Max Galm Journey through surgery updated version

[assvomit13]

this sucks i have flat head well its not that serious just the back of the head is flat its not all bent and deformed that much but it just that i wish there is something i could do and i'm 13

[jamiehicks07]

ok r u maxsmommy on cappskids? i need help my daughter had surgury on oct.2008 and she hit her head really hard and know shes acting wierd is that her or have sumthin to do with her surgry?the bumb is like by her cut/..

[military6874]

when you say goes undiagnosed for too long i know what you mean. I was born in 1992 and though the doctors knew what was wrong (craniosynostosis) it wasn't until i was 13 that they actually put a name to it. Also i would recommend from personal experience that if your child needs to have a surgical procedure of any kind of this nature take him or her to children's hospital of either detroit or chicago. if you dont live close to there i know it may be a ways away but trust me, its worth it

[designertans]

@military6874 thank you. I hope that you will join our Facebook Page - Craniosynostosis-Plagiocephaly Support CAPPSKIDS

[military6874]

@designertans thank you. i will

[military6874]

@designertans sorry i posted the reply wrong but i did

[Rarwhhhhh]

Hii my names shannon galm i just relized this little guy could be related to me :( I hope he has a full recovery and best wishes for every thing :)

[Craniomommy]

Hi AMY WE LOVE YOU and MAX adding you to my favorites!!

[bradybunch79605]

Hi Max's Mommy,

Glad to have seen the video of it all, So thankful for the Cappskids site.

Ava's mommy

[livenlove0603]

I have Lambdoidal Craniosynostosis. I understand everything you have gone through. I am now 21 and I only had 2 surgeries because my insurance would not cover it and my family and I finally gave up hope of them ever covering it. My family was able to come up with the money to cover my first 2 surgeries but we can't cover the other ones that I need. When I was born and throughout my childhood my doctors never believed my mom that something was wrong with my head and face.

[princessjk02]

My son, who is a twin has been diaginosed with Positional Plagiocephaly and we have spent sometime trying to get him treated. Only to find out that our insurance will not cover the cost of the Cranial Molding Helmet that could hopefully save him from having to have the same surgery. We are now trying to raise the money to pay for the helmet. I just want to tell you that you are so brave. It breaks my heart to think of my baby having to do all, knowing it could have been prevented

[cbrayehart]

Hi, I saw a comment you made on another child vid, my both chldren have this condition, my son under went surgery at about 3 month old, my daughter did not require surgery, the only people who notice her sondition are doctors and nurses. What caught my attn in your comment is the fact you mentioned your son ia austistic, so is my son. I have never run across another family who's child has both conditions. Would love to chat!

[jayduhboo]

i just found out today my 7month ols daughter has this scared to do the surgry!! i cant stop cryin all day

[waRCOFFEE]

my son was born on 10 24 08 and was diagnosed with saggital craniosynostosis-he had his surgery when he turned a month old, man i cried when he came out of there and for several weeks afterwards i was a complete wreck-but he's fantastic he's absolutely amazing-no developmental issues or anything of the like-its a scary road to travel and its not a short trip just remember that babies dont see things like we do-it'll be fine be strong and dont be afraid to cry it helps

[saraby87]

I have had plagiocephaly when I was born.

I understand your son.

[anobody911]

do you still have it?

[hcso2058]

oh hes doing very well thank you

hope you little one is doing good

[hcso2058]

My little Ryan was born on 11/02/07 and he was diagnosed with sagittal craniosynostosis and he had surgery on 01/25/08 and so far everything is going as planed

You have a beautyfull child may god bless

[designertans]

Thank you! Hope your child is recovering well.