@jazza1975 brain tumor , mine grew back , now im looking at another brain operationl but thats the whole problem , with NF , the tumors grow back...i hope you are doing better..
very nice movie I have NF2 but have lots of friends with NF1 I think your movie was well thought out and explains about different forms of |NF well done.
i have nf1.. i also have a cafe oh lait (idk how to spell it) on my back.. they said its not dangerous but, we dont want to risk it getting the chance to turn into cancer so I have to have ANOTHER sugery sometime soon... :'(
Can you message me what the song is please i like the song and good job on the vid :D i have NF1
Rmorison100 1 month ago
HUgs Kyle...Good job!
ThrivingwithNF 1 month ago
can cause brain tumors such as pilocytic-astrosytomas , i have had most my life , will be 49 ..
lucrene1112 4 months ago
@lucrene1112 i had one of them too, they found it in sept 2010 and took them 3 ops till it was removed, they didnt even touch it the first two times.
jazza1975 1 month ago
@jazza1975 brain tumor , mine grew back , now im looking at another brain operationl but thats the whole problem , with NF , the tumors grow back...i hope you are doing better..
lucrene1112 1 month ago
wonderful job buddy...
mommabutterflies 7 months ago
Lovely video well done, i have NF1 you should post the link on the Facebook NF pages so other eople can help spread the word
amzpop100 8 months ago
very nice movie I have NF2 but have lots of friends with NF1 I think your movie was well thought out and explains about different forms of |NF well done.
MrLukehear 9 months ago
i have nf1.. i also have a cafe oh lait (idk how to spell it) on my back.. they said its not dangerous but, we dont want to risk it getting the chance to turn into cancer so I have to have ANOTHER sugery sometime soon... :'(
loves2Bcrazy 9 months ago
Good job men, the more awareness the better
Nfboy 10 months ago