!

[du1twa]

Was able to cure my meniere by following these: CATS

avoid the following:

Caffeine

Alcohol

Tobacco

Stress/Salt

Hope this helps.. Try the breathing exercises of yoga and martial arts.

[engl4nd24]

I just got diagnosed....today. Im a little scared, but shit happens, and I guess we have to deal with it. God bless.

[madlam83]

any improvement?

[engl4nd24]

Actually, I havent had another attack since - hearing still isnt stellar, but its good enough not to need hearing aids. So I guess im doing alright thanks.

[7aMoODaiZER]

its been 3 years for me and daily i wish to die i really need the cure am desperate

[xp1112003]

I have meniere from Year , what is the Solution i cant drive ,,,

[sunkat76]

Is that because you are not permitted to since the diagnosis of Meniere's or because the symptoms are so bad that you are not able. Did you have to notify the DVLA?

[Sheenbean000]

I think I have had it since I was a baby..cause I had lots of ear infections and speech problems..learning problems..tubes...and now i am 22 and I have noticed HORRIBLE symptoms...like dizziness,balance,eye jerking, hard time concentrating..etc especially after eating..I HATE IT!!! it is disabling my life!! we need to find a cure! i wanna find friends who have the same condition and some advice!

[KrisMayeaux]

My mom had it so bad every week for 4years- once I was driving her somewhere, she gasped in horror because she thought the car had flipped over. Thats what it felt like to her and for hours she was spinning. Now she hasn't had any attacks since Oct 07 when she got two shots of a steroid - a long acting and a short acting. Plus she takes sudafed (30mg)every day and diuretics. But IF you have a bad attack take valium and meclizine quick. The valium KNOCKS it OUT fast; meclizine for nausea.

[dirtylittlehussy]

um, meniere's doesn't give you speech or learning problems.

[Pist0ns]

@Sheenbean000 I have meneries disease too . It was my time in 2003 :( that really suck!. you feel better so far?? i want to know

[AnkoLightAngel]

@Sheenbean000 It exist a cure. in Romania, my country, it exist a hospital that has something named Meniett. It's very good. search here for more info meniett.com

[007MrMagoo]

@Sheenbean000 I know it was 3 years ago but I could relate to every word you wrote. Did you manage to find any help? I'm tired of trolling through endless info only to wind up where I started.

[SKTPSY]

I have symptoms of MD but mistakenly told consultant that I have Migrane, in fact I meant to say was headaches. Now despite my severe vertigos, nuseas, sickness, I have been told that I have Mengrane. My life is upside down anf those meant to help me isn't listening.

[imakemorethanhim]

Why would any policment HARRASS a deaf person or a hard-of-hearing person?

Care to answer Mr. Buying tan

[imakemorethanhim]

i kNOW

[BCFCUKJP08]

btw...........i thought given what menieres does to us...the fact it was silent...was very appropriate.....good work guys

[friskyfrozen]

haha! i didn't notice it until you pointed that out. thanks!

[superkikki]

..thank you very much. I have meniere too since I have 16 years, now I'm 25...I'm classical musician

[friskyfrozen]

you're welcome. best of luck! :)

[bringbackengland]

I cannot begin to explain how much I panic when I have an attack, alot of the time I feel off-balance which aint nice but the vertigo attacks scare the shit out of me! good video by the way.

[friskyfrozen]

thanks!

[elliebabe155]

@bringbackengland i hate vertigo attacks! im glad im not the only one who panicks! Im suffering from a Bed episode of it these couple of weeks it just doesnt seem to be carming down :( going hospital tomorrow!

[capnstanky]

my meniers felt like the worst bed spins x 10. I couldnt move my eyes or it would get worse than it already was. I could not walk or move any movement would cause me to lose all reference points in brutal spins. I strain to concentrate on the middle of my forehead some time it buys me time. The weather totaly affects me. I was prescribed dyazide for awhile it seemed to help.

[lilangel1593]

= O mine was d same! I couldnt move at all or i would be vomiting~..but I'm still not sure if I have MD T^T my left ear is ringing right now and I'm soo dizzy

[palmabhoy]

fuck!!! the video is good it doesn't have sound????,....

[friskyfrozen]

we didnt put sound bec there wasnt enough time to do so and it was meant to be used as a visual aid during a continous lecture. nevertheless, you guys are right, it would have been way much better with sound.

[NEWOSA65]

Good video but would have been better with some sound!

[Glahnnia]

I like this, I have menieres too Im only 18, I got it after medication they call it post menires