Cure Duchenne: Experts on Duchenne Muscular Dystrophy

[Htown20XX]

They do no research on mg its a very rare type of muscular dystrophy. My immune system irritates the motor nuerons. When i have an episode all i can do is go to bed. Its not fatal or disabling

[mrssclev123]

how can some one dislike this video. i dont know anyone with this horrible disease but i am 100% devoted to helping children have the best quality of life possible. I grew up with other problems and I wouldn't wish that on any other child in the world. lets stand together and cure duchenne!

[Dendude1]

2:42 start

end at 4:30

[92magdeburg]

I guess my 26 y old sister sufeer this DMD. Does this desiase sufferd by boys only?

[envee10]

Due to the mechanism by which most Duchenne cases are inherited, males are the vast majority of sufferers. If the genetic mutation occurs randomly (rather than being inherited from a parent) then it is possible for a female to suffer from the disorder.

[zoomcube]

No, but its really rare for a girl to have it. She either had to have been a carrier and a mutation occured or her dad had it and mother was carrier.

[ShakSaa]

cheak out my dmd video

[moviemakingbanter]

take a look at my DMD video - inspired by cure duchenne.

[moviemakingbanter]

i'm from the uk and my brother has DMD. he is 14 years old. our family is going through a very hard time at the moment. keep up the good work.

[smitsnewx]

I'm from australia with a 12 year old brother who has DMD and only this year has now been fully confined to a wheelchair. Seeing that progression is being made gives me and my family a lot of hope.

[dilan678]

i have a duchenne too but now at the age of 16 I can still walk and manage myself to do some stuff around the house also in school and I dont have any learning disabilities,breathing difficulties,calf muscles enlargement,spinal cord malformation, I FEEL THAT IM LUCKY COZ I DONT HAVE THE ALL KINDS OF SYMPTOMS! I WISH THAT I COULD HAVE A LONG LIFE WITH MY WIFE AND KIDS IN THE FUTURE! I HOPE THERES ALREADY A CURE

[Electrome]

my name is john ive got Dechenne Muscular Dystrophy im 23 years old now and i can still crawl and lift objects but im starting too get really weak now the doctor's still don't know what part of my gene is missing i'm glad that people like you guys are helping find cures too someday find a cure for all of us guys with this terrible illness thanks.

[edcorpuziii]

It is very sad indeed. Im a father of a 7 yr old boy with DMD and I have been searching for a cure. I hope that one day we can have the cure. It is very devastating for us parents to find out that our beloved son only limited lifespan as what our Doctor said. But I think it depends on how you maintain the situation. I have read an article about food supplements that will have to improve the muscles. Maybe some of you guys can justify this.

[DarkRain9000]

wow very sad. I almost cried when that father who was right by his son was talking about you don't know when one day he goes up to his son and he is no longer alive. I believe the cure is on the way. Some researchers says in less than a decade there will be some treatment or cure that can prolong and better the quality of life of people stricken with this disease.

[Vaibhav296]

It made me cry too......its like I could feel his pain....perhaps thats what my dad thinks about everyday :-(

[CapriceK]

PCT 124 is very promising, but it's only going to work on 10-15%, the ones with a certain mutation of it. It's actually showing results already, reports of increased stamina and endurance in muscles.

I'm so thankful that my DMD isn't as severe as some of these guys, that poor guy is now a quad! I'm 22 and only developed cadiomyopathy 2 years ago and only been on bi-pap for a year, most start getting those problems at 14/15. My brother is 24 and about the same level, without heart problems.

[sweettrav20]

gene therapy is being tested on humans. so far all the studies have shown that the muscle giving the gen is much stronger. soon (with in the next couple years) they hope the FDA will allow them to test it though the blood strem. if they get the ok from the FDA to do so, they will get $500 million in research. all they have to do it hope the body will not attack the gen. otherwise.....gameover on the studies life.

[xShAnAyNaYlovesTHx]

Cure Duchenne <33

i heard about this

and i think its so sad

that some boys will never fully experience life

im a girl

im just very lucky <33

[Patroels]

Keep up the great work, guys!

And to the rest of you out there, please support the funding of your local DMD-researchers!

All the best from a father of a Duchenne-boy.