Late M.E. sufferer Sophia Mirza - vid 1

[guvner2007]

The neglect iv had has been unreal! Who can i turn to? I gont have no friends and no family! They all are healthy and dont understand how i changed and dont want to know sick me! Il just carry on to waste away alone in my flat whilst an untreated infection picks me apart piece by piece! Thanks Uk! I swear i could write a book on the treatment iv had from doctors! Not 1 Of them has ever touched me to check what im telling them! I hate them so much and feel like snapping!

[guvner2007]

Everytime i go to the doctors with something new happening they say " Its a ME type thing" So many doctors tell me this! I got Muscle loss, Bone changes, Twitches, Nerve damage, Strange lumps, My back is in so much pain where iv lost muscle and it crunches together! Im not allowed a scan because its a ME type thing! So thats how it is for us is it? We dont get treatment just because its common to fall to pieces with this illness!

[guvner2007]

I have seen about 30 doctors in the last 6 years and only 1 took me serious! He didnt until i had changes on my joints that was happening in front his eyes as the days went on! He retired and now im back to drs not listening! You cant imagine how many times iv heard " Go and have a good beer" or " your wake up tomorrow and your feel better"

[guvner2007]

I couldn't believe it, When there are people who are out there like that then no ME sufferer has a hope! Doctors will keep treating us like loons! I wish people who want to find out what this illness is would contact me! If they want proof this illness is very real and can be transferred to partners im your man!

Its such a shit feeling knowing i have to stay away from family and watch what plate and fork i use or cup because im now so scared of family catching this! my life is hell!

[guvner2007]

Doctors are full of shit! I got ME, I know for a FACT its contagious! I got many visible symptoms and im so sick of going to doctors! Tbh i dont even believe what this vid says about some sort of treatment! How can they find a treatment and cure when they put all sorts of people in the ME group!

I went to a ME centre and there was a lady there who said her main symptom of ME was that she cant drink 2 cans of red ball without getting a high and then a massive low! This lady was classed disabled!

[lilpsylov116]

Absolutely depressing.

This disease was thought of a mental health issue for so long... I wonder how many other conditions currently marked as a "mental health issue" have similar causes and should be thought of as autoimmune or genetic diseases rather than being put in this "mental illness" category. The current mental health system is really disheartening and lagging in innovation. God bless all of those who've suffered or are currently suffering... all my love goes out to them. <3

[Masiyamusic]

May those responsible for this evil be brought to justice. We need the work of Judy Mikovits to be verified. I was on an interferon b trial in late 80s to no avail. I have had M.E since 82 we will not be pushed aside any longer. Our time is coming andf those who have mistreated us will be brought to justice. we must get the Mikovits tests veriiified. This is the brightest light for years. we will overcome all their arrogance and self righteousness. we are no longer silent the rage is coming

[rosybunny100]

A brilliant bit of reporting. I am heartsore for what Sophia and her wonderful Mum have been through. God rest Sophia and love to Criona who continues the fight for recognition of this terrible illness on behalf of sufferers like myself. xxx

[rainbowchild2009]

The day that Wessly, Chardler and White et al are brought to justice in a court of law for the persecution, cruelty, neglectful, malpractice and sadism shown against the 250k ME sufferers in the UK and never forgetting likes of the late beautiful Sophia Mirza and Ean Proctor is now a huge step closer. For that alone I will always be infinity grateful to the amazing researchers at the Whittermore Peterson Institute for their alluding to the cause of ME/CFS in XMRV Virus!

[lifegiving09]

Is it certain that the cause can and will be found in the XMRV virus?

A few months ago, they spoke in Belgium that there was a breakthrough, but there has been said that it still wasn't sure what the exact relation was between the XMRV virus and ME ..

[StopUnumNow]

"Collusion is also easier to defend if one party gains nothing from the encounter -- but when the doctor reaps a rich reward in fees, it is harder to claim a moral paternalistic high ground." Professor Simon Wessely in Unum's UK CMO Report, 2007

[rainbowchild2009]

Sentiments echoed to Criona what a truly brave and remarkable woman her daughters tragic loss and the circumstances were heart felt by the ME community at hole. I pray the Wessly school cronies are all brought to justice one day and they rote in hell!

Does any body know if Doctor Kerrs drug trials have started yet?

[Bluebottle83]

Criona, you are a brave and wonderful woman. Thank you fro continuing to fight for us.

May your lovely daughter rest in peace after so much suffering, and may she never be forgotten.

[robneal110]

Wow, this is the best ME news report I've ever seen. Not just spewing out the official psycho-babble tosh you get from a GP. Well done Meridien, and please give that reporter a raise.