2009 Muscular Dystrophy Documentary

[LyricsCity1]

hi i am not quite sure about if i have Limb girdle muscular dystrophy or DMD.

[marcos26a]

Hi my name is Marcos Paulo.I'm from Brazilian and I have 29 years old.

I have DMD how a lot kids by world.

I'm very thankful by care and kind that my family give me,It's very important to whow have this disease the support of the family.The love is the best medicine to these kids.

[wwwLivingWithMDcom]

Hello i have just launched my Muscular Dystrophy forums/site, i intend for the community to grow at a good rate once i get the word out.

I am going around on youtube and attempting to contact everyone with md i can find to try and grow the community, i know i have been looking for decent forums for years.

Matt

[XtremelyAwesome1]

equipment is free in Australia for disabled people

[XtremelyAwesome1]

when I get depressed I think of heaven, hi I have dmd n I go to a MD camp in Australia

[dmdguy]

I have it, hence my youtube name, im 12, and i live a pretty normal life, i can walk, run(not very far though.), and i take prednisilone tablets and cal-chews. Im going to the the action duchenne conference in London!

[JADE244U]

My heart goes out to every single parent out there with a child with DMD. My 3 year old baby was diagnosed with it at 11 months of age. If it wasn't for my faith in Jesus Christ Our Savior I don't know what would it happen to me/us.I pray every day for the end and the cure of this disease. Please,know that you are not alone.

[inkimuff]

I work as a carer and have cared for a few people now with MD. But all those I have worked with have been inspirations in their own way. Not once have I heard any complaining. I used to hear more complaining from those who were more able to do everyday things, etc, than those I cared for with MD. Very old souls there, I suspect, which is probably why. My wish for the world is that a cure is found for it...

[FitnessMasterpiece]

Look, people i am so sick and tired of this stupid government. I am an M.D. survivor. All you need to do is simply heighten the intake of protein in whomever has the disorder(e.g. it is not a disease, it is a degeneration/disorder). Particularly eggs, Whey protein, soy protein and casein protein. I am speaking through personal experience, and not settling for my doctor telling me theres nothing we can do. I had a mild case of M.D. make sure that person gets their daily vitamins and exercise.

[scarletngold]

I can't watch this anymore. There needs to be a cure. Bless all of the families who deal with this monster disease everyday.  Lost my son last year at age 20. No one knows the difficulty that they live with everyday.

[Adamus70]

@scarletngold Everyone can help finding a cure for Muscular Dystrophy. Please write worldcommunitygrid into the search field of Youtube to get further information.

Installing the Programm BOINC on your homecomputer, you donate unused computer capacity to researchers. One of the projects is trying to find a cure for Muscular Dystrophy. Please note that this is fundametal research. So, a cure cannot be expected too soon, unfortunately. BOINC is safe and has been working several years now.

[dbaile2]

oh my god..I hope I dont have this...

[robmayben]

I am a high school teacher who works with students with all types of abilities. Over the past several years I have worked to develop a device to help my students stay independent in my classroom. Last month Fox News in California did a story about David, who also has Duchenne Muscular Dystrophy and my device the desktop desk. The story is on YouTube, desktop desk and David. I am very proud of how my device has helped provide opportunities for students.

[color57]

i have duchenne muscular dystrophy i was born normaly i was like anybody else then a few years passed and i reached the first stage not being able to walk im still in the first stage then u cant move your arms that much anymore then at the end of your 20s or 30s there is death thats the part that made me cry

[ZeteticMonk]

@color57 Don't lose hope. I have Duchenne muscular dystrophy and I'll be turning 34 this month. I don't use a tracheostomy, though I am using noninvasive ventilation. I also use a cough assist machine and some medications, but I still have a good lifestyle. This disease is not automatically a death sentence. A lot of it depends on your particular genetic makeup. We have a lot of modern medical technology to be grateful for. Plan for your future, because it could be a lot longer than you think!

[asinahi]

@ZeteticMonk

im doing an investigation for my university homework about this disease and im so impressed about your comment...woooooow and you have almost 34, God is blessing and it's so amazing!

i feel so impressed about your comment!!!!!!!!!!!!!!!!!!!!!!!­!!

God bless both of you guys!!!!!!!!!

im from Mexico...

[inkimuff]

@color57 Hey there, mate. Like the other person said, please don't lose hope. Improvements to treatments, etc, are being made all the time. Even something as simple as the breathing apparatus helps out by preventing hypoxia. I've worked as a carer for those with MD and a couple I know of were in their forties and fifties. They're still alive, too.  So, yeah, please don't lose hope...

[jcksrk]

Please make comments on video. Made when I was 18 years old to help others know about this rare disease that has no cure. Help tell people with Muscular Dystrophy you care, comment on the video, or if you have MD comment you have it and what type.