For Couples Struggling With Interstitial Cystitis (Interstitial Cystitis Network)

[LiveInLight10]

it really sucks when you have a spouse who has no sympathy what so ever and refuses to help with the kids, errands or house work. When you live hours from family and friends and have a 2.5 hr drive to the closest doc who "gets" IC and beg to move but doesn't get you anywhere.....this situation it a big downer

[celspir1]

I'm 55 tomorrow and have been dealing with this pain since 91. I can't take it anymore. I'm so tired of hurting. Thanks to this information I realise that I am mostly responsible for not being more aggressive about getting some help. I had scar tissue removal thinking that was the problem. I ended up in ER 2 days later because scarring was not the actual problem. I even told my dr being with Jesus would be much better than this sickening pain. I am so tired of it.

[pickles1314]

I started getting symptoms at the beginning of my senior year of high school and had to drop out because of the unknown pain and bladder problems, it wasn't until the next year that I finally found a doctor that knew what I had, IC. I'd had a boyfriend for 4 years then 2 days before our anniversary (last thursday) he dumps me and blames it on my disorder, horribly depressing to say the least. I wish I'd shown him this video, maybe if he'd understood more it would've made a difference.

[jazziacssong]

There are great guys out there who will love everything about you and comfort you when you're ill. As painful as that break up was, he wasn't worth it. If it hadn't been IC, it would have been some other of his trumped up reasons. You, I can tell, are a worthwhile person. Take care of yourself, be good to yourself and allow your emotions and physical symptoms to heal. There's hope. I know of someone who is in remission, drinks and eats mostly what's appealing-- even Starbucks!

[CourtneyJust]

im 16 and ive just been told i have ic, after around 3 months of not knowing about my problems and after 3 nights in hospital with a kidney infection and a bowwel infection and on and off weeks of antibotics.